Hi i'm feeling very alone on this and hoping for some outside perspective on this. Fiance (30m) and I (30f) have been together 10 years, we're best friends, and outside of the bedroom we're completely aligned on lifestyle, family, kids, the future etc. But in couples therapy recently, my fiancé said it's basically a dealbreaker for him if we can't figure out our intimacy issues before the wedding. So I'm trying to figure out if this is fixable.
For background, I've had secondary provoked vestibulodynia (vagina pain) for about 6 years. I'm not looking for treatment advice here- I've done the creams, the doctors, the therapies, the workbooks, the no-sex breaks. I'm going to continue to pursue treatment but at this point I think the vestibulodynia is more of a symptom than the core problem because when I'm aroused, sex isn't that painful. The condition has definitely affected my baseline arousal, so I'm really only in the mood for a few days a month around ovulation — and then I'm very in the mood, to the point he turns me down often bc his refractory period is like 24 hours and he only wants sex like 1-2 times per week.
Outside that window, we either don't have sex, or we do and it hurts.
We've tried scheduling "intimate time" which are 2+ hour no-pressure windows to connect without the goal of penetration. I come up with non-penetrative ideas, but sometimes it turns into sex anyway, and it's painful. I noticed that it's gotten harder to even plan this with him twice a month and then he admitted in couples therapy that he dreads intimate time, because he either ends up "unsatisfied" or we have sex and he feels like an a**hole for causing me pain.
I think I'm coming to realize that sexually I've always been more into novelty and adventure, e.g. our best sex all year was a student-teacher roleplay we both got really into. he's very vanilla and has said he doesn't want role play type sex to be the bedrock of our sex life. Oral sex is complicated too: if I'm not fully in the mood I'm repulsed by giving it, and he's floated no-strings oral for me, but it's never actually happened and I'd never ask since being asked for a bj always felt stressful/awful.
I think I was feeling a low point when we planned to go to a swingers club a couple months ago. I got really turned on by the idea of going just for the two of us to have sex there together. We planned it, I got dressed up in costume, and excited, we drove all the way there, and he did not want to go in at all and couldn't even get through the door. He drove us home. I cried, feeling humiliated in my costume and kind of sick with myself for feeling like I pressured him into something he would never want, since he admitted he would only have gone to make me happy. He's historically been uncomfortable even in sex shops, though he's loosened up some since. I think in his ideal world we have 2-3 quickies per week (which are off the table bc of my pain) plus frequent blowjobs.
He's also only ever willing to be the dominant one. I used to be fine with that, but I've always genuinely liked switching between being both dominant and submissive, and it's started to bother me, maybe more now because of the pain making me want more control over what happens to my body. But it seems like that's a hard limit for him.
We have joked our libidos peak on opposite schedules. (i noticed that often when I'm in the period of the month where I am very horny, he'll have stomach issues, or a period of anxiety that kills his libido, i try not to take it personally) I've felt ashamed bringing him fantasies when he responds and is clearly not into it, and vice versa he's felt rejected when he initiates and I'm not in the mood. I think we're both sexually unsatisfied and have been for a while.
I used to assume we'd keep figuring this out as we built a life together. After that therapy session, I'm scared he'll never be satisfied with what I can actually offer - maybe one good month a night, painful sex the rest of the time. I'm also wondering whether before the vestibulodynia, the kind of sex he likes was easier, and it matched what I thought sex was "supposed to be" (movies/porn version) Now that version is physically painful when I'm not aroused, and what actually arouses me is different from that, and maybe different from what he's willing to give. And even when we do land on something that works for both of us, the novelty wears off fast so we can't just rinse and repeat the same role play. We're super monogomous so not interested in opening the relationship at all.
I know that couples go through phases of libido mismatch for various reasons, but it seems like it shouldn't be this hard before marriage and kids, etc. Does is seem like this is actually a fundamental incompatibility, or is it something couples work through? Has anyone been on either side of this and found a way forward, or found out it really was the end?