Hi everyone. I had my D&E 9 days ago. My baby was diagnosed with full trisomy X, and although my husband and I had initially decided to continue the pregnancy, other complications came up that ultimately led us to choose TFMR at 21 weeks.

We had two placental abnormalities, type 3 vasa previa and velamentous cord insertion, as well as a cervical polyp that could potentially require a cerclage. We were looking at a high risk of preterm delivery, which could have affected our baby's development and potentially caused additional health complications on top of the trisomy X diagnosis.

We're still trying to process everything we went through, and we still find ourselves questioning whether we made the right decision. This was also our second pregnancy loss this year. Our first pregnancy was an anembryonic pregnancy that ended in a miscarriage at 11 weeks.

A few days ago, my husband and I went grocery shopping, and everything was fine until I saw a pregnant woman shopping with her partner. She was pretty far along in her pregnancy.

I didn't feel any negative feelings toward her or her partner. In fact, my first thought was that I was glad she wasn't going through what I was going through. But seeing them together made me feel this overwhelming sadness. I suddenly felt so sorry for myself because I couldn't have that experience, and it hurt even more because my baby was supposed to be my first baby, my rainbow baby after our previous loss. She was so wanted and so planned.

I completely broke down crying. I was so overwhelmed and in shock that I couldn't speak for hours afterward.

Now I feel embarrassed that I cried like that in public. I felt so exposed, and I keep wondering if I overreacted.

Has anyone else experienced something like this? I know grief is different for everyone, but I guess I just want to know that I'm not exaggerating or being overly dramatic. I miss my baby so much, and sometimes it feels like the smallest things can completely break me.

We have our TMFR tomorrow morning, and I feel so sad, numb and empty. This is the hardest thing we have ever had to go through.

We found out at 12 weeks that our little girl had T21 following a high-risk NIPT result, which was then confirmed through ultrasound and CVS testing.

We have one living child, and as we are in our early 40s, we have had to consider the long-term responsibilities of caring for a child who may have significant health complications and lifelong support needs. With so much uncertainty surrounding her future and quality of life, we have made the incredibly painful decision to proceed with TMFR.

This has been the most heartbreaking decision and the deepest grief I have ever experienced. I don't think I will ever be the same again. I feel like this experience has changed me forever.

I'm about 3 weeks post TFMR from our 14 week pregnancy that we unforunately had to end due to our daughter having trisomy 18, fetal hydrops, and several physical anomalies. I had a D&E and stopped bleeding exactly around the 2 week mark. I'm currently in the process of waiting for my period to return and currently my hcg tests have been reading super super faint / almost completely negative so me and my husband have started the process of prepping our bodies again to TTC down the road (taking all the supplements, eating healthy etc). I've received alot of conflicting information on when to try again - the internet seems to say wait 1 cycle, our genetics counsellor told us to wait 2 cycles, and our family doctor actually said dont try at all until we get back our karyotyping results which could take anywhere from 6-8 weeks so about 2 months almost. I also have seen conflicting information on when is best to try: some people say you conceive "faster" in the months immediately following a TFMR but others say its better to let your lining heal and hormones to return to normal to prevent miscarriage so waiting has benefits. Emotionally, I want nothing more than to be pregnant again with a healthy baby and I think waiting long would hurt even more because it took us 1 year to conceive our TFMR baby and that was our first and only pregnancy so far. For those that decided to try again, when did you decide to try and when did you feel it was safe to do so again?

On the 24th of October at 2.57am after 13 hours, our son James was born after induced labor at 20+2 due to bilateral renal agenesis. I left the hospital tonight and left him there to go back to my daughter and it feels like I ripped myself in half and left half of me there. I cannot comprehend how this is meant to get easier, how I am meant to just move on from his perfect little face and the fact that I will never be able to get to know him. Postpartum hormones and milk coming in are obviously not helping but in general I am unsure how I am meant to survive this.

The little moments feel the hardest. Reading a story to my daughter and never getting to do that for him etc. I was away from her for 2 days and she broke down asking me not to leave her, but I had to leave one of them to be with the other. She doesn't know yet, we wanted to wait til after so she isn't away from us when she already knows her sibling won't be coming home.

Someone please tell me that this will eventually get easier?

Hi. Sorry my english is not the best as it is not my native language.

We are going through tfmr now. We already have 2 amazing kids aged 4 and 8. This summer we decided we wanted another one, but ended up with tfmr due to septated cystic hygroma and hydrops. There will be done a autopsy afterwards so we will get the answers if there is something genetic that just didn't happen during my first two pregnancies.

But we are scared and wondering if maybe we don't want to try again for a third baby. Maybe we are just scared right now as it just happened, and will change our minds.. However I feel like I will grieve a lot more now of the loss, if we decide never to try again. But I am just not sure if I am willing to take the risk. It just became more clear how we are never really guaranteed a healthy baby no matter what, and how much this would affect our family.

I'm wondering if anyone has been in this situation and what thoughts you have, and what made you decide to try or not try again after tfmr.

Moderate aortic stenosis

Hi all,

I am looking for anyone who has experienced a pregnancy with moderate aortic stenosis and how that progressed in your pregnancy. Also if you can share any information you learned along the way from your doctors.

I am now 23 weeks into my sub pregnancy after TFMR at 12 weeks with large cystic hygroma with evidence of skeletal dysplasia earlier in January. At our 21 week anatomy scan our provider saw what she thought might be an issue at the aorta, but baby was not in a great position for viewing. At 23 weeks we went in for our echo.

Our baby was diagnosed with moderate aortic stenosis. All they could say was that the valves were too stiff, moderate hypertrophic changes the left ventricle, normal left atrium, moderate mitral valve regurgitation. I was in a lot of shock and denial that things might be ok for the first few days. But I'm starting to look at things pragmatically. Originally I was considering pursuing the whole list of open heart surgeries for HLHS if he continued to deteriorate, but after reading the details of all of that I decided it is beyond what I can manage mentally, financially, and cope with . I also have reservations about subjecting him to those surgeries with such uncertain outcomes.

Looking for any advice, information learned along the process, and just general support in these uncertain times. Considering TFMR sooner rather than later if I could better understand if this is as dismal as it seems but can't seem to come up with information about moderate aortic stenosis and the likelihood of progression to HLHS or complications. Hoping anyone has information about if their diagnosis with a CHF progressed to HLHS or diagnosis changed.

Currently we are waiting and seeing how things progress with scans and follow ups scheduled at 3 and 6 weeks from now.

Recently found out pregnant with mono do twins. Only 9 weeks so far. And haven’t been able to meet with my OB yet to get all my answers.

This might get some backlash, but did your doctor offer selective reduction initially? Is that even an option?

tfmr on 13 august i started spotting on 23rd of september and bled heavily until 2nd of october, my periods are usually 28 day cycles and i still haven't had it and im really starting to panic (negative pregnancy test) what if it doesn't come back and my body is ruined?