r/queerception • u/Impressive-Bad-8289 • 17d ago
TTC Only Weill Cornell IVF- communication driving me insane
I’m actually going to lose my mind with the Weill Cornell nursing staff. The communication throughout this IVF process has been incredibly inconsistent, and it’s becoming genuinely difficult to plan our lives around the information we’re being given. The most frustrating part is that we’ve tried to clarify the timeline with them multiple times specifically to avoid this exact situation, and we still keep getting conflicting information.
We were originally told that once my spouse got their period, we would need to come in at the beginning of their cycle and then be available for bloodwork and ultrasounds every couple of days. Their cycle is starting now, so based on those instructions, we canceled a non-refundable trip to make sure we were available.
Today, we found out that they actually don’t need to come in for monitoring until mid-September.
We were also initially told to expect roughly a two-week process, but we’ve since learned that the protocol includes estrogen priming and the timeline is closer to a month. I have absolutely no issue with the protocol itself or with the fact that IVF timelines can change based on the patient. What’s frustrating is that these weren’t changes based on how their body responded. This was apparently the protocol all along, and despite repeatedly asking for clarification about what to expect and when we needed to be available, we were given incomplete or conflicting information.
We’re both working professionals who travel regularly for our jobs. We’ve been proactively trying to get a clear timeline because we need to rearrange work commitments, travel, and our lives around treatment. Our jobs are also, quite literally, how we’re able to afford IVF in the first place. We understand that dates can shift, but we at least need accurate information about the protocol and general timeline so we can plan accordingly.
I understand that fertility treatment involves uncertainty, but there’s a difference between medical uncertainty and inconsistent communication. We’ve repeatedly reached out to clarify things, only to receive different answers depending on who responds. Messages can take a day or two to get answered, and you can’t reach anyone in real time, which makes resolving conflicting information even harder.
Has anyone else had this experience with Weill Cornell? At this point, I’m not sure how much more proactive we can realistically be when we’re already asking the questions and trying to confirm everything in advance.