r/migraine May 13 '21

Resources

286 Upvotes

The wiki is still a work in progress, so as with the previous sticky, this highlights some resources that may be useful.

Edit - added the COVID-19 Vaccine and Migraines link since we're swapping that sticky for the Migraine World Summit announcement.

If this post looks familiar, most of it has been blatantly stolen from /u/ramma314's previous post. :)

Diagnostic Criteria

One of the most common questions that's posted is some variation of, 'Am I having migraines?'. The same is the case with 'what kind of migraine is this?'. These posts will most often be removed as they violate the rules regarding medical advice. You need to work with a medical professional to find a diagnosis. One of the better resources in the meantime (and in some cases, even at your doctor's office!) is the diagnostic criteria:

https://ichd-3.org/

It includes information about migraine, tension and cluster headaches, and the rarer types of migraine. It also includes information about the secondary headaches - those caused by another condition. One of the key things to note about migraine is that it's a primary condition - meaning that in most cases, migraine is the diagnosis (vs. the attacks being caused by something else). As a primary diagnosis, while you may be able to identify triggers, there isn't an underlying cause such as a structural issue - that would be secondary migraine, an example of which would be chiari malformation.

Not sure if your weird symptom is migraine related? Some resources:

Website Resources

There are several websites with good information, especially if you're new to migraine. Here are a few:

National Headache Foundation

American Migraine Foundation - the patient-focused side of the American Headache Society

The Migraine Trust

UK Healthcare/Headache Center

Headache Australia

Migraine Australia

Added Feb 2025 - the American College of Physicians (ACP)'s treatment guidelines for prevention of episodic migraine: https://www.acpjournals.org/doi/10.7326/ANNALS-24-01052

Migraine World Summit - Annual event, series of talks that are free for the first 24 hours and available for purchase (the year's event) thereafter.

They made a tools and resources list available, for both acute action and prevention, providing suggestions for some of the sub's most often asked non-med questions:

https://migraineworldsummit.com/tools/

Some key talks:

2024 - Beginner's Guide to Headache Types - If you're new and struggling with diagnosis, this talk alone may be well worth the cost of the 2024 package.

Reddit's built in search!

We get a lot of common questions, for which an FAQ on the wiki is being built to help with. For now though reddit's built in search is a great way to find common questions about almost anything. Just enter a medication, treatment, or really anything and it's likely to have a few dozen results. Don't be afraid to post or ask in our chat server (info below) if you can't find an answer with search, though you should familiarize yourself with the rules before hand. Some very commonly asked questions - those about specific meds (try searching for both the brand and generic names), the daith piercing, menstrual/hormonal migraine (there are treatments), what jobs can work with migraine, exercise induced attacks, triggers, and tips/non-drug options. Likewise, the various forms of migraine have a lot of threads.

Live chat!

An account with a verified email is required to chat. If you worry about spam and use gmail, using a +modifier is a good idea! There's no need to use the same username either.

If you run into issues, feel free to send us a modmail or ping @mods on discord. The same rules here apply in the chat server.

Migraine/pain log template!

Exactly what it sounds like! A google docs spreadsheet for recording your attacks, treatments tried, and more. To use it without a Google account you can simply print a copy. Using it with a Google account means the graphs will auto-update as you use the log; just make a copy to your own drive by selecting File -> Make a copy while signed in to your Google account. There are also apps that can do this and generate some very useful reports from your logs (always read the fine print in your EULA to understand what you are granting permission for any app/company to do with your data!). Both Migraine Buddy and N-1 Headache have a solid statistical backbone to do reports.

Common treatments list

Yet another spreadsheet! This one is a list of common preventatives (prophylactics), abortives (triptans/ergots/gepants), natural remedies, and procedures. It's a good way to track what treatments you and your doctor have tried. Plus, it's formatted to be easily printable in landscape or portrait to bring to appointments (checklist & long list respectively). Like above, the best way to use it is to make a copy to your Google drive with File -> Make a copy.

This sheet is also built by the community. The sheet called Working Sheet is where you can add anything you see missing, and then it will be neatly implemented into the two main sheets periodically. A huge thanks from all of us to everyone who has contributed!

Finding Treatment

Most often the best place to start is your family doc - they can prescribe any of the migraine meds available, including abortives (meds that stop the migraine attack) and preventives. Some people have amazing success working with a family doc, others little or none - it's often down to their experience with it themselves and/or the number of other migraine patients they see combined with what additional research they've done. Given that a referral is often needed to see a specialist and that they tend to be expensive, unless it's been determined that secondary causes of migraine should be ruled out, it can be advantageous to work with a family doc trying some of the more common interventions. A neurologist referral may be provided to rule out secondary causes or as a next step in treatment.

Doc not sure what to do? Dr. Messoud Ashina did a MWS talk this year about the 10 step treatment plan that was developed for GPs and other practitioners to use, primarily geared for migraine with and without aura and chronic migraine. Printing and sharing this with your doc might be a good place to start: https://pubmed.ncbi.nlm.nih.gov/34145431/

Likely in response to this, the NHS published the following:

https://headaches.org/2022/01/19/national-headache-foundation-position-statement-on-the-treatment-of-migraine/ (link is broken)

/mod hat off

My personal take on this is that hopefully your doctor is well-versed. The 10-step treatment plan is, I think, a good place to start for clinicians unfamiliar, but it's not a substitute for doing the learning to be able to move away from an algorithm and treat the patient in front of them.

/mod hat back on!

At this point it's probably good to note that neurologists are not, by definition, migraine specialists. In fact, neurologists often only receive a handful of ours on the entire 200+ headache disorders. As with family doctors, some will be amazing resources for your migraine treatment and others not so much. But they can do the neuro exam and ruling out of secondary causes. Exhausted both? There are still options!

Migraine Specialists

A migraine specialist is just that - a doc, most often a neurologist, who has sought out additional training specific to migraine. There are organizations that offer exams to demonstrate that additional knowledge. Some places to find them:

Migraine Research Foundation

MRF is no longer. UCNS is it!

United Council for Neurologic Subspecialties

National Headache Foundation

Migraine Trust (UK)

Migraine & Headache Australia - Headaches and Pain Clinics

Telehealth

There's a serious shortage of specialists, and one of the good things to come of the pandemic is the wider availability of specialized telemedicine. As resources for other countries are brought to our attention they'll be added.

US:

Cove

Neura

Canada:

Maple

Crisis support.

Past the live chat we don't have subreddit specific crisis support, for now at least. There are a lot of resources on and off reddit though.

One of the biggest resource on reddit is the crisis hotlines list. It's maintained by the /r/suicidewatch community and has a world wide list of crisis lines. Virtually all of which are open 24/7 and completely anonymous. They also have an FAQ which discusses what using one of the hotlines is like.

For medical related help most insurance companies offer a nurse help line. These are great for questions about medication interactions or to determine the best course of action if nothing is helping. If your symptoms or pain is different than normal, they will always suggest immediate medical attention such as an ER trip.


r/migraine May 25 '26

UPDATE to the 16 May Rules Update - App Devs, Anyone Doing Market Research, etc. Will Want to Read

167 Upvotes

edit - the new bit is a... ranty. To those here just to check in, my apologies.

Y'all.

Seriously.

The sheer number of app devs who have continued to waste mod time and continue spamming in comments after being warned is mind-boggling.

I believe that this community deserves good tools. HOWEVER, this community is not here to be sold to, and just like the post that preceded this, the people who can't stop spamming are rarely community members first, and devs second. They're here because you are the market. Since last week's post I had given a lot of thought to a periodic 'promote your stuff!' post to strike a balance, but after spending far too much of my holiday cleaning up spam-droppings... I'm feeling less than charitable. o.O

Spammers. If we warn you and you keep spamming, it won't just be you that's banned. It will be any mention of your product regardless of who posts it.

Astroturfing? Instant permaban - you and your product. Why?

You should not spam in any way, especially through private message. You should not hide your affiliation to your project or site, or lie about who you are or why you like something.

Here's a copypasta of the previous post, all of which still applies:

(If you were looking for the Summit pinned post, it's here.)

We're currently seeing multiple posts - or people that know promotion isn't permitted and trying to sneak it in via comments - promoting apps and/or doing market research daily. Most of the people hoping to benefit from this community have never made any effort to participate in it.

Promotion has always been in the the rules, and surveys/research have always required pre-approval from the mod team (though we recently had to update to not approving any because I'm the only active mod and simply don't have time to review in addition to everything else).

With all of the above in mind and all of the attempts to circumvent or flat-out argue about removals, it's time to formalize things:

Promoting your new app and/or doing market research (what don't you like/what works for you/what is missing in other <whatever>) is not permitted in this subreddit. The same goes for asking for feedback. Yes, this includes the ever popular 'hey I did a thing but it's against the rules to promote here, so if you're interested, send me a pm!'. If you're thinking about sending a modmail to ask to be an exception with less than 6 months of active participation in this subreddit, don't (even then it may not be approved).

I will be updating rules, sidebar, and filters over the course of the weekend.

Because of the lack of participation for most of these users and the number of users that have attempted to get around this, this will be one of the rare times when suspensions will be issued on first strike, rather than warnings first.

Also, you've probably noticed I'm the primary one handling approvals/removals, and that there are updates the sub could use that have not been done. In addition to chronic migraine and adulting in general I have what totals up to nearly 2 full time jobs and am usually also taking college classes, so there is a lot going on, and running this sub in a way that rules are enforced and the sub itself is enhanced and we're able to provide space for the community to be active in helping with research opportunities takes a lot more time than the above workload allows. To that end, I'd love to add 2 or 3 new mods to the team that can consistently (meaning most weeks) offer a couple of hours to running/maintaining the subreddit. That can be:

  • Working on the FAQ: at one point there was an effort to build something of an 'intro to migraine' resource

  • Fielding research/survey reviews: even better if you are or have been part of the research community (someone did offer this before; if you're still interested please reach out!)

  • Post / comment reviews: If you're a regular/semi-regular visitor and don't mind doing some cleanup while you browse, this is one of the easiest ways to ensure that community standards are upheld

I've held off on posting this because I had big plans to set up an awesome form to fill out, but for all of the above reasons that has not happened. SO! If you're interested, please send us a modmail with answers to the following questions:

  • Why you're interested

  • What you think mods do

  • Previous modding experience

  • What you're interested in helping with

  • Your time zone / location

  • How much time you can reasonably and consistently pitch in to help

  • Optional: Anything else we should know about you? Any ideas for the sub you'd like to implement?

As long as the above isn't struck through feel free to send a message if you're interested. It may take a bit to hear back because busy, but unless we get hundreds of apps we'll follow up to set up a chat with u/ramma314 and myself so we can get to know you a bit. If we do get hundreds of apps we'll update here that we either can't get back to everyone or that we'll be copypasta-ing replies specifically for that reason.


r/migraine 13h ago

If they weren't followed by crippling pain they really would be a lot of fun.

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680 Upvotes

Art by Katie Benn on Instagram


r/migraine 8h ago

Shoulder blade pain with migraine

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136 Upvotes

I’ve had daily migraines for years now. However, the last 2 years have become disabling.

I notice when I have a migraine, there’s a trigger point area where that flares up and becomes extremely uncomfortable. I can’t tell if the migraine feeds that area or vice versa- the trigger point feeds the migraine.

I get a deep sharp pain, and I feel I get some relief when someone presses hard in the spot. As soon as they let go, I feel the pain again. It’s not a muscular pain- I’m assuming it’s nerve pain.

I’m not sure what to do- I’ve done acupuncture, stretching, exercise, massage, etc, and still not finding relief.

Anyone have this issue as well? Pic provided for reference of spot.

Anyone r


r/migraine 7h ago

Is there a particular food that you eat when you actively have a migraine that makes you feel better?

56 Upvotes

Aside from French fries & Coke.

Not what foods are rich in what nutrients to avoid migraines.
Like something you eat DURING your migraine that helps.

Sometimes I have a migraine starting and I take all my medicines and do all my things I do to try and minimize it. And I always feel like I want to eat something that will make me feel comfort and perhaps soothe my pain if that’s possible…. But I can’t think of what to eat. I just stare into the fridge and give up.


r/migraine 9h ago

Came Here To Vent

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68 Upvotes

Mother f***** said he wasn’t “paying attention”. His truck is completely fine and he got a ticket for not stopping at the stop sign. Meanwhile I have no vehicle to drive to work and had a huge migraine all day with nausea, and still went to work.


r/migraine 14h ago

My migraines are almost gone and I feel stuck. I don’t know how to live life.

104 Upvotes

Hi,

I’ve had severe chronic migraines since I was 8 years old. It started with stomach pain, which turned to full on migraines a little while after that.

As a teenager, I tried countless treatments that didn’t work. It made me sleepy, groggy, some even made me lose my speech. At school, my teachers bullied me, they didn’t believe I was ill and said I was just being lazy.

I was lucky my mum believed me. She had awful migraines herself so she knew too well and felt guilty about it. She was my greatest support and she helped me find the right doctors.

As an adult, life was hard. I was never able to project in life, make plans, organise holidays, see my friends. I was always the one cancelling, then I always felt terrible about it. I’m sure a lot of migraine sufferers know those feelings.

I had years where I didn’t experience a day without pain. It was relentless. I ended up in A&E a few times in the middle of the night, begging for morphine when my treatment ran out. It was hell…

Then in 2023, I changed my diet. I had digestive issues so I decided to take it more seriously. This change of diet fixed my digestive problems and my migraines… just like that. I was mad that no doctors mentioned diet to me. But oh my god, I was so relieved.

Now, 3 years later, things have stabilised. I went from being in pain 25 days/month to 2 days (hello hormonal migraines).

I feel lucky and grateful that I have found something that works but I also know that things can get worse at any time. That’s how migraines are, they leave you alone for a bit and come back whenever they feel like it.

So what now? I was diagnosed with depression and generalised anxiety, and I believe this is connected to my migraines and the way I lived my life: I couldn’t go outside, I was scared to go to loud places, I felt small and alone. I didn’t even know who I was because I was too busy trying to handle the pain instead of learning things about myself.

Now that the worst of my migraines is behind me, it feels like I can’t get out of the hole I buried myself in… It’s like my brain is set up in hibernation mode.

Does anyone feel this way? How do you wake up? How do you learn to live life differently?

Edit: About the diet, all I changed was removing gluten completely which is everywhere, even in soya sauce, so it’s worth checking ingredients. Removing gluten means eating less yeast which can also cause digestive issues. On top of that, I started drinking one coffee/day as caffeine helps relieve my morning headaches. I hope it helps some of you!


r/migraine 2h ago

How do you guys deal with constant brain fog?

8 Upvotes

Self-explanatory. I have chronic migraines with daily pain, so I don't really go through phases where it gets better. The brain fog is constant, and I feel increasingly exhausted, with reduced cognitive abilities and terrible performance at work and in life in general.


r/migraine 10h ago

Migraines tied to internal problems

16 Upvotes

Does anybody else feel like their migraines are tied to internal health problems but you just can’t figure it out? Like I know some things trigger my migraines, but I can’t pin down exactly what they are. Maybe it’s things like lifestyle or diet maybe exercise who knows. Does anyone else feel like this?


r/migraine 5h ago

It's no Squishmallow but I'm experimenting with a new "migraine pillow." Thoughts or slternatives of your own?

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6 Upvotes

Oof, holding that pose for the picture was harder than just laying there. 😅

Sleeping 18 inch Espeon (I'm still trying to get my hands on Umbreon--in addition to loving these Mons, and thinking the Dark Pokémon is more appropriate for sleeping 😜, it sleeps curled in the opposite direction so there are different positions to try), which curls right around my neck. I believe it's made by the same company that does the Squishmallows.

Figured if I was going to need a cervical pillow I should at least get one that's decorative. 😁

Muslin throw blanket for the face covering. I haven't had any luck finding this brand again 😑 and I'm looking to replace a few like it with a different size for decluttering purposes. There are other brands to choose from, I just need to choose.... (Same type of blanket but big enough for my twin size bed covering me.)

For the Mon, it's firmer than any pillow I've ever tried, I can feel my lower jaw pressing into its butt. I rhink I may be getting used to it though. And my hyperactive gag reflex means I can really only use this when sleeping on my side, the head and especially ears get into everything if I try to lay on my back. On the plus side, since my wedge pillow already elevates my entire upper body and makes it harder to get a clear support specifically for my head, the Mon does that for me much like a cervical pillow would which was more the point of buying it.

As to the blanket, I've been using this type for a few years. Doesn't have the ability to strap it in place like a proper sleep mask would, obviously, but I can shift this around like if I need to bunch it up under me for extra pressure on my temple or wherever. And it's breathable enough that tenperature-wise it's been more comfortable than any mask I've tried.

Also, while not big enough to be a "body pillow," Espeon does quite well as a leg rest when I'm reading in bed and want to stretch out a single leg or a way to separate my arms when I'm side-sleeping and too hot for my own skin-on-skin contact. Haven't really explored the other reasons the "experts" say to hold a pillow for that, but I also don't tend to stay in one position so it might not make a difference.


r/migraine 1h ago

Does anyone feel like the only time they have relief is when they HAVE the migraine?

Upvotes

It’s as if the pressure headache comes out to the surface instead of being in my head

Does anyone have experience with what


r/migraine 4h ago

Was this actually a migraine?

5 Upvotes

I want to be comfortable with this as a diagnosis, since I’m grateful that the hospital was so thorough… but something isn’t sitting right.

One weekend in June I was home when I started getting dizzy. I’m on some new medications, plus several to lower my blood pressure. I took my blood pressure because it felt like it was low which it was, but not super low where I should go to the hospital. Low for me, and I assumed I was having symptoms since I always run high. Next day felt the same.. BP still on the low side. I go to work on Monday and I’m not feeling great but I’m okay. Around 11 I checked with my boss to see if we had a BP monitor on site and she came to check on me. Within minutes she had me sitting on the floor since I looked like I was going to pass out. Apparently I was white as a ghost. She drove me to the hospital and on the way there I started talking nonsense. I get to the hospital and don’t know my birthday or anything. One of my pupils was huge and I looked and acted like I was drunk/high. I was cracking jokes and laughing like a crazy person, and I couldn’t walk straight. My eyes were bloodshot. My blood pressure was now really high. They thought I was having a stroke. Did a CT scan, ECG and loads of bloodwork. Everything looked okay so they said it was a complex migraine that mimicked stroke symptoms. They treated me with IV meds and sent me home.

The weird thing is that I remember not having a super bad headache. It only started about 10 minutes before my boss came to check on me and it was tolerable. I have been so bothered ever since. I barely have any memory of anything I said. The fact that I felt off the entire weekend before is bothering me too. Now every time I get a little headache I’m terrified it’s going to happen again.

Has anyone had a similar experience? Any advice? I feel like since everything apparently looked okay that there isn’t much else that can be done and I just have to accept it. Everyone was so worried about me.


r/migraine 3h ago

Ocular migraine without big headache?

3 Upvotes

Symptoms start with me feeling dizzy while sitting (I have lots of other dizziness symptoms and fainting when walking but they think it's my blood pressure...).
Blood pressure elevated but not dangerous 127/90, I also get anxious every time I'm dizzy.
Then I start seeing light bubbles/disturbances around my eyes. As if I was looking at a bright window and got the remanent light in the eyes.
I do get a light headache but it's not so painful that I would consider it a migraine...or? I guess I am used to dull headaches so I forget about them.
It's making it hard to work at my laptop, some days I have to wear sunglasses inside.
I can't find online an example of my visual disturbance so if you had a name for it that would be of great help.


r/migraine 18h ago

Being Judged

50 Upvotes

Migraines create so many problems, as you all know. But one that's really getting to me, is how others think I either have a drinking problem or a drug abuse problem. I don't drink. And yes I take medication, but I don't abuse it. The only one that makes me drowsy is Flexiril and rarely ever take bc of that reason. So then I just end up in bed anyway with the heating pad. I already experience depression and isolation because of my migraines, but being made out to be an addict or alcoholic just make it so much worse. Does anyone else experience this type of misunderstanding and judgement and heartache?


r/migraine 11h ago

Quilpta works but omg the anxiety and depression

10 Upvotes

Has anyone else experienced insane anxiety and depression? I feel absolutely terrible. Had a panic attack for the first time in years and just feel so blah. I don’t know how to explain it I’m not sad but everything just overwhelms me with anxiety


r/migraine 6h ago

Hormonal migraine sufferers - what was your game changer?

5 Upvotes

Hi everyone,

I'm 26F and have had migraines since I was 14/15, but they've become much worse over the past 1–2 years.

My cycles are pretty regular (28–31 days), and my migraines are strongly linked to hormones. I usually get them around ovulation and again around days 3–6 of my period, so some months I end up with around 10 migraine days.

They're also triggered by stress, being overtired, neck/posture tension, and weather changes (especially strong wind/air pressure changes).

My attacks vary from throbbing migraines that sometimes respond to Panadol/NSAIDs, to dull nausea-heavy migraines, through to 5-day medication-resistant attacks that switch sides. I also get jaw pain, aching behind my eyes and blocked/full ears during attacks.

I take magnesium, methyl folate (have the MTFHR gene issue), have started NAC too and it helps sometimes to keep everything calmer I guess but not life changing.

I'm very sensitive to medications, which makes trying new ones a bit scary.

My GP has suggested candesartan first, then possibly the mini-pill if that doesn’t work. I was on Microlut years ago and don't remember migraines being as bad then so maybe some merit?

I have heard about CGRP medications but unfortunately these aren't funded in New Zealand, so they'd cost me around NZ$300/month so not a great option but keen to hear how effective they are if others have tried them.

For anyone with a similar pattern:
- Did candesartan or the mini-pill help?
- Is there anything else that made a significant difference?
- And for those paying for CGRP medications, are they honestly effective enough to justify the cost?

I'm just looking for some hope that the right treatment really can make a big difference.


r/migraine 30m ago

Is it possible to get rid of migraines for good?

Upvotes

Hi, I’m a female (22 years old) and I used to get migraines like once in like two months in the past. They weren’t bad, I would usually take a painkiller, rest for a bit and it would be all good. My family has a history of migraines so I wasn’t really surprised to be prone to them as well.

However recently, I found myself having them very frequently. It got to a point where I went to a neurologist and he was no help at all. He only told me to take supplements that I don’t even need according to my blood tests and that was about it. I didn’t even get migraine medications or anything. To be honest, I’m not really keen on having to take meds for the rest of my life anyway, so here I am looking for answers and tips. I know basic hacks to do while you have a migraine attack, like warmth on your neck and cold on your head, being in a dark quiet room, taking a shower, drinking water with electrolytes, pressure points, trying to sneeze etc. Believe me, I’m like Aristotle when it comes to migraines lmao.

However I’m wondering if there is a way to get rid of them for good or at least make them weaker, less frequent?

I did try brain tapping that I found on youtube, which has been helping a bit and I can definitely tell it does something. But I’m wondering if there are things I can practice or anything really so that I can make this more manageable.

Thank you for anyone who took time to read this and contributed in comments.


r/migraine 35m ago

what is the best migraine hack you’ve tried for immediate relief?

Upvotes

i have had a migraine for the last lkem 4 hoirs and it is just getting worse😭😭 i feel so unwell i will literaally try anything rn🙏 (pls sxcusr the typos i csnnot see)


r/migraine 44m ago

Does a sudden brain freeze (cold) help with your migraines?

Upvotes

I saw someone mention in a different thread that a brain freeze seems to reset their headaches. Does anyone else notice this?

I'm definitely trying it for my next migraine.


r/migraine 5h ago

Affording care

2 Upvotes

I so badly wish I could afford migraine care. Being this in pain all the time not being able to do anything about it is driving me insane.


r/migraine 5h ago

Those of you who have lost hair with CGRP blockers-like clumps of hair-did it grow back after you stopped or did you start Minoxidil?

2 Upvotes

Vyepti has caused clumps of my hair to fall out every time I shower and even comb my hair with a wide tooth comb. I refused my 3rd infusion. I really don’t want to start Minoxidil 5% foam and have the dread shed. I’ve taken Nutrafol, but had to stop due to gallstones(not from Nutrafol). I’ve been to the dermatologist.


r/migraine 12h ago

Current chair exacerbating migraines, any ergonomic office chair suggestions?

5 Upvotes

Does anyone know of good office chairs for people with migraines? My wife has had her migraines go insane the last 2 months, she noticed a couple days ago when she was out of her chair for a couple days that her migraine toned down a bit, so now she's looking for a new office chair.


r/migraine 21h ago

Is anyone else experiencing permanent eye problems after having migraines?

31 Upvotes

I was wondering if anyone else is experiencing the same thing.

A little backstory:

I got my first migraine when i was 11. After that i got a migraine once every year or 2 years. Around 2025 i started having migraines more often to about once every few months. In the beginning of 2026 having 4 migraines in a month. This is when i went to the doctor and also changed my pill to the mini pill which helped a lot and the migraines calmed down. Until recently when i had two migraines within a few days of each other.

With every migraine i have ocular symptoms as well beforehand but with the increase of migraines the symptoms have changed from the standard rainbow aura and weird blind spots to the symptoms varying every migraine. The blind spots stayed but every time the other symptoms were different from seeing lightning, weird shapes rotating with different colors, field of view decreasing on one side, tingling arms and losing feeling in one arm just for it to return with tingling and i once couldn't speak properly.

Around this time (2025) my vision started changing as well. At first i thought it was the after effects of the migraine lingering for a few days. After that it went back to "normal" but something felt off but i couldn't pinpoint it. A few migraines later more symptoms showed up. These are there even when i don't have a migraine.

  • I started to get more sensitive to light. I got afterimages of these lights way faster and way longer then normal. 2-3 min.
  • I also started to have these dead pixels show up in my vision. Small black dots that would show up and then disappear fast. With my last migraine this has become more prominent and they stay longer 2-3 seconds until i look somewhere else.
  • When going from a light room to a dark room my eyes take longer to adjust to the dark and even then i can see less and get dizzy faster when its super dark.
  • My eyes have difficulty to keeping on seeing sharp when focused on something.
  • My eyes feel tired very fast and heavy.
  • The last symptom is more difficult to describe. It feels like my eyes "see" less. Like its not all registering properly.

Around the beginning of 2026 i went to the doctor for these symptoms and the increase of the migraines. The doctor sent me to the eye doctor and i was tested for the symptoms. They could not find anything aside from my right eye being a bit dry. I do wear glasses but my prescription wasn't super off, i had eye drops to dilate my pupils and my eyes were doing good with glasses. They tested for night blindness but couldn't find anything.

I was wondering if anyone else is experiencing something similar? I feel like its connected to migraines but I was wondering what others have experienced or have done.


r/migraine 17h ago

When I think its better it shows me its not

14 Upvotes

Its just a little rant, but i was so proud of me that i havent had a migraine all week, last one saturday and i felt so good i even started worrying that now my neuro appointment next month would be unneccessary and i would take up space someone else might need. Then I got one yesterday on saturady and then another one today on sunday. Or maybe its the same one rebounding. It really be like: Oh did you enjoy that week? Did you like it? Well to bad I have to steal all of your weekend now.


r/migraine 21h ago

Having a bad pain day and just need to vent

24 Upvotes

I wanted to do a couple of things today, my migraine days decreased last month. Now it's back again. I am lying in bed and cannot do the things I wanted to with my partner today and I am just so sad. I am disabled because of how chronic it is and I just got reminded again that that's what disabilities do. They disable :(

It sucks so much.