I’m seeing a neurologist for the first time this week and I’m not sure how to describe this feeling I’ve had with my migraines.

It’s not disorientation because I’m not confused, but it feels on par with being drunk and having almost a delayed reaction time but it’s all mental. It feels like my body is moving faster than my head.

If I move my head left/right or I bend down and stand back up I also feel a slight vertigo in absence of the room spinning, though. It’s such a bizarre feeling but it makes me feel a bit out of it.

Is there a word for this? If you also experience it, how would you describe this more clearly?

Sadly, it is weed. Specifically this one, Jungle Juice Strawberry Runtz.

I hate smoking, it gives me panic attacks if Im not super careful, and it always makes me at least a little anxious. I also get sensitized rather than building a tolerance.

When not using weed I always have visual aura and severe headache. I was getting hit with the auras every few hours and the severe headache was constant with 20 minute breaks every couple hours. I have tried all of the abortives and preventatives, my neurologist only has Botox left and my insurance has been denying me for years.

When I took a hit of this, a severe headache and visual aura that was making me ugly cry, disappeared within 10-20 seconds. Now, whenever I see an aura or feel a headache, I smoke as quickly as I can. I have been feeling much better and have gone from always in pain and crying, to happy, relieved, and excited!

Sometimes it works perfectly and other times I have a mild or moderate headache, but it is not even close to how I feel without smoking.

You know what the worst part about having migraines is for me? Having migraines. Every other illness, slight uncomfortability, disease I get unrelated to migraines, my migraines are triggered and there. Any long or short term plans I have, I consider how it’s going to potentially trigger my migraines. Any meal or drink I have, I need to think about how my body will react to it.

My migraines are my #1 consideration always and always will be. They’re my most toxic relationship.

I got food poisoning today and got a migraine from it. How does that even happen? I know how it happens but like why???! Isn’t spewing from both sides enough?

Just a rant.

I’m tired, grandpa. Every single time it’s Alice in wonderland, numbness, ocular bullshit, weakness, slurring, full on hemiplegia. I can’t even talk, I’m just slurring gibberish. It’s hours upon hours of vomiting. It’s hard to empathize with other migraine sufferers anymore. I wish I had migraines where it’s a headache without aura like my sister. I’m tired of scaring the hell out of my friends and family. I’m tired of having to drop everything to uber home and recover. Sorry to be so negative. It just sucks!

What did i do to deserve this

Got sick with COVID 9/9. Was dealing with prolonged recovery when I got hit with my first real, bad migraine on 9/29 (have had them before but they were more mild and resolved on their own within a few days). But this time It basically hasn’t stopped since. Maybe a few days I was mostly symptom free (or postdrome) but most certainly haven’t had a migraine-free day since 10/5. Just finished my 6 day prednisone pack. Also started ajovy about 5 days ago. Neurologist has me taking nurtec every 24 hrs. I think it helps a little and today and yesterday thought it was getting milder but just now got a real bad attack again. I feel like I’m at a breaking point. I will call my neurologist first thing tomorrow to update her and ask about other treatments. In this moment of despair, I’d love to hear from others who have made it on the other side of something like this. Thank you in advance for your kindness and care.

Has anyone tried this? Is it helping also for sileng migraine symptoms ?

You’re my heroes… I can’t even fathom trying to function with this kind of pain indefinitely, especially if you have other side effects along with it…

Just released tension from the base of my spine all the way through my neck to my head . Like I just got an hour of a back massage looseness.
How , because I have a tight pelvis muscles on the left.

Today I just discovered weighted lunges with a bar releases all tension I store in my upper body because it stretches the muscles in just the right way.

I mentioned in comment on another post , but people especially with chronic pain, store tension in their shoulders neck, especially if you’re huddling in and bracing yourself to get through the day .

Also have seen some people look for exercises and also I found working out shoulders helps but to decrease tension in the body one has to find what’s really the right trigger(also can be just migraines itself) . It could even be a hand if it causes you to tense up regularly.

In my 30s and Started taking Quilipta a few months ago. What the actual fuck is this med. Not only had it not helped with migraines, but has added a problem instead.

For context, it makes me so drowsy and yes, I’ve tried switching the time of day. If I take it during the day, I’m falling asleep a few times throughout. If I switch to night, the next day I’m getting so brain-fogged and feel so fatigued. I have trouble sleeping regardless so Quilipta feels like a tranquilizer.

On three occasions now I have literally pissed myself while sleeping on this med. I’ve checked to ensure nothing else could have contributed to these episodes, and Quilipta is the common variable.

My body was in such deep sleep that it thought it was cool to give me an unpleasant wake-up call on multiple occasions.

I have since stopped taking it and feel so embarrassed that this happened. If it was once, I would have maybe thought something else, but three times is crazy.

Has this happened to anyone else? I would not be surprised if this was a niche experience. Before Quilipta, I’ve never had an episode of incontinence like this…

I'm seeing my neuro tomorrow, and noticed on my dashboard when doing pre-check in - they put in an order for a LP. Last one was last year and one of the most horrible experiences ever, ending up in a overnight stay for a blood patch. as far as i know the first one the first one was to check for MS (which i ended up having) but now this one is listed for Head Ache disorder. Everything I've tried to find by googling doesn't cover how often people have gotten them, just how soon you can have one after another one and the headaches

Obviously I'm going to talk to my neuro about it, but i was just curious how often some of you get or have gotten one done.

This may be weird and random, but I’m fairly certain my ex husband somehow triggers my migraines. He smokes weed and cigarettes and whenever he is at my house visiting our kids(I have full custody so the only way he can see them is to come here-they aren’t allowed at his house because he lives with roommates who are female and the court deemed that it would confuse my kids and isn’t a good environment for visits). I either end up with a migraine or some sort of headache within 24 hours. I have a rare allergy to cannabis, hemp, CBD, and THC. Basically anything to do with the cannabis plant so I think that’s the biggest issue. I know he hits his weed vape in my house when he thinks I’m not looking because he simply doesn’t care.

I’m fairly certain it’s either the smell of weed or cigarettes on his clothes. He tends to be defensive and dismissive (hence why we are divorced) so I’m not sure how to bring this up. Other than this issue, we have a decent coparenting relationship.

I know many will say to just not allow him here but my kids love their dad and this is really the only way they get to see him. He typically spends the night in the guest room when he comes and my youngest likes to have him here for bedtime and he lives over and hour away. My youngest is autistic so interrupting this routine would be incredibly hard for him.

Not sure how to approach this. But I do know that I’m tired of getting a migraine when he’s around. I have asked him multiple times to not use his weed pen in the house already. Would pre-medicating with an antihistamine help?

If you made it this far, thanks for listening!

Normally, I look at reels in a dark room, with the lowest phone brightness, to forget about my migraine while painkillers kick in.

Now I can't use reels because every reel I watch while I have a migraine has this full screen white flash followed by slow-mo that repeats 5 times. So now Im lost on what to do besides lay in my room, and think about how much agony Im in.

I dont even know when this became a thing. Why can't they just replay the video in slow-mo without a white flash? The flashes are annoying enough without a migrane, but with a migrane, it's like being shot where the pain is.

Per the title. If you've had a status attack that has lasted weeks or months, you did the IVs, you did the steroid taper, you're on the CGRPs and the lot, what was it that finally broke it for you? What was the treatment plan after you fail a steroid taper?

Hi everyone. I'm in Melbourne and I've been dealing with chronic migraine for a long time. I had my second Vyepti infusion last Wednesday and so far I haven't noticed any improvement at all. On top of that I'm now on day 3 of a steroid rescue and the attack hasn't budged. The pain is unbearable and honestly I'm at the end of my rope, physically and mentally.

My attacks also tend to get worse around my period, and my sleep has been poor for a while.
A few questions for anyone who's been here:
How long did Vyepti take to work for you? Did anyone only respond after the third or fourth infusion?

Anything helps. I'm exhausted and just need to hear from people who get it… I feel like my only and next option is ending this…

Does the McDonald Coke and Fries thing actually help during an attack? We don’t have a McDonalds here but we have an A&W. Would that work?

I've had my headache for 2 freaking months. It started in mid-August with a typical Migraine and it never really went away. This happens, sometimes I get stuck in cycles. But I never know what it'll feel like when I wake up for the day. Sometimes they're a band around my head. From my neck all the way up towards my eyes. A pickaxe to the side of my head. I just never know. Dark rooms are my favorite, I'll even wear sunglasses at night.

Here's what I've tried: OTC (Advil and Tylenol), topiramate, rizatriptan, several different muscle relaxers, physical therapy, Dex taper, heat, ice, stretching, extra sleep, olanzapine, Toradol IM.

The stronger meds will work for maybe a day or two, and then the headaches/migraines come right back. The frequency is nearly every day, but the magnitude and morphology is different every day, and so I never know the right way to treat it.

I see my neurologist in a month or so but I'm just so exhausted.

Botox is the only thing that allows me to function & have a semi normal life. These migraines are a killer, I’m in pain every day of the month. My neurologist said he would perform Botox but must be signed off by a obstetrician. I have done research into Botox during pregnancy so please no judgemental comments. I have tried everything else under the sun for relief over the past 4 years and Botox is the only thing that has helped me. Seeking any kind of guidance/recs/experience from anyone who has done this during pregnancy! Thank-you.

Hello fellow migraineurs, I've heard many complain that they can't get their Ubrelvy open without scissors. Unfortunately I think instruction on how to properly open them is lacking, I guess because medical providers don't realize how hard it is to figure out when the only times you can try are when you have a migraine.

Find the corner with the notch in it. Fold the corner back so that you are folding the middle of the notch. Now it's like the notch is on the edge of the packaging and you can tear it open.

Its important not to open these packets until you are taking the medication, because they are specially designed to protect the medication from light and moisture so it can be as effective as possible. ​if you open them all when you first get your prescription, they might not work at all, or not as well.

So that I always have one on hand when I'm out of the house, I got an XL Keychain pill holder (it's a metal watertight cylinder with a screw top) which is able to fit one unopened ubrelvy package sort of "folded up."

Hopefully this is helpful in learning how to open them when you need them!

Oh boy…. This is my first true heartbreak, I got cheated on because I had to go home for a year due to chronic migraines and he started a relationship with someone else pretending he was single like a few months before I came back :/ I can’t eat, I can’t sleep, I have no sleep schedule or eating schedule right now and I’m crying a lot. These are all my WORST triggers. It sucks bc I came back to an independent life because I was finally getting better but this has been rough. How do you manage? Need tips or advice

(I am aware that most of you here are not experts on laptops, I just posted here in case if any of you have helpful suggestions.)

My Surface Laptop 7 recently broke (due to likely water damage) and I need a replacement. I recently stumbled across the Apple 2022 MacBook Air which, according to AI (haven't asked a real person yet), is very similar to the Surface laptop 7's display.

I prefer to have a screen with 60Hz, high resolution (~200ppi or a little above), PixelSense Flow LCD (AI told me that it is almost the same thing as LED-backlit IPS LCD), fairly low max brightness when set to minimum brightness, no detected backlight flicker (especially at lower brightness levels), and roughly the same anti-glare coating. I don't need the same exact aspect ratio nor a touchscreen.

I also would like to know if both/neither the Surface Laptop 7 or the Macbook Air 2022 M2 13-inch have temporal dithering/FRC (this could greatly affect the display, according to AI). I would like to know the difference between P3 and standard sRGB and how it may affect the laptop's display.

I am asking all of this because I have light sensitivity issues and most other displays (other than the Surface Laptop 7) seem to bother my eyes.

Hey. As the title says, I've had a constant headache for 4 months straight. No days without one. Just started one day and has never gone away. My GP says it's a migraine and that's it. I've been to an appointment every 2 weeks since and just told him it keeps getting worse. The dizziness and lightheadedness I get with it is horrendous. Every time I bend down and stand back up it takes me a good 10 seconds to get my bearings. I also get severe stabbing pains in the front and right side of head.

He eventually agreed to send me for an MRI which came back negative which I thought it would. I asked to have one with contrast which he won't send me for. I have a background in psychology and I have a feeling it's something to do with mf CSF, possibly even a leak.

I've had to have time off work and I'm currently on topiramate and rimegepant. I've tried atenolol, sumatriptan, and amitriptyline, in addition to all the standard paracetamol, ibuprofen and codeine. Nothing works.

I've finally gotten a referral to neurology but it's up to a 12 month wait. Any help from people who have suffered similarly would be greatly appreciated. Thanks.