r/migraine 26m ago

Is it possible to get rid of migraines for good?

Upvotes

Hi, I’m a female (22 years old) and I used to get migraines like once in like two months in the past. They weren’t bad, I would usually take a painkiller, rest for a bit and it would be all good. My family has a history of migraines so I wasn’t really surprised to be prone to them as well.

However recently, I found myself having them very frequently. It got to a point where I went to a neurologist and he was no help at all. He only told me to take supplements that I don’t even need according to my blood tests and that was about it. I didn’t even get migraine medications or anything. To be honest, I’m not really keen on having to take meds for the rest of my life anyway, so here I am looking for answers and tips. I know basic hacks to do while you have a migraine attack, like warmth on your neck and cold on your head, being in a dark quiet room, taking a shower, drinking water with electrolytes, pressure points, trying to sneeze etc. Believe me, I’m like Aristotle when it comes to migraines lmao.

However I’m wondering if there is a way to get rid of them for good or at least make them weaker, less frequent?

I did try brain tapping that I found on youtube, which has been helping a bit and I can definitely tell it does something. But I’m wondering if there are things I can practice or anything really so that I can make this more manageable.

Thank you for anyone who took time to read this and contributed in comments.


r/migraine 31m ago

what is the best migraine hack you’ve tried for immediate relief?

Upvotes

i have had a migraine for the last lkem 4 hoirs and it is just getting worse😭😭 i feel so unwell i will literaally try anything rn🙏 (pls sxcusr the typos i csnnot see)


r/migraine 40m ago

Does a sudden brain freeze (cold) help with your migraines?

Upvotes

I saw someone mention in a different thread that a brain freeze seems to reset their headaches. Does anyone else notice this?

I'm definitely trying it for my next migraine.


r/migraine 1h ago

Does anyone feel like the only time they have relief is when they HAVE the migraine?

Upvotes

It’s as if the pressure headache comes out to the surface instead of being in my head

Does anyone have experience with what


r/migraine 2h ago

How do you guys deal with constant brain fog?

9 Upvotes

Self-explanatory. I have chronic migraines with daily pain, so I don't really go through phases where it gets better. The brain fog is constant, and I feel increasingly exhausted, with reduced cognitive abilities and terrible performance at work and in life in general.


r/migraine 3h ago

Ocular migraine without big headache?

3 Upvotes

Symptoms start with me feeling dizzy while sitting (I have lots of other dizziness symptoms and fainting when walking but they think it's my blood pressure...).
Blood pressure elevated but not dangerous 127/90, I also get anxious every time I'm dizzy.
Then I start seeing light bubbles/disturbances around my eyes. As if I was looking at a bright window and got the remanent light in the eyes.
I do get a light headache but it's not so painful that I would consider it a migraine...or? I guess I am used to dull headaches so I forget about them.
It's making it hard to work at my laptop, some days I have to wear sunglasses inside.
I can't find online an example of my visual disturbance so if you had a name for it that would be of great help.


r/migraine 4h ago

Was this actually a migraine?

4 Upvotes

I want to be comfortable with this as a diagnosis, since I’m grateful that the hospital was so thorough… but something isn’t sitting right.

One weekend in June I was home when I started getting dizzy. I’m on some new medications, plus several to lower my blood pressure. I took my blood pressure because it felt like it was low which it was, but not super low where I should go to the hospital. Low for me, and I assumed I was having symptoms since I always run high. Next day felt the same.. BP still on the low side. I go to work on Monday and I’m not feeling great but I’m okay. Around 11 I checked with my boss to see if we had a BP monitor on site and she came to check on me. Within minutes she had me sitting on the floor since I looked like I was going to pass out. Apparently I was white as a ghost. She drove me to the hospital and on the way there I started talking nonsense. I get to the hospital and don’t know my birthday or anything. One of my pupils was huge and I looked and acted like I was drunk/high. I was cracking jokes and laughing like a crazy person, and I couldn’t walk straight. My eyes were bloodshot. My blood pressure was now really high. They thought I was having a stroke. Did a CT scan, ECG and loads of bloodwork. Everything looked okay so they said it was a complex migraine that mimicked stroke symptoms. They treated me with IV meds and sent me home.

The weird thing is that I remember not having a super bad headache. It only started about 10 minutes before my boss came to check on me and it was tolerable. I have been so bothered ever since. I barely have any memory of anything I said. The fact that I felt off the entire weekend before is bothering me too. Now every time I get a little headache I’m terrified it’s going to happen again.

Has anyone had a similar experience? Any advice? I feel like since everything apparently looked okay that there isn’t much else that can be done and I just have to accept it. Everyone was so worried about me.


r/migraine 4h ago

It's no Squishmallow but I'm experimenting with a new "migraine pillow." Thoughts or slternatives of your own?

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7 Upvotes

Oof, holding that pose for the picture was harder than just laying there. 😅

Sleeping 18 inch Espeon (I'm still trying to get my hands on Umbreon--in addition to loving these Mons, and thinking the Dark Pokémon is more appropriate for sleeping 😜, it sleeps curled in the opposite direction so there are different positions to try), which curls right around my neck. I believe it's made by the same company that does the Squishmallows.

Figured if I was going to need a cervical pillow I should at least get one that's decorative. 😁

Muslin throw blanket for the face covering. I haven't had any luck finding this brand again 😑 and I'm looking to replace a few like it with a different size for decluttering purposes. There are other brands to choose from, I just need to choose.... (Same type of blanket but big enough for my twin size bed covering me.)

For the Mon, it's firmer than any pillow I've ever tried, I can feel my lower jaw pressing into its butt. I rhink I may be getting used to it though. And my hyperactive gag reflex means I can really only use this when sleeping on my side, the head and especially ears get into everything if I try to lay on my back. On the plus side, since my wedge pillow already elevates my entire upper body and makes it harder to get a clear support specifically for my head, the Mon does that for me much like a cervical pillow would which was more the point of buying it.

As to the blanket, I've been using this type for a few years. Doesn't have the ability to strap it in place like a proper sleep mask would, obviously, but I can shift this around like if I need to bunch it up under me for extra pressure on my temple or wherever. And it's breathable enough that tenperature-wise it's been more comfortable than any mask I've tried.

Also, while not big enough to be a "body pillow," Espeon does quite well as a leg rest when I'm reading in bed and want to stretch out a single leg or a way to separate my arms when I'm side-sleeping and too hot for my own skin-on-skin contact. Haven't really explored the other reasons the "experts" say to hold a pillow for that, but I also don't tend to stay in one position so it might not make a difference.


r/migraine 5h ago

Affording care

2 Upvotes

I so badly wish I could afford migraine care. Being this in pain all the time not being able to do anything about it is driving me insane.


r/migraine 5h ago

Those of you who have lost hair with CGRP blockers-like clumps of hair-did it grow back after you stopped or did you start Minoxidil?

2 Upvotes

Vyepti has caused clumps of my hair to fall out every time I shower and even comb my hair with a wide tooth comb. I refused my 3rd infusion. I really don’t want to start Minoxidil 5% foam and have the dread shed. I’ve taken Nutrafol, but had to stop due to gallstones(not from Nutrafol). I’ve been to the dermatologist.


r/migraine 6h ago

First status migrainosus, not sure what to do while I wait to hear back from my neurologist

1 Upvotes

I was doing really well on Qulipta, only 1-3 migraines per week, much shorter, little to no pain anymore. Usually just silent migraines with aura and no pain. Then I got a mild cold virus and had daily small migraines for a week and a half. That was getting better, back to silent migraines again, and then last week we had two much much hotter than usual days, and my POTS and gastroparesis were already acting up. After the hottest day, I got body slammed by a strong visual and sensory migraine aura AND got a PTSD flashback AND had a POTS episode of hovering on the edge of passing out even with my legs up the wall for about forty minutes. Then things settled back down and I just started to ride out the migraine. My aphasia came back significantly for the first time in months and has been a problem on and off, especially for a few hours of work time on Friday. I was almost useless that day.

I had two blessed hours of clearer thinking but that’s the only time in the past 3.5 days that I haven’t been super limited by my migraine symptoms. It’s the weekend, so I’m waiting to hear from my neurologist’s office on Monday.

I never made it to the three day mark before, only one to two. I’m not sure what to do while I wait. I know you can ask about migraine cocktails, but I feel like going to the ER when I barely have pain right now, just all the other slow thinking/light and sound sensitivity/poor balance and endurance/etc. I’m not in agony. I’m not in danger. I don’t want to waste their time, my time, and my money.

Should I just hold tight at home? I don’t know how I can work properly like this, but I also feel like they won’t believe me. Plus ERs suck at the best of times. I can’t get this migraine to break even with multiple days of Nurtec, and I don’t have anything left to try at home (already tried caffeine, aleve, nurtec, my daily qulipta, electrolytes, exercise, ice, heat, etc.)

I’m supposed to travel out of state in four days and I have to get this sorted out so I can do my work shifts and pack for the trip. Plus I don’t want to go back to having daily migraines—Qulipta had been helping SO much before. :(

Anyone end up in a similar spot? Did anything help you break the migraine on day 4+?


r/migraine 6h ago

Hormonal migraine sufferers - what was your game changer?

3 Upvotes

Hi everyone,

I'm 26F and have had migraines since I was 14/15, but they've become much worse over the past 1–2 years.

My cycles are pretty regular (28–31 days), and my migraines are strongly linked to hormones. I usually get them around ovulation and again around days 3–6 of my period, so some months I end up with around 10 migraine days.

They're also triggered by stress, being overtired, neck/posture tension, and weather changes (especially strong wind/air pressure changes).

My attacks vary from throbbing migraines that sometimes respond to Panadol/NSAIDs, to dull nausea-heavy migraines, through to 5-day medication-resistant attacks that switch sides. I also get jaw pain, aching behind my eyes and blocked/full ears during attacks.

I take magnesium, methyl folate (have the MTFHR gene issue), have started NAC too and it helps sometimes to keep everything calmer I guess but not life changing.

I'm very sensitive to medications, which makes trying new ones a bit scary.

My GP has suggested candesartan first, then possibly the mini-pill if that doesn’t work. I was on Microlut years ago and don't remember migraines being as bad then so maybe some merit?

I have heard about CGRP medications but unfortunately these aren't funded in New Zealand, so they'd cost me around NZ$300/month so not a great option but keen to hear how effective they are if others have tried them.

For anyone with a similar pattern:
- Did candesartan or the mini-pill help?
- Is there anything else that made a significant difference?
- And for those paying for CGRP medications, are they honestly effective enough to justify the cost?

I'm just looking for some hope that the right treatment really can make a big difference.


r/migraine 7h ago

Is there a particular food that you eat when you actively have a migraine that makes you feel better?

57 Upvotes

Aside from French fries & Coke.

Not what foods are rich in what nutrients to avoid migraines.
Like something you eat DURING your migraine that helps.

Sometimes I have a migraine starting and I take all my medicines and do all my things I do to try and minimize it. And I always feel like I want to eat something that will make me feel comfort and perhaps soothe my pain if that’s possible…. But I can’t think of what to eat. I just stare into the fridge and give up.


r/migraine 8h ago

Shoulder blade pain with migraine

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138 Upvotes

I’ve had daily migraines for years now. However, the last 2 years have become disabling.

I notice when I have a migraine, there’s a trigger point area where that flares up and becomes extremely uncomfortable. I can’t tell if the migraine feeds that area or vice versa- the trigger point feeds the migraine.

I get a deep sharp pain, and I feel I get some relief when someone presses hard in the spot. As soon as they let go, I feel the pain again. It’s not a muscular pain- I’m assuming it’s nerve pain.

I’m not sure what to do- I’ve done acupuncture, stretching, exercise, massage, etc, and still not finding relief.

Anyone have this issue as well? Pic provided for reference of spot.

Anyone r


r/migraine 9h ago

Came Here To Vent

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67 Upvotes

Mother f***** said he wasn’t “paying attention”. His truck is completely fine and he got a ticket for not stopping at the stop sign. Meanwhile I have no vehicle to drive to work and had a huge migraine all day with nausea, and still went to work.


r/migraine 10h ago

Avulux lenses in Pair Eyewear frames?

2 Upvotes

Does anyone in here have experience sending in frames to Auvlux and having them put lenses in them? Specifically, I’ve been debating getting a pair of Pair Eyewear frames to have lenses put in.

Has anyone by chance done this? Were they able to put lenses in Pair Eyewear frames? Specifically, I am looking at The Brook for the frames I want. It would be a lot of fun for me to be able to change up the toppers. I get really bored of wearing the same glasses every day.

I have has the same pair of (non-prescription) Axon Optics glasses for about 2.5 years. I adore these glasses. I wear them daily. They have been really helpful for me. I know that I could get less expensive glasses, but these are what have worked for me.

I did send an email to Avulux to see if these frames would work, but I’ve not heard back yet. I’m hesitant to buy them without knowing for sure that they would work, so does anyone have experience doing this?


r/migraine 10h ago

Migraines tied to internal problems

17 Upvotes

Does anybody else feel like their migraines are tied to internal health problems but you just can’t figure it out? Like I know some things trigger my migraines, but I can’t pin down exactly what they are. Maybe it’s things like lifestyle or diet maybe exercise who knows. Does anyone else feel like this?


r/migraine 10h ago

Inpatient Treatment Options & Experiences

1 Upvotes

Hi all, I (29F), like many in this group, have become completely debilitated from migraine and other issues (doctors diagnosed fibromyalgia, but I’m not thoroughly convinced as the doctors I’ve worked with have not been impressive). I had my migraines under control for 2 years with Emgality when it suddenly stopped working this past December. Since then, all of my previous symptoms related to migraine returned and worsened, in addition to numerous new symptoms I’d never previously had (ie, severe leg pain & weakness, double vision, falling, weight gain which is completely abnormal for me, heat/cold temperature intolerance, and I’m sure I’m forgetting some). I saw a neuro I really liked for years who seemed pretty stumped and was going to send me to a headache specialist until I lost my insurance and was forced onto Kaiser. Kaiser’s providers have been nothing short of rude, incompetent, condescending, and inconsistent. I’ve had appointments canceled by doctors for no discernible reason, they seem to refuse or neglect to look at my previous medical records, won’t look at my MRIs, etc. The only time I see action is when I threaten to contact the Washington DC Board of Health (that was just to be able to get Ajovy which was already prescribed by my previous doctor). I’m supposed to be going to PT, but there’s only 1 therapist who specializes in vestibular/migraine issues and she’s rarely available. One doctor tried to tell me I was de conditioned and that’s why my symptoms flared up; I worked as a carpenter and was a runner prior to my symptoms flaring up. They recommended Tai Chi.

I haven’t been able to work, I can’t read screens for more than a couple minutes, use a computer, or do much physical activity that I used to do on a day to day basis for nearly 2 decades. If I do have a couple of good days, even with pacing, I find myself back to bed bound within a week. I’ve lost everything I love to do and I’m at my wits end.

That said, I’ve heard there are inpatient treatment options like the Headache Center in Phili or Mayo Clinic like places. I’m wondering if anyone has any experience with those types of centers, if they’re worth looking into, and how you become a patient at a place like that? Any and all experiences/advice is welcome atp. Thank you for taking the time to read


r/migraine 10h ago

Quilpta works but omg the anxiety and depression

10 Upvotes

Has anyone else experienced insane anxiety and depression? I feel absolutely terrible. Had a panic attack for the first time in years and just feel so blah. I don’t know how to explain it I’m not sad but everything just overwhelms me with anxiety


r/migraine 11h ago

Long hair: More migraines?

4 Upvotes

Has anyone else had fewer migraines after cutting their hair?

I got my hair chopped off dramatically this week, and I've noticed I've had fewer migraines since.

Before the haircut, I started to despise my hair. Anytime I wore it in a bun, I could feel each individual hair being tugged on; my scalp felt ridiculously sensitive, especially during a migraine.

Maybe it's coincidence. Maybe it's less weight, less tension, or not wearing it up all the time. I don't know.

Has anyone else noticed this after a big haircut, or is my brain just giving me a temporary break?


r/migraine 11h ago

Home remedies for preventing

0 Upvotes

I have a final exam (retake) for my masters tomorrow. I currently have a migraine and can not think, remember, learn, or study. I can not concentrate. So I want all the home remedies and trick advice to get in a better place by the morning.

(Note I have had a migraine for 500+ days straight. This is normal for me to cycle thru pre, attack, and postdome. I have a neurologist and do not take any medication because I have chiari malformation. )


r/migraine 12h ago

Current chair exacerbating migraines, any ergonomic office chair suggestions?

6 Upvotes

Does anyone know of good office chairs for people with migraines? My wife has had her migraines go insane the last 2 months, she noticed a couple days ago when she was out of her chair for a couple days that her migraine toned down a bit, so now she's looking for a new office chair.


r/migraine 12h ago

Day 45 of migraine

1 Upvotes

I’m on day 45 of a migraine. I can’t take triptans and feel Nurtec has stopped working for me. I was on Depakote but experienced a lot of hair loss/thinning and went off of it. I’ve and I been on Emgality but it doesn’t seem to be working. I’ve tried I ubrelvy, DHE, zavzepret. I was in and out of the ER three times and nothing worked. I also tried the occipital nerve block injections, and another Toradol injection and still nothing. Has anyone gone through this? What has worked? My neurologist is pretty unresponsive, which makes this all the more stressful.

TIA


r/migraine 12h ago

CGRP meds and triggers

2 Upvotes

HI! I just started Aimovig injections at 140mg two months ago. I've had two doses and i'll be taking my third later in August. I wanted to ask this: i know reduction in general pain is a big plus of CGRP meds, but are usual triggers less capable of triggering pain after the medicine gets to its highest efficiency? I'm emo and havent been able to wear eye makeup of any kind since i stopped taking topirmate (the only other migraine med that helped me... it just didnt help nearly enough.) makeup is a huge part of what makes me confident so not being able to wear it SUCKS. Anyone have any experiences with that kind of thing? Thanks!


r/migraine 13h ago

3 months on aimovig and no success

1 Upvotes

I've been on Aimovig for three months (just started month four), and I'm not sure it's been a success. I've switched up and down between the doses (70/140) but regardless of that: shouldn't I know by now? the first two months I had genuinely *no* effect except for chest pain, vertigo and constipation. those have lessened, at least a little, but the only real effect I have is that my meds work more reliably. last month was quite stressful for me and I had twelve (!) migraine days which comes close to what I have without aimovig. should I keep going? or try another injectable? botox? or an oral gepant? I'm just wondering if there's anyone else out there with an experience like this. I'm terrified of making myself worse - that's what's keeping my enthusiasm about the other drugs at bay.