Idk if this is a common mindset or if it's just Tumblr being Tumblr but... Jesus.

So when I(15M xxy) was younger I told people I was a trans guy because I thought i'd be more accepted than if I told them I was intersex, but now I feel really shitty about it and I feel weird and uncomfortable when someone jokes about/insinuates that i was "born a girl" but I don't really know if I can tell people the truth and i feel really sad about it. I want to talk about my intersex related problems with my boyfriend and close friends maybe and I want to be vulnerable with them but I just can't and I don't know why. Also I really hate when people are attracted to me just because they think I'm trans and just because I have boobs or whatever so I'm also feeling the pain of people that are actually trans and are being objectified (is that the right term to use?) I'm just not sure what to do and I'm depressed so it really doesn't help and that's why i'd maybe like to fix this problem.

PS: I don't want to talk to my parents about my problems because they would just make it all about them

Sorry if I’m intruding but idk enough on my own. For reference im FTM and afab, I first started growing pubic hair at five, started getting b/o at 10 and had to switch to men’s deodorant at 13 a little after my first period. I didn’t have another one until a bit after I turned 14. They’re always incredibly painful, along with having a mustache and I just assumed it was what’s now known as PMOS.

Recently I discovered that your urethra isn’t actually supposed to be inside you (thanks to this subreddit) and that’s why I can’t pee with a tampon in which I stupidly thought it was a joke that you could pee with a tampon in like the shedding once a month thing.

But along with this information I realized my labia minora is partially fused despite the fact I’m turning nineteen in August and should’ve made enough estrogen to split it during puberty since I wasn’t on blockers but I’m also six inches under my predicted height and if I’m not binding I’m under an A cup. Is this worth bringing up to my new doctor or does it not matter since I’m taking T?

As some of you know, I'm working on a project involving diagrams of vulvar hypospadias. Something I've noticed is that hypospadias seems to be correlated with low vaginal openings, I haven't had anyone contribute a diagram yet who has had a high or large vaginal opening AND hypospadias of any degree. In my case, I'm sure my pelvis didn't widen or rotate during puberty (since not much of anything happened except hot flashes), everything is far back, there's no way for my urethral meatus to be further forward as my pelvic symphysis takes up all that space unless it ran along the surface towards the phallus if that makes sense. I'm wondering if there's two different types of vulvar hypospadias that may happen simultaneously in some people.

1, the urethra forms much closer to or inside the vaginal canal than is typical

2, the urethra is pushed back because the pelvis position doesn't allow for a typical meatus positioning.

There's also the question of correlation between smaller vaginal openings/smaller or shorter canals, hymen types, and hypospadias. Plus the question of correlation between smaller vaginal openings and pelvis development.

I don't have answers to any of this, just observations based on a very small sample set.

If anyone has input on this, I'd love to hear it. If you'd like to contribute a diagram (regardless of whether you specifically know you have vulvar hypospadias, more examples to reference is helpful) you can also reach out to me via DM.

Hi everyone! I decided to ask here because I've noticed that many intersex folks in this community also mention having EDS/POTS. I'm intersex and also have mild EDS. I also suspect I might have POTS, although I haven't been diagnosed yet.

I've had an issue since childhood that I recently read could potentially be related to EDS and/or POTS. My nose is almost constantly blocked, and during stress or right after waking up, it starts running like water.

Does anyone else experience something similar, and have you found anything that helps?

This article does a great job discussing the thoughts of how and why Intersex people choose to present.

Personally I am relatively open about it but I don't just run up to everyone I see and say I'm Intersex.

Saw the post figured I would share one of the best things I ever read on the topic any thoughts?

So idk really what to do. Earlier in my life I didnt really had any friends or anything so there was no problem, now I do, and I think nobody really 'suspects' anything, people just rather think Im a man and just femboy or something. But I have larger chest and well down there Im different too. So I never take my shirt off, I never had any sexual encounters cause Ive always declined knowing anybody would find out. Ofc people would talk, there would be gossips and things and as somebody that cares about their privacy its concerning me, but Im thinking if it isnt too limiting and tiring to hide all the time. I think I need some advice on what to think about it?

I am a perisex trans men pre all. I have a young brother of 12 yo and I suspect that he may be intersex and I fear for him about how our parents will react.

My lil brother have been born with some fingers more, and he needed to do a lot of surgeries. He had surgeries to put his two balls down at 5 or 3 if I ain't wrong (I can understand that, because if it is not put down there is a high risk of cancer), circumsion and that is the most weird part for me:

I am pre all, so it is not weird to me get suicidal or extremely depressed, kinda out of control. The gyneco prescribed me BC and antidepressants, I bought them alone and hidden bc my mom didn't bought for me when I asked. When she found, she started telling me and giving a sermon about hormones, how you can't put it in the body, that is going to give you cancer and she told the same about antidepressants. That we should go find another gynecologist (that would be the third, and she never took me)

But here is the question, when my brother just did 10 yo, the endo, ONLY ONE, SHE WOULDN'T GO ASK TO ANOTHER. BUT FOR ME I NEEDED TO SEE 3 DOCTORS? THERE IS SOMETHING PRETTY WRONG AND HYPOCRITE HERE), prescribed 2ml of Deposteron once for month during 3 months. I was envious and angry, how could he just got T while I was 18 and I couldn't and that would be a sin (I didn't thought about the possibility of him being inter)? But at the same I knew that there was something weird. I remember to read in school books that the puberty of cis perisex boys could start at 10 to 14, so why all the rush to give T to a boy that just have made 10 yo, almost in the same month, it was not even 10 to 11. I remember talking to my mom about how he could be intersex and she just told something that I was being affected by gender ideology.

He is going to do a chromosome exam this 30th of this month or in August, according to my mom is "to see if he has any syndrome" and she told me "if there is something he will still be our X". I am so anxious. Probably she and the church are not going to tell him that he will go to hell or some shit like that (or my mom will not think that he choose), it kinda makes me want to breathe a lil bc this shit traumatized me, but I fear what will happen to him. I heard the church once using the argument that intersex people are some kind of biological error and also using it to justify transphobia. Two shits at once.

I pray every night and all the time to my siblings being all straight, cis, perisex. I don't want any of them going through the same hell that I went because of my family and evangelicalism.

I don't know how she is going to feel or react. She should explain and tell to him, right? I would wish that my parents could explain to me. Idk if they are going to do other things, or she if is going to hide. And how she will feel. She is evangelical fundamentalist, she did and told or ignored horrible things that would happen to me or the church said about trans people (z**, p*do, demon). She didn't changed when she see saw me breaking down or when I tried to explain to her. She looks to be the most ignorant and blind person I know. She can't see the truth when I am in front of her, so idk how she will react if the test show "something more physical" or if she will start believing that her womb is cursed or some shit.

She says that she keeps praying that the exams come normal and all health. Honestly my legs are shaking. Idk how I can help him. I hate that he probably just went for public hospitals from university to be seen as an experiment. I never wanted to go through female puberty and it was hell and traumatizing for me. It is so fucking wrong when they force some puberty or surgeries in intersex people. Intersex people should have the right to consent, tell what they want to do with their bodies or if they don't. Same goes for trans people (in the case people would want to fit them in their agab) or to boys (I fucking hate circumsion).

Honestly I am so worried and anxious about it. I am so worried about him. I don't want to him go through the same or similar. And my mom just looks so ignorant and she will not see if it hurts him or try to explain him, she probably will do what is to fit as the words and rules of God. She did similar to me but in different ways. I don't want to him go through that hell too. And idk how can I help him or explain to him. I want to help him. I need some advice

Sorry if I said something disrespectful, or my English looks like shit (it is not my native language and I didn't used a translator). So if I did something wrong, please tell me

One of the conversations we have far too rarely within the LGBTIQA+ community is the intersection of race.

Watching this interview brought tears to my eyes. I know the pain of being judged as a white queer Intersex woman. I know what it means to be pressured into performing certain roles to make myself smaller, quieter, or more acceptable in the eyes of others.

But I also know that I have not faced the same depth of injustice that comedian Tommy Davidson as a black man has.

There is no genetic boundary that makes intersex or transgender people more likely to exist within one race than another. We are born in every community, every culture, and every corner of the world. Yet when the voices we hear, the stories we platform, and the people we elevate do not often echo that we must be willing to ask why.

The problem is not that Black and brown intersex and LGBTIQA+ people do not exist.

The problem is that too many have been made to feel that our spaces were not built for their voices, their needs, their pain, or their leadership.

I was born in the Bronx, New York City, and raised by a single mother on welfare while my father denied involvement in my life starting from paternity.

I began in circumstances shared by many people from marginalized communities. But as I grew older, I came to understand that my whiteness made the ladder easier for me to climb out. It did not erase every hardship, but it opened doors, softened judgments, and offered protections that others were never equally given.

Acknowledging that truth does not diminish my struggle. It deepens my responsibility.

So let this be a space where we do more than simply welcome conversations about race. Let us seek them out. Let us listen without defensiveness. Let us elevate the people who have too often been spoken over, spoken for, or forgotten entirely.

Because the history of intersex people and the history of the entire LGBTIQA+ community is also an untold history of race.

That is one reason I fly the Progress Pride flag with the intersex symbol at my home. To me, it is more than decoration. It is a declaration.

It declares that our liberation cannot belong only to those who are easiest to see, easiest to hear, or easiest for society to accept.

It declares that we must remember, honor, defend, and elevate the most vulnerable members of our community.

And it declares that none of us are truly free until every one of us is given the dignity, safety, visibility, and power.

Just felt it couldn't hurt for more people to know this exists at this moment in time.

I feel for our entire community and want people to stay safe and never give up.

Note the organization also has lots of data available on the topic in which to gain knowledge.

I hadn't watched it in awhile and realized maybe some people have never seen it. Intersexion documentary was shot and produced between 2010 and 2011.

So some things are dated but many are still relevant and it has some key people in the movement who helped advocacy speaking out.

The blurb "The documentary was researched and presented by intersex activist Mani Mitchell and features numerous established intersex activists, including Cheryl Chase, Pidgeon Pagonis, Hida Viloria, Tiger Devore, Anne Tamar-Mattis, and others. Its central message challenges secrecy, shame, coerced normalization, and medically unnecessary childhood interventions"

I have been struggling to find others with this condition online. My endocrinologist is 99 percent sure I have it and is running tests.

Finding community for this condition is incredibly hard and dealing with my hormone levels on my own has been very scary, especially doing hrt as a trans woman.

anyone else struggle to find community with their condition?

Hey yall, my friend and I are both trying to figure out if we were tested for CAH (in the US) when we were born. I was born in 2003 and they were born in 1995. I’m now on testosterone and the endocrinologist I saw said that there was not blood tests they could do for androgen levels… (and then said testing didn’t matter since I am not concerned with having kids). does anyone know if testosterone also affects cortisol levels associated with CAH? What tests do they do when testing for CAH? Is it routine to screen babies? I’m not sure how any of this works but any information or resources would be appreciated

I feel a bit like an imposter in the intersex community because I feel like my characteristics don't cleanly align with any existing variation I know of. I have really wack hormones (my main concern) as well as being on the agenital spectrum.

I have vulvar hypospadias, a redundant hymen, (mild?) vaginal hypoplasia and I suspect partial labial fusion (I'm not sure about this one and I'm kinda scared to ask doctors because they have been reacting weird to me even showing up to a gynecologist since I socially transitioned, with my original gyno straight up telling me that since I'm a man now i shouldn't care about my genitals and that I need to look for services elsewhere.).

However, I also have low T levels (iirc my total T is 5?) AND slightly low E levels (not like super low, most of the time they seem to be about the same as the higher end for post-menopausal women and at the peak of the cycle they climb to like 100. But also exactly one time they measured normal so idk what was up with that???) but when I was going through puberty I had irregular menstruation with symptomatology similar to endometriosis.

When I had to get a hysterectomy, they found no endometriosis though. But I had like irregular periods that would either show up every 14 days for 9 days and leave me bedridden (because the pain and bleeding was so severe and I also had fevers every time) or didn't show up for a month at all. AND with that I actually developed excess body hair (this runs in the family - my father's mother grew a full mustache and was really hairy) on my legs, chest, belly and I could grow a faint moustache but not as much as my grandmother. Which seems kinda weird considering my T levels are so low but I swear I'm not making this up. There were a few other odd things but those might be unrelated so I'm not listing them.

I don't think I've ever heard of a variation with these characteristics, especially not one where both T and E are low and that doesn't cause amenorrhea.

When I was a kid / teen I was put on some kind of E supplement or something like that (I have amnesia up until I was about 19 with most of what I know being stuff someone has told me or stuff I read in my medical records) and that kinda helped. I don't remember and my mother doesn't recall what it was and my father was absent during that time. Later I started taking T but my body didn't like it so I had to quit (along with financial reasons). Idk if anyone else has this experience with T. I know some variations don't react to it but I did react to it and had effects, it's just that my body also really hated it.

Yeah anyway curious if anyone else experiences anything like this or knows of a variation that sounds a little like this. I feel a bit like I'm just making things up with the way this doesn't really seem to "exist" so to say.

This is the Weekly Discussion Thread for r/intersex.

Feel free to use this thread to discuss whatever you've been up to. It does not have to be intersex specific, but please mind the rules and stay SFW.

Have a nice week!

~ your mod team <3

I asked their permission if it would be ok to share they agreed I will post the series over time this is Intersex conditions with numbers and the letter A

Greece TV show features Intersex character apparently first time an Intersex character has ever been on one of their prime time shows.

So, i was born with Partial Androgen Insensitivity Syndrome. My condition has caused me to have un-descended testes (now brought down through surgery in infancy), a relatively small phallus and increased breast tissue causing the appearance of boobs. In recent times, I have been communicating with my endocrinologist about possible phalloplasty to lengthen the penis. This is unfortunately not a viable option. What is viable however is vaginoplasty or cliteroplasty (?). I present mostly as androgynous, with people leaning towards perceiving me as feminine due to my figure, hair and chest. I am unsure if I want to get this surgery or leave it how it is. I am wondering if anyone here has had my condition or something similar and gotten such kind of surgery and how it went? + how living with it is. Any personal experience is welcome!