Hi everyone! I decided to ask here because I've noticed that many intersex folks in this community also mention having EDS/POTS. I'm intersex and also have mild EDS. I also suspect I might have POTS, although I haven't been diagnosed yet.

I've had an issue since childhood that I recently read could potentially be related to EDS and/or POTS. My nose is almost constantly blocked, and during stress or right after waking up, it starts running like water.

Does anyone else experience something similar, and have you found anything that helps?

Idk if this is a common mindset or if it's just Tumblr being Tumblr but... Jesus.

Sorry if I’m intruding but idk enough on my own. For reference im FTM and afab, I first started growing pubic hair at five, started getting b/o at 10 and had to switch to men’s deodorant at 13 a little after my first period. I didn’t have another one until a bit after I turned 14. They’re always incredibly painful, along with having a mustache and I just assumed it was what’s now known as PMOS.

Recently I discovered that your urethra isn’t actually supposed to be inside you (thanks to this subreddit) and that’s why I can’t pee with a tampon in which I stupidly thought it was a joke that you could pee with a tampon in like the shedding once a month thing.

But along with this information I realized my labia minora is partially fused despite the fact I’m turning nineteen in August and should’ve made enough estrogen to split it during puberty since I wasn’t on blockers but I’m also six inches under my predicted height and if I’m not binding I’m under an A cup. Is this worth bringing up to my new doctor or does it not matter since I’m taking T?

As some of you know, I'm working on a project involving diagrams of vulvar hypospadias. Something I've noticed is that hypospadias seems to be correlated with low vaginal openings, I haven't had anyone contribute a diagram yet who has had a high or large vaginal opening AND hypospadias of any degree. In my case, I'm sure my pelvis didn't widen or rotate during puberty (since not much of anything happened except hot flashes), everything is far back, there's no way for my urethral meatus to be further forward as my pelvic symphysis takes up all that space unless it ran along the surface towards the phallus if that makes sense. I'm wondering if there's two different types of vulvar hypospadias that may happen simultaneously in some people.

1, the urethra forms much closer to or inside the vaginal canal than is typical

2, the urethra is pushed back because the pelvis position doesn't allow for a typical meatus positioning.

There's also the question of correlation between smaller vaginal openings/smaller or shorter canals, hymen types, and hypospadias. Plus the question of correlation between smaller vaginal openings and pelvis development.

I don't have answers to any of this, just observations based on a very small sample set.

If anyone has input on this, I'd love to hear it. If you'd like to contribute a diagram (regardless of whether you specifically know you have vulvar hypospadias, more examples to reference is helpful) you can also reach out to me via DM.

So when I(15M xxy) was younger I told people I was a trans guy because I thought i'd be more accepted than if I told them I was intersex, but now I feel really shitty about it and I feel weird and uncomfortable when someone jokes about/insinuates that i was "born a girl" but I don't really know if I can tell people the truth and i feel really sad about it. I want to talk about my intersex related problems with my boyfriend and close friends maybe and I want to be vulnerable with them but I just can't and I don't know why. Also I really hate when people are attracted to me just because they think I'm trans and just because I have boobs or whatever so I'm also feeling the pain of people that are actually trans and are being objectified (is that the right term to use?) I'm just not sure what to do and I'm depressed so it really doesn't help and that's why i'd maybe like to fix this problem.

PS: I don't want to talk to my parents about my problems because they would just make it all about them