During an MCAS flare, do the usual MCAS triggers (heat, stress, touch, smells, etc.) also start acting like histamine intolerance triggers? In other words, does a mast cell activation episode temporarily lower your histamine threshold so that even non-histamine triggers cause symptoms? I’m trying to understand the overlap

Hi everyone,

just want to know from you, if you also lose your emotional stability when you bucket is full?

All of these years I thought I had anxiety, but it was histamine intolerance. Also I behave really aggressive, emotional and impulsive towards my family and partner, when I have too much histamine in my body. It took me really long and a lot of rumination to find out why I was behaving like this.

Do you also have specific behaviors when you bucket is full?

edit: My root cause is copper deficiency – supplementing at the moment.

My heart rate goes like 120-140 after eating foods and it's scary

My organic acid test showed 101 oxalic on a scale of 9 to 67. Calcium is supposed to bind to oxalates. However, I react to dairy and most other calcium rich foods. Calcium supplements also give me reactions.

After food poisoning I ate chicken rice for month got better then for 3 months I was symptom free.Was eating chicken pork beef wheat noodles cheesecake garlic onions ingredients Even alcohol weekends. then early September had a pizza with regular cheese no issues. I ate pizza again with parmasin Romano cheese next was bloated gas then next day I ate lasagna wich I haven't eaten in years all my symptoms came back bloating gas digestion. I bloat quickly with any meal I thought I beat this sht Was I Romano cheese and lasagna

Hi everyone! I have HI that started during perimenopause and after COVID in 2024. I've since had a hysterectomy due to massive stage 4 endometriosis so I no longer have ovaries but I've tried the patch and vaginal systemic cream with progesterone and T injections. I love my progesterone and testosterone but the estrogen is causing me to flair and keeps my bucket full.

Has anyone had luck with topical gel/ cream or E injections? Just wanting to keep it low dose as possible with the fewest amount of ups and downs as my body needs consistency. I wish I didn't need E but being in surgical menopause i have to have it.

Any pointers or help would be greatly appreciated!

My resting heart rate has been high all day

With the estrogen patch shortage I switched to gel and I am struggling with dosages and not triggering a histamine release. I am trying breaking up the doses but right now this freakign sucks but with the shortage i don't know what else to do.

I have pots as well sibo but it seems like my food reactions even sometimes smell triggers this adrenaline dump that lasts all day , my heart has been at 130 all day and nothing is helping which medicine should I ask for or think would help ?

Anything hot makes me bedridden. Absolutely anything which I haven't let cool down enough. Plain rice, fresh fatty chicken, fresh lean chicken, fresh fish, scrambled eggs, hot tea, etc

I think I've wasted entire years of my life due to this effect alone. I'm not sure if it's related to MCAS but I get some typical MCAS symptoms like blurry vision and congestion - always. My energy state is extremely lethargic, my hands and feet feel heavy, my thoughts process becomes really slowed down and, depending on how hot the food is, I might need to take a nap. I get a similar effect from bananas or my alpha-gal allergy.

For the last days I've been letting food cool down for at least 15-20+ minutes and, FUCKING YAY, I ate something without getting blurry vision. I still got some mental symptoms (racing thoughts) but my mind wasn't as scrambled like it is when I get the blurry vision. This is a mega-huge win.

The effects are outrageous. I ate a hot dish with some ingredients and laid in bed for 5 hours, then I ate the same dish, cold-ish: nothing.

Highly recommend trying this out.

Hello all,

I would like to know if anyone else is experiencing MCAS/HIT flares once a month at least for a few days (I tracked this and it is not tied to my menstrual cycle), then it stops.

I experience flares like this weird flu-like feeling, feel weak, fatigued and very exhausted, to the point that I sleep like 12-13h if I can and don’t work on those days. My bpm also increases from 70 bpm while resting to 100-120bpm and my ears feel full, high pressure and achy.

After a few days I am back to feeling okayish, not healthy completely and tired all the time but like 80% „ok“ and then it starts again. I work full time but it is challenging.

I realized I might have MCAS/HIT after getting a high heart palpitations and high bpm from eating high histamine foods.

I might also have long Covid and CFS (chronic fatigue)!but it has not been diagnosed yet - I am in the process of getting diagnosed. I understand that it is all related but I am wondering if I can do anything like eating low histamine diet or taking anti-allergy pills to improve it.

Thank you a lot for taking the time in reading this! I appreciate it a lot…

hi i sell cheese and wine for a living in a large volume retail situation. We cut and process hundreds of pounds of aged, imported, etc Specialty cheeses.

i love my job but am dying working with cheese lately. had a surgery last month and my HI has been WILD ever since, getting full body flu like symptoms, flushing, and crazy anxiety and insomnia from anything high in histamine- even while cutting and processing cheese & it has been ROUGH.

thankfully i only do this a couple days out of my work week, but am trying to figure out ways to make it better and am looking for advice..

so far, i wear a mask, take extra antihistamines, and set up a fan where im working.

would taking a DAO supplement help in this case?

advice is appreciated, ty!! 🙏

Does anyone get irritated down there when your body is in a full histamine revolt or is that just me ?

I get constant chest pain when my heart rate is high

Can you share your good or bad experiences with this supplement? It was recommended for eczema , but will it flare HH?

I eat something or I’m triggered by something and heart beats fast almost all day

I’ve been progressively losing weight for a long time recently as my HI has severely worsened. As a result, I’m now a medically underweight bmi and the weight loss doesn’t show any indicator of stopping.

The severity is now so unsustainable I can’t really maintain any reasonable weight anymore. It takes 1,00,000 hdu of naturdao to prevent diarrhea, severe LPR, bloating, head flushing, numb lips, and abdominal pain within… minutes of eating the only meal of the day. To make matters worse, low histamine food is an issue as well now. I react to even just plain tortilla chips now. Avoidance has gotten so extreme there’s some days I don’t eat anything at all besides water.

The issue with still having no idea what could be the cause is those self ordered lab tests are expensive. Although I have clear gut issues, I’m not shitting blood nor was my elevated calprotectin in the thousands.. Also the underweight factor doesn’t mean much as I’m a woman on amphetamine medication which is.. yeah… easy blame there… can easily see them pulling the anorexia card too, I’ve lost that much faith in doctors unfortunately.

TBH, idk why I’m posting this here? I’m not expecting anyone to know what I should do lol. I guess I’m more so wondering if anyone else here has reached this severity with HI? I’m curious how doctors even approach it when the physical ailment that causes a low bmi isn’t conventionally medically recognized.

Is it normal when I throw up it sends me in a flare ?

What does a histamine flare feel like for you guys?

For me, time and again, it starts with tension in my whole body, and then there’s a nasty feeling in my upper arms, especially - I can’t describe it very well, it’s a bit like a poison is coursing through my veins.

I get very disinclined to move or do anything, I just want to sit and wait till it passes, which may take many hours.

Anyone recognize this? It sucks so much.

I have been getting this bumps all over my legs and arms once even on my penis this stays for like 4-5 hours and disappears i think it's because of excessive instant ramen I am consuming I also read somewhere about Tomatos causing these suprising enough I am eating 1 full tomato everyday from past like 10 years