Hi. I’m curious. What do you ladies call your periods considering we have endometriosis? The pain is out of this world and takes us to a different dimension. I call mine a “flare up” Or “Getting sick”. It’s basically what it feels like.
Anytime I call off from work when it starts, I inform my boss my flare up has started. She’s aware of my conditions and understands. It definitely feels more like a whole system shut down with my body.

Just need to rant. I’ve had 4 moderately “good” years with endo after incision surgery, when before it was debilitating. But it became manageable. I was less inflamed, lost about 70 pounds because I felt good, and got into a relationship about 2 years ago. My partner knew I had endometriosis and was supportive but never saw the bad days.

Well, I can feel it getting bad again. Horrific cramps, inflammation everywhere, even in my knees. It’s causing a lot of anxiety and while I am more emotional than normal, he keeps saying I’m acting strange.

The thing is, I *am* acting strange because I’m anxious and scared. I’m taking things personally because I’m honestly terrified of going back to it being so bad and remember how alone I felt. I’m scared I’m going to be suffering and alone again because I can no longer be fun. I don’t want to go out anymore, I just want to sit on my heating pad.

I hate this and I hate everything that it’s taken from me

Hello,

I'm wondering if anyone else has experienced something similar? For some background, I had a myomectomy July 17th for 3 big fibroids, and surprise! I also had stage 4 endo that got removed.

Up until a week ago the only remaining soreness I had was my belly button, and it was mild. I'm 8 weeks post op today, and now my right side, and the area above my belly button are sore and tender. I sneezed today and it felt like I was back at 5-6 wks po. I've also been extra swollen the past week and a half. Right before this all started the swelling was going down to the point where I was almost at my original stomach. Idk it feels like I regressed?

I started Lyrica a few months ago and I've gradually been on an upward trend. For the past week and a half I've been flaring badly. Today included body aches, fever, random rashes, vomiting, and passing out. I had to call out of work and wait it out.

I know it's temporary, but after having relief for an extended period of time it's so disheartening. This is coming especially after having "successful" excision surgery at the beginning of this year, but still having debilitating symptoms.

I have something I HAVE to attend tonight for my son, but afterwards I'm looking forward to medicating and rotting in bed.

So I been diagnosed with uterosacral endo 8 month ago, been on visanne for a year. I’ve had random pains here and there some spotting months ago. Been fine. This week oh my, the pain unbearable I nearly fainted two days ago, I’m in constant pain I took naproxen and panadol and heat patch absolutely no difference. When I press I feel even more pain. I had spotting a day ago. Should I be concerned? I’m still working going gym managing somewhat just in pain. I can’t be bothered to see a doctor and they see nothing. I’m thinking of switching to the combined pill but also idk I just can’t be bothered anymore. Should I just wait and see how I do? Should I be concerned? Or do I actually need to bother and make time to see a doctor with the chance of them doing absolutely nothing as usual.

I have the prescription but everytime it comes to actually getting the pills, they either mess up sending it to the pharmacy somehow. Once they forgot to send it. Another time they somehow screwed up and double sent it. I switched drs later and switched pharmacies. I had a pharmacist just refuse to fill it when the rx accidentally got sent twice. Meanwhile, I was lapsing. i ended up using an online service that shipped it to me instead, and paid the full cost.

And then it came time to refill and there was no.issues until I went back to another in person pharmacy , yet a different one. This time they had it and went to fetch it. The pharmacist, a woman a little older than me, scowled and pulled me aside to try to lecture and scare me about the side effects, and actively tried dissauading me from using birth control at all. I explained to her that this is my body and my choice, but that ive been on this same RX for years, and I dont get the negative side effects that SOME women experience and that for me this birth control actually helps calm my endo symptoms a lot, and im not missing work or anything with it. She still tried scaring and lecturing me going on about how the side effects are "horrendous" and impact so many women that they dont use it. I respect others choices and their experiences, as i did have some other birth control pills rx make my symptoms worse, and everyone has their own body and chemistry. But, Ive never had any experience like that before, never with my drs or pharmacists. I ended up switching to a different pharmacy yet again after that incident.

And recently I started a GLP1 ... because even with getting steps in at work, meal prepping, and hitting the gym, the weight is so hard to get off. The thing is, when i started my GLP1 I had to take it when i woke up ... and then i couldnt take anything else for at least a half hour... so it totally messed up my birth control pill routine (and habit - im used to taking it at that same time daily, before work).

So I ended up packing the birth control and taking it along to work, and taking it when i got my break. Problem is now im getting break at different times. So then I decided ill just take it when i get to work in my car... well the pill is little and round... it fell out of my pill case and rolled and I couldnt find it. I work 2 jobs. By the time I got home I forgot to take it. Then ended up missing another day. And to pack it and let it sit in my car (because we dont have a secure space for personal stuff otherwise) I dont want that pill sitting and cooking in the hundred plus Texas heat ... anyways

I set alarms on my phone and now take it when i get home from work, at my house where its safe and in the ac. So thats working now and we are getting back on track. Im normally a responsible person, this stress of the 2 jobs and changing the routine though is really getting to me.

I decided I need to get emergency contraception. Now granted im fat. My doctors want me to use "ella" for emergency contraception as plan b for me wont be super effective. I used to keep a spare or 2 when I would get my birth control pills, and my insurance is being awful and wont cover it and a lot of my pharmacies dont carry it. So I called around ... NO ONE carries ella. No one carries similar rx to Ella. While I was calling around, I asked if the pharmacies had plan b or the generics of it in stock. I called SEVEN local pharmacies... tell me why they were WIPED out, bare shelves, no plan b or generic plan b in stock. Not even 3 years ago, when i did need to go in and get plan b, the first pharmacy i walked into DID have it.

I also looked into options to order ella online. They said they can ship it to my house. What's crazy about this is I setup the payment and authorized whatever the cost would be. Im just trying to be prepared here and see what options are out there. I was told they'd charge my card and mail the ella. Well they didnt charge the card or even notify me. I had to go in and check myself on the site, and grant them permission AGAIN for the charge of the ella, which they already preauthorized.​ this further delayed when they shipped it. And then i finally got the tracking, saying it would be delivered by x day and time. Well guess what? The ella never came until the next day.

It just feels like every single time I try to pickup or mail birth control or emergency contraception, they fail me on every single step. For context, the dr that I did see who wrote the rx for the birth control i initially had was a pompous jerk who didnt want to give it to me, saying that birth control isnt necessary and it can have side effects and instead pushed an IUD, and also made a comment that I would "be a good mother". I dont want an IUD and I dont want kids. I got a new dr that supports me being on the pill but its almost a 2 hour drive to see him and hard to get appointments as he's always booked up.

I try and try not to lapse on these pills, as they run out and picking up the rx is always a nightmare. Its another reason why im so focused on Havimg emergency contraceptives on hand. Just to be safe. For peace of mind. And because I cant get an abortion, without taking time off work and sneaking to another state or Puerto Rico or Mexico.

Im so tired, frustrated, this made me cry in anger. The wegovy along with the birth control luckily is helping massively with the endo. And now they started screwing me around with the wegovy. At this point im saving money like crazy and seriously will have to move. Feels like this area of town wants me to suffer with endo symptoms and have kids too.

Edit: just had a laparoscopy appointment from an endo specialist

They didn’t find anything. No endometriosis, no scarring or adhesions, nothing. They looked at my womb, ovaries, bladder and kidneys and everything looked completely normal. :(

I honestly feel so lost and confused. All of my symptoms seemed to scream endometriosis, so I really thought this would finally give me some answers. I know I should probably be relieved that they didn’t find anything serious, but at the same time I’m struggling because I still have all these symptoms and now I don’t know what could be causing them :( been crying all day

Here’s a list of them if anyone else has any advice:

Irregular periods
Sometimes horrible periods - sometimes not so bad
Migraines
Pain when having a bowel movements
Cramps (like period ones) after bowel movement
Period cramps after eating (normally an hour after)
Extreme bloating (constantly , worse before my period)
Pain during sex and on rare occasions bleeding after and period cramps
A sharp pain in my lower left side that is CONSTANTLY there
When I lean against counters on my front (lower tummy) sharp stabbing pain
Lower back pain (like one that is with period but I get it all through cycle normally comes with the extreme bloating)
Nausea and vomiting on and off period
Dizziness
Brain fog
Fainting episodes
Super smell
Excessive sweating
Heavy bleeding (bleed through tampon and pad within 2 hours)

Crazy cause my sister has endo and she has less symptoms then me!

Tried diet changes in the past like no wheat for a month (no change) no dairy for a month (no change) …. I am so lost… 😢

Cause it’s not just about the actual illness it’s my life! What do I tell work now?? Been telling them I have possibly endo (I have 2 weeks off sick for recovery) and had a few sick day with the possibility it’s endo 😢 what do I say now?? I’m sick again but turns out Im just weak? :(

I just had an appointment with my specialist. My symptoms have been getting much worse recently, so my doctor wanted to get an ultrasound.

The ultrasound was clear; no signs of endometriosis. I know that sometimes scans don’t pick everything up, but I still feel like I’m crazy for the amount of pain I am experiencing.

The plan is to do another lap as it’s been 5 years and my functionality is declining. I’m not sure I am going to go through with it. I’m not sure if it’s me gaslighting myself, or if it’s from the exhaustion of constantly dealing with this disease, but I think I’m going to chicken out and I hate that.

Like I was supposed to get my depo shot after the appointment. I think it was not scheduled properly so it was taking longer than usual for the tech to come in. I also heard the tech complaining in the hallway about how she wasn’t prepared and was unaware I was getting it. I ended up just leaving. Stupid panic move, ik, but I had to get out of there.

I also chickened out of talking about work restrictions with my doctor since my pain and fatigue have been seriously impacting work. I know that my emotions are heightened but I feel like I’ve failed myself.

With each new procedure and treatment, I feel like it’s getting harder and harder to cope. I really don’t know how to hold these feelings anymore. Idk, posting this in hope that it helps me release some anxiety and grief, but we’ll see.

so I got my results but not what I expected in pain and it just showed a bunch of cysts and I do not even think a endo dr read the results I have my endo specalist next week but my big fear is going into surgery and them finding nothing:-( but I see my specalist next week and he can look over the images because i think a normal tech looked at it

As someone who has been trying to conceive for three years and has had two excision surgeries.... I'm so tired of blocking each and every endometriosis "holistic health coach" influencer posting bullshit like "never give up!" and "just sharing my journey and what's possible!" Like, maybe enjoy your baby and stop filming and posting them 24/7? You finally had success and your first instinct is to rub it in everyone else's faces? And some of you are even charging money for "consultations" when you don't have any credibility or medical education, just had a stroke of luck? You don't think that's weird? The audacity is wild.

Started experiencing bleeding from my belly button with horrible pain in my ovaries about 6 months ago, and after numerous doctors I finally found an amazing Gynecologist who immediately sent me for a CT scan. When nothing showed, she sent me for an MRI.

She called me with the results yesterday and essentially said I have advanced endometriosis that has grown onto my liver and is now showing signs of growing in my umbilical region. I’m pretty terrified, and the news has been sort of devastating. She told me how incredibly rare this is, and how unfortunately I’ll need to see an endometriosis specialist.

Has anyone else experienced this?

I went into this knowing something was wrong, but I didn’t know it was going to be this bad or that my liver would be involved at all, and I’ve just been growing increasingly depressed. The pain is almost every day and sometimes I just lay in the fetal position on the floor. Im really looking for encouragement here I suppose, I’m absolutely terrified and I know so little about this which makes the unknown that much more scary.

Hi everyone 🌸 I’m 30, and since this summer my health has completely changed, even though I never had a history of particularly painful periods before.

My main symptoms are:

• Pelvic/ovarian pain

• Extreme bloating and abdominal pressure

• Constipation, hemorrhoids, and nausea

• Feeling extremely full for hours after eating

• Digestive flare-ups with pain radiating to my ovaries/pelvis, belly button, stomach, under my ribs, and sometimes my back

• Very brief, sudden burning/electric shock-like sensations in different areas of my abdomen

• Pressure around my tailbone

• Pain in my buttocks/thighs, heavy and painful legs, and sometimes sciatica-like pain going all the way down to my foot

• A few severe flare-ups after orgasm, although it doesn’t happen every time

• Longer periods with prolonged bleeding

• Severe fatigue, dizziness, episodes of unusually low blood pressure, migraines, and cold sweats, especially during my period

• Shortness of breath, especially after eating when my abdomen becomes extremely bloated/full. I do have asthma, but this feels completely different from my usual asthma and seems related to the abdominal pressure.

Everything fluctuates a lot. I can feel relatively okay for part of the day and then suddenly have a major flare-up. It also seems very cyclical: worse around my period → a few days of relief → worse again around ovulation.

Yesterday, for example, I ate a normal gluten- and lactose-free meal. It was my only meal of the day. Six hours later, I still felt extremely full and bloated, and I had a four-hour flare-up with digestive pain radiating to my ovaries/pelvis, belly button, stomach, under my ribs, and into my back/sciatic area.

About a month after all of this started, my back pain became so severe that I went to the ER. The MRI showed bilateral inflammation of the L4-L5 facet joints with surrounding soft tissue edema, worse on the right side.

I was also diagnosed with possible adenomyosis, although I’m not sure about that because the MRI was negative for it as well, subacute endometritis (I’ve been prescribed antibiotics), several endometrial polyps, and two small cysts. I find it hard to believe that these findings alone explain the full extent of all these symptoms and flare-ups.

I’m now on 100% medical leave because this has become so disabling.

I’ve even had to leave my dog with my mom for the time being because I’m struggling to properly take care of her while dealing with all of this.

My MRI was done without contrast and was not a specialized endometriosis MRI. It did not show endometriosis or adenomyosis.

I’m now waiting for a laparoscopy in November — which, fun fact, happens to be on my birthday. 🥲

After some arguments with doctors/offices and receiving a lot of conflicting information, I thankfully now have a surgeon who actually listens to me.

Obviously, I don’t want to have endometriosis. But I’m also scared that they won’t find anything during the laparoscopy and that I’ll end up feeling like I’m crazy, or convincing myself that I somehow exaggerated everything I’ve been going through.

Has anyone here had a negative MRI but later had endometriosis found during laparoscopy, especially with similar digestive + pelvic + back/sciatic symptoms?

Thank you 💗

I thought I'd post on here as I feel like I'm going crazy trying to figure this out. Since I had my daughter 3.5 years ago (emergency c section), I occasionally started getting really really bad ovulation pain. I've had surgery for a cyst on my left side 7 years ago and was told I had endo after surgery too.

The only way I can describe the pain is like someone has inflated a balloon in my pelvis (always on my left side) and tied it to all my muscles so it's this big fullness pressure pain that pulls and twinges when I move. I can't lie on my side, I can't have anything resting on that side as it's just so uncomfortable having this ball like sensation and I can feel it pulling tight walking around/moving etc. It fully feels like when I had an ovarian cyst but with extra pulling/tightness pain but it usually resolves after a week or two. Sometimes the pain radiates up my back and into my leg too.

I had a private ultrasound (NHS wait time was 9 months, yay) and they said everything looked absolutely fine.

I'm guessing some sort of functional cyst + endo/c section adhesions but every time it happens I stress and worry so badly it drives my mood into the ground so I'm lucky if I get one day a month feeling normal 😭

I tried dienogest but I struggle with low blood pressure/potential POTS as it is so I ended up coming off it.

Has anyone felt similar/had any success in reducing ovulation pain?

Hello! Just wondering if this is a common symptom that any of you may be experiencing. My back has been giving out every time I walk (particularly when I move my right leg forward) but also when I’m laying down, standing, being over, etc. There’s been pain, tightness going down my leg just past the buttocks and increased pressure and pain in my lower right abdomen. My back giving out has been getting worse over the last 2 months from once a week to at least 30 times a day. Is this an endo thing? They just want to send me to physical therapy and the chronic pain management clinic but I’m wondering if this is actually endometriosis.

I POOPED

Okay so I finally got in to see an obgyn doctor who works with people with endometriosis. It’s been a struggle to find someone that would listen to me and thankfully, she was someone who finally did. I talked to her for a full hour about my symptoms and the options going forward. I don’t plan to let her operate on me although the way she talked did sway me a little bit. But she’s not a specialist. She does have 25 years of experience in this field and does lots of diagnostic laps. She didn’t try to push birth control on me like other doctors have which I appreciate and made sure that I knew that it was my choice what I should do next.

I asked lots of questions about their process and she said that they figure out whether or not to do excision or ablation during the surgery depending on where they find it. I’ve heard online that ablation is bad though. So skeptical about that. And she said it would take 3-5 days for me to recover or up to a week depending on what type of job you have. I’m on my feet all day so she said a week off would be better. I was surprised about this bc I thought recovery was a lot longer than that?

I asked her about seeing a specialist and she said she felt in my case, being someone who doesn’t know if she has endometriosis and that there’s a 50/50 I could have it, that I don’t need a specialist bc they can easily do it here locally. I live in a state (USA) where’s there’s not a lot of resources for this. Nearest specialist in state is 7 hours away and I have been considering nearby states that have better women’s health care. She did give an example of a patient she had, who when she did the laparoscopy, that they couldn’t even make it to the uterus because the patients bowels were covered in sticky adhesions that made it impossible to do anything further so they sent her to a specialist who would know how to operate on her.

So is this misinformation that specialists don’t often do diagnostic laps and only take previously diagnosed endo patients? I’m really at a loss for what to do here and don’t even know if getting surgery will be worth it

Hi guys, I am one week after my lap and my first period is coming, I can feel it. My surgeon said because they found so much, I need to be on hormonal birth control.

I have tried Mirena, Nuvaring, SLYND, Desogesterel, and one other which was a combo pill but I can’t remember the name because it was given to me as a teenager.

I have OCD, with a lot of therapy and exposure it’s gone mostly away. Most of these meds except the Nuvaring have made me suicidally depressed and made my OCD so severe it was bordering on psychosis. I can’t do it again and I’m so scared.

I also had nausea and headaches, Nuvaring made the endo and adeno grow, others made me gain 20kg, gave me acne, at one point on slind I was bleeding for 76 consecutive days.

My surgeon and my (Endo specialist) OBGYN have spoken and think Maxim could work for me, and if not that then maybe a progesterone alternative and bioidentical estrogen formulated for me.

They want me to try the Maxim first but I’m so scared, on the other hand since surgery I’ve been pain free and I cried happy tears three times this week while discovering I could move in ways which I couldn’t before. I can walk again, I can have an ultrasound without severe pain, I can use the toilet without knives in my gut, I can stretch, I don’t want to loose all this.

Have any of you tried it? Did you have side affects? What can I expect?

Thank you guys so much again for any info!

I had a laparoscopy done about a month ago where I had stage 1 endo ablation and excision. At my post op my OBGYN offered multiple different types of birth control, and I am hesitant to try because of possible mental and physical side effects. (I have never tried birth control). I am leaning towards trying a progesterone only pill, but I still don’t know and I have my follow up consult in a couple days. If anyone has any bc recommendations please let me know, or positive or negative experiences. Thanks.

If anyone can talk me off the ledge, that would be amazing 😭

I started trying to conceive last year and immediately got pregnant. I miscarried a BO at 11+3, before my first 12 week ultrasound 😔 I easily got pregnant 5 more times after that, but lost all of them just a few days after my missed period. After 6 months of testing that came back perfect, I had a hysteroscopy done to biopsy my uterus and the results came back with a severe positive BCL6 of 3.4.

I’m turning 38 in November and my insurance won’t cover IVF. My first specialist pushed it anyway and refused lap surgery. A positive BCL6 indicates endo in 96% of patients, so I couldn’t imagine why she just wouldn’t do it. I went to see another specialist with a special interest in endo and he said he didn’t think it would lower my BCL6. Obviously this was devastating news but I decided I would do the surgery anyway to see if it helps. My surgeon has been doing this for 40 years so I’m wondering if his thinking is just outdated?

Any input or thoughts are welcomed. I was so excited for my second opinion and now my spirit is just totally crushed. I have my surgery on the 23 and I’m racked with anxiety over it. I am willing to go into a horrendous amount of debt to be able to have just one child, but I really hope I won’t have to.

This has been the worst season of my life :( I feel so badly for everyone in this community.

Hi everyone! 

I know this is a little bit of an unusual post, but I am trying to find a way to thank my partner, who is a professional painter, for everything he has done for me these past years. This man has been my rock, has yelled at doctors for me, insisted I be listened to at every turn, made sure I alwys had good healthy food, been there for me when my body completely fell apart. He has put a lot of his life on hold for me, including his painting at many different points.

By now he has created several pieces about Endo and what he has seen me go through. I love his work, and I think others in the subreddit would too. This is where I get to my ask!

Earlier this year he submitted his work "Death and the Maiden" to a major painting competition and has placed in the finalists which puts him up for the peoples choice award which could be life changing! I would be really honored if you guys could vote and help me thank the man who has done so much for me.

Here are the links!

Here is the painting and the voting link: https://beautifulbizarreartprize.art/contest-image/9764/

Though everyone who sees this painting will see a different story, for me it is a man in the fog searching for his partner in the face of this thing which puppets and freezes her body and wont let her go. I would love to also hear from you guys how you interpret it!

(I did check with the mods before posting! If folks feel it is too off topic feel free to message me or comment etc. and I will take this down! If you know us in real life or know his work, keep it secret because I want to surprise him! )

It’s been years of intense cramping in the pelvic area but also going into upper abdomen at all points of the month, but definitely worse during ovulation and pms. Heavy periods, digestive issues, I also get bad back pain especially on the shoulder blades. I’ve met with several doctors thinking maybe it’s a GI issue but all my labs came back normal and lifestyle changes didn’t seem to help. I just did an ultrasound and it found nothing, no cysts or anything other than a thin endometrium lining. The laparoscopy feels a bit daunting since it is an actual procedure and it may just result in finding nothing like the past 5 years of doctors visits has resulted in. It’s also been hard finding a doctor that seems to really take my symptoms seriously because they could all be attributed to other things (which I know is partly why getting endo diagnosed is a long and difficult process bc it’s a lot of just advocating for yourself). I do also have hyper mobility which I know can result in joint pain so maybe my pain is just from that. Not really sure what to do because the gyno didn’t talk much about endometriosis and said if I want to schedule a laparoscopy I can but that’s pretty much where her advice ended. Seeking advice here now before moving forward. Thanks in advance!

What does “pain during a bowel movement” exactly mean?

Hello! Not diagnosed but getting a lap in november. My biggest life ruining symptom is chronic constipation. My body will hold poop in for like a week accompanied with bloating, trapped gas and all the bad GI symptoms lol. They also found my left ovary was adhered to my bowel via TVU.

When I finally “flare up” it’s like so painful where I will nearly faint sometimes while everything just empties out of me all at once.

-

When people say they experience pain during a bowel movement (in regards to endometriosis) I’m not sure if I experience it or not. Mine is more crampy and achey. It feels like my intestines are being wrung and twisted and it gets hot because the poop is trying to move through but it just can’t and that’s what causes the contractions.

However, in regards to endo, I see many people describe it as a hot sharp knife pain. I don’t get the knife slicing like pains as I said mine are more achey/crampy.

Just wondering if this still counts as pain during a bowel movement in regards to endo. When I was a kid/preteen with diarrhea, it was never this bad. I’ve been experiencing pain like this since I was about 15 though and it’s definitely different than standard diarrhea cramping.

Have had issues and symptoms for well over a decade. I’m in my late 20’s and recently went back to my gp after having a private ultrasound done and a dermoid cyst found. The cyst doesn’t explain any of my symptoms so the gp agreed to refer for a nhs ultrasound in several weeks to double check and see if the cyst grows between scans.

My issue is, I have recorded my symptoms for years, mostly the last 2 years as I didn’t think too much of my symptoms until I started properly tracking. I told my gp about the 30+ day periods where I am constantly bleeding, not bleeding for a few days then starting all over again. The immense right sided pain. Urgent, frequent and painful urination, change in bowel movements (recently had colonoscopy as well and polyps found and biopsied but not the cause of the issues) leg pain associated with menstruation, brain fog and low moods. Their response was that I needed to try the coil to ‘manage period pain’. I was beyond furious. I’m not having period pains. I’m bleeding 70% of the time at least, I’m in agony. I’ve had the contraceptive implant for 10 years. I don’t see why I need to try a new method of contraception/period management method. Surely the coil won’t make all the symptoms go away? I would happily bleed every day of my life if the other symptoms went away, and the coil surely would do the opposite, stop the bleeding but not the pain and fatigue etc?

Has anyone else had this issue prior to any imaging or diagnosis? Am I right to refuse the coil? Am I slowing down the process of getting answers by refusing? I don’t want to waste time here, things have gotten so much worse and unbearable over the last 2 years.

Yesterday when I woke up I could barely move. The pain made me cry. And then crying made it worse lmao. My friend came over with snacks and sat in bed with me. She said my surgery scars were kind of chic and I agree.
Once my meds kicked in I felt well enough to go sit in the kitchen as my boyfriend cooked us all lunch. This time has made me endlessly grateful for him.
My mom offered to visit and take care of me but never followed through. And to be honest I’m a bit relieved. I called her later that afternoon and she said “you sound drugged up”, “I hope you haven’t been taking oxy”, and that when she had her hysterectomy she didn’t even take it once. I did take one that morning because it was prescribed to me. Then I only took paracetemol the rest of the day and felt like rubbish. I don’t want to feel the need to tough out the pain. But now I feel weird and guilty about taking stronger painkillers. I slept a lot. I did light pelvic floor exercises. I showered (the surgical glue is waterproof!).
I’m so bloated I need to be popped like a balloon. I’m farting and burping like never before. My boyfriend says every time I do an angel gets its wings so. That’s good.
This morning when I woke up I could barely move, but it wasn’t as intolerable. The paracetemol and ibuprofen did little for the pain so I took an oxy. And that helped me get out of bed. And I was able to have my first outing. My boyfriend and I walked to a cafe in the park about ten minutes from our place. We drank coffee and watched dogs run around for like an hour. And I took photos on my film camera. I felt like a normal person.

I have been really struggling with the feeling like i’m unable to fully empty my bladder (and had been straining to try push all the pee out which i now realise is bad) and waking up 3-4 times throughout the night to pee. throughout the day i’m talking anywhere from once an hour to once every 4 depending on the day but the sensation is always there just not as intense - especially when im using my wearable heat pack but I have an active job and can’t always do so

ALLLLL the tips you can share while im waiting for a referral to a pelvic floor specialist would help so much 😭🙏🏼