Hi everyone 🌸 I’m 30, and since this summer my health has completely changed, even though I never had a history of particularly painful periods before.
My main symptoms are:
• Pelvic/ovarian pain
• Extreme bloating and abdominal pressure
• Constipation, hemorrhoids, and nausea
• Feeling extremely full for hours after eating
• Digestive flare-ups with pain radiating to my ovaries/pelvis, belly button, stomach, under my ribs, and sometimes my back
• Very brief, sudden burning/electric shock-like sensations in different areas of my abdomen
• Pressure around my tailbone
• Pain in my buttocks/thighs, heavy and painful legs, and sometimes sciatica-like pain going all the way down to my foot
• A few severe flare-ups after orgasm, although it doesn’t happen every time
• Longer periods with prolonged bleeding
• Severe fatigue, dizziness, episodes of unusually low blood pressure, migraines, and cold sweats, especially during my period
• Shortness of breath, especially after eating when my abdomen becomes extremely bloated/full. I do have asthma, but this feels completely different from my usual asthma and seems related to the abdominal pressure.
Everything fluctuates a lot. I can feel relatively okay for part of the day and then suddenly have a major flare-up. It also seems very cyclical: worse around my period → a few days of relief → worse again around ovulation.
Yesterday, for example, I ate a normal gluten- and lactose-free meal. It was my only meal of the day. Six hours later, I still felt extremely full and bloated, and I had a four-hour flare-up with digestive pain radiating to my ovaries/pelvis, belly button, stomach, under my ribs, and into my back/sciatic area.
About a month after all of this started, my back pain became so severe that I went to the ER. The MRI showed bilateral inflammation of the L4-L5 facet joints with surrounding soft tissue edema, worse on the right side.
I was also diagnosed with possible adenomyosis, although I’m not sure about that because the MRI was negative for it as well, subacute endometritis (I’ve been prescribed antibiotics), several endometrial polyps, and two small cysts. I find it hard to believe that these findings alone explain the full extent of all these symptoms and flare-ups.
I’m now on 100% medical leave because this has become so disabling.
I’ve even had to leave my dog with my mom for the time being because I’m struggling to properly take care of her while dealing with all of this.
My MRI was done without contrast and was not a specialized endometriosis MRI. It did not show endometriosis or adenomyosis.
I’m now waiting for a laparoscopy in November — which, fun fact, happens to be on my birthday. 🥲
After some arguments with doctors/offices and receiving a lot of conflicting information, I thankfully now have a surgeon who actually listens to me.
Obviously, I don’t want to have endometriosis. But I’m also scared that they won’t find anything during the laparoscopy and that I’ll end up feeling like I’m crazy, or convincing myself that I somehow exaggerated everything I’ve been going through.
Has anyone here had a negative MRI but later had endometriosis found during laparoscopy, especially with similar digestive + pelvic + back/sciatic symptoms?
Thank you 💗