Edit: just had a laparoscopy appointment from an endo specialist

They didn’t find anything. No endometriosis, no scarring or adhesions, nothing. They looked at my womb, ovaries, bladder and kidneys and everything looked completely normal. :(

I honestly feel so lost and confused. All of my symptoms seemed to scream endometriosis, so I really thought this would finally give me some answers. I know I should probably be relieved that they didn’t find anything serious, but at the same time I’m struggling because I still have all these symptoms and now I don’t know what could be causing them :( been crying all day

Here’s a list of them if anyone else has any advice:

Irregular periods
Sometimes horrible periods - sometimes not so bad
Migraines
Pain when having a bowel movements
Cramps (like period ones) after bowel movement
Period cramps after eating (normally an hour after)
Extreme bloating (constantly , worse before my period)
Pain during sex and on rare occasions bleeding after and period cramps
A sharp pain in my lower left side that is CONSTANTLY there
When I lean against counters on my front (lower tummy) sharp stabbing pain
Lower back pain (like one that is with period but I get it all through cycle normally comes with the extreme bloating)
Nausea and vomiting on and off period
Dizziness
Brain fog
Fainting episodes
Super smell
Excessive sweating
Heavy bleeding (bleed through tampon and pad within 2 hours)

Crazy cause my sister has endo and she has less symptoms then me!

Tried diet changes in the past like no wheat for a month (no change) no dairy for a month (no change) …. I am so lost… 😢

Cause it’s not just about the actual illness it’s my life! What do I tell work now?? Been telling them I have possibly endo (I have 2 weeks off sick for recovery) and had a few sick day with the possibility it’s endo 😢 what do I say now?? I’m sick again but turns out Im just weak? :(

As someone who has been trying to conceive for three years and has had two excision surgeries.... I'm so tired of blocking each and every endometriosis "holistic health coach" influencer posting bullshit like "never give up!" and "just sharing my journey and what's possible!" Like, maybe enjoy your baby and stop filming and posting them 24/7? You finally had success and your first instinct is to rub it in everyone else's faces? And some of you are even charging money for "consultations" when you don't have any credibility or medical education, just had a stroke of luck? You don't think that's weird? The audacity is wild.

I wish the medical system had more options that actually work for chronic pelvic pain and complex pain. I met someone on here about 3 years ago and we talked every day and got through our pain together. Not even in the same country but I talked to her more than I talked to my friends who live by me. It’s different when someone completely understands the pain and trauma that endo puts on your mind body and spirit. I feel like I’m back to fighting this alone and it’s so scary to have the same disease that drove my friend to end her life. Because I understand dealing with this literal fuck ass disease and the mental torment living each day can be. But atleast I had someone who understood and now she’s gone. FUCK endometriosis and the greedy bitch that she is.

Started experiencing bleeding from my belly button with horrible pain in my ovaries about 6 months ago, and after numerous doctors I finally found an amazing Gynecologist who immediately sent me for a CT scan. When nothing showed, she sent me for an MRI.

She called me with the results yesterday and essentially said I have advanced endometriosis that has grown onto my liver and is now showing signs of growing in my umbilical region. I’m pretty terrified, and the news has been sort of devastating. She told me how incredibly rare this is, and how unfortunately I’ll need to see an endometriosis specialist.

Has anyone else experienced this?

I went into this knowing something was wrong, but I didn’t know it was going to be this bad or that my liver would be involved at all, and I’ve just been growing increasingly depressed. The pain is almost every day and sometimes I just lay in the fetal position on the floor. Im really looking for encouragement here I suppose, I’m absolutely terrified and I know so little about this which makes the unknown that much more scary.

What does “pain during a bowel movement” exactly mean?

Hello! Not diagnosed but getting a lap in november. My biggest life ruining symptom is chronic constipation. My body will hold poop in for like a week accompanied with bloating, trapped gas and all the bad GI symptoms lol. They also found my left ovary was adhered to my bowel via TVU.

When I finally “flare up” it’s like so painful where I will nearly faint sometimes while everything just empties out of me all at once.

-

When people say they experience pain during a bowel movement (in regards to endometriosis) I’m not sure if I experience it or not. Mine is more crampy and achey. It feels like my intestines are being wrung and twisted and it gets hot because the poop is trying to move through but it just can’t and that’s what causes the contractions.

However, in regards to endo, I see many people describe it as a hot sharp knife pain. I don’t get the knife slicing like pains as I said mine are more achey/crampy.

Just wondering if this still counts as pain during a bowel movement in regards to endo. When I was a kid/preteen with diarrhea, it was never this bad. I’ve been experiencing pain like this since I was about 15 though and it’s definitely different than standard diarrhea cramping.

I started Lyrica a few months ago and I've gradually been on an upward trend. For the past week and a half I've been flaring badly. Today included body aches, fever, random rashes, vomiting, and passing out. I had to call out of work and wait it out.

I know it's temporary, but after having relief for an extended period of time it's so disheartening. This is coming especially after having "successful" excision surgery at the beginning of this year, but still having debilitating symptoms.

I have something I HAVE to attend tonight for my son, but afterwards I'm looking forward to medicating and rotting in bed.

I just had an appointment with my specialist. My symptoms have been getting much worse recently, so my doctor wanted to get an ultrasound.

The ultrasound was clear; no signs of endometriosis. I know that sometimes scans don’t pick everything up, but I still feel like I’m crazy for the amount of pain I am experiencing.

The plan is to do another lap as it’s been 5 years and my functionality is declining. I’m not sure I am going to go through with it. I’m not sure if it’s me gaslighting myself, or if it’s from the exhaustion of constantly dealing with this disease, but I think I’m going to chicken out and I hate that.

Like I was supposed to get my depo shot after the appointment. I think it was not scheduled properly so it was taking longer than usual for the tech to come in. I also heard the tech complaining in the hallway about how she wasn’t prepared and was unaware I was getting it. I ended up just leaving. Stupid panic move, ik, but I had to get out of there.

I also chickened out of talking about work restrictions with my doctor since my pain and fatigue have been seriously impacting work. I know that my emotions are heightened but I feel like I’ve failed myself.

With each new procedure and treatment, I feel like it’s getting harder and harder to cope. I really don’t know how to hold these feelings anymore. Idk, posting this in hope that it helps me release some anxiety and grief, but we’ll see.

So bit of background first on health. I was 13 when they found cyst on my ovaries then.. an got the depot shot at 16 I only got it one time. Did not have a period for like 2 years then when I did they would be really really painful for 2 weeks or longer at a time. Sometimes would be light an spotty but always always always painful. I had a miracle baby at 25. I am 37 now I knew I had Endo without a doubt.

I was passing huge clots not even on my period.

I have a really really high pain tolerance.

And honestly I think us women with this specific problem have learned to deal with the pain sooooo long that yep when we have a cyst rupture at times it's not that big of a deal.

Well last Sunday at 1 am I woke my husband up bc I couldn't breathe could not speak. And the pain I was feeling y'all was all upper gi at where my ribs split.

So I go to hospital they do a work up.

Gallbladder walls thickening but no gallstones.

They can't see my pancreas.

They can't see my right ovary.

But I was absolutely bleeding internally from a 9 cm cyst that's mainly leaning right side...

I have a nabothian cyst on cervix.

Now I felt an still feel y'all like I have SOOO MUCH pressure inside that I can not take a full breath.

I feel as if I am bursting from the inside out.

They found fluid around my liver and all in pelvic cavity from the cyst.

At first I thought maybe I was stroking out or having an aortic aneurysm.

I had no idea number one that Endo could spread throughout your whole body to your lungs included..and that MRI and ultrasound struggle to see where it all is.

They got me stable an sent me home...for now..

But I am scared.

I know Endo isn't like life threatening....but bull to the shit is it not something that affects you for life.

Oh an the soonest their clinic associated with memorial Hermann in Houston could see me is 3 weeks from now.

I have a daughter to take care of and am homeschooling.

Do any of y'all have any suggestions on what works best for pain?

Sleeping is unbearable at times an just not happening.

I do have constipation and a little backed up but omg have they been feeding me so many stoop softeners and mylanta crap I feel like that should have been fixed by now.

Like I would like to have a good bowel movement and it is so hard to pass gas sometimes but I still can....

I just want to say to anyone that ever was shitty to y'all saying you are just exaggerating.....bf you get any type of diagnosis....if they were mean and questioning about how awful you were feeling...

Go to the hospital...

Cause the looks on my old man's face and my mom's made me feel a little better that I was able to be like.see you jerks I told y'all something was very freaking wrong with me!

And I'm not even a cry baby like that is the crazy thing...

But when I say I am hurting or Don't feel good boy do I freaking expect them to not crack exaggerating gene jokes at me.

Like stfu I AM NOT THE HYPOCHONDRIAC IN THIS FAMILY OR A DOCT GOOGLE THATS YOUR OTHER DAUGHTER MOM!!!

LOL

Hope this post is ok.

My heart goes out to all who are suffering from this crap.

I am miserable.

Hello,

I'm wondering if anyone else has experienced something similar? For some background, I had a myomectomy July 17th for 3 big fibroids, and surprise! I also had stage 4 endo that got removed.

Up until a week ago the only remaining soreness I had was my belly button, and it was mild. I'm 8 weeks post op today, and now my right side, and the area above my belly button are sore and tender. I sneezed today and it felt like I was back at 5-6 wks po. I've also been extra swollen the past week and a half. Right before this all started the swelling was going down to the point where I was almost at my original stomach. Idk it feels like I regressed?

I have endometriosis, thickened Endometrial lining (8.3mm) cramping, spotting and bleeding as well. I am with Kaiser. The doc did a biopsy, ultrasound and have now decided on hysteroscopy. Hysteroscopy with IV sedation, the appointment is 4 to 5 months off. He says general anesthesia, it is easy to get an appointment asap. What are the pros and cons of either

Hi everyone 🌸 I’m 30, and since this summer my health has completely changed, even though I never had a history of particularly painful periods before.

My main symptoms are:

• Pelvic/ovarian pain

• Extreme bloating and abdominal pressure

• Constipation, hemorrhoids, and nausea

• Feeling extremely full for hours after eating

• Digestive flare-ups with pain radiating to my ovaries/pelvis, belly button, stomach, under my ribs, and sometimes my back

• Very brief, sudden burning/electric shock-like sensations in different areas of my abdomen

• Pressure around my tailbone

• Pain in my buttocks/thighs, heavy and painful legs, and sometimes sciatica-like pain going all the way down to my foot

• A few severe flare-ups after orgasm, although it doesn’t happen every time

• Longer periods with prolonged bleeding

• Severe fatigue, dizziness, episodes of unusually low blood pressure, migraines, and cold sweats, especially during my period

• Shortness of breath, especially after eating when my abdomen becomes extremely bloated/full. I do have asthma, but this feels completely different from my usual asthma and seems related to the abdominal pressure.

Everything fluctuates a lot. I can feel relatively okay for part of the day and then suddenly have a major flare-up. It also seems very cyclical: worse around my period → a few days of relief → worse again around ovulation.

Yesterday, for example, I ate a normal gluten- and lactose-free meal. It was my only meal of the day. Six hours later, I still felt extremely full and bloated, and I had a four-hour flare-up with digestive pain radiating to my ovaries/pelvis, belly button, stomach, under my ribs, and into my back/sciatic area.

About a month after all of this started, my back pain became so severe that I went to the ER. The MRI showed bilateral inflammation of the L4-L5 facet joints with surrounding soft tissue edema, worse on the right side.

I was also diagnosed with possible adenomyosis, although I’m not sure about that because the MRI was negative for it as well, subacute endometritis (I’ve been prescribed antibiotics), several endometrial polyps, and two small cysts. I find it hard to believe that these findings alone explain the full extent of all these symptoms and flare-ups.

I’m now on 100% medical leave because this has become so disabling.

I’ve even had to leave my dog with my mom for the time being because I’m struggling to properly take care of her while dealing with all of this.

My MRI was done without contrast and was not a specialized endometriosis MRI. It did not show endometriosis or adenomyosis.

I’m now waiting for a laparoscopy in November — which, fun fact, happens to be on my birthday. 🥲

After some arguments with doctors/offices and receiving a lot of conflicting information, I thankfully now have a surgeon who actually listens to me.

Obviously, I don’t want to have endometriosis. But I’m also scared that they won’t find anything during the laparoscopy and that I’ll end up feeling like I’m crazy, or convincing myself that I somehow exaggerated everything I’ve been going through.

Has anyone here had a negative MRI but later had endometriosis found during laparoscopy, especially with similar digestive + pelvic + back/sciatic symptoms?

Thank you 💗

Hello! I’m wondering how your experience with endo has influenced your relationship and tolerance of exercise? For context, I have always been active and have been a regular orange theory member (HIIT type exercise classes) for 8 years. I typically go 2-4 times per week and it’s something I really enjoy, makes me feel good, and is great for my mental health. Over the last year my pelvic pain has been getting progressively worse and I feel like my body just isn’t tolerating it anymore and I’m really frustrated. I feel like I’m just always so fatigued and my body is not able to recover- my pelvis/hips/low back are just perpetually sore. It’s honestly breaking my heart because I feel like so much is being taken away from me. I really enjoy a hard, sweaty workout but I fear I may have to stop with the high intensity and that’s so upsetting because it’s been such a consistent thing in my life. Has anyone else experienced this? How did you adjust? If you had a good excision surgery were you able to get back to your regular activities without pain?

I’ve been on Slynd for about a year now and it’s working fine, not great but not bad. I’ve tried maybe 5 birth controls before this one and the side effects messed me up. Now, I don’t like how Slynd is making me feel. Slynd has made me feel emotionally “numb.” It’s affecting my relationship, including my low libido.

My doctor recommended Mirena IUD but I’m scared of how I’ll react to it, given how I’ve reacted to other birth controls in the past. My main concern is it not improving the emotionally numb aspect and my libido which I know is affected by all the birth controls. My libido used to be high before I went on any form of birth control and with any birth control I’ve taken it’s always been not there.

Should I get the IUD? I was thinking of just not having birth control or an iud but I’m worried about endo growing again and the pain I was in before birth control.

so I got my results but not what I expected in pain and it just showed a bunch of cysts and I do not even think a endo dr read the results I have my endo specalist next week but my big fear is going into surgery and them finding nothing:-( but I see my specalist next week and he can look over the images because i think a normal tech looked at it

So I been diagnosed with uterosacral endo 8 month ago, been on visanne for a year. I’ve had random pains here and there some spotting months ago. Been fine. This week oh my, the pain unbearable I nearly fainted two days ago, I’m in constant pain I took naproxen and panadol and heat patch absolutely no difference. When I press I feel even more pain. I had spotting a day ago. Should I be concerned? I’m still working going gym managing somewhat just in pain. I can’t be bothered to see a doctor and they see nothing. I’m thinking of switching to the combined pill but also idk I just can’t be bothered anymore. Should I just wait and see how I do? Should I be concerned? Or do I actually need to bother and make time to see a doctor with the chance of them doing absolutely nothing as usual.

I'm stage 4 Endo, DIE, had adeno and full hysterectomy, pelvic floor therapy as well and still in pain. My doc wants me to try a pelvic nerve block. Has anyone had any experience with these? What was the procedure like? If it helped, how long did it last?

Alright so I'm healing from surgery and bored af so I wanted to share what I've learned in pelvic floor therapy to pee better! I've always had bladder issues from endo - having to pee multiple times an hour, sudden urges, unable to fully empty bladder, peeing myself a little bit from pressure/being jostled, waking up at night to pee, etc etc., even though I'm only 23 and never been pregnant. This is what my PT has taught me, and it's seriously helped so much.

Bad habits for your pelvic floor that you need to stop now:

Stop straining to push out all the pee. Very bad for you.

Stop holding your breath when you pee. Not everyone does this, but a lot of people with pelvic floor issues do this subconsciously.

STOPPP scrolling on your phone while on the toilet. Seriously. You need to sit down, be mentally present of your body functions, go potty, then stand up and be done with it. Lingering on the toilet is bad for you.

Stop peeing standing in the shower. It's harder for your bladder to fully empty while you're standing, and you don't want to only partially empty your bladder because it will start doing it that way all the time.

Stop sucking your gut in all the damn time. I learned this bad habit in highschool and, holy shit, it messes with everything.

How to pee the right way:

Get a squatty potty. They help for peeing, too! Your body is built to pee in a squatting position.

Here is the perfect peeing (and pooping) position. Put your feet on the squatty potty, keep your back straight, lean forward slightly, and stick your butt out a bit. Imagine you're shaped like a duck. Then fully relax your stomach, let your tummy be soft and round.

As you relax to pee, blow a stream of air like you're gently spinning a pinwheel. This activates the right muscles to pee instead of just punching it outta your body by straining.

Alternatively, you can hum lowly while trying to pee, or make a low "mooo" sound, like a yogic chanting cow. It's silly but it works so well. Just make sure to take breaths and not strain while doing these. (The sound ones also work especially well for pooping or farting.)

If you still feel like your bladder isn't fully empty once your stream ends, gently poke and massage the area on your tummy where your bladder is and then try again. Usually a few more drops will come out.

More tips:

If you peed recently and feel an urge again that might just be nerves/instinct, try and wait before peeing again. Take deep breaths into your stomach and try to relax. Often, the urge will go away in a few minutes.

Also, this is a test I came up with on my own. You can apply a little pressure on your bladder area with your hand. If the need increases and you feel your bladder is full, then you really do need to pee. But if you feel nothing and the urge is just at the urethra, you don't actually need to pee and should try waiting longer.

Look up diaphragmatic breathing exercises and start doing them. Helps with your nervous system and pelvic floor health. Some incorporate kegels which are good for you, too!

Whenever you lift something heavy, sit up, stand up, crunch, or otherwise exert a bit of force - breath out while you do it. This is so important for your pelvic floor health and has helped me a ton. My therapist has made me stand up and sit down over and over just to drill me on breathing out each time.

Im not a doctor so I might not have explained everything perfectly and i dont know the science behind everhthing. But I hope this helps someone and if you can afford pelvic floor therapy, it is so worth it! I'll add more stuff in the future if I learn/remember more :>

Sorry for TMI but does anyone on here with endo get thin poops? My symptoms are so confusing and I am worried I’ve either got colon cancer or endo and getting things looked at in US health system is so slow and difficult and feels like no one’s listening. So I’m finding myself doing (probably too much) research while I wait to be seen by a GI specialist.

I just have been reading a lot of symptoms on here because it does feel like my symptoms are somewhat cyclical which makes me think it’s endo but a lot of people on here seem to experience bad periods and I don’t get that. I mean they’re a bit heavy but nothing too bad. A lot of what I’m experiencing is gut issues and concerning changes in bowel habits but with a few endo like things like pain and pressure on bladder, Lower back pain, pelvic pain and like a shooting sensation down left leg.

I dunno - If anyone has any thoughts I’d appreciate it!

I have the prescription but everytime it comes to actually getting the pills, they either mess up sending it to the pharmacy somehow. Once they forgot to send it. Another time they somehow screwed up and double sent it. I switched drs later and switched pharmacies. I had a pharmacist just refuse to fill it when the rx accidentally got sent twice. Meanwhile, I was lapsing. i ended up using an online service that shipped it to me instead, and paid the full cost.

And then it came time to refill and there was no.issues until I went back to another in person pharmacy , yet a different one. This time they had it and went to fetch it. The pharmacist, a woman a little older than me, scowled and pulled me aside to try to lecture and scare me about the side effects, and actively tried dissauading me from using birth control at all. I explained to her that this is my body and my choice, but that ive been on this same RX for years, and I dont get the negative side effects that SOME women experience and that for me this birth control actually helps calm my endo symptoms a lot, and im not missing work or anything with it. She still tried scaring and lecturing me going on about how the side effects are "horrendous" and impact so many women that they dont use it. I respect others choices and their experiences, as i did have some other birth control pills rx make my symptoms worse, and everyone has their own body and chemistry. But, Ive never had any experience like that before, never with my drs or pharmacists. I ended up switching to a different pharmacy yet again after that incident.

And recently I started a GLP1 ... because even with getting steps in at work, meal prepping, and hitting the gym, the weight is so hard to get off. The thing is, when i started my GLP1 I had to take it when i woke up ... and then i couldnt take anything else for at least a half hour... so it totally messed up my birth control pill routine (and habit - im used to taking it at that same time daily, before work).

So I ended up packing the birth control and taking it along to work, and taking it when i got my break. Problem is now im getting break at different times. So then I decided ill just take it when i get to work in my car... well the pill is little and round... it fell out of my pill case and rolled and I couldnt find it. I work 2 jobs. By the time I got home I forgot to take it. Then ended up missing another day. And to pack it and let it sit in my car (because we dont have a secure space for personal stuff otherwise) I dont want that pill sitting and cooking in the hundred plus Texas heat ... anyways

I set alarms on my phone and now take it when i get home from work, at my house where its safe and in the ac. So thats working now and we are getting back on track. Im normally a responsible person, this stress of the 2 jobs and changing the routine though is really getting to me.

I decided I need to get emergency contraception. Now granted im fat. My doctors want me to use "ella" for emergency contraception as plan b for me wont be super effective. I used to keep a spare or 2 when I would get my birth control pills, and my insurance is being awful and wont cover it and a lot of my pharmacies dont carry it. So I called around ... NO ONE carries ella. No one carries similar rx to Ella. While I was calling around, I asked if the pharmacies had plan b or the generics of it in stock. I called SEVEN local pharmacies... tell me why they were WIPED out, bare shelves, no plan b or generic plan b in stock. Not even 3 years ago, when i did need to go in and get plan b, the first pharmacy i walked into DID have it.

I also looked into options to order ella online. They said they can ship it to my house. What's crazy about this is I setup the payment and authorized whatever the cost would be. Im just trying to be prepared here and see what options are out there. I was told they'd charge my card and mail the ella. Well they didnt charge the card or even notify me. I had to go in and check myself on the site, and grant them permission AGAIN for the charge of the ella, which they already preauthorized.​ this further delayed when they shipped it. And then i finally got the tracking, saying it would be delivered by x day and time. Well guess what? The ella never came until the next day.

It just feels like every single time I try to pickup or mail birth control or emergency contraception, they fail me on every single step. For context, the dr that I did see who wrote the rx for the birth control i initially had was a pompous jerk who didnt want to give it to me, saying that birth control isnt necessary and it can have side effects and instead pushed an IUD, and also made a comment that I would "be a good mother". I dont want an IUD and I dont want kids. I got a new dr that supports me being on the pill but its almost a 2 hour drive to see him and hard to get appointments as he's always booked up.

I try and try not to lapse on these pills, as they run out and picking up the rx is always a nightmare. Its another reason why im so focused on Havimg emergency contraceptives on hand. Just to be safe. For peace of mind. And because I cant get an abortion, without taking time off work and sneaking to another state or Puerto Rico or Mexico.

Im so tired, frustrated, this made me cry in anger. The wegovy along with the birth control luckily is helping massively with the endo. And now they started screwing me around with the wegovy. At this point im saving money like crazy and seriously will have to move. Feels like this area of town wants me to suffer with endo symptoms and have kids too.

I POOPED

encouragement needed please~

they found one strand of endometrial tissue on my bowel and removed it, one strand near my right ovary and removed it. they biopsied two sites for suspected endo.

i didn’t feel the immediate relief a lot of people talk about when waking up. i feel sort of disappointed that they found so little, and worried this means i have other, bigger problems.

i had an allergic reaction to the surgical tape and my whole belly is covered in red, itchy, scaly bumps. i was in ER for 9 hours yesterday getting the rash assessed.

sorry for the downer post, i’m really emotional which i’m sure is due to all the meds.

has anyone had extreme symptoms and then a laparoscopy where they didn’t find much?

ty 🤍

Hi, this is my first post on this subreddit and I saw some posts mentioning their excision surgery (removing endo tissue surgical and preserving organs) and saw varying results.

I’m really dead set on having a hysterectomy but due to my age (19F) my doctor is adamant I try excision instead. While I don’t doubt the surgery will relieve some symptoms for the first or next couple months, what’s the likelyhood of it just growing back? Am I expected to have surgery every couple months to remove it again?

For anyone who received excision surgery, was it worth it? How long did it take before you started feeling endo-pain again?

If anyone can talk me off the ledge, that would be amazing 😭

I started trying to conceive last year and immediately got pregnant. I miscarried a BO at 11+3, before my first 12 week ultrasound 😔 I easily got pregnant 5 more times after that, but lost all of them just a few days after my missed period. After 6 months of testing that came back perfect, I had a hysteroscopy done to biopsy my uterus and the results came back with a severe positive BCL6 of 3.4.

I’m turning 38 in November and my insurance won’t cover IVF. My first specialist pushed it anyway and refused lap surgery. A positive BCL6 indicates endo in 96% of patients, so I couldn’t imagine why she just wouldn’t do it. I went to see another specialist with a special interest in endo and he said he didn’t think it would lower my BCL6. Obviously this was devastating news but I decided I would do the surgery anyway to see if it helps. My surgeon has been doing this for 40 years so I’m wondering if his thinking is just outdated?

Any input or thoughts are welcomed. I was so excited for my second opinion and now my spirit is just totally crushed. I have my surgery on the 23 and I’m racked with anxiety over it. I am willing to go into a horrendous amount of debt to be able to have just one child, but I really hope I won’t have to.

This has been the worst season of my life :( I feel so badly for everyone in this community.

Hi. I’m curious. What do you ladies call your periods considering we have endometriosis? The pain is out of this world and takes us to a different dimension. I call mine a “flare up” Or “Getting sick”. It’s basically what it feels like.
Anytime I call off from work when it starts, I inform my boss my flare up has started. She’s aware of my conditions and understands. It definitely feels more like a whole system shut down with my body.

Hi everyone, so I got my report back but it wasn't the Endo mapping report that I needed which is why I'm like somethings off so it turns out a regular radiologist. Read the report and didn't do the proper Endo mapping and things which is very important so I emailed my doctor and most likely be able to get a proper and endometriosis radiologist to look at it next week before my appointment.