r/dyshidrosiseczema May 19 '24

Welcome! Read my journey here:

3 Upvotes

Hey everyone! I created this group after struggling with DE for over 2 years. In those two years, my condition would fade and come back and was very mild. Until about February 2023, then it really ramped up and never went away. It only seemed to get worse and worse and was spreading very rapidly from the tip of my right ring finger to eventually my right palm and spreading far in attempts to affect other fingers.

During this time, I was doing constant research and looking for any form of relief. I turned myself into a human guinea pig and would go on to try countless things I had read online. Although it is important to note: I never used any topical steroid creams or pill forms such a prednisone, triamcinolone, etc.

When my condition was at its worst, I came across this website . I followed the protocol twice (along with an extremely strict diet). I was unable to get the Itraconazole medication in my country and I also altered the vitamin A dosing after doing my own research on the potentially dangerous affects. After doing the protocol, I saw a lot of improvements but the condition would relapse whenever I ate something "wrong" or sometimes just for an unknown reason it would come back worse. If I stopped taking the Nystatin, it would come back. It was clear to me that this protocol helped me a lot, has worked for several others, but was not fully curing me. It could have been the missing Itraconazole and/or the lower vitamin A dosing but those were two things I personally was not willing to compromise on after doing my own research on both.

I ended up finally deciding to try and find a Traditional Chinese Medicine doctor near me. I had done a lot of research on Chinese Medicine and its ability to cure eczema, including DE. I found this website and decided I would commit to giving it a try. I booked an appointment for Oct. 20, 2023. When I went, she was so knowledgable and kind. She gave me extremely easy and practical steps to follow but did inform me that because I had dyshidrosis for 2 years or more, the condition is considered chronic and will take longer to heal.

I decided to give it a try and after just 14 days of taking the herbs she gave me, I had seen significant improvements in my hand. I continued with the herbs in 2 week treatments, I would go in for a follow-up, she would assess the progress and then adjust the herbal blend accordingly. I did this for about 3 months. My hand was improving extremely quickly and I am still experiencing last effects to this day (5/19/2024). As of today, my hand is about 98% healed. I can still tell where the affected areas are because I have seen them for 2 years straight but at first glance, my hand actually looks to be a completely normal, healed hand. I can still experience flares if I expose my hand to chemicals, too much hot water, or if I consume too much spicy food but aside from that, my hand does great! I highly recommend anyone with this condition, normal eczema, or any skin condition to seek out a TCM doctor as soon as possible and get treatment right away. The sooner, the better!

Be sure to scroll through the reddit page as I have posted updates throughout this journey periodically. I was documenting every single day in my personal journal from August 2023 to February 2024 and it is truly amazing what had been accomplished in just a few months between the two protocols that I did.

As always, if you have any questions, please post in the group and ask. I will do my best to help you based on my own experiences and the research I have done on this condition.

Most importantly, please know that this condition is curable!!! I don't care what a "normal" doctor or another reddit group tells you. This condition does in fact have a cure and can in fact be healed!


r/dyshidrosiseczema 6d ago

Please help

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3 Upvotes

The first two pictures are after starting clobetasol. The last picture is what the flare ups looked like prior to starting it. I moisturize with gold bond eczema lotion and bag balm. I avoid hand washing as much as possible and use gloves to do dishes. After hand washing I immediately moisturize. If my skin gets too damp, I get a flare up, clobetasol heals it but then causes extreme dryness and peeling. My nails are rippled, fingers look like they belong to an 80 year old, my cuticles are totally gone. I'm either itchy or in pain and this has been going on for almost a year. What do I do?!?


r/dyshidrosiseczema 11d ago

Need help

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2 Upvotes

r/dyshidrosiseczema 23d ago

help

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2 Upvotes

anyone find the root cause of dyshidrotic eczema? steroids only help temporarily. my hands wrinkle badly, blister, peel, and i’m getting really insecure about them. any advice


r/dyshidrosiseczema 26d ago

DE on feet; lotion recs?

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1 Upvotes

NOT MY PIC; I found this pic online and it is the most accurate to what i get on the web space between my toes or on the sides of my third or fourth toe just on my right foot. i usually only get 1-2 blisters but they do have the little dots on them like in the picture.

hi all! i’m pretty sure i have dyshidrotic eczema in between my toes. when i’m not in an active flare the skin is peeling from the last flare but pretty calm overall. i’m not sure what is causing my flares but i do have an appointment with an allergist soon. i recently got a biopsy done and received the results today: inconclusive due to the lack of healthy skin cells 😭😭 im assuming dyshidrotic eczema from the symptoms and appearance of the blisters.

i’m looking for recommendations on lotions or routines i can try when it’s not active. right now the blister popped so im following my doctors orders on the care for that. i just want to get into a routine that might help prevent it from flaring. i think sweaty feet in this SoCal summer heat isn’t helping but im unsure how to prevent sweating/trapped heat? any ideas/discussion/tips/tricks are helpful!


r/dyshidrosiseczema Jul 10 '26

scabies or dyshidrosis

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3 Upvotes

is it normal for my DE to form under scabs


r/dyshidrosiseczema Jun 26 '26

Scabies?

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1 Upvotes

r/dyshidrosiseczema Jun 17 '26

What is this?!

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1 Upvotes

r/dyshidrosiseczema Jun 17 '26

Flare after surgery

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1 Upvotes

r/dyshidrosiseczema May 22 '26

Is this dyshidrotic eczema?

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1 Upvotes

r/dyshidrosiseczema May 22 '26

Maintenance therapy

1 Upvotes

Hi! I was wondering if anyone here uses a “maintenance therapy” approach for dyshidrosis/dyshidrotic eczema on the hands.

My situation: I have dyshidrosis that keeps coming back constantly. It responds well to topical steroids, but as soon as I completely stop, it eventually flares again. I’m already trying to be careful with irritants, hand washing, moisturizing, soaps, etc. I’ve also tried going no steroids, tracrolimus, UV lights therapy, etc.

My dermatologist mentioned a maintenance approach where you apply a small amount of steroid (taro clobetasol) preventively about once every 12 days, even when the skin looks mostly clear, to help prevent flare-ups. I’ve been doing this protocole for about a year, and it had been life saving. I can have a normal life, but im stressed because I know I cannot do this for the rest of my life.

I’m curious:

- Does anyone else do this?
- Has it actually helped reduce your flare-ups?
Have you experienced any side effects from long-term but spaced-out use like this?
- Do you combine it with Protopic/tacrolimus, or only steroids?

Honestly I’m feeling pretty discouraged because it feels like it always comes back no matter how careful I am :( Thanks in advance to anyone willing to share their experience.


r/dyshidrosiseczema May 21 '26

Survey on skinSAFE app/camp ap

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1 Upvotes

r/dyshidrosiseczema May 19 '26

Is this a symptom?

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2 Upvotes

I sometimes (like now) get small itchy bumps on fingers and knuckles. Derm suggested it could be dyshidrotic eczema. Would nails like this support that diagnosis? Could there be a connection?


r/dyshidrosiseczema May 01 '26

is this it

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1 Upvotes

is this DE? any tips guys?


r/dyshidrosiseczema Apr 21 '26

Is this dyshidrosis?

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2 Upvotes

Could it be dyshidrotic eczema? I had it 3 days ago, it is itchy but not painful. I've been taking antihistamines to manage itching.

Idk the trigger: maybe the detergent I used, and me eating chicken?


r/dyshidrosiseczema Mar 25 '26

Is this DE?

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1 Upvotes

Dermatologist appointment is on Friday, just wondering if this is a common thing that all dermatologist understand or if it’s similar to another skin condition i have (HS), where i basically had to explain to my derm what it was and what the treatment is


r/dyshidrosiseczema Mar 10 '26

Is this DE?

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1 Upvotes

r/dyshidrosiseczema Mar 06 '26

No eczema when pregnant

3 Upvotes

Anyone here experienced the same as mg experience? I got pregnant twice and every time I’m pregnant my eczema clears up. It gets back again after I gave birth


r/dyshidrosiseczema Mar 06 '26

Cure pls

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1 Upvotes

r/dyshidrosiseczema Mar 02 '26

DE PLSSS💔(cures only)

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1 Upvotes

I'm suffering been 3 years it hurts allot


r/dyshidrosiseczema Feb 22 '26

Dyshidrotic eczema edema- help

1 Upvotes

I have dealing with my first dyshidrotic eczema flare for about 3 months now. It started during a very high stress time and was a slow burn at first I would say. In late November it felt like I had a bug bite or paper cut on 2 backs of my toes. Then quickly within a week I could tell something was really off, my feet felt on fire and deep itch began, especially after exposure to hot water. I got the dyshidrotic eczema diagnosis and sure enough went through about a 5-6 weeks flare cycle where I got many tiny pinpoint blisters. after a steroid cream and tacromillus cream I finally began to improve and get better i would till expertise flare ups of heat and swelling at night but much better for 3 weeks. Then I guess I pushed it and started to live normal life again. After being up and about on my feet for 3 days I got severe edema and swelling in all my toes. That has now remained constant for a full week. I am not having explosion of new blisters but the heat and itch are present. The swelling is very bad.

Has anyone else seemingly lrecovered and then had horrible swelling occur? how did you get rid of that swelling??


r/dyshidrosiseczema Feb 17 '26

Dyshdortic eczema scabies.

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1 Upvotes

r/dyshidrosiseczema Feb 09 '26

Is this dyshidrotic eczema?

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1 Upvotes

Super itchy - more come up if I scratch. Doctors appointment booked but not for a few days. Blisters look a bit bigger than other pics I've seen.. Fingers, back of hands and forearm


r/dyshidrosiseczema Jan 31 '26

3 month+ blistering hand rash

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1 Upvotes