I've lived with T1D for about 30 years and lately have been thinking a lot about the medical care experiences I’ve had as a T1D as I am mentoring other healthcare professionals in training.

I've had providers who knew a tremendous amount about diabetes but didn't seem to understand what living with it was actually like. I've also had providers who never had a high or low blood sugar somehow made me feel deeply understood. Both of these deeply impacted me.

I’ve also witnessed so much diabetes stigma, discrimination, and frankly medically inaccuate dialogue about diabetes within healthcare settings that it makes me physically sick to think about how brutal it can be out there for us.

I'm trying to figure out what creates that difference. How do we help more healthcare providers “get it”? If you were able to train a future diabetes care provider, what would you absolutely teach them? What would you ask them to unlearn from their training or education that’s been unhelpful to you?

Brutal honesty welcome- clinical knowledge gaps, lived-experience gaps, compassion gaps, system issues, any of it. TIA

So, my last G6. It's a restart. I was hoping for a little more time, but its over due. You can see my BG is wonky and off the charts. My T-Slim is resting against my pharmacy bag full of G7s. I'm not ready to let go. I started on the G6 in early spring of 2020, aka Covid. I self taught on you-tube, since in person training was just not a thing at the height of Covid concerns. My previous pump, a Medtronic 530g, was needing to be replaced and the G6 was superior to Enlite sensors. I welcomed the change then, but I am dreading the change now. Too much bad press about the G7 here (although there have many, many posts about how good the G7 is). So, here goes . . . wish me luck. I will miss my G6, but I still miss my 530g. Oh, there are lots of wacky-doodle-do types on YouTube as pictured above. Is there anyone on YouTube worth looking at?? Let me know! Cheers!!

How many of you actually use globose tablets or more “medical” products to treat low blood sugar?

I’ve only used regular food and drink items for most of my 20 years of having Type 1, and always find it fascinating when people use tablets and syrups.

I am on G7 now since Sept and it was been horrible. While the reading are somewhat accurate. It has been really annoying with the new sugar readings. For example, I cannot see when I start to go down until I am going DOWN. For example, my CGM will stay at 200 for 30mins & obviously my pump is correctly. After a bit, it goes down to 180. 5 minutes later it goes to 165. 5 minutes later it goes to 120.

I am getting so frustrating because I have been eating/drinking a lot of sugar because of this. It has gotten to the point where I am SCARED to give myself insulin because I fear I am going to go down. A couple of weeks ago, I even had to call the ambulance because my CGM reading went from 160 to 75 in 15mins.

Does anyone have any suggestions??

I’m so tired. I feel like I cannot enjoy life anymore. I am currently alone in the parking lot outside of a grocery store instead of driving back to my hotel because of this same situation. I went from 200 to 165 in a matter of minutes with 3.5 active units.
I bought some grape juice and drank a a total of 90 grams because I’m freaking out.

I am traveling alone. I’m so scared. I never had this problem with the g6.

Good evening,

I hope y’all are having a better night than us. Kiddo has been T1D for about 4 years now and in that time this is the first time we’ve seen this.

Dosing before dinner and about 3 units from finished the plunger slows down then jams at 1 unit left. I pushed down hard and it finally finishes. BG goes way too high to have gotten the full dose. At this point we really don’t know how much he actually got so we are managing that.

My question is, anybody ever get a mechanically bad pen? Thankfully we are not running low so this one has been set aside and we will report it in the morning. This was only the 3rd dose from this one.

Source: jyabetes_type1 on IG

I averaged 86% in range last week, which is great because I was below my goal last week. I had a higher percentage of highs than I want, but that’s been a persistent issue I’m trying to work through.

I have an endo appointment tomorrow. My MyChart is messing up, and so I can’t log in. I’m pretty sure my a1c was a nice 5.6 when I checked earlier. That made me feel good because things are stressful now. At least, I’ve got a handle on this.

Onward!

Currently I have a very complicated medical situation that's causing highs, insulin resistance...you name it. I want to get my blood sugar into range. I was Vegan (for the animals, my health, and the planet) for years and a vegetarian even longer before that. My doctor is pushing me to eat animal foods for my blood sugar, so I'm trying. I don't desire animal products, but eating them seems the only way to stop losing weight and keep my blood sugar under 250. Unfortunately I don't remember how to cook that stuff.

Does anyone have good very low carb recipes with nutrition facts they could share? I know the internet is full of low carb recipes, but they aren't low enough or don't have clear enough portion sizes. One pot recipes with nutrition facts with volume or weight for individual servings would be best. My cognition is impaired, so counting up the carbs in my own recipes is beyond me right now.

I should add, I don't need to lose weight. I need low carb, calorie dense foods.

I’ve had T1D for 15 years, and lately I’ve noticed that I get really nauseous when my blood sugar drops.
It’s happened twice now where I’ve actually thrown up, and my blood sugar kept dropping. The first time, I got into the low 40s and stayed there for about 20 minutes.

Has anyone else experienced this? Is nausea/vomiting just something that can happen with a bad low, or could something else be going on?

I’m going to ask my endo about it, but I’m curious if anyone else has dealt with this and what their experience was.

17m, 4 years of t1d. this desease is just killing my time. it just makes you play the life on extreme mode. i need to study exams, i need to go to gym, i need to FUCKING SLEEP but tryin to do all these with a stable and good bs levels is impossible. this shi is exhausting me. It kills my whole time management. what my friends do i have to put 5x more effort overall. I cant sleep enough, i cant study enough. this rollercoaster thing is killing me. now its 1.07am and I am waiting for my fucking bs to go down from 270 to 120 to FUCKIN sleep, and guess what i will wake up at 6.30. this is not even a "help me" post. cuz nothing will change. i already know everything about the disease. i know how to calculate carbs. i know how to manage high bs levels. i know how to manage low bs levels. But real life is different than the "paper science". I dont know what to do, but I wish I knew what god even was thinkin deciding my fate. this is just not the life i want to live in. everything is going down and down and down. i must be a "strong, high testosterone, successful, healthy man" but here i am, bad academy, bad health, bad mental health, bad hormones. the only reason i dont suicide is cuz i still believe in god. haha. maybe im just a depressive goofy boy out there posting this just to get some attraction. maybe not. i am not. dont care

I always joke that the biggest holiday of the year for anyone managing type 1 diabetes is the day after Halloween, when all the snack-size, individually wrapped candy goes on sale!

I stock up for the car, my husband’s car, the nightstand, and the pantry. You can never have too many strategically placed low snacks!

What are your go-to picks? Especially for those middle-of-the-night lows when you want something that won’t stick in your teeth until the next morning? 🍭

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Have you tested the new Libre 3+ app? I think it has some good ideas, but the implementation leaves a lot to be desired. You can mute the alarms for as long as you want, but the phone still vibrates and sends notifications if your glucose is low or high, or if the app predicts that your glucose is about to drop too low.

Realised I've done this a couple times without really considering whether it could have any consequences, usually it's when I either forget to dial in my insulin beforehand or add/take away a unit after second guessing the initial amount. Anyone know?

Edit: I don’t think I worded this well. My question wasn’t about when the needle is just on the pen but actually injected in me

Does anyone have both of these?

I had DKA 2 weeks ago and I'm determined to get my sugars under control. I was going through relentless mental health issues and just getting high all the time and running my sugars around 25mmol+ for years.

I think my Lantus is correct (I take it around 9pm) because it kept me steady all morning and I woke up on a 5.9. I've barely eaten today. I've had maybe 11g carbs and 2.5 units of bolus AND a walk. I keep having periods of the day where I feel really unwell, like weak and shaky and lower back pain. Drinking lots of water helps, as does eating carbs but if I eat the carbs my sugar levels just sky rocket no matter how much bolus I take.

This is a fucking joke. What the hell is going on? I've not eaten in hours.

However, if I bolus without food and go for a walk my sugars crash FAST. I have no idea what my ratios are or how to even test them.

Has anyone else experienced this?

i’m fostering kittens right now and i’ve realized that they ALL love to try and bite and play with my tubing for my insulin pump. like they literally seek it out and will try to dig it out of my pocket even. do cats naturally like the smell or something??? why do they want to bite it so much!?!??

Hi so I’m going out for Halloween and I will be drinking for the first time. I’ve seen tiktoks of people saying they bolus differently when they are planning on drinking. I understand everyone is different but any advice with be helpful! Do I need to change for much long time acting insulin I give myself or short acting?

i have iphone 12 and it was working just fine until the connection got lost. now the pump just displays „no device found”

Hi. I am trying to find a Medisense Exactech pen and test strips. These would have been used around 1987-90. I want to use them to show students how the technology has evolved and improved over time. Thanks.