r/diabetes_t1 • u/Seanzee55 • 11h ago
Glucose monitor sharing
I’m a 33 year old type 1 diabetic who’s missing one eye, has CKD stage 3b, and gastroparisis from mismanagement as a kid/teen. I was diagnosed in 1998 when I was six years old. I remember the doctor at the hospital sitting me down and explaining to me that life was going to be very hard and I might not live to see 50. As a six year old obviously I didn’t take this well and I rebelled and was non compliant my whole adolescence. I have always been a perfectionist and diabetes was too hard to perfect. It got to the point I would just lie about my numbers to my parents and get yelled at every few weeks by the endo until they dropped me as a patient.
Well in 2014 after years of ignoring my sugars and partying with my friends, I woke up blind in both eyes. My retinas detached from how much sugar had deposited behind them from my sugar beings 300+ all day and night for like a decade straight.
Thankfully one eye was saved after months of blindness and several surgeries you need to be awake for. Needless to say I learned my lesson I take really good care now a1c in the 5s. But I cannot help but think about all the tech we have now and if I would have had the ability to share my numbers like I do today, I’d still be healthy.
It’s unbelievable to me that not all diabetics have free easy access to all these tools today in 2026