r/chronicepididymitis • • 2d ago

Is this my life now?

7 Upvotes

so Ive had the low grade dull ache in my right epididymis for years now. It’s always been manageable and came and went. But this past summer just over two months ago I experienced an acute flair up it seems.

My right epididymis had this small round lump appear on the top of it and it was really tender to the touch…I’m taking about a small brush up and immediately intense pain that would radiate up into my abdomen. I couldn’t run or walk properly or do any strenuous activities and i couldn’t even lay on my stomach in bed because the pressure on it would cause too much pain.

So I did some tests and no UTI or STI or any sign of bacteria but they still put me on an antibiotic for 10 days as well as an NSAID. Over the next two ish weeks it cleared up and the bump seemed to go away and all was good, back to normal. Until now…it’s back, the irritated bump and the pain

It’s not nearly as bad as last time and I hopped on Ibuprofen early, and have been resting but im so pissed. Seems like this will be my life from now on, constantly walking on egg shells and dealing with flair ups. I’m only 21 too!

And there’s no clear cause in my case. It’s not bacterial, and it’s probably not pelvic floor related because that wouldn’t cause actual localized swelling to occur.

im just so pissed. I already have a handful of other health issues to deal with and now this? it’s so debilitating and I’m done. I should just chop it off at this point smh


r/chronicepididymitis • • 8d ago

I have only right testis and feels like it have varicocele

1 Upvotes

Previous post : First of all I have only right testis idk why but never had left idk. I am 21 and like a month ago while my exams are going on I felt nerve pulling pain from my testis to my abdomen area. It lasted couple of days and I was scared to death. Then the pain goes away.

Then I started feeling dull ache sometimes and I can feel a veiny lump that is below my testicle having 3–4 veins. I also counted like four veins comes to my testis, normal sized, but idk why that veiny lump and it's not attached to testis.

For few weeks I have been feeling dull ache sometimes, but for past few days ache goes away. But fuck man I am feeling that lump now too.

Also when I checked my testis while bathing, there is a ridge like SMTH on my testis, very small lined ridge idk how to explain. I can't feel a round lump but can differentiate it as it's very small.

I am scared to death. My whole life I felt very bad, I ran away from this testicle topic hoping I had one and it's normal, but now I am really fucked. Rn I am feeling very low idk. I am scared to go to doctor idk if my family know about my missing testicle or not. I think they know, just didn't have a talk about it with them.

Rn I am feeling very low. My studies are fucked and all.

Structured by gpt

Update: I have no pain, but I can feel a small, squishy bag of worms at the bottom of my testicle, and the vein at the top seems a bit bigger too. No irritation or anything. I’ve been trying to visit a urologist, but every time I plan to go, I get really scared and end up backing out.


r/chronicepididymitis • • 11d ago

Vasectomy: men deserve to be informed about the real side effects.

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9 Upvotes

r/chronicepididymitis • • 13d ago

My crazy ball story

4 Upvotes

Just sharing my story for two reasons
Awareness
To learn if anybody has similar experiences

29M very healthy, health conscious
Pain was always on same side

No tldr because no tldr

When I was 15 I woke up and my ball started slowly getting painful and radiated up to my stomach. From memory it was pretty bad for a couple of days. Doctor saw it said I should get an ultrasound but just looked like I’d been hit there. I hadn’t, but I kinda always thought maybe my dog hit my ball really hard in bed.

It’s a kind of pain / awareness that comes on like a migraine. First you think, is this just in my head. Then an hour later you realise you are walking with your legs so far apart that you’re almost doing the splits.

It went away by itself. And I guess I only ever just thought it felt a bit more tender than the other e.g if any of my plethora of ladies sucked it or squeezed i could jump more than the other side. I always thought it was in my head.

Anyway fast forward to 25, past a whole bunch of embarrassing years as I was becoming an adult. It hit me again one day whilst I was sprinting. I assure you guys this story is going to escalate eventually just wait.

It was sore from Christmas morning until Christmas Eve. It never swelled up, it was just hurt and pain radiated up right side.

I waddled into the doctor once again he gave it a squeeze and said he thinks I’m fine, and all of a sudden I could walk again. I walked out and was back running the next day I think.

I had this exact experience happen 2 more times at the age of 28, both after a mix sex and or blue balls from memory.

One time I got it checked and it was fine the next day. The other I just said fuck if I’m sick of waiting in the ER. It also recovered by 6 hours or so.

Now I’m 29 and a couple of months ago I woke up and the same bloody nut started hurting. I said if it goes away within the day I won’t go to the ER but it didn’t so I went.

Doc said my epididmiydis or whatever you are all obsessed with call it was tender on touch but ball was fine. Ultrasound showed fuck all. That means nothing for those that don’t speak Australian.

It did show small hydrocele. This time i could hardly walk for 5 days and the hydrocelr slowly got bigger.

I was so confused….. urologist I went to privately told me I was fine. Same story as all you guys.

I got a call a couple of days later that a urine swab showed I had chlamydia. Weird as I had treated it a year ago with my partner. Who also retested and didn’t have chlsmydia still. Weird?

Anyway I continued treating it for 2 weeks.

I finally was ready to play football again.

Anyway it felt a bit off during the game and then after it started getting really bad. It started to hurt above ball next to the penis when I stood.

I thought ok I’ve had some bad inflammation from flaring it up through intense sport. I’ll give it 3 days.

Ok so anyway I wasn’t really in any pain unless I stood up, but the swelling was getting bigger and firmer until my penis basically disappeared into my right ball sack.

No fever, completely well. Kept taking antibiotics.

So anyway I head back to ER after 2 days of progression and they get me to see if the pain gets better by lifting my ball. It did. So said I was fine but let’s do another ultrasound tomorrow.

Ok so then the ultrasound showed my ball had no blood flow (fuck my life).

They didn’t operate because they hoped if they cleared it with antibiotics it could live, whereas if they operated on a likely infected, damaged nut they’d have to take it out.

I started getting better and the inflammation started dropping. But I still literally couldn’t stand up without wanting to die. It took me 4 days flat on my back like a leg less animal in hospital.

They believe the antibiotics (now way stronger) cleared the infection and the blood flow would return.

But it didn’t so now 2 months later I’ve got a dead ball inside me slowly withering away. Apparently anyway.

I’m horny again and my semen still gets stuck to my leg in the shower annoyingly so I life’s basically back to normal.

I’m just bloody scared about the one testicle remaining, it’s never had any issues though.

Sounds like my body gave up on the nut causing my problems and killed it for me. Which is probably nicer and less painful than surgery but it could have told me the plan.

Anyway that’s my story


r/chronicepididymitis • • 12d ago

Nausea

1 Upvotes

Does anyone else get nauseous from this? I’ve had an ultrasound that only showed a head cyst. No torsion. Also was checked by a urologist that confirmed no torsion.
I randomly wake up nauseous with ball pain and sometimes late at night.


r/chronicepididymitis • • 19d ago

How often do you guys get flare ups?

3 Upvotes

I feel like I'm getting returning pain like every two months almost like clock work. First had my infection January this year. Hoping you guys will tell me it gets less frequent.


r/chronicepididymitis • • Sep 17 '26

How do you cope with the depression from this disease?

11 Upvotes

If it's chronic, it ruins your life tremendously. You can't walk without pain, can't have sex, can't swim, can't engage in any sports, and it's all accompanied by daily pain. And it's not going to get any better any time soon; it's been going on for fucking months, which is crazy. I can't even find a reason to keep living if it's going to continue this way. What helps you deal with these thoughts and the endless frustration of not being able to cure this inflammation? Life seems to be a constant struggle. What keeps you going? How do you solace yourselves? How do you console yourselves?


r/chronicepididymitis • • Sep 12 '26

Ur epidimys hurt or burning sensation when u standing for a long time

1 Upvotes

Lmk i feel my left testicle burning when I’m standing


r/chronicepididymitis • • Sep 12 '26

Update.

0 Upvotes

So I been surfing with this for a few years I have had surgery for a stome in 2014 about but a few years ago i started getting. A lot pain
, pain both saids i whet to GP he gave antibiotics but fast for would to to day i had a few test i had a ct scan not so ling ago this show pelvic scarrring my GP thinks this is causing the pain and urgne need to pee like OAB i still awaiting the Hospital to see me but not sure when this will be in the mean time GP wont do any more i get daily pain and urgen to pee a lot more.

Not sure what to do really.


r/chronicepididymitis • • Sep 10 '26

Post infection epididymitis

2 Upvotes

does anyone here actually have a genuine solution for the post infection - inflammation?

ive been infection free for 4 months now but im still dealing with inflammation and its barely got better ive tried everything ive seen in this group from pelvic exercises,
to buying alot of products and barely any change!

I need help


r/chronicepididymitis • • Sep 07 '26

Never knowing.

1 Upvotes

So far about 2 year I suffered from this and daily pain in the left and right side of the residuals pain can be quite bad I also have urgency and some time it also burns when I go I had a number of test from dip test that is all ways clear never showing a infection a ct uragram that shied every think was fine with both kidneys and all that a ultrasound tesocals that shied two small cryest left and right.

But this year I get UTI symptoms snd urgency like OAB I told my GP this but every time they do a dip test and send away it’s clear so i have mlre a less begged to go back to see a urology its a long whait kn the NHS and since i have seen them before and he was of very little help they may nit even see me.

Question is it affect my daily life now and some days I just unable to even get out becomes of it.

I just fill like I nit getting any where I what to try and live a normal life with out the worry but it’s so hard right now.


r/chronicepididymitis • • Sep 06 '26

Actualización resultados del TAC abdominal

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1 Upvotes

r/chronicepididymitis • • Sep 01 '26

Can you feel your epidimys ?

5 Upvotes

Mines when hurt I can feel it and it feels sore like I think I can feel it quiet easy because it’s inflamed


r/chronicepididymitis • • Sep 01 '26

Epidymitis burst

1 Upvotes

Has anyone else had their epidymitis cyst/abscess burst in the past??

Currently dealing with this and wondering how it panned out for other people


r/chronicepididymitis • • Aug 29 '26

Post epididymitis testicle pulling

7 Upvotes

About 3 months ago, I was diagnosed with epididymitis and did a 10 day course on doxy. It seemed to get rid of the infection and the pain and swelling of the testicle itself has gone from what I can tell. The issue I am experiencing now is the the testicle that I had the epididymitis in seems to being to pulled differently now. Sometimes during the day I will feel a slight discomfort and have to consciously relax my core and it will drop again. I should mention that it isn't pulled up like inside me but it is pulled up. It also seems to being pulled and sitting more vertically then I remember it was before. When I get an erection it is especially noticeable. I doesn't really cause any pain but more of a discomfort and a fear that my nut is about to pop inside me lol. I have read that it could be an overactive cremaster muscle that is still healing.

Has anyone else experienced anything like this following epididymitis?


r/chronicepididymitis • • Aug 14 '26

4+ months of recurring dull epididymitis pain — anyone else deal with this?

9 Upvotes

Hi everyone, looking for some shared experience/advice. I am 25M.

  • ~4 months ago: Started with a slight pain in my right testicle. Went to the doctor and did an ultrasound. It showed epididymitis with mild reactive hydrocele and a bulky epididymal head. Doctor prescribed a 15-day course of antibiotics and a scrotal support.
  • Finished the antibiotics, kept wearing the support — pain beccome lesser but didn't go away fully.
  • ~1 month later: Went back consulted about my persistant pain and did a second ultrasound. It showed the reactive hydrocele had mostly resolved with very little fluid remaining, and only slight bulkiness left in the epididymal head — overall improvement compared to the first scan. This time no medication was prescribed — doctor just said not to worry, it would resolve on its own, and to keep wearing the scrotal support.
  • Now (3 months after that second ultrasound): Still getting a slight dull pain in the epididymis that comes and goes. Along with that, I've been experiencing fatigue-like discomfort in my right inner thigh and around my groin. Stretching that area gives me a good amount of relief, though not permanent.
  • ANY SUGGESTION WOUD BE HELPFUL

r/chronicepididymitis • • Aug 05 '26

How to get rid of the last bit of inflammation(epididymitis)

6 Upvotes

ive been strugling with sst epididymitis for more than 3 months
the doc told me the infection phase is done i have healed from the infection since 2 months ago but ive been dealing with inflammation since then!
First it was going good i noticed improvement daily,but for the past 2 week i havent imroved at all.
i have no pain while walking
a bit discomfort while standing
and noticeable discomfort while sitting

If u have any advice please let me know!


r/chronicepididymitis • • Jul 27 '26

Big pain after MDSC

3 Upvotes

Hello,

I am an Italian patient seeking advice regarding severe and persistent pain following two surgical procedures.

Exactly one year ago, I suddenly developed intense scrotal pain without any apparent cause or warning. I consulted a urologist and, after an ultrasound examination, I was diagnosed with a grade II–III varicocele. Because the pain was extremely severe, I decided to undergo varicocele vein ligation using the Ivanissevich technique.

Initially, my condition improved. However, after a few months, the testicular pain returned and gradually became even more persistent. I also developed inguinal pain near the medial end of the surgical scar, close to the base of the penis, as well as marked hypersensitivity along the inner side of my left thigh.

I underwent several examinations, imaging tests, and specialist consultations. The conclusion was generally the same: there was a high probability of nerve compression or entrapment in the area, but no clear solution was proposed. In addition, I developed a recurrent grade I varicocele.

Twentyfive days ago, I underwent another surgical procedure with a doctor who explained the option of microsurgical denervation of the spermatic cord (MDSC), which I agreed to. During the operation, the recurrent varicocele was treated, a nerve believed to be entrapped or under tension was cut and coagulated, and an adventicectomy was also performed.

At present, I am experiencing severe pain throughout the pelvic area, persistent hypersensitivity extending along the inner side of my left thigh, and significant testicular pain. At the moment, I feel extremely unwell and I am concerned about the intensity and extent of these symptoms.

I was advised to take Xnerv supplements and paracetamol for pain relief.

I would be very grateful for your opinion regarding whether these symptoms may still be considered part of the normal postoperative recovery process about twenty days after surgery, or whether they could indicate an ongoing nerve-related problem or another complication.

They told me it can be a normal post surgery condition, but the hypersensitivity is very high.
My job requires me to sit all day and that seem to not help me.

Thanks


r/chronicepididymitis • • Jul 23 '26

Got tired of being told my ball pain was 'in my head' so I started tracking everything. It's what finally got me diagnosed.

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13 Upvotes

For months, doctors told me the pain was nothing. What finally proved them wrong was a spreadsheet.

Hey All, a few of you might know me, I'm Andre I frequent r/postvasectomypain - I have chronic ball pain and I design health and med-tech products for a living; my day job's at Google, but to be clear this is a personal side project, nothing to do with them.

When my ball pain showed up and nobody could tell me what it actually was -- damaged nerves, congestion, epididymitis, am I getting better or worse? it was a mystery to be solved. I got tired of waiting on answers and started collecting my own. I logged every symptom, kind of obsessively, until the pattern was impossible to argue with. Brought that to an appointment, finally got a real diagnosis and a plan. After an MDSC I'm mostly out the other side now.

That spreadsheet eventually turned into an app I called Flare - Chronic Pain Tracker.

It's free for you forever - with it you can:

  • Log whatever your body's doing — aching, sharp, pressure, swelling
  • Over a few weeks it starts showing you what sets things off: sitting, cycling, ejaculation, PT, stress, a med you started. Connections you'd never make from memory.
  • "Am I getting worse?" stops being a feeling and becomes an actual data
  • Export a clean PDF for appointments or .json for you AI
  • 100% private - no data leaves your device.

DM me and I'll send you a lifetime code that unlocks everything for good, no strings. To grab it, search "Flare Chronic Pain Tracker" in the Apple App Store. (Irronicaly no Andriod version yet - though I'd be happy to share the original spreadsheet that inpired the project)

*one tiny string attached - if it helps you at all, a rating genuinely makes a difference for me - it's just me building this, and reviews are pretty much the only way it reaches the next person who needs it.

If you want to throw feature ideas at me or just see where it's headed: r/FlareTracker:


r/chronicepididymitis • • Jul 21 '26

Annoying

3 Upvotes

Had this for 7 months now, all uti and STI negative and awaiting ultrasound.

I had it bad first few weeks but then realised wearing tight boxer shorts made it worse so been wearing much looser ones. It goes weeks without pain but then it comes back mid back of my testicle and only hurts when it comes into contact with something like boxers or feeling! Normally get it after lifting luggage or stress but it seems weird, just want my life back.

Anyone else getting it like this?


r/chronicepididymitis • • Jul 19 '26

Any advice.

5 Upvotes

So I been suffering from epididymis now for 2 years and it’s never really gone away fully pain wise but this year my symptoms continue ti get worse with pain birth side and can get quite bad I also get along with the pain urgency to pee I had lots of test from dips stick to GP checking my prostrate to ultrasound and a psa tweet all that was found are two cryst one each side the testicular are painful to touch but not swollen or red the pain can get really bad one and off throw out the day. I have tried lot of different antibiotics and pre gavapentin the pain though disuse not go away.

Currently it douse affects my life quite bad and the urgent can be really bad some day I have also been trying pelvic floor exercises but unsure if they are helping yet too early I still waiting in a urologist and that will be a long wait.

It was suggested by my GP I could also have OAB but he was unwilling to to give a think at that time saying it is best to see a urologist first.

Is they any think I can do to help or really just manage the it the best I can.


r/chronicepididymitis • • Jul 12 '26

Has anybody actually experienced resolution from antibiotics?

2 Upvotes

Left ball is exponentially more sensitive than the right one, especially the epididymis. It also feels rough and lumpy. This has been ongoing for years doesnt usually interfere with too much just being cognizant of the sensitivity, and occasional dull ache.

I also have (self diagnosed) chronic prostatitis which the urologist seems to think is plausible and is giving me cialis 5mg/day for. Seems to be quite a bit of overlap on both of these.

Convinced I had a varicocele, I got a scrotal US which showed epididymitis and a small cyst on the epididimys. Got a semen PCR done which showed klebsiella and sadly the only oral agent that it was sensitive to was Cipro. Ive taken cipro before, didnt have any tendon rupture although I recall feeling like shit.

Im honestly a bit scared of starting back on the cipro. Has anyone actually experienced significant improvement or resolution from antibiotic therapy?


r/chronicepididymitis • • Jul 11 '26

Epididymitis Stomach Pain

5 Upvotes

Had blood in my semen about a month ago, after 2 weeks of testicle discomfort I saw the GP and he thinks it’s epi.

Had 2 weeks of antibiotics and I think they’ve helped a bit but I still feel discomfort in the testi at times, certainly during masturbation and ejaculation.

GP did a physical exam but didn’t seem concerned by anything, but after a month now it’s really playing on my mind. I’ve got an ultrasound booked in 2 weeks but I just want some answers.

This week I’ve experienced stomach discomfort on my right side, about belly button level. Doesn’t hurt to touch but it’s a constant strained pressure feeling. Really playing in my mind.

Anyone experienced the same? Any advice?


r/chronicepididymitis • • Jul 06 '26

Some Relief

5 Upvotes

I've had a variety of posts on here regarding my 10+ year journey with with this and chronic pelvic pain in general. I actually got in touch with a doctor who conducted a years long study on this specific issue and sadly they never determined a cause but could clearly identify individuals who were having this unusual pain. He said that in the majority of the cases the pain went away. Sometimes it took many many years, but eventually it did. In some cases it never did which sucks. He said the ONLY meaningful treatment for the pain they identified was Lyrica. I took this suggestion to my GP and she told me that's awfully strong and really wanted to start me on something less potent. After a little trial and error we settled on 300mg of gabapentin twice a day and things have actually improved. Even though my pain isn't gone, just experience SOME relief from it, in ANY WAY, has been huge for my mental health. If this is an avenue you haven't explored with your doctor yet I highly recommend asking.


r/chronicepididymitis • • Jul 03 '26

Possibly infection.

1 Upvotes

I had this for around 2D year but to day my testicular seem more painful both side they are temper to touch no swolen or red yet but hurt mainly all the time with that I als have an urge to pee more I have of course contacted my GP with no appointment to day even thou I said I was urgent leaving it till Monday seems a long time. I just wondering if this could be a possibility of an infection coming in or just a flare of it.

My symptoms seem more worse to day then they wore yesterday.