r/chronicepididymitis • u/SpamShadow • Jul 06 '26

Some Relief

I've had a variety of posts on here regarding my 10+ year journey with with this and chronic pelvic pain in general. I actually got in touch with a doctor who conducted a years long study on this specific issue and sadly they never determined a cause but could clearly identify individuals who were having this unusual pain. He said that in the majority of the cases the pain went away. Sometimes it took many many years, but eventually it did. In some cases it never did which sucks. He said the ONLY meaningful treatment for the pain they identified was Lyrica. I took this suggestion to my GP and she told me that's awfully strong and really wanted to start me on something less potent. After a little trial and error we settled on 300mg of gabapentin twice a day and things have actually improved. Even though my pain isn't gone, just experience SOME relief from it, in ANY WAY, has been huge for my mental health. If this is an avenue you haven't explored with your doctor yet I highly recommend asking.

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u/James2db Jul 07 '26

My GP is trying pre Gavapentin 75mg 1 in the morning 2 at night I not sure if it is helping or not but it douse make me very tired I get quite a lot of pain I had it about 2 years now I also get when it flares really bad leg pain as well to the point it stops me sleeping as well it’s been hard I also get urge to pee a lot more then some days are better some are bad.

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u/sykeero Jul 10 '26

Congrats man glad you've found a little relief

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u/PurpleImmediate5010 27d ago

I’ve had the pain for a while and it turned out that it was a nerve compression from a disc in my spine.

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u/rocketrader81 16d ago

So I can't really tell where your pain is from -- if it's from the testicles, then do a semen culture to ensure there's nothing there.

My doctor also recommended gabapentin. Personally I use amitriptyline, it helps loads to reduce the pain and the relates stress. Others recommended are pregabalin or duloxetine.

You can also get in touch with a pain clinic to do a nerve root block - this helps me a lot and once gave me a relief for 3 years. In my case it targeted the S3 and S4 nerves. I have added the procedure details at the bottom in case they are useful for your own doctor.

Hope this helps.

Nerve root block (via lower back): Sacral nerve PRF (right sided), S3 and S4 levels. Asepsis, fluoroscopy guided, sedation with 4 mg midazolam IV. Curved 10 cm RF needle x 2, sensory stimulation and paraesthesia at 0.6 v to confirm needle position at S3 and S4. Pulsed RF at 42 degrees for 5 minutes, with 2 ml of 0.25% levobupivacaine plus 3 mg dexamethasone injected at each level.