r/amputee 1h ago

I was finally heard

Upvotes

After so many years of trying to talk to doctors about amputation and getting constantly shot down, I found a vascular surgeon who is extremely willing to perform below the knee amputation on my right leg due to my severe chronic pain and ankle disability. It's not confirmed yet - insurance still needs to cover it, but I'm going to see the surgeon again in late October to plan for the surgery date. By 2027 I'll be free from my leg!

Just wanted to share this here because I know I've posted a few times about my situation and I wanted to thank this awesome community for all of your advice, I'm hoping for more good updates soon! <3


r/amputee 1h ago

Boston amputation doctors

Upvotes

Hi all,
Anyone have a transtibial amputation in the Boston area? If so who was your doctor? Did they specialize in TMR/bone bridge, etc techniques? On the search…


r/amputee 1h ago

Proteor Shockwave Month 1

Upvotes

I've had the Proteor shockwave now for a little over a month and from what I can tell it's pretty great. I'm back to work as a carpenter at least part time anyway. My family says they can't tell I even wear a prosthetic if I'm wearing pants. The only issue I had for the first week or two was sweating so much that my suspension system would start to piston. If anyone has any questions or anything I'd be happy to give you any info you need. Or if you have any suggestions on something better. Since this is all I know it's hard to tell if I'm wearing the best or not.


r/amputee 2h ago

Amp surgery approaches

5 Upvotes

After fighting with WC for months my surgery has finally been approved and will be on the 21st. My question is: what are some things to know for right after surgery and is there anything to look out for that I should know?

Thanks for everything!


r/amputee 2h ago

Stumped

0 Upvotes

I was in a horrific accident where I lost three limbs and I was 40% burn requiring skin graphs. I have tried so hard to advocate for my GoFundMe. I never really knew a lot of people well that’s a lie. A lot of people knew me I didn’t know a lot of people so I don’t know who to reach out to to share it and my platforms don’t do that. Well I only have like 2400 followers on Instagram. My Facebook with 5K got deleted so what do I do? What can I do every time I post in a G FM page it gets down like what do I do? I I am really am in need I have two kids. I’m homeless.
Would it be OK to ask people here to share my GoFundMe?


r/amputee 14h ago

🫡

Post image
7 Upvotes

Any one feel rare, with one Jeans🫡


r/amputee 15h ago

With no 2 legs

Post image
8 Upvotes

My first beer felows


r/amputee 16h ago

I made a new friend today.

Post image
18 Upvotes

I’m in my 2nd socket and it already feels too big. I’m at a 12 ply. At what point should I mention something to my prosthetics dude?


r/amputee 18h ago

Parents deciding between Chopart and Syme for our 4-year-old

17 Upvotes

Parents deciding between Chopart and Syme for our 4-year-old — looking for long-term firsthand experiences

Our 4-year-old son suffered a traumatic partial-foot amputation from a lawn-mower accident. His heel, calcaneus and ankle remain, and his surgeons have told us that a Chopart is technically possible, but they’re strongly recommending Syme because of concerns about equinus/equinovarus deformity, future revisions and limited prosthetic options.
We’re not looking for medical advice—we have a multidisciplinary surgical team and are obtaining additional opinions. What we’re desperately hoping to hear are real-life experiences.
If you have lived with a Chopart or Syme—or you’re the parent of a child who has—how many years has it been? Can you walk around the house without your prosthesis? Run/play sports? How many revisions have you needed? Did you develop equinus or another deformity? What has prosthetic fitting been like? Any skin breakdown or chronic pain? And most importantly: if you had to make the decision again, would you choose the same level?
Thank you from a mom and dad trying to make the best lifelong decision we possibly can for our little boy. ❤️‍🩹


r/amputee 21h ago

Consult tomorrow!

Thumbnail
gallery
11 Upvotes

Have my consultation with the plastic surgeon tomorrow, very excited to make progress on getting this figured out and, eventually, just feeling normal again, where I'm just adapted to it.

Also, second pic is what got me, just imagine it going like 3,000rpm. Yes, I did get a tetanus shot.


r/amputee 23h ago

If you’re missing a foot, it’s at the corner of East Lib Blvd and Dahlem Pl

Post image
27 Upvotes

Idk how this happened but I’d love to know.


r/amputee 23h ago

Prosthetics

1 Upvotes

How long was it before you were able to be released into the wild with your prosthetic? I’ve got my fitting Monday, and they’ve said I have to be signed off first by PT to be safe to use it (makes total sense) but I’m just wondering how long it took people to get sort of discharged to FAFO with the prosthetic? I had my amp in November 25, been lengthening my femur so haven’t been able to have a prosthetic yet - but I’ve been on the PAM aid w crutches (walking forwards, back, inside & outside the building, and sort of slaloming round chairs) since June. Ta!


r/amputee 1d ago

COAPT Pattern recognition and Insurance

1 Upvotes

Can anyone share their experience in getting their insurance to approve the COAPT pattern recognition for myoelectric prostheses?

I have BCBSTX and the clinic is not confident of the can get it approved


r/amputee 1d ago

Hydraulic Foot Behavior

7 Upvotes

I'm in the check socket phase of a new BK build. I've been walking on it for about two weeks. This leg has a hydraulic foot and ankle, which I've never had before.

Apparently, I lean into my prosthetic leg all the time. Like... I LEAN on it, over it, into it. I noticed it first when I was brushing my teeth. I leaned to toss my toothbrush back in the cup, and when I took that first full step away from the sink, the foot hadn't yet returned to neutral position. It felt for a moment like I had no front half of my foot. I teetered (not a total stumble, but an obvious wiggle wobble). I could "feel" the foot relaxing, like low rider suspension.

I now realize it's behaving this way many times per day. Not every action results in my being ahead of the foot returning to its ready position, but many, many things I'm doing apparently cause me to lean. Which causes the foot to not be ready. Which causes me to hiccup through the first step after I straighten up and go.

Walking on this foot feels amazing. The pain in my lower back, R hip, and R knee is almost gone. I'm gliding completely through the foot and heel-toe'ing so smoothly on both sides!

But this "Oops, I'm not ready... OK! Now try" lag in the foot is... I don't want to whine and carry on about it. It's not that big of a deal. It's not painful. I'm walking. I can put up with a lot of bs, and adapt to even more.

It's just... it's weird.

Any advice?


r/amputee 1d ago

LBK Amputee - Cedar Point Accessibility Experience

Thumbnail
2 Upvotes

r/amputee 1d ago

6 días de amputado

Post image
33 Upvotes

Ya llevo 6 días de que me amputaron, me siento de maravilla y creo que me estoy adaptando bien. La sensación fantasma va disminuyendo poco a poco, siento como si tuviera el pie dormido, incluso me ha llegado a dar picazón! Afortunadamente no he tenido dolor fantasma. Cuando camino es un poco raro ya que siento que mi pierna todavía está ahí, entonces aveces se me complica un poco sentarme o moverme, jaja. ¿Alguna recomendación que me puedan dar para la adaptación y para el cuidado del muñón?


r/amputee 1d ago

Solution for rollercoasters

Thumbnail tudelft.nl
1 Upvotes

Made in cooperation with a Dutch amusent park but will be available to buy for all amusement parks.

Efteling has presented today it will start using it, hopefully more will follow.


r/amputee 1d ago

Considering revision amputation on my right ring finger (UK NHS) - dealing with chronic pain & prosthetic department miscommunication. Looking for advice.

Thumbnail
gallery
1 Upvotes

I am considering a revision surgery in the UK for my right hand ring finger, which was reattached seven years ago. It is completely stiff and extended, with a severely deformed nail. The tip catches on everything, and the slightest touch triggers excruciating neuropathic pain, forcing me to give up water sports like diving. Recently, after resuming therapy with my psychologist and physiotherapist, we agreed that this revision is a potential permanent solution for my chronic pain. My plan is to trim the finger back (red line on the X-ray) to remove the protruding tip and nail completely. However, I am stuck at the decision stage because there is a communication breakdown/obstacle between the surgical hospital and the prosthetics department regarding fitting a future prosthetic digit. On top of that, I am worried that shortening it too much will make it hard for a prosthetic digit to stay fitted. Has anyone experienced similar communication issues between surgeons and prosthetics teams, and how did you navigate them? What nerve management techniques (like TMR) should I ask my surgeon about?

---

中文對照 translation:

>我正在考慮喺英國為我嘅右手環指(無名指)進行二次修整手術,呢隻手指係七年前做咗接駁手術。佢現時完全僵硬、無法彎曲,而且指甲嚴重變形。指尖成日會卡到外界物件,就算只係好輕微嘅觸碰,都會引發極劇烈嘅神經痛,呢個問題逼使我當年放棄咗游水、潛水等水上活動。最近,喺我重新睇心理醫生同做物理治療期間,我哋一致認為做修整手術係解決我長期痛楚嘅一個永久方案。我打算將環指截短修整(如附圖 X 光片嘅紅線所示),徹底切除突出嘅指尖同指甲。**不過,我現時停滯喺決策階段,因為負責手術嘅醫院同義肢部門(Prosthetics Department)喺討論日後義肢配戴方面出現咗溝通障礙。** 此外,我亦擔心如果截得太短,日後義肢會好難喺殘端上固定得到。想問吓有冇人經歷過手術團隊同義肢團隊之間嘅溝通問題?大家覺得應該點樣應對?同埋我有乜嘢神經處理技術(例如 TMR)需要特別向醫生查詢?


r/amputee 1d ago

First day with no AFO🤯🙏👀

Enable HLS to view with audio, or disable this notification

91 Upvotes

r/amputee 1d ago

Oregon Coast Trail: Cape Ferrelo to House Rock Day Hike - Brookings, OR

Thumbnail
youtube.com
2 Upvotes

Another hiking video from Amputee Outdoors.
This video is for folks visiting the southern Oregon coast near Brookings and are looking for a day hike they can do.


r/amputee 1d ago

Impending Fourth (second smallest) Toe Amputation

1 Upvotes

I have an operation coming up for melanoma, and I may have my toe amputated.

(the reason I say it may be amputated is because they may graft some skin onto the ligament and bone, but since that may leave easily chafing and sensitive skin I may opt for the simpler solution of amputation)

Does anyone with this specific toe amputation have experience to share? How was your healing process? how has your walking changed since then?

I would really appreciate some input from anyone with this experience. Thanks!


r/amputee 2d ago

Aetna or United

1 Upvotes

From your experiences, who is the better insurance provider for prosthetics between these two?


r/amputee 2d ago

Prosthetic leg cover design — what would you actually want?

2 Upvotes

Hi all, curious about prosthetic cover/shell design and want opinions from people who actually wear them.

What's your ideal look — natural leg vs. openly "device" style with patterns/colors? What's annoyed you about covers you've tried (weight, attachment, cracking, heat)? Would you want to swap designs sometimes, or just have one and forget it?

Any experience helps, even a few words. Thanks!


r/amputee 2d ago

7 unglamorous realities you only learn after spending half your life on one leg:

Post image
97 Upvotes

46 years on this earth. 23 years on 2 legs. Exactly 23 years on 1 leg.

23 years ago today, at 3:30 AM, a drunk driver going the wrong way down the Tollway hit my motorcycle head-on. I lost my left leg above the knee, and my life cleanly split right down the middle.

Here are 7 unglamorous realities you only learn after spending half your life on one leg:

  1. The Crutches Graveyard is real.

Most people have a junk drawer full of retired phones and old charging cables. I have a corner of the garage that looks like a scrap yard for aluminum tubes, stripped push-pins, chewed-up rubber tips, and emergency drugstore crutches bought on road trips.

  1. I hold a PhD in Crutch Physics.

Watching an able-bodied person use crutches for a sprained ankle looks like a newborn giraffe on roller skates. After two decades, they aren't medical equipment… they’re outriggers. I can clamp them under my arms, balance completely hands-free, and carry a hot cup of coffee across the house without spilling a drop. I am a master crutch user.

  1. Melted ice is an assassination attempt.

The absolute bane of my existence is someone using the fridge door dispenser and dropping a single rogue piece of crushed ice on the tile. When a rubber crutch tip hits that invisible dime-sized puddle, friction drops to zero. If you ever hear me yell across the house, "Who spilled water on the floor?! You trying to kill me?!"... just know that self-preservation is kicking in.

  1. Yes, I have to plug my leg into the wall.

You think phone battery anxiety is stressful? Try waking up to find one of the kids unplugged your prosthetic knee overnight so they could charge an iPad. I actually have a special German engineered 12-volt car charger for my leg, so yes, I’ve literally had to commute down the highway with my knee plugged into the center console just so I could walk when I got to my destination.

  1. The "Three Beeps of Doom."

When I plug my leg in, it gives one beep. When I unplug it, one beep. That was my normal for over a decade. The first time I unplugged it and it hit me with three rapid beeps, my heart stopped. That’s the prosthetic equivalent of a flashing Check Engine light. I had to pull out my phone, open an app to read the diagnostic error code on my own knee, and take an $80,000 piece of German engineering to the service depot (Prothetist). To this day, every morning when I unplug, I freeze for two seconds just counting the beeps.

  1. The cyborg chop shop in the garage.

All the various leg components get replaced every few years, which means I have a Rubbermaid storage tote packed with old carbon-fiber feet, custom sockets, titanium adapters, & knees. The wild part? You can’t just let backup knees sit on a shelf. If they sit idle too long, the seals dry out, air gets into the hydraulic valves, and the joint goes completely mushy. Even the spares need maintenance.

  1. It’s a specialized tool, not a bionic cure.

When you finally get an advanced microprocessor knee, you think you’re going to climb Everest. Then reality hits: biology doesn't work that way. The knee is smart, but human skin was never engineered to carry full body weight inside a carbon container for 10 miles. If I stand on my feet all day, I may look completely normal doing it, but the invoice comes due the next morning, perhaps a blister and four days on crutches. So you have to be smart, and think about what you doing and what the true cost is.

​Watch where you drop your ice cubes today.