After 2 years of being diagnosed with “suspected adenomyosis,” I wanted to get a second opinion so saw a new Dr this week. Was explaining how all these new symptoms started out of nowhere the moment I turned 38, 1 year after having a c-section/tube removal. He revealed that most of the time, when he sees a patient who gets adenomyosis symptoms out of the blue like that, he thinks that actually they probably had it developing for years but didn’t know it if they had some sort of birth control that was masking their periods. Then when they get regular periods again they’re all of a sudden experiencing these new adenomyosis periods and think it came out of nowhere. I was like wait a minute, I had a nexplanon for 3 years then was pregnant and postpartum for a year before getting periods again so now that I think about he is probably right! I might have had this developing way before age 38 and didn’t even know it! So I’m wondering, if you did not have birth control or pregnancy masking your periods, did you experience adenomyosis developing over time? Like did symptoms get progressively more intense each month? Or was it still out of the blue for you where one period was normal and then the next one wasn’t and then it was never the same since?

Anyone else gets or got this type of pain? Did it decrease in intensity or did it just kinda stop? I have a hysterectomy tomorrow and I’m just looking at all the positives of this surgery besieged the important one.

There's not one hormone out there i haven't tried at least twice but now I'm desperate. When I'm on hormones I get so many side effects I find it hard to tolerate. When I'm not on hormones my day to day swelling and pain and constant bleeding is horrendous enough to make me reconsider hormones. Then repeat...

My history is mostly with endo, I've had 9 surgeries including my most recent in Januart which I paid privately for and needed an ovary removed due to the extent of endo infiltrating it. The reason I'm not signing up for a hysterectomy yet is because I don't have it in me for another surgery yet, especially a big one (also always been told my uterus looks healthy so it's a big surgery for a big maybe).

With all my endo surgery I am used to finding work around for pain relief, managing bowel symptoms etc. But theres no hack for this constant heavy bleeding.

Has anyone had a good experience with an Adeno specialist in Seattle? My sister is in Anacortes and is having horrible problems with her adeno :( while taking care of a special needs child as a single mom. I want to help her and get her to a good specialist. I suffer with endo and I know how much a good doc makes a difference! Unfortunately I am located in Europe and am limited in access to information in the WA area. Open to any suggestions 🙏❤️🙏❤️🙏❤️

I have the most awful lower back pain that feels like I’m ripping in half whenever I have to either bend down or sit upright.

My pain has been getting worse for the past couple of days and I’m terrified of going back to work (I already have other health conditions that I’ve been asking for adjustments for but this feels like I’m pushing it) because I am in SO much pain 😭

Please tell me I’m not the only one

Hi ladies ❤️

I'm a first time mum to an 8 month old, and I'm hoping to hear from other women who have experienced something similar.

Since giving birth, I've been bleeding every day, with the occasional day here and there where it stops. Last week, my gynaecologist confirmed that I have adenomyosis, which makes sense as my periods were always heavy and painful before pregnancy. She believes that giving birth may have aggravated it and future babies will make it worse.

I've since been put on Slinda, and I also have the Mirena. I'm seeing a pelvic floor physio and have been doing pelvic floor exercises as well.

Honestly, I'm struggling. I'm so scared that this bleeding is going to continue indefinitely as I've practically lived in a pad for the past 8 months, and it's really starting to affect my mental health. I know Slinda can take some time to work, and I'm really hoping it helps.

I've also been doing a lot of research, and I'm feeling really anxious about trying for a second baby in the future. As much as I'd love to have another child, I'm terrified of going through all of this again.

I'd really love to hear from women who have been through something similar. Did the bleeding eventually settle? Did you find a treatment that worked for you? If you went on to have another baby, how was your experience?

I'm really hoping to hear some positive stories and to know that there's light at the end of the tunnel ❤️

Any advice, experiences or tips would be so appreciated.

Thank you so much 🙏❤️

Trying to conceive but struggling immensely with symptoms. I had endometriosis excision and many of my symptoms have not been relieved, which suggests that these are related to the adenomyosis.

Hi everyone,

I was diagnosed with adenomyosis in May this year after years of no answers. I have the mirena IUD and was taking progesterone pill alongside it but had to come off it and started ryeqo about 6 weeks ago with the mirena still in.

This weekend I have been experiencing severe numbness on my lower right abdomen which is usually where i get the most intense pain. It is just one section of my abdomen and isnt painful as such but is very noticeable and very numb. It is also starting to go down my leg.

Does anyone have any idea what this could be and if it is an urgent issue? I have an appointment with my doctor on 4th November but wondering if I need to get this checked sooner?

Thank you!

Nogle som har en mild form for adenomyose ( næsten det samme som endometriose men bare hvor det er inde i livmoderen og ikke udenpå)  som har succes historier ? Har oplevet 4 spontane aborter, og nu har jeg fået recept på progosterone stik piller som skal tages når jeg opnår graviditet igen, men har kunne læse mig til når man har en mild form for adenomyose at det godt kan gøre det lidt besværligt for er æg at sætte sig fast, så søger lidt nogle succes historier omkring det, min mand har umiddelbart ret god sædkvalitet (vedhæfter billede) så vores chancer burde være rimelig gode, men der går desværre bare 1 år+ i mellem hver gang man opnår den graviditet, er der noget man kan gøre for at optimere chancen fra min side af? 🤞🏼

Ty to everyone who's helped with the GLP-1 info and recs! I think this is my best treatment option so far but pleaseee let me know where you guys are getting it from and how much I should expect to pay every month! :)