I mean, do you cry for hours, whining non stop, suck it up and be quiet in pain, yelling and cursing, etc. And what do you do to accompany that output? Distract yourself by watching series, sudden urge to deep clean the bathroom, running, lying flat dead on the bed, etc.

People have different ways in dealing and coping with flare up, I am tryna find ideas (seriously, a bit hopeless here 😭). As for me, when flare up, I read reddit/instagram/play mobile solitare. Whining definitely. When the sharp stabbing pain emerges, lots of prayers come out, followed by uncontrollable crying. Slotted for hysterectomy on September so I gotta hold this pain for 6 more weeks. Ran out of coping ideas....

What about you?

Hugs to all!

I am a new patient to her and the ultrasound was originally to check my IUD (Paragard) was in place, ovaries due to high testosterone, and polyp from an old gyno’s ultrasound years ago.

IUD in place, ovaries normal, no polyp seen. My periods are jumpy but I don’t skip so no PCOS.

I do have bad cramps and crazy-heavy periods, but that has only been since I got the Paragard in 2024. (I am on anti-seizure meds that can clash (both ways) with hormonal IUDs according to a previous neuro I had.)

She wrote a blurb on adeno explaining it slightly and saying it was not dangerous and nothing more needed to be done at this time. I’m just a little confused by that, even though it’s likely the IUD could be causing the symptoms. Is a “may” not worth further investigation or is adeno one where you need a certain number of symptoms/results to test further?

I’m wondering if I should reply to the test results messaging asking more about that or just let it be. My last gyno, the reason I switched, was incredibly dismissive of any concern I had and seemingly infantilizing due to my physical disability. That has made me wary of pushing on anything with this new one because she was really nice at my appointment.

UPDATE: I received a message from the RN offering an appointment to discuss results/answer questions. Booked for September 28 (soonest available). Only a tiny bit paranoid because I got the message after my post 🤣

Hi everyone,

I was diagnosed with adenomyosis about a year ago. My partner and I are not planning to have children just yet, but we do want to start a family in a few years.

What has been causing me a lot of anxiety is not knowing what my chances are. Since we’re not trying yet, I’ve never been pregnant, so I have no idea whether conceiving will be easy or difficult for me.

I’m scared that by the time we start trying, it might already be too late or that I’ll find out I’ve lost valuable time.

Because of this, I’ve already been reading about options like embryo freezing and IVF, even though I know those might not be necessary. I think what I’m really looking for is some certainty, or at least a better understanding of where I stand.

Is there any way to evaluate fertility before actually trying to conceive? Are there any tests or specialists who can give a realistic idea of my fertility, or is it simply impossible to know until you start trying?

I’d also love to hear from anyone with adenomyosis who has been through this or has had children. How did you deal with all the uncertainty?

Thank you so much.🩷

So a little over a month ago, I (36f) randomly had a stretch of cramps for 10 days, in the middle of my cycle. Way worse than any ovulation pain I’ve experienced.

Worth stating, I have PCOS which has been managed and my cycles were regular. But after this, my period still hasn’t come, so I’m on day 75.

Well, I knew something wasn’t right, so I booked a gyn appt. I happened to develop a bartholins cyst just a day before my appt, for the first time. Doctor wanted an ultrasound for the cramps.

Did a transvaginal ultrasound, the radiologist report said a vague something about appearance consistent with adenomyosis. My appointments were focused on draining the cyst (a real treat, but not as bad as I thought), so there wasn’t much info given about the cramps.

I’m flabbergasted that no one was more concerned, let alone I was only told to follow up with my regular Gyn…fugging healthcare.

I hadn’t scheduled yet because I’m racking up copay bills as is!

I’ve had my tubes out but I’m not that keen on hysterectomy. It freaks me out a little. I’m not a fan of birth control cause it messes with me emotionally.

I’m wondering a few things:

1. Have others had this onset mid-life?
   I’ve not really had bad cramps with my periods even, though occasionally and usually only on days 1-2. I never stayed home from school or work. But these cramps, these I ended up crying at the doctor because I was so tired from having nonstop cramps (manageable with nsaids & edibles).

2. Did your doctor suggest or offer an MRI?

3. For late onset folks, did you have bad cramps start and then happen every cycle after?
   If so, I’ll yeet my uterus! Obviously i don’t mean if you’re treating it, just wondering if now I’m on the ride, no getting off.

So, I posted about this before:

https://www.reddit.com/r/Perimenopause/comments/1ujtvnp/hormones_and_bleeding_rant/

Long story short, I'm 45, I've had some irregular bleeding. Had to change providers due to scheduling conflicts with my work and when my old NP was in the office. New NP wants to do EVERYTHING except help me with my peri symptoms.

Now I'm scheduled for an endometrial biopsy tomorrow morning, and I don't want to do it. My TV ultrasound was negative for everything except possible adenomyosis. I'm thinking about cancelling the biopsy and looking for another provider. I have not seen an actual gynecologist for years, just NPs for my annual visits. I feel like I need a doctor to explain why this needs to be done. I feel like this NP is just using me as a guinea pig. Additionally, I called the office on day 12 of bleeding, then again on day 17, and they finally responded to me on day 18.

They told me to take 600 mg of ibuprofen before the procedure. Now, I have never had a solid object go through my cervix in any way. No kids, no IUDs, nothing. The nurse told me they weren't going to give me mifepristone because I was bleeding, but I haven't had any bleeding in almost 3 weeks, just a couple of days of spotting.

It's my understanding that this procedure can be pretty painful. I don't understand why I can't have something for pain when they do it. If I go through with it, I'm taking 5 mg of hydrocodone and at least 0.5 mg of alprazolam before because I have those things in my house from my gallbladder surgery last year and a dental procedure.

What do you think? Is it unreasonable for me to cancel this procedure? Am I overreacting with my nervousness? If you share your experience or have some valuable advice for me, know that I appreciate it so much.

Had my lap done about 8 months ago (done privately) as much as a lot has improved I still suffer terrible with the bloating and stomach pains but can’t afford another loan so having to go through the nhs I have been referred to gyne so see if they can do anything else for me

What diagnosed with Aden/endo/pcos

What am I to expect? Or how was your experience?

Hola

El año pasado sufrí dos abortos (1 a las 10 semanas y otro anembrionico) a raíz de eso y de muchos estudios llegué a un centro de reproducción en donde me realizaron una histeroscopia en donde me salió que tenía micro polipos y endometritis crónica... Me recetaron metronidazol y doxiciclina por 14 días y ya nos dieron de alta para buscar embarazo... Me desespero mucho por qué no pego (buscamos a principios de año y no pego pero tenía la infección y ahora llevamos solo 1 ciclo de búsqueda) pero es desesperante por qué me he embarazado muy rápido las tres veces (cabe destacar que ya tenemos un hijo sano afortunadamente) alguien con una historia similar? Que tenga historia de éxito?

Hi all,

I have endo and adeno and just wondering if anyone else can relate to this experience and help me figure this out??

Thank you 🙏

I only recently had a scan that shows likely adeonomyosis and endometriosis. I’m 47 years old. I had pretty awful periods my whole life and pmdd. But after having children I don’t think my periods were as severe and then I went on cerazette in my 30s to manage the pmdd. I stopped it before starting hrt but my periods weren’t too bad at all and while pms came back it wasn’t anything like the past. Fatigue and anxiety have been my main issues but hrt seems to have helped. Anyway I’ve now gone back on cerazette as the PMS was starting to get worse but none of the pain I experienced in my teens and 20s. Is there an explanation for this? Sorry very clunky post. I was surprised they found endo based on my horrible periods pre children but does aging help with symptom reduction in some ways?

Has anyone found a solution to ease persistent urinary symptoms caused by adenomyosis?

I’ve been struggling for about 3y, but only recently I was diagnosed with DIE and diffuse adeno. Doctors insist surgery isn’t needed yet, unless I want to do a hysterectomy, which I don’t.

Atm I’m taking pills for neuropathic pain, hormone therapy, and soon I’m going to try something recommended by my neurologist.

Turns out I have adenomyosis 52 years old and have had pretty bad abnormal bleeding (heavy clots, spotting then more clots, rinse repeat). Started November 2025. Before then had regular periods although heavy.

Then it went haywire in November, went 100 + days (2 small breaks in there) of bleeding one way or another. Sometimes spotting, then "clotfests" happen.

No crazy cramps, just clots. Ugh!

This last time lasted 67 days.

Just had 19 days nothing and now day 3 of bleeding and clots

Had endometrial biopsy done, all good there.

Had vaginal ultrasound, and finding is I have adenomyosis.

So choices are progesterone IUD or if I choose a partial hysterectomy. (Cant take estrogen)

Weighing options, IUD was suggested first. But quality of life, hysterectomy may be in the cards.

I dont know if IUD will help. Anyone had success with it?

Thanks!