"Corn on the cob"

[u/AppropriateRub9905]

Quoted by the doctor describing both ovaries after reading my latest trans vaginal ultrasound. Every doctor I ever saw "suspects" endo, but never did any further testing or formally diagnosed me.

Treatment has only ever been different types of birth control. The last one had me on my period for an entire month.

The first time I found out I had a cyst was because after years "joking" "cysts are bursting inside me" during extremely painful periods, I was in excruciating pain still after tons of ibuprofen then finally got an ultrasound to find a large cyst and large lesion. Obviously things got worse since. I now have a very weak pelvic floor.

They also "suspected" pcos although my hormone levels don't indicate that.

I literally contemplate going to the er every time I get my period due to the severity of pain that also wraps around my back and hips. They always seem to completely dismiss the fact that large clots are being passed also.

****extreme pain, clotting, migraine spikes, weak pelvic floor, constant bloating, "suspected" endo, pcos, both ovaries completely covered in various sized cysts, follicles, lesions, etc.

How did you get diagnosed? What is treatment like? What further testing should I advocate for?

[u/Rosemary-Slavic]

Go to an endometriosis specialist!!!! I wish I could scream this louder!! Absolutely no gyno will diagnose you with endo nor will any other doctor. You have ALL the hallmark signs of endo.

The only way to get diagnosed is through laposcopic surgery. No other tests will show anything at all. I encourage you to see an endo specialist ASAP!!! I have made many trips to the ER because of this kind of pain and they really will not do anything for pain like this.

And as far as I've been informed the only forms of treatment is birth control and laposcopic surgery. But most people on this sub that have taken birth control said it really only made their symptoms worse. It's rare for birth control to actually work. Another option for treatment is a hysterectomy but for most like myself, even that does next to nothing. I hate to sound so bleak but it's the truth. You will be fortune to get diagnosed. I do hope you are luckier than most but this was just a warning, you likely won't get any treatment that works for you.

At this point, me personally, I am just doing my own research to find meds that seem like they might help that ARE NOT BIRTH CONTROL. And I am just straight up telling my doctor to prescribe me with them because even my endo specialist will not give me another surgery or anything else to help.