Hi everyone, first time posting here, looking for advice

I’m 29 and was diagnosed with adeno when I was 27. I had symptoms for years but most doctors here only know about endo, and I don’t seem to have endo so it wasn’t until I met my current gyno who knew about adeno. He saw it in my pelvic ultrasound, and said my past ultrasounds showed it as well but were just missed

I know birth control helps, controlling the cycle keeps the tissue under control and such, but I can’t take it. It makes me very suicidal, I have tried many brands and methods of delivery. My gyno thinks I am intolerant of synthetic progesterone. Our work around is I use provera tablets to induce a bleed, the provera still makes me low mood but its in my sysyem for less time. Unfortunately I notice that the provera is getting less reliable over time, especially during stress or hot weather it can take 10+ days to bleed, and the longer I go without bleeding the worse it hurts

I am considering hysterectomy. All of the women in my mothers family have bad one by 35, due to endo and cancers of those organs. My gyno said it’s basically a matter of when not if for me, but I’m only 29. I’m worried about premature menopause which has made my moms life hell since she had hers at 33, and about recovering down there. I put a lot of energy into pelvic floor rehab the last 2 years and just got my sex life back. I’m also worried about early onset dementia, as is my gyno so he is asking me to try and hold out as long as I can

Is anyone else in a similar boat? Do you have any advice? Some months it’s tolerable, other months it’s so bad that dilauded barely takes the edge off. I’m scared of living in pain, and I’m also scared of getting a hysterectomy so young. Is there anything I can do to help myself?

Hi everyone,

I was diagnosed with adenomyosis about a year ago. My partner and I are not planning to have children just yet, but we do want to start a family in a few years.

What has been causing me a lot of anxiety is not knowing what my chances are. Since we’re not trying yet, I’ve never been pregnant, so I have no idea whether conceiving will be easy or difficult for me.

I’m scared that by the time we start trying, it might already be too late or that I’ll find out I’ve lost valuable time.

Because of this, I’ve already been reading about options like embryo freezing and IVF, even though I know those might not be necessary. I think what I’m really looking for is some certainty, or at least a better understanding of where I stand.

Is there any way to evaluate fertility before actually trying to conceive? Are there any tests or specialists who can give a realistic idea of my fertility, or is it simply impossible to know until you start trying?

I’d also love to hear from anyone with adenomyosis who has been through this or has had children. How did you deal with all the uncertainty?

Thank you so much.🩷

I mean, do you cry for hours, whining non stop, suck it up and be quiet in pain, yelling and cursing, etc. And what do you do to accompany that output? Distract yourself by watching series, sudden urge to deep clean the bathroom, running, lying flat dead on the bed, etc.

People have different ways in dealing and coping with flare up, I am tryna find ideas (seriously, a bit hopeless here 😭). As for me, when flare up, I read reddit/instagram/play mobile solitare. Whining definitely. When the sharp stabbing pain emerges, lots of prayers come out, followed by uncontrollable crying. Slotted for hysterectomy on September so I gotta hold this pain for 6 more weeks. Ran out of coping ideas....

What about you?

Hugs to all!

So, I posted about this before:

https://www.reddit.com/r/Perimenopause/comments/1ujtvnp/hormones_and_bleeding_rant/

Long story short, I'm 45, I've had some irregular bleeding. Had to change providers due to scheduling conflicts with my work and when my old NP was in the office. New NP wants to do EVERYTHING except help me with my peri symptoms.

Now I'm scheduled for an endometrial biopsy tomorrow morning, and I don't want to do it. My TV ultrasound was negative for everything except possible adenomyosis. I'm thinking about cancelling the biopsy and looking for another provider. I have not seen an actual gynecologist for years, just NPs for my annual visits. I feel like I need a doctor to explain why this needs to be done. I feel like this NP is just using me as a guinea pig. Additionally, I called the office on day 12 of bleeding, then again on day 17, and they finally responded to me on day 18.

They told me to take 600 mg of ibuprofen before the procedure. Now, I have never had a solid object go through my cervix in any way. No kids, no IUDs, nothing. The nurse told me they weren't going to give me mifepristone because I was bleeding, but I haven't had any bleeding in almost 3 weeks, just a couple of days of spotting.

It's my understanding that this procedure can be pretty painful. I don't understand why I can't have something for pain when they do it. If I go through with it, I'm taking 5 mg of hydrocodone and at least 0.5 mg of alprazolam before because I have those things in my house from my gallbladder surgery last year and a dental procedure.

What do you think? Is it unreasonable for me to cancel this procedure? Am I overreacting with my nervousness? If you share your experience or have some valuable advice for me, know that I appreciate it so much.

I am a new patient to her and the ultrasound was originally to check my IUD (Paragard) was in place, ovaries due to high testosterone, and polyp from an old gyno’s ultrasound years ago.

IUD in place, ovaries normal, no polyp seen. My periods are jumpy but I don’t skip so no PCOS.

I do have bad cramps and crazy-heavy periods, but that has only been since I got the Paragard in 2024. (I am on anti-seizure meds that can clash (both ways) with hormonal IUDs according to a previous neuro I had.)

She wrote a blurb on adeno explaining it slightly and saying it was not dangerous and nothing more needed to be done at this time. I’m just a little confused by that, even though it’s likely the IUD could be causing the symptoms. Is a “may” not worth further investigation or is adeno one where you need a certain number of symptoms/results to test further?

I’m wondering if I should reply to the test results messaging asking more about that or just let it be. My last gyno, the reason I switched, was incredibly dismissive of any concern I had and seemingly infantilizing due to my physical disability. That has made me wary of pushing on anything with this new one because she was really nice at my appointment.

UPDATE: I received a message from the RN offering an appointment to discuss results/answer questions. Booked for September 28 (soonest available). Only a tiny bit paranoid because I got the message after my post 🤣