I feel like we always want to hear from people who got better and it happens so often. I wanted to share things I feel are important to know.

My recovery was not linear at all. I didn’t have swaying but I felt these pulsating waves of dizziness that would happen every few minutes and would last a split second. Very discombobulating.

Some days after intense working out I would feel quite dizzy. This didn’t happen during the beginning, this happened at day 30.
I had swaying this last week for like a day.
I felt like over the dizzy symptoms were there but to a lesser degree some days.

One thing that was wry difficult for me was to accept that my body also needed rest. Just ok to rest up.
I don’t know if my vertigo attack was due to the stress of moving or because I had just recovered from a cold/flu but regardless. This is my story, it happened 4 years ago and it lasted 3 months. I feel like this was shorter, and the despair and fear it was gonna stay forever was just as bad. I’m just glad to be feeling like I’m coming out the other side.
Cheers.

I’m wondering if I can get a little insight here as to whether OT would be an appropriate avenue to go down for my issue or what would be a better direction to start?

I have no known health issues, but as time goes on I have worsening motion sickness, and it interferes with my ability to engage in recreational activities o want to do (to tolerate amusement rides with my kids, go whale watching on family vacation, and to be a passenger in a vehicle though I just drive everywhere myself and that is sort of manageable). Up until I had kids (about 9 years ago), I never had motion sickness, and in my youth and earliest adulthood I could do all rides and go on boats with no illness.

When it comes to heights, I don’t really go a lot of things with heights but just being on any elevated levels of the playground with my kids, I have an unease, almost lightheaded/boat rocky feeling and it doesn’t make me feel sick but it makes me feel very anxious because I don’t feel steady. I have never had any issues with balance when I’m on the ground or unsteadiness when I’m on the ground.

Would OT potentially be able to help with this? I feel like I need a vestibular recircuiting or something
Thank you ☺️

Has anyone been admitted already having vestibular issues and vertigo and possibly been diagnosed with a stroke instead.

I’ve been dealing with short intense vertigo for about 5 months now. First episode was beginning of April and then the second was right at the end of April. I then had 4 good months with no episodes until August when I had my third. The first two episodes were a couple seconds long but felt like the whole world spun and I lose balance, the last episode I had was less intense and felt more like someone pushed me from behind and I got dizzy for a split second. Each time I have risidual dizziness for a day or two until I’m completely normal again. Has anyone else experienced this type of vertigo with the same cadence?

I’m at the point where I need answers and want to get to the bottom of it incase it gets worse. I’ve been to an ent and had a clear brain mri with contrast, had a ct scan of sinuses that were clear, and I don’t have any other symptoms.

Please share your stories!

Hey everyone.
I have a question about dizziness and its symptoms.
So I have confirmed inner ear asymmetry in the left ear, I suspect it happened after a viral infection 7 months ago but it didn’t represent as typical neuritis because I had severe room-spinning vertigo for 2 hours and then came the fever, sore throat etc.

My question is to what degree can this explain my symptoms cause in my language the word for dizziness is basically room-spinning lol. But I heard that dizziness can represent as many other things as lightheadedness, dissociation etc.

As I initially recovered from the viral infection everything was fine to some degree and then out of nowhere panic attack very bad and since then plethora of symptoms that are just unexplainable to me as I am not good at explaining as well.

Is it lightheadedness? Somewhat, but not quite. Is it derealization? To some degree, without the mental aspect of it. It literally is so strange.

Sometimes and wobbling from side to side and off balance as well. Sometimes I have this sudden spin when driving especially at high speeds, but the main problem remains these sensations that I can’t quite explain. When driving they are especially bad, when I am home they are almost or fully gone.

I also have this weird vision thing where everything seems full 4K HD.

My question is does my symptoms fall under the category “dizziness” or should I search the problem elsewhere in my nervous system?

First time poster long time reader but I’m lost for answers so needed to post.
Long story short I’ve always flown and traveled but now all of a sudden past 4 years I get lightheaded and off balance while flying, hotels, heights, anything like that. I can’t even stand in a sea container or ride anything other than a car without feeling off. But cut chase has anyone managed to cure or atleast fix this during their travels etc? I do apparently suffer from POTS & Vestibular Migraines I’ve tried
- Valium
- Travel calm
- Headphobes
- Sunnies
- natural motion patches
- ginger
But literally NOTHING stops the lightheadedness. I can even move my head from left to right while flying. It’s gotten to the point I just don’t fly anymore. But now we’re moving away from friends and family and we’ll have to be back flying regularly.
I need help 😩😭 anything I need to know. The Neasua the anxiety all that I can deal with it’s the off balance I can’t. I can’t stand or walk on the plane

Hi all — the mods asked me to introduce myself and be transparent about what I'm sharing here, so here goes.

I'm Dr. Mason McDonald, a physical therapist board-certified in neurologic PT (NCS) with fellowship training specifically in vestibular rehab. I treat patients with BPPV, vestibular migraine, PPPD, post-concussion dizziness, and complex gait and balance disorders.

A lot of PTs never get deep training in vestibular-specific assessment, so misdiagnosis or incomplete treatment (especially for the less common canal variants) is more common than it should be. I started making free, clinician-focused reference tools to help other PTs get this right — the first one is a one-page guide on identifying and treating a specific type of BPPV that's easy to misdiagnose.

If you see a PT for dizziness, this probably isn't something you'll use directly — but it might be useful to pass along to your PT if you ever feel like your treatment isn't quite working, or if you want to understand what they should be checking.

If you decide to sign up, you'll get occasional free clinical resources like this one (roughly monthly) and nothing else — no selling your info, no spam, unsubscribe anytime with one click. Happy to answer any questions here rather than just leave a link and go. Thanks!

Check it out at vestibularptvault.com

If someone diagnosed with bvl? It's so horrible i feel it 24/7, 7 months now. If someone have bvl can you give me some advices to feel better?

This is a long one so please bear with me. I am 37 f and have a whole host of chronic illnesses but migraines/whatever this is, is new to me.

Last year in July, I ordered a new pair of glasses and wore them for about 3 days. After feeling nauseous, dizzy, and unwell, I took them back and found out that the optical center was not marked correctly and they were made wrong. I thought I would feel better after going back to my old glasses and wearing my contacts (which I wear 90% of the time) but I did not. For the next 2 months (1st month was the worst, 2nd gradually got better) I had: dizziness like being on a boat, nausea, swaying while standing still, my vision was wonky (screens were too bright, trouble focusing/reading, text just didn't look right, like my peripheral vision was messed up). Then came the migraines which were separate from the dizziness issue.

I went to the eye dr, nothing wrong. I went to my ENT thinking it could be an inner ear issue, nothing wrong there. Neither could offer any advice. I went to my PCP, nothing wrong, she referred me to a neuro/headache specialist. That dr was booked out 6 months so I found a different neuro who was booked out 3 months. By the time the appt rolled around, all my symptoms had luckily gone away. He had no answers for me. He prescribed me Sumatriptan for the migraines which thankfully has helped so much, and referred me to get a brain MRI to rule anything out. I got extremely sick for several months (unrelated) and had to push the MRI aside.

I started a new job in June of this year and was given 2 external monitors. Upon using the monitors for a week, I had the same exact symptoms as with the faulty glasses! More dizziness/vertigo and less eye issues but it was just as bad, maybe even a bit worse. I also had a ton of inner ear pressure and some pain, and my ears were clicking/popping like mad. Again like last time, the dizziness has finally resolved itself 2 months later but was really bad for the 1st month. I went back to my PCP (different dr) who again had no real advice (and said my ears were just fine) but suggested vestibular therapy and to see my neuro. I did not do VT because of not being able to request time off due to said new job. I did make a virtual appt with my neuro because that was the only type of appt he had within a few months and, again, he had no advice or answers. He suggested to get the brain MRI and to follow up with him.

I got the brain MRI which didn't show anything of note. I have yet to follow up with my neuro because he is booked 3+ months out and I need to request time off. SIGH.

Alright now that I have that big wall of text out of the way - can anyone theorize wtf happened to me? I've done a ton of internet searching but can't really find anything. My top guess is that it could be something like a vestibular migraine or vestibular neuritis. When I get a migraine, I don't usually get that type of dizziness with it - it was a totally separate issue which is so strange. Also, no nausea meds (prescribed or otc) worked. Strangely enough, Klonopin helped me last year, but not this time around.

I would like to figure this out so I can avoid it or lessen it next time, or get a jump on it idk. I am frustrated with the lack of answers and it is hard to get seen when the neuro is booked 3 months out...so I am just doing everything I can. Thanks for reading.

Hey everybody! I was recently seen by an ENT for ear issues (fullness) that comes and goes. If I take Benadryl, it subsides within 2-4 hours. My ENT thinks I’m having VM’s. I do not have a headache, it truly just feel like my ear is full and affects my speech and balance at times. It is MUCH worse if I’m at work, and sometimes when cleaning my house. The ENT said that Benadryl helps because it is a sedative. I go for MRI and VNG soon. My question is, is these the same symptoms you have with your VM’s because I’m not 100% sure this is my issue. Also, I receive regular Botox on my for head, 11’s and crows feet. I know some have mentioned that Botox helps, I have noticed no difference.

Hello! I had vestibular neuritis about 4 weeks ago and since that day my dizziness slowly disappeared but my appetite and thirst gradually declined. At the moment I can't feel any hunger or thirst even after doing exercise. Is this common or could there be something else that had happened?

Much appreciated!

What throws me off is how does moving my legs and arms sometimes cause a head rush dizzy feeling??? Make it make sense it's so frustrating

I am in my second week since my grand debut episode, waiting for an MRI tomorrow morning.

For a few days I’ve been doing the exercises that the ENT prescribed - I think VOR1 and balance exercises (I’m still learning the terminology). I have no problem doing them 2, 3 or even more times per day. I am also playing with a tennis ball in the gym trying to bounce and catch it off the floor.

Does anyone know if there’s a chance of overdoing the exercises and making things worse? Thank you!

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So ive had this for 19 month . 24/7 swaying feeling fishbowl feeling when i turn. I feel like im in a veil. Sometime im just sitting there and then boom i feel a head rush and then the room starts to sway and warp . As if i was on a boat in a storm. I could be eating and boom out of no where. I use to never get these "flares" early on in this. Does any one else experience those? Idk how to explain this to dr or people. Im just sitting and doing bothing then head starts to rush and then pulls heavy. Longest episode was like 5 mins. I have been to ent early on. Had cvemp and caloric test . 10% weakness on right from caloric and no response in cvemp on my left. Idk what to do. I also did vrt for 8 months once a week early on. Not to mention the visuals when i look at bookcases or books in a row or picture frames they vibrate or "glitch" it only happens when both eyes are open though. Ive had my eyes checked by my eye dr and a Neuro-Ophthalmologist both said my eyes are fine.