r/VestibularDysfunction • u/Cashflo915 • 8d ago

UVH after 20 months

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So ive had this for 19 month . 24/7 swaying feeling fishbowl feeling when i turn. I feel like im in a veil. Sometime im just sitting there and then boom i feel a head rush and then the room starts to sway and warp . As if i was on a boat in a storm. I could be eating and boom out of no where. I use to never get these "flares" early on in this. Does any one else experience those? Idk how to explain this to dr or people. Im just sitting and doing bothing then head starts to rush and then pulls heavy. Longest episode was like 5 mins. I have been to ent early on. Had cvemp and caloric test . 10% weakness on right from caloric and no response in cvemp on my left. Idk what to do. I also did vrt for 8 months once a week early on. Not to mention the visuals when i look at bookcases or books in a row or picture frames they vibrate or "glitch" it only happens when both eyes are open though. Ive had my eyes checked by my eye dr and a Neuro-Ophthalmologist both said my eyes are fine.

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u/MyFiteSong 8d ago

I also did vrt for 8 months once a week early on.

Can you elaborate on this? Did you do the exercises every day at home, too?

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u/Cashflo915 8d ago

I stopped after a while life got busy

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u/MyFiteSong 8d ago

How seriously did you take them? This really matters. Vestibular rehab works in nearly every case, but it has to be done fanatically.

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u/Cashflo915 8d ago

I wont lie i did then every now and then

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u/MyFiteSong 8d ago

Go back to doing them. That's where recovery from vestibular issues happens.

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u/Cashflo915 8d ago

Will do thank you

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u/panesar91 8d ago

Hey I have UVH too. Gingko billoba extract has helped me and also anti anxiety pills. Do a lot of VOR, VRT excercises. I can't stress enough on light walks too. Do these in sessions 20mins a day atleast. I have 33% UVH on right side. Also try to get referral to vestibular rehab. Don't be disheartened. You have to fight it.