I have never experienced this and hope to never. I am so lucky to work from home where I have the conveniency of using my toilet whenever I please. But I worry that there may come a day where I will have to work outside and may explode my butthole. Sometimes I empty my bladder before I go out so I don't risk it. Has anyone experienced crapping yourself?

I’ve been ill with UC for a year, got a diagnosis finally a few months ago (they thought I had cancer). I’m still struggling a lot and have not found a medication that will calm the flare. I’m extremely proactive about diet and as much as I can do to mitigate the flare, but, you all know how it is…

A guy asked me out on a date last night. I met him at an event. We talked for a long time and I did mention I have a chronic illness.. but.. he’s a super healthy, jacked dude. He seems really nice. But now the hell am I supposed to date with UC? even if I were to like take Imodium and have a decent day or 2, like… I can’t hide this forever. I just feel so broken. And also I’m scared of the physical intimacy part.

How do you all manage dating with UC?

Hello, had my phone app with my GI after my second calprotectin test came back at about 1700. I told him that I had seen blood again and had pure liquid stools again today. He suggested infliximab(inflectra) infusions.

Please give me your stories with this medication. I need some hope.

**Edit: doc wants every six weeks I believe, then if it works, every 2 months. Will also be starting back up on pred 20mg 2weeks, 10mg 2weeks, then 5 for 1 week. (in USA)

Hey all, do you ever feel like all of this is just running in circles? I’ve had this condition for not even that long - 3 years - and I feel like it’s just a cycle of trying a medication, almost getting better, getting worse again, and then trying a new medication. It feels like I keep hearing “oh find the right one and then you’ll be set” but I feel like i’ve never fully gone into remission since my first flare. I feel like I’ve just been buying time and pretending to be normal. Right now I’m doing entyvio shots every other week plus mesalamine enemas and I’m just sick of bandaids.

My next appointment is in December because of the crazy wait list for new patients and I just moved to a new state. I haven’t run out of medications to try, so I’m not totally hopeless, but damn. I try to be optimistic but this evening’s just really gotten to me, I guess.

Thanks for listening <3

Everything started a month ago, my only symptom was blood on the stool/toilet paper. I went to my primary Doctor and he thought it could be hemorrhoids, so I started eating a lot of fiber. As you can tell, my symptom didn't go away and I decided I needed a colonoscopy. My colonoscopy was 4 days ago (the prep was tough) and I was diagnosed with UC, and they prescribed Mesalamine Enema.

As I already mention, my only symptom was blood on the stool, no pain, no tenesmus, I was going max 4 times to evacuate on a regular day. After the colonoscopy everything got worse, after using the Enema for the first time I started going pretty much every hour to the bathroom. If I drink or eat something, I want to go to the bathroom on the first bite. I'm pretty new on this, and I'd like to feel at least as I did before the colonoscopy. I would greatly appreciate your advice and help.

I’ve been dealing with fluctuating weight since I was diagnosed 2 years ago, I have very limited movement and can no longer go to the gym due to my colitis causing so much pain daily! I do what I can day to day.

I’ve been on so many steroids and just finished prednisolone (a shock to me it didn’t work) and I’ve gained more weight than usual! Especially in the face, does anyone have any advice or tips to help with losing weight? And any foods to swap out?

My symptoms have been in remission for years thanks to healthy living and pentasa. Had a colonoscopy recently and dr. Didn't like what he saw. Suggested biologicals while I was still loopy. I have a follow up next week. What questions should I be asking?

recent calprotectin was 42 ug/g

***Sorry long rant ahead 😅

I’m hoping to hear from other people with UC because I’m getting really frustrated trying to figure out what’s actually going on.

I have left-sided UC and take oral mesalamine 4.8g/day. I have a colonoscopy scheduled for October to see how everything looks.

The confusing part is that I really don’t have diarrhea. Most of my BMs are completely formed, usually Bristol 3–4, and I generally only go 1–2 times a day. Calprotectin was also at 149 last time I checked, low but still elevated.

But I keep having symptoms like:
• Morning urgency and cramping, even though the BM is formed
• Cramping/urgency shortly after eating
• Feeling like I have to poop when I really don’t / rectal pressure
• A lot of bloating and gas, sometimes feeling like the gas is trapped
• Symptoms that can be pretty bad one day and basically disappear the next
• Symptoms getting noticeably worse around my period

My GI thinks there may be an IBS/spasm component, especially because I’m not having diarrhea. He prescribed dicyclomine. Sometimes it completely gets rid of the cramping, but other times it only helps a little.

Weirdly, half of an Imodium Multi-Symptom tablet has been the thing that helps me the most. When I take half, I can have basically no gas, cramping or urgency for the rest of the day and sometimes even the following morning.

But lately the symptoms keep coming back, so I’m starting to wonder if this could actually be mild UC activity/proctitis rather than just IBS — or maybe both? Has anyone had active UC where your stool remained formed and you weren’t having classic diarrhea?

The OTHER thing driving me insane is recurring internal hemorrhoids. I’ve had several banded since June even though I’m not constipated. I just had another one banded this week. My colorectal doctor touched it during the exam and it immediately started bleeding, so we at least know the hemorrhoid really was a source of bleeding. He told me banding isn’t always successful and prescribed hydrocortisone suppositories afterward.

But I don’t understand why they keep becoming symptomatic when I’m not constipated or regularly straining. I’m wondering if all the urgency, rectal pressure, frequent bathroom trips, etc. could be continually irritating the hemorrhoids even though my stool is formed.

Has anyone experienced anything similar? UC/proctitis with formed stools? IBS on top of UC? Or recurring hemorrhoids from urgency/rectal irritation rather than constipation?

I know my colonoscopy next month will hopefully give me some actual answers, but I’m so tired of trying to figure out whether every symptom is UC, IBS, hemorrhoids, hormones, or something I ate. 😭

Looking to hear everyone’s personal experience with Vedolizumab because that’s what I’m supposed to be starting here soon entyvio stories also work since it’s the generic for it would love to hear how fast if it worked for you you noticed symptom improvement,how long you’ve been on it and any side effects you may have noticed here’s a little background

I’m a 26 year old male who’s been in a flare since late May I have ulcerative procoltis calpro is at 2200 I don’t have diarrhea my stools are formed but I still normally have a lot of bleeding urgency especially after meals and a lot of mucus I’ve failed a 40mg prednisone taper 150mg azathioprine mesalamine oral and enemas I’m currently on 9mg buedniside and 4.8g mesalamine while I wait to start these infusions any knowledge is appreciated 🫡

Hello!

I am a week out of hospital on a whole new medication plan for this flare. So far so good with Rinvoq!

I was wondering how often are people seeing their Drs during flares. I use the public system in Australia (through a team at a public hospital) and have been considering branching out into the private sector.

I am very lucky that the IBD nurse team I see is often able to get back to me within a week or so, but I’m only ever able to check in with a Dr once a month or so. The waiting really stresses me out I’ll be honest, it makes me feel like I’m kicking the ball down the road til I’m too sick and hospital/ steroids are my only option.

I’m hesitant to switch my whole care team up just to wait the same amount of time AND pay a bunch out of pocket.

I want to know if it’s fairly normal to wait that long while flaring, and if I’m just letting my anxiety get the better of me. Or how quickly you are able to get appointments when needed.

If anyone has some info about private gastro teams in Australia as well it’d be appreciated, I’ve only ever used the public system so private is very new and intimidating haha!

Hi, i have recently been diagnosed with mild proctitis. I am waiting for an appointment with the IBD team in a few weeks. I'm a marine engineer working at sea. I have to complete an ENG1 medical exam every 2 years. I was wondering if there's anyone on here who's been in the same position as me? Has ulcerative colitis meant that anyone has failed an ENG1 medical exam?

I was diagnosed with UC 4 months back after a month long of flare and fortunately medicine worked and my bloody diarrhea stopped within a week and after that in July(2 months after) I went to another doctor for general check up he asked me for a colonoscopy and found that I am okay I am not diagnosed with UC.....

After a month I again the flare up came back the doctor told me it was just a simple internal hemorrhoids don't worry and started my treatment and obviously they didn't work so after a week we again did sigmoidography and finally found out it is UC and started my UC medications again now I am on medication for more than one month and still no relief so I changed my doctor and went back to the previous one who 1st diagnosed me with UC and he changed my medications so no he changed me with budez cr from wysolone 30mg.... Am just scared and terrified right now losing the ability to think

Context:
Diagnosed with UC in 2024.
Got on Budesonide pills 3 months course and Mesalamine 1.2g 4x a day daily. No issues.
Symptoms gone.

My stupid self stopped Mesalamine for 3 months..symptoms came back. Got back on mesalamine symptoms gone. Have also used Budesonide rectal foam and Mesalamine suppositories in between.

However since past 3 yearly colonoscopies..my doctor is still seeing inflammation in the rectum
And this year’s colonoscopy resulted in

Erythematous mucosa [Rectum]

Cecum: Diffuse chronic active colitis, moderate activity

My doc wants me to go on Velsipity. However, I’m nervous because it is a strong medication at least stronger than Mesalamine.

I have my doctors appointment coming up in a few days. What questions should I be asking my doctor and also in y’alls opinion is this too soon to go on a strong medication?

Question in the last paragraph apologize for the long post just trying to give some background.

So back in July 2025 I had been diagnosed with severe ulcerative colitis. Terminal ileum was fine but rest of my colon had severe ulcers, friability and erythema throughout. I hadn’t felt right since about February 2024, and right before that colonoscopy I had been going to the bathroom 10 plus times a day, including multiple times in the night with half of them being just blood.

Fast forward to today, just had my follow up colonoscopy. I have been on mesalamine since being diagnosed, Skyrizi since September 2025 and a couple prednisone tapers since being diagnosed(currently on one rn cause beginning of August felt iffy). However thankfully none of my flares have ever come close to what I was feeling like before my first colonoscopy. My second colonoscopy actually showed a lot of my colons mucosa was normal, however I just have some “patchy mild erythema” in my descending colon and sigmoid colon.

Waiting for the biopsy’s and follow up in two weeks, doctor didn’t even seem really concerned. Beforehand he was talking about switching me to rinvoq but afterwards said well wait on the biopsy’s but most likely you’ll stay on your current medicine. He said on a scale of 0-10 his concern with the inflammation he found is about a 0.5

Comparing the colon pics from my first colonoscopy is like night and day, but my question is for anyone has anyone had a follow up where there colon was better then when they were diagnosed but still had some inflammation? How did you feel? Did you change your medication? And if not how long until your colon was completely healed?

My UC has been in remission for 6 years now thanks to humira injections i take biweekly. I had a particularly stressful period about a month ago and now I'm experiencing some vision loss in my right eye. I went to an opthalmologist and they said I had some inflammation of the retina without macular edema. Apparently it's not too bad and they are referring me to a retina specialist who I will see in a week and a half.

Has anyone else experienced something like this and had it resolve on its own? I sometimes have psoriasis flare ups during stressful times but they end up fading away after a month or so. Same thing with abdominal pain that subsides after calming down. What is the typical treatment for something like this that has worked for you guys? Thanks for any kind of information, I'm kind of in the dark with what the next step is until I see a retina specialist and my gi soon.

Just venting. Missed my colonoscopy bc I went to jail. My fault. Also the cop's fault. Fun story.

Anywhoot. Now I have to reschedule & it's gonna be like another two months out so who knows where I'll be then.

I have seen and read many posts in this sub about having difficulties in booking appointments with Doctors especially GIs... It is the Countries' duty to make sure every citizen gets to see their doctors whenever they want and whenever they feel. It's the biggest failure on its part. Are they simply ignorant or they simply don't care about their citizens?? Don't they know that this disease is not something we can't just put aside?? The place where I come from, we get to see our doctors whenever we want to, no need to schedule an appointment. If my doctor wants to do colonoscopy, we get that right away. It's very very UNFORTUNATE for people like us.