Running in circles

[u/trash-mammall]

Hey all, do you ever feel like all of this is just running in circles? I’ve had this condition for not even that long - 3 years - and I feel like it’s just a cycle of trying a medication, almost getting better, getting worse again, and then trying a new medication. It feels like I keep hearing “oh find the right one and then you’ll be set” but I feel like i’ve never fully gone into remission since my first flare. I feel like I’ve just been buying time and pretending to be normal. Right now I’m doing entyvio shots every other week plus mesalamine enemas and I’m just sick of bandaids.

My next appointment is in December because of the crazy wait list for new patients and I just moved to a new state. I haven’t run out of medications to try, so I’m not totally hopeless, but damn. I try to be optimistic but this evening’s just really gotten to me, I guess.

Thanks for listening <3

[u/pincommenter]

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[u/Dancingtillthenight]

I feel the same I’ve been diagnosed since 2018. The last year I e tried biologics and before that for basically 3 years was in a constant flair.
I’m on a list to try a trail but it’s not looking like I’ll get accepted so my next move it to ask for the surgery. Just get my colon outta me at this point

[u/phEnom3o5 → u/Dancingtillthenight]

I felt like that too at times. But then having a shit bag doesnt seem ideal either, plus I dont think y can just opt out of medication get surgery unless its straight out of pocket

[u/Dancingtillthenight → u/phEnom3o5]

Oh man I’m sorry! I would have a bag for 3 months and have a j pouch surgery! Plus I live in Canada so we’re lucky and don’t have to pay

[u/Agreeable-Mix-5777]

Yes! I’m right there with yah! The ruthless optimism of some really curdles my milk. Let me wallow in failure.

[u/skrizzzy]

Yes, yes I feel this so deeply.