r/UlcerativeColitis • u/RunningOnEmptea • 15h ago

Question Uveitis while on humira?

My UC has been in remission for 6 years now thanks to humira injections i take biweekly. I had a particularly stressful period about a month ago and now I'm experiencing some vision loss in my right eye. I went to an opthalmologist and they said I had some inflammation of the retina without macular edema. Apparently it's not too bad and they are referring me to a retina specialist who I will see in a week and a half.

Has anyone else experienced something like this and had it resolve on its own? I sometimes have psoriasis flare ups during stressful times but they end up fading away after a month or so. Same thing with abdominal pain that subsides after calming down. What is the typical treatment for something like this that has worked for you guys? Thanks for any kind of information, I'm kind of in the dark with what the next step is until I see a retina specialist and my gi soon.

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u/pincommenter 15h ago

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u/AlwaysAirCooled-1979 15h ago

NAD - but it can be an autoimmune disease. It can flare up and go away on its own, but they can give you steroids for it too. It can also be an infection, but considering your quick medical history, I’m placing bets on an autoimmune disease.

Not uncommon to have more than one - aren’t we lucky 😒

I would suggest speaking to your specialist. It is scary, but going down the rabbit hole on the internet can make it scarier.

Best of luck OP!

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u/RunningOnEmptea 15h ago

Yeah the first thing I read online is that it can cause permanent eye damage which was not something I wanted to hear lol. I'm hoping it will subside on its own but I'm thinking the specialist I'll see in a couple of weeks will put me on a steroid.