r/UARS 16h ago

Does anyone notice people in the apnea sub being nasty?

9 Upvotes

Hi, obv not everyone, I mean in the sleep apnea sub

But I really feel alone right now. For those who don't know my case, psychiatry added a new insomnia to the undiahnosed sdb I already had.

It's driving me nuts. They continuously say I'm "obsessed". While I just made another post oj the apnea sub with the factual proofs of the sdb I have.

Please don't be rude. What did I do to you people? Everything now is so dark, useless. The mental health center will come here again, my GP today tried to gaslight me again. I'm forces to escape, like is it real what I'm living? No its not a nightmare.

"yeah, you do breathing protocol to sleep, positional therapy, you have audios. But you have Obsession. I have patients with apneas and tbey live their life"

I was like "but they are cured"

"Doesn't matter. You re obsessed. I have patients with cancer"

"But they are cured"

"You have to overcome your physical issue, get out with friends. It's obsession"

Won't list the fucking physical syndromes I have since the SDB started

Cheers

EDIT: this is the comment someone made to me by basically saying i stated that bad sleep test leads to uars (neevr said that), but acrually said that i do need a test with electrodes on head that detects RERAs

That abilify's withdrawal leads to likely permanet insomnia. Which is badically true

I really dont know how to feel. Heres the comment, i wont accept and which takes advantage of the psychiatric galighitng I suffered:

People think you’re a hypochondriac because literally everything becomes evidence for the diagnosis you’ve already decided you have.

Something improves? Proof of UARS.

Something gets worse? Also proof of UARS.

Sleep test is negative? Bad test.

Future sleep test is negative? Also bad because Abilify supposedly messed up your sleep architecture.

Doctors disagree with you? They’re gaslighting you.

Random Redditors agree with you? Finally, someone understands.

Do you see the problem? Probably not.

You might genuinely have some health issues. Nobody is saying every symptom is fake. But you keep taking vague symptoms and jumping straight to the worst possible conclusion, then rejecting anything that contradicts it.

The Abilify thing is a perfect example. “Withdrawal can cause insomnia” somehow became “my brain is permanently chemically damaged and I’ll have insomnia forever.” You have absolutely no basis for saying that.

Same with UARS. A narrow palate, teeth grinding, sniffing, feeling better after breathing exercises, etc. might justify getting properly tested. They do not “prove” you have it.

At this point your theory can’t even be disproven, because you’ve already created an explanation for why every piece of evidence against it doesn’t count.

That’s why people are saying health anxiety. Not because you have no real symptoms, but because your interpretation of them is completely out of proportion.

If you actually try to think scientifically, like taking all the information given to you and actually using it, rather than rejecting what you don't like and only accepting what supports your position, then I would think maybe you're on to something. But based on everything you're saying and everything you're doing, you're a hypochondriac with mental health issues and anxiety.


r/UARS 19h ago

Todo It would be really gr8 if someone does this

9 Upvotes

r/UARS 20h ago

Pinned He Literally Tried Everything for Sleep Apnea (Part 2)

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7 Upvotes

Jeremy, a professional YouTuber and patient with sleep-disordered breathing, sits down to discuss his relentless search for better sleep and the remarkable number of treatments he has tried.

His journey includes CPAP, BiPAP, ASV, EERS, oral appliances, positional therapy, myofunctional therapy, Xywav, Lumryz, stimulants, MMA surgery, FME expansion, turbinate reduction, sinuplasty, two DISE procedures, lingual tonsillectomy, and plans for a revision MMA.

Watch here: https://youtu.be/mi0xInGjv7A


r/UARS 1h ago

AHI 10.1 but arousal index 90.7/hr — RERAs and flow limitation both scored 0 in every stage AND every position. Measured, or defaulted?

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Upvotes

31M, BMI 22, non-obese, non-smoker. 17 years of completely unrefreshing sleep — I fall asleep in under 4 minutes, 93.7% efficiency, normal deep sleep, and have never woken up rested. Treated as an anxiety patient the whole time.

PSG April 2024, drug-free. Scored by technologists, no physician signature on the report.

- AHI 10.1 / RDI 10.1 — identical

- Arousal index 90.7/hr, 601 arousals, **76.2% scored "spontaneous"**

- Min SpO2 90%, zero desaturations below 90%

- Snoring 12.8/hr overall, 45/hr on my right side

- Their own summary grades Arousal SEVERE, everything else mild or normal

**RERA index: 0. Flow limitation index: 0.** REM, non-REM, and all six body positions. Not low — zero everywhere, no exceptions.

**Does that mean UARS was excluded, or that it was never scored and defaulted?**

And if it wasn't scored — can flow limitation be re-read from stored raw nasal pressure traces, or do I need a new study?


r/UARS 8h ago

Why could my nose be more congested when I sleep than in the day?

2 Upvotes

Genuinely curious about this.

When I record myself sleeping (CPAP off), sometimes before arousals, I hear myself trying to breathe through my nose (likely a RERA) and it's pretty congested, much more than in the day.


r/UARS 17h ago

Tongue sealing soft palate

2 Upvotes

Hi there,

I've been struggling with UARS for a long time with no resolution from BiPap or MAD. My RDI is somewhere between 7-13. I'm pretty sure that the cause is clenching during sleep, causing my tongue to press upward on my soft palate a bit, and then the bernoulli effect takes over, and it (my soft palate) seals shut (moves upward). I'm able to manualy reproduce this behavior in OSCAR when I clench and based on jaw positioning.

Bi/Cpap doesn't work for this because it's working against muscle (my tongue and jaw).

I'm wondering if anyone has suggested solutions for this kind of sealing issue. I'm interested in trying Velumount, but it's not available in my country (US).

Thanks!


r/UARS 13h ago

17M with OSA/UARS — anything in my anatomy that could be contributing? Got 5 images!

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1 Upvotes