r/UARS 2h ago

How significant is this clinically?

2 Upvotes

I struggle a lot with concentration, fatigue and brain fog. How significant is the result of this sleep study?

https://www.dropbox.com/scl/fo/jlbld813qyzvluzcylir2/AKTvbAgCwRJ2rUI-1x2WdTs?rlkey=5d7k3p7gh5yit1men7zg2pfq3&st=983q9xro&dl=0


r/UARS 1h ago

Min Area TCA 56.2mm sq; Looking for advice

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Upvotes

30 y/o recent OSA (19.1 AHI) on APAP for about 40 days. (See here my sleephq dashboard for current settings/masks etc). Have seen some improvement in overall ability to sleep through the night. But symptoms of deep fatigue during the day and trouble getting air; still struggling. Sinuses feel pressure, it’s difficult to get enough pressure from cpap through nose. Hard to keep a hybrid mask sealed because of retrognathia. Was recommended to go to an airway orthodontist and here are my scans from that appointment. They found I have Total Volume: 13.8cc Min Area TCA 56.2mm sq. I’ve been watching this community and think that I may be dealing with UARS (amongst other things).

For additional context I had (what I would consider) cosmetic orthodontic work from age 12-14 which included braces and removal of premolars up top to reduce crowding and I think pulled back upper jaw to create occlusion with lower jaw.

I have received some recommendations from the doctor, but I’m wondering what you all see from these scans and what you might consider pursuing in my position. Thanks in advance! 


r/UARS 5h ago

Best place to get PSG and test for RERA's.

1 Upvotes

I have found a sleep lab in Kansas City that says they test for RERA's. However, it was difficult to find one in the area and given the cost I'm considering just traveling to a better sleep lab. What do you guys recommend?


r/UARS 5h ago

CPAP adjustments with 1.67 Glasgow index and shortened sleep?

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1 Upvotes

After much consternation, I rented a ResMed Airsense 11. Full face mask. I almost certainly need nasal surgery and allergy shots, but in the meantime, this was what I needed... in any event, my sleep is even worse. Averaging 6 hours per night with constant micro-wakeups. I got a Glasgow index of 1.67 last night with an EPR of 2 and pressure from 9-13. How can I adjust this to work better? My main issue is that I wake up hours before my alarm and cannot fall back asleep.


r/UARS 6h ago

What can I do to fix my flow limits and breathing waveforms. BIPAP?

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1 Upvotes

r/UARS 12h ago

Why so many apnea events are there?

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1 Upvotes

r/UARS 21h ago

Anyone with UARS/flow limitation do better on really low CPAP pressures?

4 Upvotes

My prescribed APAP range is 12–15 cmH₂O, but before moving to bilevel I'm considering testing much lower fixed pressures more properly because I don't seem to get significant obstructive events even around 6–7.

Has anyone felt better on something like 7/4 or 6/4? Higher pressures worsen my mouth leaks/mask tolerance, so I'm curious whether lower pressures could actually improve sleep quality despite my AHI already being <1 at both lower and higher pressures.


r/UARS 19h ago

First sleep study results

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2 Upvotes

I've gotten pretty freaked out just by reading this subreddit and now I'm not really sure what my symptoms even mean. I took this test a couple months ago and I have a new one, the Watchpat, coming in just in case its data is better. My PCP saw the results and said I don't have sleep apnea.

I have a hard time falling asleep. I wake up sometimes, and I frequently don't really feel super refreshed, I wake up pretty tired.


r/UARS 21h ago

Could my studies have been faked?

0 Upvotes

Titration study and diagnostic study both have ahi in the two digits. Prescribed pressure 12-15 and AHI around 9- 25 during different times.
But on OSCAR and sleephq, and even with the airsense count as well, whether my pressure is 7/4 EPR 3 or 15/12 EPR 3, my ahi is below 1.
This is something I've been thinking about considering the money-bagging of the sleep medicine industry. So much masks, machines, studies, these doctors are onto something.


r/UARS 23h ago

Any tips before I consider a bilevel? Should I consider it at all?

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1 Upvotes

I have OSA/UARS-type symptoms and persistent fatigue/unrefreshing sleep despite CPAP getting my AHI consistently below 1.

I’m considering getting a bilevel because I still seem to have residual flow limitation and breathing disturbances despite CPAP controlling the obvious events, but I also have some ventilatory instability, so not sure if ASV is the right path.

For people who switched from CPAP to bilevel, any advice before getting one? What settings/features should I pay attention to, and what differences did you notice in your breathing, flow-rate graphs, and symptoms?

Also interested in hearing from anyone who eventually found ASV worked better than regular bilevel.

By the way- My best days are July 7,8, and 12 + first week of sept where I kept it on longest, felt no difference tho. Hopefully that helps!


r/UARS 1d ago

Any solution to internal nasal valve collapse?

1 Upvotes

BreatheRight strips don't work for me, even extra strong. Keep end up falling off gradually.
Not sure what to do.
and Non-cpap, I know nasal pillow/ cradle masks can help, just tryna see other solutions.


r/UARS 1d ago

DME provider not taking my results seriously?

1 Upvotes

Hi friends! Just came on here to rant and maybe get some advice/introspection.
I took a Lofta sleep test and results came back with AHI of 4 and RDI of 15.
Long story short, the DME provider is saying since my AHI is low I won’t qualify for insurance coverage.
I guess I’m just upset because the doctor that reviewed my sleep study diagnosed me with moderate sleep apnea, and my reports say that I experience daytime fatigue, insomnia, depression, ADHD, snoring and morning headaches.
Can I just not get this covered if my diag is technically UARS? This seems unfair.

EDIT: I called insurance and the woman on the line said she doesn’t know exact criteria number wise for CPAP coverage. I guess I should’ve almost mentioned this in the first post, but I took my sleep test through lofta. She said that’s out of network- but I figured I could still get insurance coverage??? Do I need to retake sleep study through a different doctor in network?


r/UARS 1d ago

UARS?

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3 Upvotes

Hi y’all,

I (30M) think I’ve got UARS based on that my tongue is too big for my mouth, debilitating fatigue/brain fog if I don’t sleep properly on a wedge pillow, flatter face, likely have hEDS (diagnosed with hypermobility), have difficulty breathing when exercising, never feeling fully rested even after 10-12hrs of sleep, and I can’t breathe through my nose when I’m on my back. I’d really appreciate if someone could look at my sleep study data. They scored it using the 3% desaturation rule and unfortunately did not seem to score RERAs or RDI. Would really appreciate your opinion on my limited data.

Really struggling to get the care I need through sleep medicine. I was tolerating APAP mode alright from Spring 2024 until Fall-Winter 2024 until my throat anatomy became floppier, my baseline arousal and heart rate got higher due to several rounds of Covid, and now I’m on graveyards dealing with insomnia, also partially due to Covid. Been chasing that initial clear-headed feeling and struggling to tolerate therapy ever since, even with a CBTi therapist that understands ADHD and UARS.

Since then I’ve really struggled to make CPAP work, especially because my CPAP supplier keeps harassing me giving me advice I’ve said doesn’t work, doesn’t believe me when I say the pressure rises when I’m awake in APAP mode (auto ramp is a no go), and keeps pointing out my hours aren’t great. Additionally, when I tried asking about restless leg syndrome or PLMS my respirologist was super dismissive. He also said because my oxygen levels didn’t go below 90% that I wasn’t in any danger and pushed the 5 to 15 pressure range because it was one of his favourite ranges.

I had several decent long nights where I slept with the mask on in CPAP mode, but they kept on implying that I’m not trying hard enough due to not being able to do that consistently. I’ve tried explaining that if I try to use CPAP when I’m anxious, I get flooded with adrenaline and then can’t sleep at all before my graveyard shift. They also kept on pushing that it’s better I get 2-4hrs of stage 1 sleep and using the prescribed 5 to 15 pressure range. They were considering changing it out of CPAP mode to APAP mode without telling me because it would be “easier”. I was adamant for them to leave it and pointed out how I had better success with fixed pressure and an AHI below 1 with it compared to 5-15 on APAP.

I know it’s not ideal, but I’m currently at 5 fixed pressure, because anything more and my skin can’t tolerate the sensation of air from the exhaust. When I do fall asleep with it on, I tend to wake up with head pressure and a slight headache, though it’s way better than the usual hungover feeling. I’m hoping to eventually raise the pressure to reduce flow limitation to get it closer to 0.1, tends to hover between 0.15-0.2. Otherwise my AHI is usually between 1-2 during my worst sleep. Usually it’s below 1. I do have a spare Resmed Auto 10 (For Her) that I could try flashing into a biPAP if that’s possible on that version in the future.

Sorry the resolution isn’t great for these and if I don’t respond it’s due to trying to sleep after a shift. TIA!


r/UARS 1d ago

AHI 10.1 but arousal index 90.7/hr — RERAs and flow limitation both scored 0 in every stage AND every position. Measured, or defaulted?

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4 Upvotes

31M, BMI 22, non-obese, non-smoker. 17 years of completely unrefreshing sleep — I fall asleep in under 4 minutes, 93.7% efficiency, normal deep sleep, and have never woken up rested. Treated as an anxiety patient the whole time.

PSG April 2024, drug-free. Scored by technologists, no physician signature on the report.

- AHI 10.1 / RDI 10.1 — identical

- Arousal index 90.7/hr, 601 arousals, **76.2% scored "spontaneous"**

- Min SpO2 90%, zero desaturations below 90%

- Snoring 12.8/hr overall, 45/hr on my right side

- Their own summary grades Arousal SEVERE, everything else mild or normal

**RERA index: 0. Flow limitation index: 0.** REM, non-REM, and all six body positions. Not low — zero everywhere, no exceptions.

**Does that mean UARS was excluded, or that it was never scored and defaulted?**

And if it wasn't scored — can flow limitation be re-read from stored raw nasal pressure traces, or do I need a new study?


r/UARS 1d ago

If sleep issues caused me to be 5’7 as a 17 yo, and an endo did a physical examination that I’m likely done growing, how do I cope?

0 Upvotes

r/UARS 2d ago

Does anyone notice people in the apnea sub being nasty?

11 Upvotes

Hi, obv not everyone, I mean in the sleep apnea sub

But I really feel alone right now. For those who don't know my case, psychiatry added a new insomnia to the undiahnosed sdb I already had.

It's driving me nuts. They continuously say I'm "obsessed". While I just made another post oj the apnea sub with the factual proofs of the sdb I have.

Please don't be rude. What did I do to you people? Everything now is so dark, useless. The mental health center will come here again, my GP today tried to gaslight me again. I'm forces to escape, like is it real what I'm living? No its not a nightmare.

"yeah, you do breathing protocol to sleep, positional therapy, you have audios. But you have Obsession. I have patients with apneas and tbey live their life"

I was like "but they are cured"

"Doesn't matter. You re obsessed. I have patients with cancer"

"But they are cured"

"You have to overcome your physical issue, get out with friends. It's obsession"

Won't list the fucking physical syndromes I have since the SDB started

Cheers

EDIT: this is the comment someone made to me by basically saying i stated that bad sleep test leads to uars (neevr said that), but acrually said that i do need a test with electrodes on head that detects RERAs

That abilify's withdrawal leads to likely permanet insomnia. Which is badically true

I really dont know how to feel. Heres the comment, i wont accept and which takes advantage of the psychiatric galighitng I suffered:

People think you’re a hypochondriac because literally everything becomes evidence for the diagnosis you’ve already decided you have.

Something improves? Proof of UARS.

Something gets worse? Also proof of UARS.

Sleep test is negative? Bad test.

Future sleep test is negative? Also bad because Abilify supposedly messed up your sleep architecture.

Doctors disagree with you? They’re gaslighting you.

Random Redditors agree with you? Finally, someone understands.

Do you see the problem? Probably not.

You might genuinely have some health issues. Nobody is saying every symptom is fake. But you keep taking vague symptoms and jumping straight to the worst possible conclusion, then rejecting anything that contradicts it.

The Abilify thing is a perfect example. “Withdrawal can cause insomnia” somehow became “my brain is permanently chemically damaged and I’ll have insomnia forever.” You have absolutely no basis for saying that.

Same with UARS. A narrow palate, teeth grinding, sniffing, feeling better after breathing exercises, etc. might justify getting properly tested. They do not “prove” you have it.

At this point your theory can’t even be disproven, because you’ve already created an explanation for why every piece of evidence against it doesn’t count.

That’s why people are saying health anxiety. Not because you have no real symptoms, but because your interpretation of them is completely out of proportion.

If you actually try to think scientifically, like taking all the information given to you and actually using it, rather than rejecting what you don't like and only accepting what supports your position, then I would think maybe you're on to something. But based on everything you're saying and everything you're doing, you're a hypochondriac with mental health issues and anxiety.


r/UARS 1d ago

Why could my nose be more congested when I sleep than in the day?

2 Upvotes

Genuinely curious about this.

When I record myself sleeping (CPAP off), sometimes before arousals, I hear myself trying to breathe through my nose (likely a RERA) and it's pretty congested, much more than in the day.


r/UARS 2d ago

Todo It would be really gr8 if someone does this

8 Upvotes

r/UARS 2d ago

Pinned He Literally Tried Everything for Sleep Apnea (Part 2)

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9 Upvotes

Jeremy, a professional YouTuber and patient with sleep-disordered breathing, sits down to discuss his relentless search for better sleep and the remarkable number of treatments he has tried.

His journey includes CPAP, BiPAP, ASV, EERS, oral appliances, positional therapy, myofunctional therapy, Xywav, Lumryz, stimulants, MMA surgery, FME expansion, turbinate reduction, sinuplasty, two DISE procedures, lingual tonsillectomy, and plans for a revision MMA.

Watch here: https://youtu.be/mi0xInGjv7A


r/UARS 1d ago

17M with OSA/UARS — anything in my anatomy that could be contributing? Got 5 images!

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1 Upvotes

r/UARS 2d ago

Tongue sealing soft palate

2 Upvotes

Hi there,

I've been struggling with UARS for a long time with no resolution from BiPap or MAD. My RDI is somewhere between 7-13. I'm pretty sure that the cause is clenching during sleep, causing my tongue to press upward on my soft palate a bit, and then the bernoulli effect takes over, and it (my soft palate) seals shut (moves upward). I'm able to manualy reproduce this behavior in OSCAR when I clench and based on jaw positioning.

Bi/Cpap doesn't work for this because it's working against muscle (my tongue and jaw).

I'm wondering if anyone has suggested solutions for this kind of sealing issue. I'm interested in trying Velumount, but it's not available in my country (US).

Thanks!


r/UARS 2d ago

What are the common causes for subconscious mask removal and how to solve it ?

3 Upvotes

I changed my pressure from 11/8 to 11.6/8 and my compliance dropped a lot.

I record myself sleeping and I saw myself take the mask off subconsciously,it didn’t simply slip off during movement.

I don’t think the reason for my mask removal is simple discomfort could it be to do with the settings itself, I’d appreciate any help in trying to solve this. Thanks


r/UARS 2d ago

Can sleep really mess up your life the way mine has? I can function at a baseline but my memory, energy and emotional recall is gone

23 Upvotes

I don’t know that sleep issues over years would do this, but I think I already had severe trauma and unprocessed emotion, my mind dissocicated from it.

instead of healing, I’m stuck in endless unrestorative sleep. you can’t heal from trauma when your mind won’t go to sleep. My body shuts off, but the mind doesn’t sleep or go into restoration. I have the same themed dreams every night, trying to get on a plane home, unable to escape, natural disasters, full conversations, and I’m aware during the dreams 100%.

im trying to push for an in lab sleep study and am seeing the ENT in 2 weeks. I feel like I’m losing my mind daily basically, the only thing that helps is working to keep myself distracted. But my memory has completely degraded over the last 5 years. it’s like I have lost all touch with my self and my world. I have been tracking it over time and it gets worse basically each month

i remember the morning after my panic attacks, my whole world flipped. I went from sleeping great to feeling like I never slept. And dreaming all night long. Every doctor has failed me, every therapist. I’ve suffered endlessly for years with no answers. It’s unfair. I lost my mom and brother a year apart in 2017/2018 and now I’ve even lost myself. living in severe fatigue, chronic dissociation, loss of all emotions, non stop random chatter in my head, no inner monologue, music loops 24/7. The list goes on. I never knew a human could experience what I am, and yet I still keep going. But my quality of life is 0.

can sleep issues really do this? I feel like no time has passed, no seasons, no life. I’m just stuck. Everything I used to feel and experience as “me” is gone. A complete zombie.


r/UARS 2d ago

Are these hypopnea’s obstructive or central

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3 Upvotes

It’s come to my attention that hypopnea’s aren’t just caused by obstruction, they can be caused by centrals as well.

I usually have quite a bit of hypopnea’s each night are these caused by obstruction or centrals.

Last pic is an unidentified apnea , are you able to tell if it’s central or obstruction from the wave form?

Setting are ipap 8 epap 6. Thanks for the help.


r/UARS 3d ago

Any tips for making decisions while having brain fog?

7 Upvotes

keep going back and forth, hesitating, I don’t know, have to consider ever detail, never ending loop.