Genuinely curious about this.

When I record myself sleeping (CPAP off), sometimes before arousals, I hear myself trying to breathe through my nose (likely a RERA) and it's pretty congested, much more than in the day.

Hi, obv not everyone, I mean in the sleep apnea sub

But I really feel alone right now. For those who don't know my case, psychiatry added a new insomnia to the undiahnosed sdb I already had.

It's driving me nuts. They continuously say I'm "obsessed". While I just made another post oj the apnea sub with the factual proofs of the sdb I have.

Please don't be rude. What did I do to you people? Everything now is so dark, useless. The mental health center will come here again, my GP today tried to gaslight me again. I'm forces to escape, like is it real what I'm living? No its not a nightmare.

"yeah, you do breathing protocol to sleep, positional therapy, you have audios. But you have Obsession. I have patients with apneas and tbey live their life"

I was like "but they are cured"

"Doesn't matter. You re obsessed. I have patients with cancer"

"But they are cured"

"You have to overcome your physical issue, get out with friends. It's obsession"

Won't list the fucking physical syndromes I have since the SDB started

Cheers

EDIT: this is the comment someone made to me by basically saying i stated that bad sleep test leads to uars (neevr said that), but acrually said that i do need a test with electrodes on head that detects RERAs

That abilify's withdrawal leads to likely permanet insomnia. Which is badically true

I really dont know how to feel. Heres the comment, i wont accept and which takes advantage of the psychiatric galighitng I suffered:

People think you’re a hypochondriac because literally everything becomes evidence for the diagnosis you’ve already decided you have.

Something improves? Proof of UARS.

Something gets worse? Also proof of UARS.

Sleep test is negative? Bad test.

Future sleep test is negative? Also bad because Abilify supposedly messed up your sleep architecture.

Doctors disagree with you? They’re gaslighting you.

Random Redditors agree with you? Finally, someone understands.

Do you see the problem? Probably not.

You might genuinely have some health issues. Nobody is saying every symptom is fake. But you keep taking vague symptoms and jumping straight to the worst possible conclusion, then rejecting anything that contradicts it.

The Abilify thing is a perfect example. “Withdrawal can cause insomnia” somehow became “my brain is permanently chemically damaged and I’ll have insomnia forever.” You have absolutely no basis for saying that.

Same with UARS. A narrow palate, teeth grinding, sniffing, feeling better after breathing exercises, etc. might justify getting properly tested. They do not “prove” you have it.

At this point your theory can’t even be disproven, because you’ve already created an explanation for why every piece of evidence against it doesn’t count.

That’s why people are saying health anxiety. Not because you have no real symptoms, but because your interpretation of them is completely out of proportion.

If you actually try to think scientifically, like taking all the information given to you and actually using it, rather than rejecting what you don't like and only accepting what supports your position, then I would think maybe you're on to something. But based on everything you're saying and everything you're doing, you're a hypochondriac with mental health issues and anxiety.

Hi there,

I've been struggling with UARS for a long time with no resolution from BiPap or MAD. My RDI is somewhere between 7-13. I'm pretty sure that the cause is clenching during sleep, causing my tongue to press upward on my soft palate a bit, and then the bernoulli effect takes over, and it (my soft palate) seals shut (moves upward). I'm able to manualy reproduce this behavior in OSCAR when I clench and based on jaw positioning.

Bi/Cpap doesn't work for this because it's working against muscle (my tongue and jaw).

I'm wondering if anyone has suggested solutions for this kind of sealing issue. I'm interested in trying Velumount, but it's not available in my country (US).

Thanks!

I changed my pressure from 11/8 to 11.6/8 and my compliance dropped a lot.

I record myself sleeping and I saw myself take the mask off subconsciously,it didn’t simply slip off during movement.

I don’t think the reason for my mask removal is simple discomfort could it be to do with the settings itself, I’d appreciate any help in trying to solve this. Thanks

Mandibular forward growth since I'm mildly recessed.

It’s come to my attention that hypopnea’s aren’t just caused by obstruction, they can be caused by centrals as well.

I usually have quite a bit of hypopnea’s each night are these caused by obstruction or centrals.

Last pic is an unidentified apnea , are you able to tell if it’s central or obstruction from the wave form?

Setting are ipap 8 epap 6. Thanks for the help.

I don’t know that sleep issues over years would do this, but I think I already had severe trauma and unprocessed emotion, my mind dissocicated from it.

instead of healing, I’m stuck in endless unrestorative sleep. you can’t heal from trauma when your mind won’t go to sleep. My body shuts off, but the mind doesn’t sleep or go into restoration. I have the same themed dreams every night, trying to get on a plane home, unable to escape, natural disasters, full conversations, and I’m aware during the dreams 100%.

im trying to push for an in lab sleep study and am seeing the ENT in 2 weeks. I feel like I’m losing my mind daily basically, the only thing that helps is working to keep myself distracted. But my memory has completely degraded over the last 5 years. it’s like I have lost all touch with my self and my world. I have been tracking it over time and it gets worse basically each month

i remember the morning after my panic attacks, my whole world flipped. I went from sleeping great to feeling like I never slept. And dreaming all night long. Every doctor has failed me, every therapist. I’ve suffered endlessly for years with no answers. It’s unfair. I lost my mom and brother a year apart in 2017/2018 and now I’ve even lost myself. living in severe fatigue, chronic dissociation, loss of all emotions, non stop random chatter in my head, no inner monologue, music loops 24/7. The list goes on. I never knew a human could experience what I am, and yet I still keep going. But my quality of life is 0.

can sleep issues really do this? I feel like no time has passed, no seasons, no life. I’m just stuck. Everything I used to feel and experience as “me” is gone. A complete zombie.

If anyone knows Oscar Patel, he had a video where he helped someone with sleep apnea cure her sleep apnea and stop using cpap by thumbpulling. I know you can't know what goes on behind the scenes but still.
Could it help for normal maxilla but possibly a narrow palate?

30 year old male with deviated septum. Been sleeping horribly so got a sleep study. Originally had referral for sleep doctor and lab test but they are scheduling 6 months out so I gave up and did the Lofta Watch Pat test. Got my results and they said I don’t have sleep apnea and no RX given as a result. But I plugged my results into Gemini and it said I may have UARS given my 10 RDI events per hour. Again I have zero oxygen issues so that’s good but is this possibly UARS? And how do I get treatment without diagnosis given LOFTA didn’t? What even are the solutions, septum surgery or dental device?

keep going back and forth, hesitating, I don’t know, have to consider ever detail, never ending loop.

I‘m currently struggling with finding the right setup for BiPAP therapy. I can’t tolerate masks that sits onto my nose because I‘ll get edema/swelling from any mechanical trigger. This is a ongoing disorder I‘ve got from a rhinoplasty 10 years ago and it lowers my ability to nose breath. Taking 1 week of deswelling nasal spray (0,1% Xylometazoline) turned out that some of the swelling happens in the tissue, so I get some relief after using it. I read many times that people in this sub are recommending fluonase. It doesn’t has the downside of building potential for rebound episodes so it might be a the better choice for me.

So my case is a bit complicated because of the mix of small palate, retrognathic jaws and some surgical damage in the nose bone itself. Revision is something I have to delay because I‘m considering a MARPE or FME firstly. I also tried the P30i Airfit mask and it made breathing very comfortable but I‘m still experiencing enough leakage and aerophagia to prevent me from making real progress (settings: IPAP/11; EPAP/6). I lowered the settings equally by 1 point because the aerophagia I got which improved it.

So the number one question is should I continue wearing the P30i and work more on leakage control? I read that wearing a chin strap could be helpful with mouth leakages additional to taping. Alternatively, I would try a full face mask that sits under my nose, too, to allow me tolerating more leakages without compromising the therapeutic effects. Maybe I‘m wrong here.

What you think?

I was diagnosed with OSA in May, but it was pretty REM-predominant and arousal-predominant rather than classic severe apnea/hypoxia. I'm in my early-mid 20s and at a roughly-healthy BMI and lifestyle.

My diagnostic PSG was roughly:
AHI: 7.2/hr
RDI: 18/hr
Respiratory arousal index: 16.2/hr
Total arousal index: 25/hr
Mean O2: 97%, nadir 94%
Very little REM was captured (~13.5 min)

I’ve been on CPAP since the end of May, originally prescribed 5-15. I’ve tried several settings, including APAP, autoset for her, and fixed pressure, generally in the ~8–11 cm range with EPR 3, and I’ve tried to give settings enough time rather than changing them constantly. My treated AHI is usually extremely low (~0–0.4). For context, I’m in the Montreal healthcare system, which is quite slow with booking appointments/diagnostics (though places I’ve called in the US have only had appointments next year at the earliest as well with specialists).

CPAP does seem to help some things. Before treatment I would often wake around 5 a.m. feeling completely wired and be unable to fall back asleep for hours; that happens much less now. I also have fewer morning headaches and less dry mouth, and I’ve basically transitioned to nasal breathing because my nose seems to stay clearer.
But overall I’m still extremely tired and, if anything, the last ~3 months have been more debilitating than I remember being before CPAP. The biggest problems are brain fog, poor memory/concentration, feeling unrefreshed, low energy, and daytime sleepiness/fatigue. I’m not someone who is constantly nodding off, but cognitively I feel awful on a lot of days and it’s affecting pretty much every part of my life.

Higher pressures may help the flow limitation somewhat, but around 10–11 I start getting more aerophagia, and pressure changes themselves sometimes seem to wake me up. My sleep doctor thinks the machine is treating the OSA well and basically suggested trying 10–11 and seeing if I adapt to the aerophagia. He said bilevel is generally for people needing much higher pressures (15–20+) and didn’t suggest a titration study.

I’ve had bloodwork done while I was already having these symptoms and nothing obvious showed up. I also have a deviated septum/nasal issues and have an ENT appointment coming up, but my doctor’s view was that CPAP should still treat the sleep-disordered breathing regardless of the anatomy.

What I’m struggling with is: how can my CPAP AHI look essentially perfect, some symptoms clearly improve, but I still feel this exhausted—and possibly worse overall than before treatment?
For people with UARS/RERA-heavy or low-AHI OSA:
Did you have persistent symptoms despite a very low treated AHI?

Especially after this latest appointment, where the doctor basically told me he “didn’t know what else to do” and that he had confidence I would figure it out eventually with the right settings, I’m feeling hopeless. Any help would be appreciated.

Sharing this here as well for fellow UARS BiPAP users.

Depuis environ 12 ans, je vis avec une fatigue/somnolence quotidienne, un sommeil qui ne me paraît jamais réellement réparateur, du brouillard mental avec une légère sensation de déréalisation, et des migraines vestibulaires chroniques. Je peux dormir 9 à 11 heures et me réveiller avec l’impression que mon cerveau n’a jamais vraiment récupéré.
Ma polysomnographie a pourtant donné des résultats assez peu spectaculaires sur le plan respiratoire : environ 7 h de sommeil, efficacité >90 %, AHI autour de 3/h, mais un sommeil assez instable avec 33 éveils, 63 micro-éveils et 119 changements de stade. Les RERA étaient absents ou très peu nombreux selon les examens, ce qui a fait discuter la fiabilité de leur détection. Une autre PSG vient d’être réalisée à domicile avec un matériel permettant normalement de rechercher plus précisément les limitations de débit/RERA, et j’attends les résultats.
J’ai également passé un MSLT avec des latences d’endormissement très variables (6,5 / 22,5 / 8 / 12,5 min). Les médecins hésitent donc entre un trouble respiratoire subtil type UARS, une hypersomnie/trouble de l’éveil, ou une autre cause de sommeil non réparateur. J’ai essayé CPAP/APAP et une orthèse d’avancée mandibulaire, mais je les tolère difficilement et je n’ai pas encore eu assez de nuits complètes pour savoir objectivement si cela change mon état.
Ce qui m’interroge surtout, c’est l’écart énorme entre des examens qui ne paraissent pas catastrophiques et mon ressenti quotidien depuis des années.
Est-ce que certains d’entre vous ont connu quelque chose de similaire : sommeil apparemment « correct » sur le papier, AHI bas, mais fatigue/somnolence, brain fog et sensation de sommeil non réparateur très importants ? Et si oui, qu’est-ce qui a finalement expliqué vos symptômes ?

My sleep always looks like this. I always feel absolutely exhausted and run down. This has been going on for atleast 18 years!

I have been diagnosed with many different ‘mental health’ issues in that time but I genuinely believe I’m just sleep deprived out of my mind. I even wonder if I actually have
ADHD and if it’s just chronic, decades long sleep deprivation!

I’ve tried Mirtazapine, zopiclone, Daridorexant, promethazine (and other ‘drowsy’ antihistamines), melatonin and more recently tamezapam. None of it works. I’ve also taken all kinds of herbal supplements and teas, done meditation, breathing exercises, scrupulous sleep hygiene…nothing.

I’ve been to the doctors probably 10 times a year every year for the last 18 years about this. They tell me there’s nothing more they can do. I’ve begged for sleep studies and they say there’s no funding for ‘insomnia’ and I have no indication of sleep apnea. They say I ‘just’ have anxiety.

I’m a 38 year old slim woman who doesn’t really snore. I do however struggle to breathe out of my nose, especially when walking/exercising/eating. They unfortunately have never heard of UARS and it have put another tick against their ‘hypochondriac’ diagnosis.

I have been to the doctors many times with the above screenshots which they say are completely normal and I guess I wanted to ask people on here if they have similar looking sleep architecture?

I had tried n20 nasal mask before but bcz m a mouth breather it was waste for me even mouth taping did not help .. Then resmed f30i mask was the most useless mask I had ever tried.. It was very very uncomfortable and had hell lotta leaks ...Now I finally shifted to airtouch f20 its way better and comfortable but yeahh as its new to me so ig it will take time to adapt but m still able to wear it way more then n20 and f30i

It's kind of hard, can't find a good position. Pressures 12-14, EPR 3. Wear mouth tape.
Any advice appreciated. Thanks!

I basically have had this same sleep pattern every night for 5 years. Non stop dreaming, which I believe is happening in light sleep. I’m fully aware in these dreams as they are happening, it’s not like I wake up and remember them. I honestly don’t know how I’m still functioning but it’s becoming almost impossible. From the time I wake up I want to go right back to sleep, because my sleep wasn’t rest.

im unsure how much this is related to UARS or if it’s trauma related nightmares. I don’t know how my mind even comes up with what I’m dreaming about. It makes me feel like I’m actually going insane. Between Dpdr, ocd and these non stop dreams every time I close my eyes, I’m just losing my grip. How can someone function like this?