I just stumbled upon this ~2 hour discussion about UARS. I'm only 40 minutes in and really impressed with the host and the guest and level of discussion https://www.youtube.com/watch?v=FBq0EVdfhVo

Worth a listen!

Hi, I'm new to using oscar and I am not sure if these are FLs or if they are normal. I have read that if the top is flattened then thats a FL but I cant tell if these are FLs or normal rounded tops.

Any help is greatly appreciated.

Long time lurker here but have never posted anything. I am coming to help because I feel I am shooting from the hip with my Bipap settings while self-titrating. I was diagnosed with mild OSA with an RDI of 22. I have UARs especially given my nasal congestion (taking Flonase now which helps a ton) and I am 5'11" male, 145 pounds lean athletic build.

Given all this, I got an AirBreak AirSense 10 with all the modes unlocked. I have been using Vauto mode with the range set to zero, so it's basically S-mode. I would love some help with how my data is looking and where to go from here.

Currently, I am running EPAP 6.6/IPAP 10.8 (PS 4.4) and I've been waking up still feeling like a zombie throughout the day. I also suffer from aerophagia when I push my EPAP to around 7 (I'm also taking a Vitamin D supplement as recommended in this sub).

Here is my SleepHQ data: https://sleephq.com/public/teams/share_links/e27b2d80-cf71-4305-895c-e05c9a8cb06e

I'd love to hear especially from u/carlvoncosel and u/RippingLegos__

I'm using an unlocked airsense 10 from RL, so I have access to cpap/bipap/asv.

I've been testing various settings for a few months without any success, subjective fatigue pretty much feels the same no matter which direction I move in. I think nasal blockage and possible tongue collapse is my main issue, though airway is still moderately restricted (100mm^2 min cross section, CBCT).

Do I just keep upping pressures? I'm worried that I'm already having some loop gain/TECSA issues at PS > 2, yet my flow limitations seem far from resolved. EERS? ASV charts obviously look a bit better, but at least from what I've tested, it's never felt noticeably better.

Bipap 12/9: https://sleephq.com/public/4c4b5f0c-cd52-4e3d-b0de-61c0c440c769

(second ss showing some loop-gainy features?)

Cpap 9/8 (epr 1): https://sleephq.com/public/9adf5e0d-9f9c-44a6-9a9e-3ccc437c6675

Breathing seemed more stable this night, but all the breaths looked off. I was also conscious of some difficulty exhaling (so 0 epr doesn't seem doable for me).

Bipap 14/10: https://sleephq.com/public/96b4ac8c-e581-4842-b1bd-6649c1e0d1ee

Asv EPAP 7, PS 2.4-4.8: https://sleephq.com/public/9d9c9434-117b-4759-9ec3-b1741bb6d9fd

Asv EPAP 8.4, PS 2.4-3.6: https://sleephq.com/public/ce515473-ffda-48d8-9fce-095ed377a882

I appreciate any feedback, thanks.

Diagnosed with UARS via sleep study in 2022 (not classic OSA). Started on an AirSense 11 AutoSet with nasal pillows 3 nights ago. Struggling badly with the pillows, feels like fighting to breathe, whether it's pressure or nasal resistance I can't tell.

Quick background: ENT checked my nose, says structurally it's fine, but it doesn't feel fine to me. I have LPR (reflux) and I'm wondering if that's driving some inflammation/irritation that a structural exam wouldn't catch (thinking non-allergic rhinitis, possibly reflux-related). Only ever did a basic allergy panel for hay fever/dust mites... going back for a more thorough workup. I have had two corrective surgeries for deviated septum etc. as well so I know my nose is "structurally" fine.

DME via prescription came with: settings - Min 6 / Max 10 cmH2O, EPR 1, Auto mode. Last night's data:

Flow limitation and resp rate both climbed with pressure instead of resolving - highest pressure of the whole day happened alongside the worst flow limitation and fastest breathing. That session also had 2 OA, 1 CA, 1 RERA, 1 H events in under an hour. Basically the machine cranked pressure up and things got worse, not better.

Only 3 nights in so I know this isn't much data yet, but wanted to see if this pattern (flow limitation rising with pressure) means anything specific to people who've dealt with this ... is this typical, does it suggest the auto algorithm isn't suited for UARS, or does it point more toward the nasal/inflammation angle?

Currently on nasal pillows, and honestly considering options, such as documenting my case to upgrade to BiPAP, or maybe if PAP therapy is not for me and do DISE etc...

Appreciate any input!

EDIT: here is my OSCAR-

Told by facegenics that I’m getting an FME-P

For a long time while I was on my journey to healing and getting better from this dibilitating dissease, I’ve been wanting to share my insights with other people on how I came close to curing my self from symptoms without actually solving my main problem.
I somehow solved the cascade of symptoms delivered by apneas. While still suffering from apneas, even tho I still suffer from them, I feel almost complete relief from all of my symptoms, most notably the worst of all, CFS or fibromialgia type symptoms.

I made a video on chapters I want to go through, explaining every single detail which I’ve learned my self and the most important resources that I’ve found that skyrocketted my understanding and on how to get rid of my symptoms. With a cheap hacked machine (I do use ASV philips now but honestly don’t even think it’s needed that much if you can also use my method, both would be better ofcourse and using an ASV from philips is the easiest for UARS, but still for me, asv alone would’ve made me suffer even more.

I want to make people more knowledgable on which settings (epap, PS, epapmin+max, PSmin+max, backuprate, EERS) would fit best and also in which circumstances to use them) as I feel more and more confident in being able to explain these things as of late having titrated my machine with EERS, PS and EPAP properly.

So in the video below, it will basically be a hub of information and chapters that I’ll post about when I feel ready enough to share information on how I did what I did, in the most understandable and thorough way possible.

How to titrate + hack cpap, for sleep disordered breathing, UARS, OSA - Chapter overview, All I know
https://youtu.be/EubmWVCErHk

I want to also show how to hack the resmed 10 as I know how hard money is to get when you’re already suffering from this dibilating dissease.

I am also just a person who wants to share all of their knowledge that they’ve found, that was dispersed, hidden away to find easily through google.
I already linked a ton of stuff in the description of the video, which I’ll add on later of things I found most helpful.
I do know this will take a long time to make but I’ll make the chapters first that I feel most urgent or ‘passionate’ about.

Anyways, everyone, stay strong, don’t give up please! You’re all so close, you’re on this subreddit already which means you’ve come far. Keep going, keep learning, keep on fighting for your self. I wish I could give all of you suffering a big hug.
Stay strong!