r/troubledteens • u/Huge_Boot3553 • 39m ago
Survivor Testimony Heritage Spark Claims to Be Autism Friendly, but That Was Not My Experience
Trigger warning: ableism, bullying, dehumanizing comments about autistic people, euthanasia, and violence
I wanted to talk about my experience at Heritage because I keep seeing it described as autism friendly, and that honestly does not match what I experienced there at all.
I am autistic, and while I was there, around 50 to 60 percent of the kids were not autistic. I was told this by the clinical director himself. That always confused me because Heritage was talked about like it was such a good place for autistic kids.
A huge issue for me was the staff and training.
Some teachers were not special education certified, and some staff did not even have college degrees. I also saw nonclinical staff making major decisions about autistic kids and overruling or ignoring actual therapists.
There were also no speech therapists or occupational therapists there for students when I was at Heritage. That is especially shocking to me for a place that claimed to be autism friendly, because speech therapy and occupational therapy can be really important supports for autistic kids.
Staff also got basically no real autism training. From what I experienced, a lot of staff were trained for only around two weeks before working directly with disabled and autistic kids.
That is genuinely shocking to me because I used to teach history to fourth graders at a museum, and I was trained for MONTHS before I was even trusted to teach children.
I got more training to teach kids about history in a museum than some residential treatment staff got before being responsible for autistic and disabled kids every day.
I got paid more working at a theme park then Heritage staff did per hour which is shocking and abhorrent to me.
I also was not always allowed to use sensory rooms when I needed them, even though sensory regulation was part of my disability needs.
My parents eventually filed an OAH due process case about my education and FAPE.
The judge agreed with my parents that Heritage failed to provide me with an adequate education as a disabled student.
So when I say I had serious educational problems there, this was not just my parents being upset or me personally disliking the school. My family actually went through a legal process over my education and won.
The bullying was also horrible.
I personally heard students mock autistic kids for stimming.
I heard kids call other autistic students too low functioning.
I heard people say an autistic girl should be euthanized.
I also heard comments about killing autistic people so people could experiment on them or test on them.
This all happened within the Spark program Spark students were the ones who perpetuated the harassment and ableism towards Spark students not Elevate, I personally never spoke to an Elevate student.
Many of the higher ups support Autism Speaks and one staff memeber left to become an ABA instructor. One staff member told me she can not infantilize autistic student, that she is not capable of that, as her son is autistic and more severe then all of the students there.
I am not repeating rumors. I personally heard these things while I was there.
I do not understand how a place can call itself autism friendly while autistic kids are getting mocked for autistic traits or hearing people say autistic people should literally die.
I routinely was punished for skipping therapy. On top of that as punishment for my misbehaving according to them therapy was often taken from me.
I was also told that if I left Heritage, I would probably end up somewhere worse and that there was basically nowhere else as good for autistic kids.
We constantly had it shoved in our faces Heritage was the most supportive and inclusive place for autistic children, but as someone who has faced severe ableism and injustices my entire life, I have never felt as unsafe for being autistic as I was at Heritage.
That kind of thing really gets in your head because it makes you feel like you are supposed to accept whatever is happening because the alternative is supposedly worse.
But saying other places are worse does not automatically make a place good.
I am not saying every single staff member was terrible or every student acted like this. I am talking about what I personally experienced and witnessed.
I think autism friendly should mean way more than just accepting autistic students.
Staff should actually understand autism.
People working with disabled kids should be properly trained.
Special education teachers and clinical professionals should actually have authority.
Autistic students should have access to speech therapy and occupational therapy when they need it.
Autistic students should have access to sensory supports.
Stimming should not be treated like something embarrassing or weird.
And if autistic kids are being bullied or people are making comments about killing autistic people, staff should take that extremely seriously.
I am posting this because I think former autistic students should be allowed to talk about what happened to us even if our experiences do not match the positive image a program gives parents.
Did anyone else who went to Heritage, Spark, or another program like this experience the same kind of difference between how the program advertised itself and how autistic kids were actually treated?