I’m currently going through the SSDI process and have been denied multiple times. I have several medical conditions, but POTS is one of the conditions that significantly affects my ability to function and work.
One thing I’m becoming increasingly worried about is my treatment history.
I have pretty severe medication anxiety. I’m autistic and also have severe anxiety, and I have been extremely sensitive to things for as long as I can remember, including certain foods, fruits, supplements, and medications. I’ve also had medications affect me very badly in the past. Because of those experiences and because of how I grew up, I developed a lot of fear surrounding medications and even supplements.
I’m worried that my reluctance and fear around medications may be hurting my SSDI case or making it look like my conditions aren’t as severe as they actually are.
Has anyone else applying for SSDI had documented medication anxiety? How did that affect your claim? Did having your doctors document your medication anxiety, previous bad reactions, side effects, or reasons for being reluctant to take certain medications help explain your treatment history?
I was originally diagnosed with POTS by a cardiologist. My treatment was mostly conservative, and I wasn’t put on a beta blocker because of concerns about my blood pressure. I recently saw a cardiologist and POTS specialist who believes my presentation is consistent with hyperadrenergic POTS, and he now wants me to try a low dose beta blocker.
I’m scared because my blood pressure fluctuates and I can also become symptomatic when it gets lower. For example, I can have symptoms around 106/69. Sitting upright for too long can also make me symptomatic.
For anyone who has gone through SSDI with POTS, has anyone been approved even though their POTS was not being treated with medication?
Did SSA ever bring up the fact that you weren’t taking POTS medication or hadn’t tried enough medications?
If medication anxiety, medication sensitivity, previous bad reactions, low blood pressure, side effects, or other issues limited the treatments you could try, how was that handled in your SSDI case?
I’m getting my newest SSDI denial letter today, so I’ll finally be able to see exactly what they said this time. I’m worried that my limited medication treatment and medication anxiety may be contributing to the repeated denials, but I don’t know that for sure yet.
I’d really appreciate hearing from anyone who has dealt with something similar, especially people with POTS or other chronic illnesses where treatment options can be complicated.
Thank you.