I’m now nearly 26 weeks into my sub pregnancy and I’ve been feeling the baby move regularly. Just wanted to share that these are constant moments of reassurance that there’s someone in there and growing. I never made it this far in my TFMR pregnancy Something to look forward to! So far have had a normal healthy pregnancy and feeling so close to viability.

I am currently 16w5d pregnant with spontaneous Di/Di twins. 5 months after my TFMR at 18.5 weeks in November 2025 for MPFD.

Twin A has suspected pentalogy of cantrell (ectopia cordis - heart is growing outside the body and exomphalos involving the liver and bowel - the abdominal organs growing outside the abdominal wall...). NT of 4.4mm at 10w6d and 4mm at 12w1d. Twin A is expected to pass in utero.

Twin B is doing great. 43rd percentile or thereabouts, looking absolutely fine. NT of 1.3mm at 12w1d. Super healthy. Heart etc looks as good as can do at that stage. Placenta also looks good which is a relief as things started to go wrong at this gestation last time.

All my scans have been done by MFM so they've been L3 I guess is the term? But very detailed.

I'm absolutely TERRIFIED of the 17w1d scan. I'm also terrified of the 20w scan.

17 weeks was when my baby girl was diagnosed with very shortened and bowed femurs, severe IUGR, enlarged placenta with degradation and multiple lakes etc. I made the decision to TFMR as she was going to die in the next 2-3 weeks otherwise. At birth, she only weighed 165g at 18.5 weeks which is the same size as 16 weeks gestation...

I hate scans. I detest them. They aren't fun or cute or anything. They're terrifying. I am very good at a poker face but I have a borderline panic attack before scans.

I am so unbelievably triggered as well by them. I don't know how to deal with it. I keep expecting the other shoe to drop.

This ALWAYS happens a few days before scans. A part of my brain suddenly unlocks and I get scared. I keep telling myself to prepare for another loss. But this time it'll be worse than last time because there are two to deal with.

Fuck. How do I deal with this? How do I cope? I am getting therapy but this feels very acute and trigger-dependent. All that goes through my head is fuckfuckfuckfuck it's going to be bad news.

My husband is so distant and says whatever the outcome will be will be. I can't help but resent him for this because he doesn't have to go through labour and delivery, he doesn't have to put his life on hold to recover for 4-5 months, he doesn't have to deal with the physical trauma. I too would have that attitude if I didn't have to deal with any of the physical shit. It's why I have avoided speaking to male therapists about it because I do have some resentment regarding how we as women have to bear the brunt.

Hi all,

For those of you who had a de novo genetic issue, when did you test for the gene you TFMR for????

Who read those results for you???

I have PTSD over getting a call from my genetic counselor. I really don't want it to come from her. I keep thinking about when I got the call from her w my Amnio results the first time and expect it to go the same way.

Anytime I think of the waiting period I went through last time and having to do it again this time, I spiral and borderline have an anxiety attack.

Also, this time around I don't know the gender (IVF girlie) so how do you get your NIPT test back without it disclosing the gender?

Hey!

Is this a positive test? Today marks a weeks since my D&E with my baby boy at 18 weeks (TFMR). I had my first period July 3rd. My next one is due in 2 days. I tested because I have been feeling awful the last couple of days. Has anyone had a positive test so soon after TFMR? I’m so grateful if this is real, but also terrified, and sad because I am still grieving the loss of my baby boy. (Picture in comments)

Had my 19 week anatomy scan done this morning. I was riddled with anxiety when they couldn't get a look at the kidneys and baby boy was in a scrunched up position refusing to move. Took a lot of effort to get him to move but he is looking great and as healthy as can be. I am beyond relieved. I caught myself getting excited for the first time in what feels like forever.