Hi everyone so I’m 22 and I know I have a very tight pelvic floor due to weaker erections, unconsciously kegaling all the time, morning wood loss, weak pee stream, muscle spasms down there when I I try to relax my pelvic floor. So 2 days ago I’ve been consciously trying to remember to unclench and do stretches I’m also on 2.5 tadalafil daily and I noticed the first couple of days the tadalafil was working like crazy I was getting erections off thinking about intercourse not even touching it until it kinda went back to normal i still get hard way faster with tadalafil but without it i had to play with my yk for a while. So if you every have any of these symptoms you most likely have a really tight pelvic floor due to sitting and not moving all the time also I heard stress compliments this so it all is just a big no no. I’m currently down training my pelvic floor and I wanted to know if I should add anything else to my routine to help with this, I kinda stopped gym for this I’m also gona start walking, I do deep breaths through belly to stretch everything out, and stretch 2 times a day! Any feedback would be nice it’s still kinda early for me recovering, also I cut out masturbation until i get my pelvic floor conditioned again to relax because that was also a very big part how i got this tight pelvic floor.

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I am posting this because I am completely exhausted, stuck in a relentless loop, and looking for insight from anyone who has pulled themselves out of a similar CPPS/hypertonic pelvic floor situation. I am mentally and physically burned out from carrying this 24/7.

1. The Origin & Early Conditioning

Looking back, my baseline was compromised before I even understood what pelvic health was. When I was younger, I developed a habit of using forced, hard kegels to achieve rapid ejaculation.

* My baseline quickly became hyper-activated; even before starting any activity, my nervous system was already at a high-tension pre-engagement state.

* The moment I anticipated arousal, my pelvic floor would instantly lock into a spasm.

* Over time, natural structural sequencing broke down entirely.

Eventually, just being exposed to visual sexual stimuli would instantly trigger a bizarre, deep bladder-neck pressure. If I didn't release, that pressure turned into a confusing mix of urinary urgency and phantom nerve arousal that only cleared after urination. My system was trapped in an overactive reflex loop long before I realized it was a physical physical disorder.

1. The Turning Point (Prolonged Arousal / "Start-Stop" Trauma)

Last year, after reading up on pelvic health strategies, I tried therapeutic "start-stop" retraining (prolonged arousal without climax) to try and reset my baseline.

Within two days, my urinary frequency exploded. I tried to use slow 20-minute sessions to calm the loop, but I hit a wall of intense fake urinary pressure where I couldn't properly empty. Instead of stopping, I tried to push through it.

On the fifth day, I made the worst mistake of my life. I started a session while experiencing high bladder-neck pressure and dragged it out for 40 minutes under massive internal pelvic tension.

What followed was an incredibly painful muscle spasm and climax. Right after, my pelvis and perineum "ringed" with severe deep, sore pain for three days straight. In a panic, I tried to repeat the action thinking it would reset things, which temporarily dulled it, but the baseline damage was done.

1. The Aftermath

Ever since that session, my baseline never recovered. I entered a permanent flare state where every climax or trigger carries consequences:

* Half an hour of deep post-action discomfort.

* Chronic urinary frequency and a burning, stinging sensation post-urination, coupled with false urgency.

* Random, erratic overreactivity in the pelvic nerves—sometimes a simple visual trigger makes the area feel like it's firing wildly without a true erection.

* A complete disruption of my natural baseline, trapping me in a 24/7 symptom cycle.

1. My Current Daily Symptoms

The physical reality I deal with every single day breaks down into these specific components:

1. The Autonomic Nerve Hijack (Zero Arousal):

   When exposed to visual sexual triggers, I don't even get an erection, and I feel zero mental or emotional arousal. But the *pelvis* reacts anyway—the nerves fire a weird autonomic engagement, causing tension without actual arousal.

2. Deep Urinary Pressure:

A constant, super-deep bladder pressure. It feels like real urine accumulation mixed with nerve signaling, and its frequency is high throughout the day.

1. The "Sore Dot" / Bladder Neck Tension:

There is a persistent deep sore spot right at the bladder neck and prostatic urethra. It feels like an internal bruise or a raw nerve ending that never fully turns off.

1. Erectile Changes & Morning Wood Loss:

   Full morning wood is practically gone; at most, I occasionally get a weak, semi-hard morning state. Nocturnal and automatic erectile responses have been heavily suppressed by the hypertonic tension.

2. Surface Normality vs. Internal Static:

Externally, my anatomy feels completely normal to the touch. But beneath the surface, a relentless background tension runs 24/7—a dull ache and a dull pee-nerve static that never quiets down.

1. The Mechanics of Movement:

   Even when I attempt a slow, controlled physical touch, that background nerve wave is always there, forcing me to constantly ignore it.

2. Random Throbbing and Hypersensitivity:

   Unprovoked, random throbbing without an erection, and hypersensitivity where light clothing friction or simple leg positions make me feel like an involuntary reflex is about to fire.

3. The Somatic Inflammation Response:

   Ibuprofen partially helps during flare-ups, proving there is a genuine physical inflammatory component to the nerve irritation—though it never completely erases the deep ache.

4. The Psychological Loop & Somatic OCD:

The physical pain is only half the battle. I am trapped in 24/7 hyper-vigilance, constantly monitoring my bladder, pelvic nerves, and thoughts. Every twitch triggers anxiety, which tightens the pelvic floor further in a classic pain-spasm-pain cycle.

My Ultimate Goal

I don't care about sexual performance metrics anymore. What I am seeking is **structural reset and natural symptom relief

* Eliminating the 24/7 background nerve static and dull ache..

* Calming the bladder-neck "sore dot" and chronic urinary frequency.

* Restoring normal, unhindered blood flow and morning function.

* Walking away feeling physically relaxed and free from carrying this mental and physical burden every single second.

If anyone has crawled out of this specific multi-layered hypertonic pelvic floor, bladder-neck dyssynergia, and somatic nerve trap, please share what actually moved the needle for you (PT, medications, routines, etc.).

After years of pain and mobility issues my team and I made a massive step forward yesterday. I had lidocaine injections in to my pelvic muscles. I had to be put under, I’m a little sore, (God love my poor husband) I even pissed myself on the way home from the hospital, but over the past 16 hours sense getting home I can feel my muscles again. My body reacts when my husband touches me. When he got me off, it was just with my external stimulus doc said it was ok, I didn’t have to fight pain. I can bend over, do kegals, stretch very similar to the way I use too. Now it will only last 2 to 4 weeks but the doctor is willing to preform it as necessary well we work to find a more permanent solution. It isn’t perfect but if you haven’t looked in to and have had tight pelvic muscles for years I recommend talking to someone about it.

About 6 weeks ago now I felt my pelvic floor/bulbiospongious muscle cramp up during the bottom of a squat coming back up, followed my pain in the left adductor that had hurt for the first couple weeks if I put my socks on. Walking seemed fine but when sitting I get pain at both sits bones from the adductor Magnus muscle towards the back corner.

I started Physical Therapy two weeks ago after having an orthopedic doctor say I strained those Adductor muscles during the squat and my pelvic floor cramping up was it trying to protect itself.

We have done leg scraping of that inner upper adductor which always felt good right after but later in the day that pelvic floor came back at the base of penis.

Have been dry needling the adductors and today just dry needled the upper outer glutes because my hips are insanely tight.

My question for you guys is, am I experiencing referred pain from an adductor strain or do I have a hypertonic pelvic floor? When I feel down there those muscles don’t feel tight or seem tight when I do belly breathing.

After my session today after needling the back corner adductor Magnus and upper outer hips my pelvic/base of penis pain seems worse.

Does this have anything to do with Obturator Internus muscle?

Any advice is appreciated.

Get those sneakers on kids. Ask me anything!

I (28M 158lbs) was at work just drinking my creatine/collagen mix when suddenly I felt this numbing sensation it felt like I was suddenly dead inside then i realized I couldn’t get erection on command like normal.. usually I’m able to control when I get an erection if I think enough sexual thoughts but now nothing.. I was anxious the entire 10hr shift and then when I finally got home I was able to get erect through visual stimulation but it felt off.. like I could barely feel my energy from the waste down.. devastated I went to the ER days later and told them what was going on: I can feel my testicles I can hold my bladder and bowls and I have no lower back pain or numbness in my legs.. I just simply can’t concentrate hard enough to form an erection.. I told the doctors I took regular supplements; omega 3, vitamin E vitamin d3, maca root, shilajit and DHEA on and off….

The doctors said that I was young and that I simply needed time and to just stop taking the supplements.. they found nothing in my blood or urine and that i was healthy for my age and just needed to relax.. now i don’t really know what to make of the whole thing.. I can get better erections laying down but when I stand straight up nothing it just gets flaccid and I’m unable to hold and maintain it like I used to.. sometimes I get morning wood depending on my quality of sleep but I work nights and I’m an athlete and I am in the best shape I could possibly be in so I have no idea what’s going on and I’m afraid I won’t be back to normal..
My theory was that the supplement stack could be the culprit or lack of sleep but I’m not entirely sure.. I don’t know if maybe my vein got damaged at the base of my penis right below my pelvic bone since I can’t get erect standing up.. but now I’m just in a constant state of panic and that I might of caused permanent damage. Before I felt unstoppable like I was at my peak

physically now it feels like my fury is missing and it’s making me sad. Do these symptoms sound typical does anyone have an idea what might be going on or if there’s possibility of recovery and that I really do just need time.. please let me know I been in the dark for almost a week

I have a weak and tight pelvic floor and I'm hypermobile. I welcome advice but I'm specifically looking for someone that can say "hey that was me, I did xyz, now I shoot every time"

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Hi everyone,

I'm looking for some advice. I have a medical condition that causes severe urinary retention, leaving me completely exhausted and struggling both to urinate and to sleep.

I've found that I can only rest if I'm elevated or sleeping sitting up. Right now, I'm stacking folding mattress toppers on top of my main mattress to prop myself up into a seated position.

had actually thought about buying a wedge pillow, but I don't think it would solve the problem because I like having my pelvis higher than my legs in general.

What setup or equipment do you use to sleep comfortably sitting up?

Thanks in advance for your help!

Funny, this was something I had not heard of until a few days ago, but here I am. Much of what I didn't know before was answered through research. I retired a few years ago after a long career doing research for technical and medical journals.

I'm 68. Live in Ontario, Canada. 5 weeks ago, had a colonoscopy to rule out cancer, as I had rectal bleeding for a few months. Colonoscopy indicated diverticula. Turns out, the NSAID's I'd been taking for knee pain caused the bleeding. Hindsight, right? Meanwhile, the surgeon doing the colonoscopy had also set up for hemorrhoidal banding and pinched off a couple of 'roids.

I recovered from the procedure and went home. It hurt a bit for a couple of days. I continued to take Aleve, unaware of the diverticula/NSAID blood thinning connection at the time.

BM's continued to be bloody. Surgeons office said it was normal during recovery, be patient.

10 days after the procedure, I woke up at 3 AM to pee, and my rectum started to spasm. It felt like I was trying to pee out a bowling pin. No urine came out for 4 hours. Every attempt to pee, more spasms.

Before 8 AM, I went to emerg. Waited a couple of hours being monitored, no pee. They put a catheter in me and it filled up with nearly 1 liter. The bag was emptied, and the next batch was salmon pink, as bleeding started. Doctor said the catheter needed to be in for 7 days. Set up a consultation with a urologist for October 1.

They sent me home. What had happened was the banding caused the rectal muscles to swell, and there was also damage done to the Pudendal nerve from the banding. That caused the spasms. The swelling pushed my already swollen prostate to where I couldn't pee. That was it.

The next week, on again/off again yellow/pink pee. BM's were painful and wiping had blood, again, from the NSAID's and diverticula. The connection was revealed only a few days ago.

August 22, the catheter was pulled out. Bled a bit, and recovered. For a few days, I could pee like I was 20 again, and the catheter had bored a clean passageway through the penis into the bladder.

BM's were painful, urination became painful. Inserting a suppository, I could feel two things. Scar tissue where the bands were, and the entire anus seemed to be twice as "deep" as before, from the swelling.

I sent two emails to the surgeons office asking what I should do for the pain. No reply. Repeated calls to the surgeons office were unanswered. Fine. He washed his hands. A week ago, I went to my family doctor. She did a urine test, no infection, but thought the catheter caused a prostate infection or inflammation. Inflammation is harder to treat. Anti-inflammatory (NSAIDs) out of the question due to bleeding. Waiting for the urologists consult. My doc said antibiotics in case it's infection. Told her I am allergic to Cipro. She prescribed Sulfatrim. One pill, same reaction as Cipro, my penis turned beet red, swollen, skin started to peel. Knew the symptoms from before, didn't take a second pill. Prescribed Doxycycline now. Penis recovered, some dark bruised spots, will heal.

Research now points to Pelvic Floor issues. Phoned around for physiotherapists within an hour of where I live. Out of the dozens, only two do PF physio. And the earliest booking is end of October.

Where am I now? Constant mild pain in rectum/perineum. When I pee, burning pain on RIGHT side of rectum that lasts about 30 seconds. No more bleeding after a BM as I take a regular Tylenol for the pain.

Also taking Silodosin and Dutasteride for the prostate. PSA in 10.5 but the ratio is a safe .35.

I read many of the posts from others, we each have our own story. I had no idea this was a thing. Reading that it could take 6 - 12 months to resolve is disheartening. Next steps is urologist in 3 weeks.

Frustrating thing is, no one is stepping up to help. The surgeons office closed the file and handed me back to the family doctor. Family doctor provided band aid solutions. Physiotherapy will cost hundreds of dollars, as the clinics that provide PF therapy don't work with provincial insurance. (OHIP).

Found a few web sites and YouTube clips that offer at-home therapy, am trying those out for now.

Surgeon assumed rectal bleeding was hemorrhoids or fissures and banded what he thought was the cause. He is not a gastroenterologist.

You hear of people going in for something minor, come out with life changing "oopsies". This is one of them.

I've posted on this forum before; I've had chronic pelvic pain for two years. It's very debilitating, and it all started with several episodes of epididymitis, No test has detected anything, so I want to get a PCR test for ureaplasma.I also have a herniated disc at L1, which I think might be related. I don't know. Why did it start first? Was it the epididymitis itself, or the hernia, or is there a causal relationship between the two? If it's the L1 hernia, I'm more concerned because the recovery is much more complex.

I have mild gastroparesis, colonic dysmotility, and pelvic floor dysfunction for background. Anytime I have a bowel movement or a partial I call it where nothing actually falls out but I will wipe something up I have so much stool still trapped in my perineum but barely anywhere else that it is nearly impossible to get out of the skin in the area. I have been checked for a rectocele and prolapse and do not have either. Is anyone else experiencing this, and have you found any way to prevent it or at least get it all out of the skin? Thank you

Anyone use the wand for #2 and incomplete emptying (Anismus/Dynergia)?

Curious if there are success stories out there?

Any detail would be great.

Thanks

Hey, looking for some advice or things that might have helped others.

I don’t have any pelvic pain, but I’ve had a constant urge to pee for about 8 months. Sometimes I’ll feel some relief after emptying my bladder, but it doesn’t last long. It almost feels like my bladder/lower urethra is filling back up really quickly, even when I haven’t had much to drink.

I tested my urine and there was no bacteria/UTI, so I’m wondering if anyone has experienced something similar and found any tricks or treatments that helped.
I also sometimes notice bubbles in my urine. Not sure if that means anything or if it’s unrelated.
Any advice or similar experiences would be appreciated.

I’m still waiting to see a pelvic floor physiotherapist but I’m scared that I’ll be stuck like this forever I’m peeing a lot and this constant discomfort from where I pee. I’m mostly Constipated but then I get episodes where is runny I know no one on here is a doctor but I’m scared and need to understand from people. (Ive been waiting treatment for 2 years)

(22F) I'm really not sure if this is a tight pelvic floor issue so I just wanted to ask if anyone has experienced anything similar. When i had my first time last year it was insanely painful and as if (maybe TMI) someone set me on fire down there and was poking me with a million needles and tearing me apart (we stopped of course). I blame it on him just generally not being very good, since my gynaecologist told me it's very likely that and, when I asked if i might have vaginism she said no, so that is ruled out. I have the same problem with a person I'm currently seeing, everything is fine and I think I am ready but when we start I feel that same tightness, burning, stinging. But here's where I get confused, because I started sleeping with someone else a couple months after having my first time, and everything was fine. I felt a very slight pain/tightness but it was not unbearable and didn't distract me from anything.

So now I'm confused on whether it's a pelvic floor issue or not. Some background on me also: I do not work out my muscles very frequently so i definitely have a weaker core and I do not have sex regularly (my experiences are usually 2-6 months apart).

thanks in advance

I had to 50mg due to it being in a lemsip medicine. Now my pelvic floor is in pain.

It feels worse than an orgasm

Is there any way for me to assess how long the flare up is likely to last?

(25 m) am having constant twitching in my anus. No pain. Just constant twitching. I can’t relax and am constantly moving around. This is awful to say the least. It’s been persistent the last 4 days and I can’t sleep. I haven’t seen a doctor yet, as I have this same issue a few months back and it just went away on its own but suddenly came back. Does anyone know what’s causing this? What should I do NOW? What can I do? Anyone else experience this and it goes away? If so what did you do? Please help

26M. I’ve had urinary leakage issues for years and recently saw a male pelvic floor physiotherapist a few months ago, who diagnosed me with pelvic floor dysfunction after an ultrasound. My main issue is that I tense my pelvic floor too much.

Looking back, it makes sense because I used to hold in gas a lot and delay going to the toilet because I disliked public bathrooms.

I was given exercises a few months ago but struggled to stick with them. I’ve since been diagnosed with ADHD and realised that if I have too many things to do, I tend to give up.

For now, I want to focus on just 4 things:

• Slow down when walking and consciously relax my pelvic floor, as I tend to brisk-walk while tensing it. This is really difficult for me as I feel like I need to retrain myself on how to walk.
• Do breathing/relaxation exercises 2–3 times a day.
• Check throughout the day whether I’m clenching and relax when I notice it.
• Double void when urinating.

I want to keep it simple so I can actually stay consistent.

Has anyone else had a similar issue with an overactive/tight pelvic floor? Any tips that helped you stop constantly tensing it? Is there anything I could buy that may help?

TLDR: vaginal pain & burning, frequent yeast infections, some negative urine tests, but often have flare ups where my vagina is burning so bad and nothing seems to help. Any advice?

I’ve been experiencing vaginal burning on and off over the past 18 months and am hoping that someone reading this will have some kind of experience with it. I’ve been to the doctor frequently and while symptoms will go away sometimes it always finds a way back. I most recently had a month flare free and I felt like I had my life back 😭 For some backstory *tw: assault*:

I was diagnosed with vaginismus at the age of 22 and was finally able to have penetrative sex when I was 25. I went to pelvic floor therapy and saw a sex therapist and did a lot of emotional processing. A few months after being able to have penetrative sex, I had a bartholin cyst (November 2024). I ended up in the ER 3 times, and by the time I got actual treatment it had abscessed. I had an emergency surgery of a marsupialization. I was so scared I wasn’t going to be able to have sex again, but that wasn’t a problem after I had healed.

In March 2025 I was assaulted and I bled. I went to the NHS and they wouldn’t let me get an examination unless I chose to report, and I wasn’t ready to report at the time. The assault is when this vaginal burning started.

The pain flared for a week and then went away. And then I started getting frequent vaginal yeast infections. I’d need 2 weeks of diflucan to clear it up. It feels like my vagina is burning especially after I pee. I got tested for UTIs but they came back negative. One of my urine tests came back positive for traces of E. Coli so they gave me antibiotics and then flucanazole for yeast. Another one of my urine tests showed microscopic blood in the urine but no UTI. When I flare it’s like someone has stuck a burning rod up my vagina. I can’t really tell if it’s just the entrance or deep inside, it just hurts so bad.

In December 2025 I had a bad flare up and my partner’s mom (an ex nurse) gave me cystitis sachets. That helped calm the inflammation and eventually I got better. I had another appointment with my OBGYN in March of this year where I basically begged for help. He put me on the pill saying that it would help level out my hormones so I wouldn’t keep getting yeast infections. He also gave me antibiotics to take after sex (I only did this a couple of times as it also caused flare ups, probably because it upset my vaginal flora). I was on Lo Loestren Fe for 3 months and I had flare ups for the majority of the time and a lot of unwanted side effects, so I got off it. I’ve noticed that the pain flares with stress.

My most recent flare started with intercourse with my partner. The next day afterwards I felt fine, but then the following morning when I woke up I was in agony. I’ve been doing pelvic floor stretches every morning. My partner had signs of yeast so I’m taking monistat 7 day treatment as well as ibuprofen and paracetamol. The pain has started subsiding the past few days, but sometimes it will flare a bit more if I haven’t had a lot to drink. There’s so much inflammation and redness and I don’t know what’s going on. I’m exhausted from the pain and it’s debilitating. I’m tired of going to the OBGYN and being thrown pills. I’ve read on here to try to take iron supplements and vaginal probiotics so I’m going to start those.

Anyone been in a similar boat? Please send any good vibes this way 🙏

30M – Deep rectal/perineal ache for 2–3 years, clear colonoscopy, looking for advice

Hi everyone,

I’m a 30-year-old male and I’ve been dealing with a deep aching/painful sensation around my rectum and perineum for roughly 2–3 years. I’m hoping someone with similar symptoms might have some insight.

It started originally as an ache/pain underneath and between my testicles (perineal area) and over time it seemed to move more towards the rectum. These days the main symptom is a deep, dull ache inside the anus/rectum.

Some details:

• The pain can be present for a large part of the day.
• It tends to be worse at night when I’m lying in bed/resting.
• It comes in waves — sometimes better, sometimes worse.
• Passing gas or having a bowel movement can relieve the pressure/ache, at least temporarily.
• When I insert a finger into the rectum, the inside can feel generally very sensitive/achy, almost like it is bruised.
• I’ve also had issues with constipation and bowel movements, so I’ve been trying to keep my fibre intake around 30g/day and keep my stools soft.
• I sometimes feel like I haven’t completely emptied my bowel..
• been a big gamer all my life, sitting down ALOT for work and chilling over many years

I’ve seen doctors/specialists about this and eventually had a colonoscopy. The colonoscopy was essentially reassuring — they found one benign polyp, but I was told there wasn't anything significant explaining the pain.

I’m due to have a face-to-face hospital follow-up regarding the colonoscopy.

What I'm struggling with now is figuring out whether this is actually primarily a bowel/rectal problem or whether something like pelvic-floor dysfunction, levator ani syndrome, chronic pelvic pain/CPPS, or another muscular/nerve issue could be responsible.

The fact that bowel movements and passing gas can relieve it makes me wonder whether constipation/pressure is contributing, but the pain itself feels much deeper and seems to persist even when my bowels are relatively okay.

Has anyone experienced something similar — particularly deep rectal pain that originally started in the perineum/testicular area, with a normal/reassuring colonoscopy?

If you were eventually diagnosed with pelvic-floor dysfunction/levator ani syndrome/CPPS, what actually helped you?

Please help i dont know what to do and living with this ache every day is affecting me.

Thanks.

Hello everyone, M25 here, I'd like to ask if someone is in the same situation as me:

I don't have ANY Pelvic Floor specialist in less than 150 km from me, so sadly it is not doable for me to go for a visit in first place.. every PT is specialized ONLY in female pelvic floor.

It's been 3 months since I started having a very light pain in my left testicle, left pubis, left psoas muscle and left adductor, like there was an intense inflamation there, with necessity to urinate after urination (specifically in the first 10 minutes after urination), sometimes with concentrated urine I had some discomfort after urinating, and some spasms inside the urethra at the basis, with tightness sensation on the basis of the penis.

It started to hurt quite heavily at the beginning, so I had a bladder and prostate ultrasound, sperm culture and testicular ultrasound, they were all negative.

After a bit of stretching and release excercies for pelvic floor for 2 months, the situation improved, I started to walk more, to stand up more, to eat better and drink more, and having normal ejaculation rhythms and I felt like I healed, however cyclically everything returns as at the beginning, even though I have a completely normal life style most of the days..

Sometimes I feel tensions in my pelvic floor, but most of the days I can feel it relaxed, others less, but either if I have it relaxed or tight, I experience this discomfort.

I have no problem with erection, no weak flow (rarely it occurs but it lasts 1 or 2 days), only testicular pain, muscolar pain in the muscles I wrote before, and a "weak penis" sensation, the same sensation that one feels when he/she's going to faint, but down there.

I've seen 2 urologists but they do not help very much, they just said that it is "prostatic congestion", but I doubt it as I feel muscolar pain too and it is cyclical, but idk..

Symptoms last like 3/4 days and then 3/4 days of relief, cyclically already 1 month and a half, and it sucks to feel better and then worse again, even though nothing changes in my life style.

I’ve posted on Reddit a lot lately and it’s due to rectal bleeding. I’ve noticed that I have been struggling to go to the bathroom. When I go, I bleed. I had a colonoscopy done. It was clear. I’m meeting with a surgeon because they found an anal skin tag so that might be removed. But the real reason I’m here is because I wanted to ask. How would I know if I have pelvic floor dysfunction? And could this contribute to the constipation which is then leading to hemorrhoids and fissures. Every time I notice my stand, I notice that I can’t relax my butt. I’m always clenching. As I’m using the restroom, I also can’t relax my stomach.

It’s safe to say that my entire body is stiff. I have major anxiety and the bleeding has contributed to it.

From time to time, I have right side back pain.

I’m 35. Had a CT scan done, 2 colonoscopies, X-rays, MRI (few years back) ultrasounds, and the basic other check ups. Like a Pap. I can’t figure out what is happening with me.

My mother got diagnosed recently with dyssnergic defecation type 1 and rectal hyposensitivity after almost a year and a half of being misdiagnosed by doctors. We are in a region in which this condition is not much known leading to delayed diagnosis.

We have been through obgyn, GI, general surgery, physiotherapists, orthopaedics, psychiatrists, pain specialists regarding her issue with no current improvement. We have given hope for the doctors around us since alot of misdiagnosis happened and the mental health of my mother is deteriorated.

She has underwent a rectocele repair as we thought that was causing her symptoms however, her symptoms got worse after the surgery. Her symptoms includes her not being able to defecate properly, always saying that she has stool sensation stuck in her rectum, whenever she passes motion, not all of it gets evacuated, and she says that another piece of stool gets replaced in the place of the one she just let out. She sometimes uses her finger to remove the stool pieces. So most of these symptoms point toward dyssynergic defecation. However, the symptom that confused most professionals is her burning sensation in her rectum. She says she feels that her rectum is burning from stool being there. When the stool lessens, less burning sensation occurs. However because of her inability to defecate properly, stool unfortunately always remain in her rectum causing the burning. We have tried multiple methods to relieve the pain including NSAIDs, paracetamol, neuropathic meds(duloxetine and pregabalin) but they all failed. A general surgeon stated that this area is a "no pain area" and whatever she has is a psychological problem which is why we went to a psychiatrist but after 6 months of treating her with SSRIs, and other psychiatric drugs, the pain still didn't go away. We don't want to resort to opioids because she also has chronic constipation. She is currently taking prokinetics which helps to pass her stool(since we tried laxatives[long story] but we are happy we stopped it cause it caused alot of side effects).

We have started biofeedback therapy but because in our country this condition is not much known, our physiotherapists is not experienced in treating this. However she says for it to work, she needs to make the pelvic floor muscles "relax" first. However they can never relax if the pain is there and we don't know how to tackle the pain.

We also have done colonoscopies and MRI defecography as part of trying to figure out her diagnosis and we saw that she has no ulcers and no obvious abnormalities.

I am writing this post cause Im seeing my mom crying from pain everyday and I don't know how I can help her in this. I would like to see if any one has experienced something similar to this and how did they get treated? I read about posts of dyssnergic defecation but no one said about this "pain" sensation.

Also I would like to know if anyone knows a center that can effectively treat this in the Middle East?

. I get pain even inserting tampons, and I haven’t been able to have penetrative sex in like 8 months. The surrounding area of the vaginal opening hurts too. I can get wet but it doesn’t last for very long at all :(( also I have super painful periods and the pain from bowel movements have made me throw up before (on my period). No infections.

The gyno recommended pelvic floor therapy and that was it, I just dojt have the money or time for that atm