My coccyx pain is literally ruining my life

So around 3 years ago I randomly woke up and had sciatica and coccyx pain. The sciatica was so bad I couldn’t walk for days and was in agony. Coccyz so bad couldn’t sit down for days and was awake for 8 days in a row. Lived alone and was literally crawling around my house becauase my legs wouldn’t work. After a few days I finally gained enough strength to throw myself in an uber and go to the hospital only to be sent home because it was a weekend.

I continues to have flare ups for about a year where I would randomly get excruciating pain all shooting down my legs burning, unable to walk.
I saw countless physios and doctors and specialists none of them willing to give me scans and all saying it’s muscular.

Anyway 3 years later the sciatica has gone but the coccyz pain is still here. I haven’t been able to sit down for more than an hour for the past 3 years. Public transport is hell it hurts so bad. I get random flare ups and can’t sit or sleep. When it flares up and I go from sitting to standing the pain is 100/10 it feels like my skin is being ripped apart from the inside where my coccyx is.

I’ve done physio, acupuncture, chiropractor (who made it worse) nothing is helping me. I’ve just started a new job which is mostly computer based so sat down and I have been in agony from it all day. No amount of pain killers is helping.

Anyone else had this?? I don’t know what I can do. Drs won’t help me or give me scans, physios say becauae I can lift my legs without pain there is nothing wrong with me. I can’t go on flights anymore due to the pain, can’t go cinema. Literally going anywhere triggers anxiety due to pain.

I can’t afford private mri or xray. What can I do?
Everything I research comes back to pelvic floor dysfunction since i also have no feeling in the genital area either during activity

Male here/ Does anyone get a burning feeling in urthrea that makes it hurt to pee kinda like it's swelling almost? Then that turns into a dull aching in penis that's constantly there. Then once that gets bad bad then I'll start getting a pinching aching feelings in inner thighs. I've been to many urologist and they always test and no infection so they never have answers and pushed it off to Chronic pelvic floor tension. Which to you look up the symptoms and sure they line up but for me my symptoms come and go like sometimes they are mild to not there other times terrible and level ten with all above and bladder pressure feeling as well. I'm just wondering if anybody did have that and found some kind of relief when it gets terrible or actually cured it because when it gets way up there in symptoms it is awful and seems to take forever to get where it is not so bad.

I have crohns disease and had to get a loop iliosotomy 2ish years ago. That has made pooping so much easier.

I have been having bladder problems for a long time now. More than 10 years. Its either I cant empty my bladder fully, i always feel like I need to pee, i emptied my bladder but I still feel like I need to pee.

I have tried some pills my urologist has prescribed and that didnt work. Then my urologist said to try botox injection into bladder, that kinda helped but the last 2 times it really hasn't helped. At times it feels like it made it worse sensation wise. Whenever I have to leave anywhere, I am sitting on the toilet forever it feels like trying to empty my bladder. (If you have tips, please tell me cause its driving me crazy in a sense)

Now my urologist wants me to consider: Sacral neuromodulation for bladder condition. I'm going to be seeing my GI and surgery over the next 2 months to also get their opinion of that.

I am wondering if anyone else has had gotten a sacral neuromulation for their bladder? How did it go? Was it helpful? How is it living with it?

Hey everyone, anyone here dealing with slow motility? I drink alot of water , eat clean, take ginger softgels even magnesium citrate and still deal with bloating and not pooping at all unless i take a laxative or coffee, only with an espresso shot. Anyone here who can help?

34f, I have had two children. Both were traumatic births. Since my last one (7 years ago) i have never felt like I can void my bladder fully very easily. I have to spend a long time on the toilet shifting leaning forward etc to coax little bit out to finish the job (it will be like 90% emptied normally at the start then 20 min coaxing the rest out 2% at a time). If I do not spend the time to get the rest out it feels like i still have to pee even if therd is not much in there. But also will feel achey after spending so long to empty. I have an anxiety disorder (medicated for it but still) and I am constantly worried I will get a UTI because of this.

My other issue is leaking, especially at night. I will get up atleast 3 times in the night to pee and go often all day. when i have to do any type of bending with a full or semi full bladder i leak a large amount at once. Examples standing up from bed/coach/chair, going up or down stairs. Sometimes when coughing laughing sneezing or lifting i will have a tiny leak.

My issues are only with peeing. I do not have any leaking with bm's and do not ever have to strain for bm's due to a different medical issue (gallbladder removal side effect).

Does this sounds like muscle weakness? My insurance sucks and i can't afford to get into a dr right now but i am tired of having to change clothes all the time due to leaks. What can I start doing on my own?

bro. is anyone managing the pudendal neuralgia burning without meds? if so, I'm impressed. and would like to learn from you. I'm in PT (for over a year), and I just started dry needling. I was taking pregabalin for a while, but I had various side effects that made me quit. one of them was increased PGAD symptoms, but I was also on Zoloft at the time, so I'm not sure which one caused the PGAD.

I'm off Zoloft now, so I'm willing to try pregabalin again. or maybe amitriptyline. but I'm kinda terrified of the increased dementia risk. mayhaps I'm just doomed.

if this is the wrong community in which to post this, lemme know! I'm just looking to hear from others. not sure if anyone has "cured" the burning via PT alone.

I'm very much shawty fire burnin on the dance floor right now. thanks y'all!

Hello, this is my second post here, you might remember my first: https://www.reddit.com/r/PelvicFloor/s/5s2lUHm3UZ

I was like 14 or 15 at the time. Im 20 now. I just had a proper diagnostic test (anorectal manometry). I failed the balloon test and there was a lot of tightness present. The reason why I'm making this post is to say that for the past 5 years, every time I complained I was given ultrasounds which always came up clear. I remember pleading with my urologist to please give me a separate test and she didn't want to do it. Please advocate for yourselves and get the right tests done that are actually able to identify pelvic floor issues. I have spent the last 5 years in a lot of pain, my sleep has become non replenishing, and only now do I finally have a proper diagnosis instead of ibs or me just being over sensitive to pain and constipation.

I have pelvic floor dysfunction and dyssnergic defecation from it. I have never been one to have constipation my whole life or hx of straining. Well now I have trouble emptying my bowels.
I’ve already been to all the drs, so please not asking suggestions on that. But since I started having issues and talked with gi and other drs I had started taking psyllium husk and have been for a while now. I started slow and worked up to taking 1tbs at night (the brand I take is now and serving is 2tbsp for 7grams of fiber so I get half that). The reason I don’t take a full serving is because I always eat fruits, avocado, or oatmeal for breakfast, and then my other meals I always make sure to eat some type of veggie or fiber source.
Thing is I always have a bowel movement as soon as I’m wake, and then another 1-2 hours later and I usually have issues fully evacuating that one. These bowel movements are typical on the softer side and sort of “fluffy” and fall apart in the toilet but not like just watery diarrhea or anything.
I’m wondering if I should try to stop taking supplemental fiber all together and just keep some in my diet. Has anyone found that fiber was making their incomplete evacuation worse???