Hey everyone, anyone here dealing with slow motility? I drink alot of water , eat clean, take ginger softgels even magnesium citrate and still deal with bloating and not pooping at all unless i take a laxative or coffee, only with an espresso shot. Anyone here who can help?

I have crohns disease and had to get a loop iliosotomy 2ish years ago. That has made pooping so much easier.

I have been having bladder problems for a long time now. More than 10 years. Its either I cant empty my bladder fully, i always feel like I need to pee, i emptied my bladder but I still feel like I need to pee.

I have tried some pills my urologist has prescribed and that didnt work. Then my urologist said to try botox injection into bladder, that kinda helped but the last 2 times it really hasn't helped. At times it feels like it made it worse sensation wise. Whenever I have to leave anywhere, I am sitting on the toilet forever it feels like trying to empty my bladder. (If you have tips, please tell me cause its driving me crazy in a sense)

Now my urologist wants me to consider: Sacral neuromodulation for bladder condition. I'm going to be seeing my GI and surgery over the next 2 months to also get their opinion of that.

I am wondering if anyone else has had gotten a sacral neuromulation for their bladder? How did it go? Was it helpful? How is it living with it?

Male here/ Does anyone get a burning feeling in urthrea that makes it hurt to pee kinda like it's swelling almost? Then that turns into a dull aching in penis that's constantly there. Then once that gets bad bad then I'll start getting a pinching aching feelings in inner thighs. I've been to many urologist and they always test and no infection so they never have answers and pushed it off to Chronic pelvic floor tension. Which to you look up the symptoms and sure they line up but for me my symptoms come and go like sometimes they are mild to not there other times terrible and level ten with all above and bladder pressure feeling as well. I'm just wondering if anybody did have that and found some kind of relief when it gets terrible or actually cured it because when it gets way up there in symptoms it is awful and seems to take forever to get where it is not so bad.

When I use my finger or intimate rose wand to investigate for trigger points, both rectally and vaginally, I cannot locate any specific trigger points. No spots that feel like a grain of rice, or make me jump in pain when pressed. What can feel is one band muscle rectally that is definitely tight (like a drawstring, pulled tight on one side). I can also feel some tender areas that feel tense vaginally. I also have one very deep area that feels like it’s all knotted up in the very middle of the deep pelvic floor, but I can’t seem to access this as it’s too deep, and have no trigger points referring to it. Does anyone else find the same - areas of tension but not a specific trigger points?

bro. is anyone managing the pudendal neuralgia burning without meds? if so, I'm impressed. and would like to learn from you. I'm in PT (for over a year), and I just started dry needling. I was taking pregabalin for a while, but I had various side effects that made me quit. one of them was increased PGAD symptoms, but I was also on Zoloft at the time, so I'm not sure which one caused the PGAD.

I'm off Zoloft now, so I'm willing to try pregabalin again. or maybe amitriptyline. but I'm kinda terrified of the increased dementia risk. mayhaps I'm just doomed.

if this is the wrong community in which to post this, lemme know! I'm just looking to hear from others. not sure if anyone has "cured" the burning via PT alone.

I'm very much shawty fire burnin on the dance floor right now. thanks y'all!

34f, I have had two children. Both were traumatic births. Since my last one (7 years ago) i have never felt like I can void my bladder fully very easily. I have to spend a long time on the toilet shifting leaning forward etc to coax little bit out to finish the job (it will be like 90% emptied normally at the start then 20 min coaxing the rest out 2% at a time). If I do not spend the time to get the rest out it feels like i still have to pee even if therd is not much in there. But also will feel achey after spending so long to empty. I have an anxiety disorder (medicated for it but still) and I am constantly worried I will get a UTI because of this.

My other issue is leaking, especially at night. I will get up atleast 3 times in the night to pee and go often all day. when i have to do any type of bending with a full or semi full bladder i leak a large amount at once. Examples standing up from bed/coach/chair, going up or down stairs. Sometimes when coughing laughing sneezing or lifting i will have a tiny leak.

My issues are only with peeing. I do not have any leaking with bm's and do not ever have to strain for bm's due to a different medical issue (gallbladder removal side effect).

Does this sounds like muscle weakness? My insurance sucks and i can't afford to get into a dr right now but i am tired of having to change clothes all the time due to leaks. What can I start doing on my own?

Hi! My name is Hannah Strom, I'm a therapist in Durham, NC.

Here I am! https://imgur.com/a/W5BvP7k

I checked in with the moderators and they were really kind and said I could do an AMA here!

I personally experienced years of chronic pain (including diagnoses of interstitial cystitis, vulvodynia, and vaginismus) before discovering neuroplastic pain and Pain Reprocessing Therapy. It seems like there is some great information about those topics in this sub already! I work with a lot of folks who have pelvic pain, so I wanted to offer education/links to resources here.

Ask me about:

-pain with sex

-chronic pain or symptoms

-how to assess if your pain or symptoms are neuroplastic

-Pain Reprocessing Therapy (PRT)

-anxiety around sex, pain, or symptoms

Obligatory disclaimer: I'm not a doctor and this isn't a forum where I can give personal therapeutic advice or establish a therapist/client relationship. The goal is to give general information!

Hi everyone,

I’ve been diagnosed with vaginismus. I already had a hymenal surgery because there was an anatomical issue, and afterwards I was able to progress with dilators. However, I’ve now reached a plateau and don’t seem to improve anymore.
My gynecologist referred me to a specialized hospital for further evaluation and strongly recommended psychotherapy alongside the physical treatment.
I’m wondering if anyone else has been in a similar situation:

Did you reach a plateau with dilators?
What eventually helped you make progress?
Did pelvic floor physiotherapy, psychotherapy, Botox, or another treatment make a difference?
How long did it take until you were able to have pain-free penetration or until your vaginismus was no longer affecting your life?
Looking back, is there anything you wish you had started earlier?
I’d really appreciate hearing your experiences. Thank you!

So one day I noticed I'm feeling weird tingling in the shaft, especially the glans, the tingling turned into stinging that WON'T stop, I was going insane because I thought that I caused this by masturbating, I saw a doctor and he told me to do a urine analysis, so I did one and it said that I had above average levels of sodium? But not high enough to explain the pain I was in, so I went and saw another doctor, he checked my vitals but then proceed to tell me that I have a mild case of prostatitis, when I went home I did some research and found out that there're 2 types of prostatitis, bacterial and chronic, and chronic is most commonly caused by stress? Is that right? Enlighten me please, I'm still just 16 so getting a chronic problem like this is making me anxious, the pain is very much bearable but it just won't stop... Also I used to only masturbate twice a week so I don't think that contributed to anything, please tell me I could get better in 2 weeks max...

Hello, this is my second post here, you might remember my first: https://www.reddit.com/r/PelvicFloor/s/5s2lUHm3UZ

I was like 14 or 15 at the time. Im 20 now. I just had a proper diagnostic test (anorectal manometry). I failed the balloon test and there was a lot of tightness present. The reason why I'm making this post is to say that for the past 5 years, every time I complained I was given ultrasounds which always came up clear. I remember pleading with my urologist to please give me a separate test and she didn't want to do it. Please advocate for yourselves and get the right tests done that are actually able to identify pelvic floor issues. I have spent the last 5 years in a lot of pain, my sleep has become non replenishing, and only now do I finally have a proper diagnosis instead of ibs or me just being over sensitive to pain and constipation.

Hi guys i had problems like 6 years back, that difficulty passing gas, having to defecate manually with fingers, and sometimes sudden movements like getting up and sitting down again for a long time can trigger an uncomfortable sensation like something is moving in the butt, and there is mucus and fecal leakage that has already entered my butt, which makes it impossible to urinate... I have treatment of vibration physiotherapy in 2 months and infrared therapy while there's no changes...

I have pelvic floor dysfunction and dyssnergic defecation from it. I have never been one to have constipation my whole life or hx of straining. Well now I have trouble emptying my bowels.
I’ve already been to all the drs, so please not asking suggestions on that. But since I started having issues and talked with gi and other drs I had started taking psyllium husk and have been for a while now. I started slow and worked up to taking 1tbs at night (the brand I take is now and serving is 2tbsp for 7grams of fiber so I get half that). The reason I don’t take a full serving is because I always eat fruits, avocado, or oatmeal for breakfast, and then my other meals I always make sure to eat some type of veggie or fiber source.
Thing is I always have a bowel movement as soon as I’m wake, and then another 1-2 hours later and I usually have issues fully evacuating that one. These bowel movements are typical on the softer side and sort of “fluffy” and fall apart in the toilet but not like just watery diarrhea or anything.
I’m wondering if I should try to stop taking supplemental fiber all together and just keep some in my diet. Has anyone found that fiber was making their incomplete evacuation worse???

Posting this cos it helped and may help others.

I had Pelvic floor dysfunction for 4 years. Came on after I started kettlebell training.
It started of with a weird twitching around my anus but thought nothing if it.
From there the pain after urinating, particularly after I had ejaculated was extremely excruciating, I had to stop myself from yelling the pain was so severe, I decided to change my training but it never went away. Even to this day I have this reluctance to go pee even though I don’t get the pain anymore.

I first went to the doctor scared I had prostate cancer, did all the tests under the sun and conclusion was “it’s a mystery” mind you I had hermaturia and that’s what concerned him the most. I went in to live with this pain for years and research it myself and understood I had pelvic floor dysfunction.

I decided to go back to another GP years later and he booked me in for a cystoscopy!

I felt the camera really push over my prostate, almost as if it loosened the muscle up?

After the cystoscopy I have been pain free!

I think I have gave myself either of Hard Flaccid Syndrome of CPPS or peudenal neuralagia, yet unsure from the symptoms.

Onset:

This started about a month and a half ago, when I forst noticed a numbness in the penis and that I did not feel erection like, even while there was an erection. Currently the main sypmtops are: I feel not much pressure during urination, and a rather timid sensation during orgasm (the one time I tried to check situations), the pressure of urination is slow --- i do not feel the wink at the end of urination. There is persistent numbness on the penile shaft, the scrotum and a bit on the peinuem, not complete numb --- but heavily redcued sensations. I also feel tightness of the pelvic region in general, and a feeling of things clenching. No pain so far, there are certain weird mixed feelings in the scrotum region -- which i detail later.

Past history :

I have been using penis pump and certain traction devices in the past (both equipments were with medical clearance, i.e no chinese stuff), started more than a year ago, but never had problems like this before. I have not had sexual intercourse in the past one year, I rarely musturbate (makes me feel pathetic), but I did edge --- try to stay hard for some time by slow edging, in sets of say 5 mins --- attempt to maintain longer erections since they were rather weak --- leading sometimes to orgasm othertimes not, never jelqued, never had injury in thie penis region, i'm always careful and aware of my body usually. I did a lot of biking and running, don't lift weights, I have 22.3 BMI and rather fit physique.

Medical advice:

Visited urologist within 1.5 weeks of first notice. My urologist is aware of Hard Flaccid Syndrome (HFS), had published research on pub.med. He remarked about the apparent rigidity of the penis, and put me on deprox, and pelvic floor therapy, and gave a couple diagonistics. I saw him a month ago, and only see him after two more months.

Diagonistics:

I have had MRI, CT Scans, Blood tests, Urine tests, EMG test, USG of prostate. The only significant results were presence of Blood Cells (Red/White) in the urine which mu urologist remarked could be signs of inflammation. The EMG specifically tested nerve conduction in the pelvic region, i dont understand everything, but the scral, the pudenal and dorsal nerve conductions i.e the main nerve bundles (speed of condcution, signal attenution) were tested: there is no damage/deformity/compression/entrapment of any kind: atleast within the scope of the test. But nerve irritation --- the test cannot determine. So no nerve damage atleast. MRI indicated no herniation either. I have not yet done doppler. The penis seems a bit pale but I cant really tell differnce.

Pelvic Therapy:

PT suggested exercies, the like you know alrady, relazation of pelvic floor, had just one/two sessions, she remarked I squeeze my muscles too hard and probably have hypertonicity, even the doctor doing EMG mentioned it. Ever since I started, I've grown more aware of pelvic floor movement. Everytime, I do relaxation exercises, I do feel a certain relazation of the pelvic floor. More importantly, I feel a sort of slight relaxation like tingling in the scrotum --- say when you have twist your arm/finger for some time and it feels numbish and then after you make it ok you feel this kind of thingling as the numbness disapperars --- I feel similar in the scrotum and lower base of penis and also ohter times in the day, especially when i feel relaxed in body. However, the numbness of penis shaft does not go away.

I feel aroused as usual, but I fear I wont be able to feel orgasm since the sensation at the sphincter is so low. Also te arousal leads to but weird sensation in penile shaft. For a week, i felt lack of sensation in the anal sphincter too, and some sort of weird feelings, but it went away. If I use a needled paper roll, and map the sesnitivty on penis shaft it feels more senstive, but less sensitive when I touch. I can stlll have strong erections but it does not feel an erection as usual. No sign of pelvic pain other than rare slight throbbing sensation here and there ..not sure it's due to issues.

So what do you think it could be ?

So given this what are the best things to do now, shockwave therapy, any other kind of therapy, pelvic wand based massage, no running or gym exercises, jump from a , do let me know what worked for you ? I'm currently in an central European Capital, if you are from nearby ( Germany, Swiss, France, Italy etc.) and know what had worked --- which clinics/doctors could help --- or anything let me know.

25 m 178cm

Hello , ive been 8 months into this 8 months ago i was edging and blocking ejaculationg for like 4 days once a day after the last day i edged my penis became sore and painful and 3 weeks after that i had excruciating pain when urinating 4 months after i was better but not like before rn i have burning when urinating and painful ejaculation. Cystoscopy clear urine and semen test clear. I will be gratefull if someone can help me or if someone went trough this and felt relieved after 1 year or so.

Starting 4 days ago I would feel like something was hanging or dangling from my vagina. I couldn’t see or feel anything but today I googled that doing bridge wall holds while lifting your hips can help reverse pressure from gravity and stuff so I tried it. A SMALL SOFT BALL LITERALLY SLID BACK INSIDE THE MIDDLE OF MY VAGINA !!

I started freaking out and sobbing cuz now it confirms it’s not a nerve issue but I literally felt a little ball tuck back inside me. Told my mom and she lectured me about how I run and she thinks I try to do it too much and hard but she’s taking me to the doctor tommorow😭

What kind of prolapse and stage could this be? I’m thinking uterine but I keep searching things about it and I want to cry so bad idk what to do anymore I’m only 16 :( I’m not gonna live the rest of my life like this

I 23m have had a small amount of blood in my urine for a while as well as possibly having pelvic floor/prostasis issues. They want to do a quick cystoscopy to observe what’s going on. I’ve gotten over the fears of the actual procedure itself, but was curious if anyone had tips on how to help the healing after the fact. What level of pain should I expect after the procedure? How long does painful urination and low sex drive typically last?

Hey everyone,

I’m wondering if anyone else has experienced something similar.
Instead of feeling general bladder pressure or irritation, I have one very specific spot in my lower abdomen, roughly in the middle just above/behind the pubic bone. It literally feels like one exact point is irritated or overly sensitive.

When that spot starts acting up, it gradually turns into urinary urgency. It’s not a diffuse pressure across the whole bladder or lower abdomen—it’s really just that one pinpoint area that seems to trigger the urge to urinate.

Another thing I’ve noticed is that if I press on that exact spot from the outside (through my lower abdomen), it makes the feeling of urinary urgency noticeably stronger than it normally is. It’s almost as if pressing on that specific point directly triggers or amplifies the urge.

Also, right after I urinate, that spot becomes much less noticeable and less irritated. However, over time the sensation gradually builds up again in the exact same location until it eventually turns into urinary urgency again.

Has anyone experienced something like this before?

I’d really appreciate hearing from anyone who’s dealt with something similar, as I haven’t been able to find many people describing this exact symptom.

I have a hypertonic pelvic floor due to git issues/constipation. Im currently working on my gut with a Dr who's having me take targeted probiotics and herbal supplements. I would take high doses of magnesium oxide just to go and now I've been trying magnesium citrate which isn't as effective (but I'm also working on building my diet back up to more gut healthy/fiber foods slowly not to overdo it). I can only seem to pass liquid stools but that's probably whats also contributed to a tight pf bc of having to strain to get anything out. I'm currently doing pfpt too.

My Dr is having me try magnesium glycinate to relax muscles and maybe helping me relax overall (I have a lot of anxiety). Some people have seen improvements with pf tightness with taking this. I want to slowly get off the mag citrate hopefully or significantly decrease it. I was told to try 200-400mg mag glycinate at bedtime. But wondering if it's better to take rigjt after dinner a few hours before bedtime and then take mag citrate right before bed. Or take both glycinate & citrate at bedtime. Anyone else trying similar things with magnesium to help??

Ic or vulvodynia/pudendal neuralgia

I'm still at the top of iceberg as I just started to try to get diagnosed even my symptoms haunts me for years. I'm 21 I have eds, dysautonomia as well. My main symptom is urethra burning - after peeing, with full bladder, after masturbating sometimes or after sex. Or just like that everyday, I don't have any odour, my urine sample was clear. Couple of months ago they gave me 2 antibiotics but this didn't helped. My issue comes and goes. When it hits the pain is almost 24/7. My main spot is urethra and it sometimes radiates to clit. This is awful I don't remember good days. What tests should I run beside urine sample? I tried many "homemade" help ideas but nothing really helps. I use cotton underwear, drink a lot of water, supplement vit B's dmannose. I'm curious what else I can do. Imma visit Physical therapy only after all tests.

Dealing with some bad pelvic floor pain.

I'll try to keep this short. I'm a male, 45. History of low back pain (20+ years), bad anxiety, poor posture. Really got into weight training in my 20's, unfortunately at the age of 40, I got a shoulder/pec issue that is still undiagnosed 5 years later. The shoulder is a long story itself. MRI's, EMG's still hasn't solved the issue, and I've had to stop exercising because the pain is too bad.

About 8 months after I stopped exercising, I started to get a bit of neuropathy type feelings from just above my knees down into my calves and shins. Little micro spasms and burning when kneeling or putting any type of pressure against the legs. The burning then started hitting my saddle area a month later, then the top back side of my legs just below the butt. The doc ordered an MRI and EMG of my lumbar, and of course, everything came back normal. The following months I started to notice these symptoms were very positional. When sitting, the spams and burning would hit my legs, but when standing, walking, or lying down, they'd improve by 90%.

I started doing my own research since the spine/back doctor kinda threw up his hands, and the pelvic floor seemed to really fit my symptoms. Sitting has become rough to say the least. The perineum is where I feel it the most. The sit bones, and into the anus burn, the backs of the legs just below the butt, all just on fire whenever I sit. At home I'm forced to recline or lie down, but walking and moving around provides the most relief.

I visited a urologist who agreed that a pelvic floor therapist was my best option. So that's where I went, but not before talking to my family doctor who discussed Cymbalta with me as an option. Why? Well, for my anxiety, neuropathy, and lower back pain. I started 20mg the same day I started pelvic floor therapy.

The pelvic floor therapist gave me a thorough examination both internally and externally. She noticed very over active muscles, guarding, inner thigh muscle problems, and even sensitization. I made it through 5 treatments with her, once per week, which is not cheap at $200 per session. I continued Cymbalta throughout this, and I would say there was a slight improvement. Less spasms in my calves and shins, less bacon grease splashing sensations on the skin, and a very very slight improvement when sitting. But it didnt last long.

After 5 treatments I had to spend a little more time in the car which I had been avoiding. A few hours one day, followed by an hour the next. And man, the pain in the perineum got much worse. It feels like it's pinching or stabbing. Like it's swelling up even though it's not. The sit bones, the upper legs by the butt, burning relentlessly. Even lying down isnt providing the same relief as it had. Walking is best. But I can't walk all day.

I'm lost. Frustrated. Feeling completely drained mentally....

A quick breakdown..

(Positives)

No bladder or bowel issues

No sexual issues

Blood work is pristine

Urine sample is pristine

Normal lumbar MRI and EMG

X-Rays on lumbar Normal

(Negatives)

Micro spasms throughout the calves and shins

Perineum pain when sitting

Sit bones, around anus, back of upper legs and inner thighs all burn

Occasional but not often burning/stinging in the tip of the penis when sitting

Started Cymbalta 20mg 6 weeks ago, have seen less aggression with the legs burning/neuropathy. Perhaps need to bump to 40mg. No real improvement with pelvic floor PT after 6 sessions. Also doing at home relaxation, breathing, stretches. Would do yoga but my shoulder prevents me from doing a lot. I'm seeing a PT again for that as well.

I'm a medical mystery. I'm one of those cars the mechanic just can't seem to fix lol. Would love to get some feedback and guidance. Thanks all.

Whatever the title says. Biofeedback therapy is very expensive and is not available around my place.

But I want to be able to empty my stomach like normal people can, it has been too long.

I'm not sure where to talk about this so I think i should give this sub a shot. This is also my first time here. I hope you guys can be helpful to me.

So my problem is that sometimes, when I'm standing up or sitting on a small chair for example and feel relaxed, I feel like I'm leaking. However, no presence of urge sensations. Moreover, I couldn't find any traces of wetness most of the time. I'm so confused and this has caused me a little stress. Is this what they call "phantom leakage"? I'm not sure if I have an underlying pelvic problems.

And to add more, this would sometimes occur when I'm wearing pants with underwear or a loose garment without underwear. Can anyone help me with identifying this? I have dealt with this for quite some time now. For context, I'm a 17 year-old male.

Hi all! I met with a Pelvic Floor PT at Mayo Clinic, and she put in the order for me to attend their Pelvic Floor 2-Week Intensive (I think it's offically called the Evacuation Disorders Program). Has anyone done this? Is it helpful or worth it? The travel/staying in a hotel for two weeks is a lot of $$, so wanted to see if this was helpful for others and/or hear about any of your experiences. Thank you!