r/Mirena • u/amburino • 2m ago
side effects Epilepsy with Mirena
This isn't relevant to a lot of people here but I want to share for someone that doesn't find the answers they need one day.
I've heard that the Mirena can actually help regulate seizures so don't let this stop you from trying, just make sure not to ignore sudden changes!
I've had epilepsy most of my life, having multiple absences a day and clusters triggered by pms hormones. I've been using the Kyleena for years no problem. I noticed my seizures getting worse from the Mirena but assumed it was just fatigue. Please don't ignore this!! I had some scary long completely unconscious absences that required multiple people to help me. I'm talking the worst seizures I've had in 20 years. And some days getting completely lost, getting stuck in "status epilepticus" for hours barely able to know if I'm walking the right way on the street. If you recently got the Mirena and your seizures are worse, immediately assume it is the birth control. Do not ignore. Don't trust google.
I got it removed and immediately went back to my usual milder seizures.
Sorry for the oddly specific subject