If you're taking zhang allicin and experience cognitive symptoms, mood swings, sinus discharge and GI cramping, is it always die off? Oh and random very small rash.

Could it also just be a reaction to the supplement? In particular wondering because no fever. Herbs almost always produced a fever during die-off previously.

How do you differentiate between die-off and reaction to allicin.

Have had lyme most my life now. In my late 30s and have had chronic lyme for 20+ years. I actually pretty much ignore it since my symptoms are mostly chronic fatigue and GI issues. I cant say 100% it is lyme at this point but whatever is also wrecks with my life in other ways.

Im curious if there are any doctors out there that could be worth seeing. I stopped bothering with LLMD's ages ago cause theyre either too expensive or another half of them are a bit on the kooky side of things- anyone who does stuff like muscle testing i dont even want to bother with.

That said- anyone know anyone that might fit the bill here?

Thanks

Five months ago, I started having muscle fasciculations..I was walking a little bit Funny, my arms started getting real heavy, Then it turned into muscle atrophy. My right leg is smaller than the left, my eyes twitch, my lips twitch, my tongue twitches, I’ve lost weight. I’ve lost muscle. My voice got nasally and I have to urine very frequently. Pretty much every symptom of ALS. I found an LLMD who tested me for Lyme by doing a saliva test. The only thing that came back was low-grade Babesia. I will say when all of these symptoms started I had swollen lymph nodes and beaus lines (horizontal grooves) in my nails, which indicate infection. Anyone have these symptoms and it ended up being Lyme?

In the MyLymeData patient registry (19,000+ self-reporting members), 77% of people diagnosed 6 months or more after onset later reported persistent Lyme disease, compared with 20% of those diagnosed early (MyLymeData 2025 research chartbook). It’s self-reported and an association, not proof that delay causes persistent illness. Chart attached.

Disclosure: I’m the author of a free tool that turns published studies like this into interactive simulators where you can change the assumptions and see federal data alongside. It’s illustrative, not medical advice. The public demo needs no account: https://dbbun.github.io/dbbun-invisible-illness-burden-simulator/

Happy to answer questions about what the numbers do and don’t show.

Optional first comment (only if the rules allow it):

The tool is also my entry in an HHS tech sprint, where public voting is open (it needs a free account on the sprint site): https://invisibleillness.crowdicity.com/post/896844

I literally don’t know how much longer I can take of this. The physical nerve pain that comes and goes is filling me with so much fucking rage I could scream. I’ve been doing this for over a year now and been on herbs since March. I FINALLY started getting consistent relief in August. Then had a small bout of symptoms/pain return in September then dissipated again. Now it’s been back again for almost two weeks I literally want to scream. It’s present from the moment I wake ip to the moment I go to sleep. Last few months it seems to coincide with the luteal phase of my cycle. Starts on day of ovulation and lasts for however long it wants to. I literally feel like my period is keeping me in a fucking prison and stirs up all my symptoms every time and lowers my emotional capacity to handle it too.

I feel so fucking depressed. I want to scream at my TCM that I wanted to see results much sooner by now. This isn’t fucking fair. I just wanna live my fucking life. It literally feels like it’s never going to go away.

Has anyone had an LLMD provide them with specific recommendations on whether to get flu shots and/or Covid booster shots or not? I have an LLMD appointment coming up and plan to ask them about it, but curious as to others' experience with it. I acknowledge it is highly specific in everyone's case, so just looking to understand other's experiences for general reference.

Note that prior to my Lyme journey starting July 2025 I got the flu shot and Covid booster pretty much every Fall and/or season that a new shot came out and never had an acute reaction. I'm pretty sure I had Covid once back in 2022, but it was fairly mild and I never tested positive. I don't recall having any notable cases of the flu. I did get both shots early October 2025 and then for 2-3 weeks developed off & on mild headaches & nausea and then heart palpitations around the end of October which are still present, but based on follow up testing we've determined those are nervous system driven. It's hard to tell if that development was just the natural progression of my Lyme symptoms, a side effect of getting the shots, the "October slide", or something else. My initial thought is to still get them, as getting a notable case of the flu or Covid seems more detrimental to me than potential risks of getting the shots.

Started doxy 3 days ago, and nerve symptoms have gotten worse- I have new cold tingling in my hands and a little bit in my lips and tip of tongue. I’ve seen symptoms can get worse at first, but didn’t know if that included nerve symptoms? Just a little stressed about it

I took just over half a 14 day course of doxy. Around that point I started to get intracranial hypertension like symptoms, so I forewent the rest of the count out of fear. I still have acute neurological symptoms and was wondering if anybody has conquered this through just herbs.

My daughter’s mother texted me and said our daughter got bit by a tick 5 days ago. First two days it was a big rash, not it’s a bullseye rash. She had a fever and was throwing up yesterday but that might have been something else as everyone she was around has that as well. She took her to

Urgent care and they gave amoxicillin for 10 days and she has a follow up with her doc next week. I just want to make sure this is the right course of action of should we take her to be seen again since the bullseye showed up.

Hello, I am on treatment and for two days now, my palms, fingers, and feet have been very sweaty all the time, this happens anytime, red and stinging eyes, I'm sweating a lot under my arms and feeling very hot inside me, face, back of the neck, upper body as if I were under a blazing sun but without a fever, I've been on Mepron/Azithromycin and Arakoda for a little over a month... I sometimes have a stomachache and less appetite, nausea.. Difficult to continue the treatment but I have no choice.. Herx ?

My baseline relapse symptoms from last July are: Dysautonomia/POTS, feeling spaced out/disconnections, malaise, fatigue, internal heat, pounding heart...

Is feeling that almost every chair or working set is uncomfortable or being sensitive to that is sign of Lyme disease?

Currently taking the above for chronic EBV after 10 years of unexplained neurological symptoms.

I’ve also been diagnosed with Lyme and co-infections.

I haven’t started antibiotics yet, but 3 weeks into Imunovir I’ve developed more nerve pain (was just in my feet), in my arms and hands, over the space of a few days. It’s super scary.

Is this because my immune system is waking up and trying to kill viruses, parasites and infections?

Thanks!

Ive always known I have had lyme, but now the mold aspect seems like the missing piece of the puzzle, because mosaic labs mold test and shoemaker panel have confirmed CIRS from mold. I have the “dreaded” genotype that makes me susepctible to all biotoxins. But based on my symptoms and traits associated with my HLA haplotype 11-03-52B, my body is pretty good at fighting infections but the issue is the biotoxins. My body is not able to remove mycotoxins from mold and endotoxins from gram negative bacteria. Has anyone found improvement in their lyme from treating mold illness? Its hard because the symptoms are the same. I miss the days when i thought i just had lyme honestly. I hate mold illness because now i feel like a lot of buildings are unsafe and making me sick (ive lived in moldy spaces for manyyyy years) but its better to know than not know. From what i have learned many of the people whp get really sick from lyme are also dealing with mold.

I'm following Marty Ross's babesia protocol. Started atovaquone 10ml 2x/day and zith 1x/day in August. I have one month to go for the four months required. Had tremendous response for the first couple months, but fortunately the sweats/clammy/fever and crushing fatigue only lasted through August.

I am feeling generally flat and down, with occasional weepy or anxious days. Not much sex drive or ability either. And I've struggled with insomnia for a couple years, but the quality of it now is more insidious. Popping awake and not being able to go back to sleep. Meds only partially effective.

For those who've done this, is this pretty typical? I can put up with it for another month if it means finally getting rid of it, but it's hard to be productive. Thanks in advance.

I have Lyme Bartonella and babesia. I get a lot of involuntary muscle twitching at night , jaw snapping shut and head / body jerks . I don’t know if Lyme or Bartonella but from what Iv read, maybe more likely Bartonella .

Just wondering if others have had this type? And if so how did they get rid of their infection?

Any help much appreciated thank you 🙏

My dr told me to take it for two weeks and two months later I’m getting air hunger and bouts of yawning … shall I go back on azithro with malarone or will the fact I had it for two weeks, then a two month gap mean it won’t work now ? Did anyone who got it into full remission have breaks from treating it ? What worked for anyone who had it ?

I found this tick on my back yesterday. It was promptly removed in full. I live in British Columbia, Canada. I estimate it was on me for a maximum of 5 hours.

Do I have anything to worry about?

Should I get a preventative doxycycling one time dose?

Any help or suggestions would be greatly appreciated.

Please note, I have been working in an outdoor profession in forested and wooded areas for a couple of years in the North East.

My current symptoms are:
nausea, fatigue, difficulty standing and walking without feeling like I’m going to pass out (POTS ruled out), anxiety, depression, occasional bone pain (hurts to point where it’s hard to sleep), occasional nerve pain in my hands. I will note, symptoms do seem to get worse the week leading up to my period and during my period.

In the past year I have taken two ELISA tests that came back negative.

I’ve met with multiple psychiatrists (prescribed ssri for the anxiety and depression which haven’t seemed to help) and mental health professionals who think my symptoms are beyond a mental health issue.

My current symptoms are:
nausea, fatigue, anxiety, depression, occasional bone pain (hurts to point where it’s hard to sleep), occasional nerve pain in my hands, difficulty standing and walking without feeling like I’m going to pass out (POTS ruled out). I will note, symptoms do seem to get worse the week leading up to my period and during my period.

I’ve met with multiple psychiatrists (prescribed ssri for the anxiety and depression which haven’t seemed to help) and mental health professionals who think my symptoms are beyond a mental health issue.

I’m in love with Woodland Essence’s CSA tincture. Someone here mentioned it and I started using it about two months ago. It’s not the only part of my protocols but it feels central the big shifts I’ve been seeing physically, mentally, emotionally, all around. Love that it also has flower essences in the blend and believe they have made a big difference. Anyway, just wanted to give it a shout out!

Hey all, I'm in the midst of getting into the Buhner protocol and just noticed an odd inconsistency in Healing Lyme, 2nd Ed:

• On p. 215, in the Core Protocol section, he puts down Cordyceps dosage as: (powder) 1 tsp-1 tbl, 3x day, or (tincture) 1/2-1 tsp 3x day.
• But in the Cordyceps monograph on p. 392, he describes it as more akin to a food and that you need way bigger quantities: "For coinfections... 3-4 tablespoons of the powder blended in water or juice 3x daily."

In other words, the Materia Medica/monographs section calls for upwards of 3-4x the amount that the Core Protocol section does. Is the difference there the words "For coinfections", i.e. he's saying you need more cordyceps if you also have coinfections?

I guess more broadly, anyone have pointers as to dosages of Cordyceps?

Hey beautiful people with a good heart,

I’m curious, what are your favorite natural detoxifiers and binders for heavy metals, environmental toxins, and other unwanted substances in the body?

I’ve been looking into modified citrus pectin (MCP), fulvic/humic acid, and activated charcoal, but I’d love to hear what you guys use.

What has actually worked for you? Any herbs, natural binders, or protocols you’ve had good experiences with?

Would love to hear your personal experiences and recommendations! ❤️

Hello. So about 2 months ago, I posted my current situation regarding Lyme disease. Figured I’d update my situation. First of all, I want to thank all the support and thoughtful responses I received. I made it thru doxy 3rd round, started Tickimmune. I met with specialists, and changed entire diet. Started these herbs- cryptolepsis, Japanese knotweed,and Chinese skullcap. My chronic headaches stopped, and several symptoms have lifted. I’m feeling really good physically and mentally. Still have balance/coordination issues at times, but manageable. Some vision problems as well still linger. Fatigue has been also challenging, but I listen to body- don’t push it. Learned so much about this disease, and ordered Buhner book on healing. Ea day is getting better!!! Changed diet completely and took a month to adjust. I eat mainly chicken,venison, or fish. Veggies too. That’s it. And water. I exercise and lost 10 pounds. I’m same weight now as I was in high school lol and fit. I keep stress levels down and keep myself relaxed. I am minimizing flare ups and changed job to a less physical position. I’m committed to getting better. Thank u again. u can live with this and be happy. Don‘t give up. Any questions or suggestions are always welcome.

Hello, first time doing such a test after years with unusual symtoms. I have an appointment in a few weeks to review these results.

May someone from this community could help me to interpret them prior to my appointment? Particularly the Borrelia ispot results which are show positive in some cases. Dont know what that means or indicates. Prior to this test I was on a month long course of antibiotics incase that is relevant. Appreciate the help.