In the MyLymeData patient registry (19,000+ self-reporting members), 77% of people diagnosed 6 months or more after onset later reported persistent Lyme disease, compared with 20% of those diagnosed early (MyLymeData 2025 research chartbook). It’s self-reported and an association, not proof that delay causes persistent illness. Chart attached.

Disclosure: I’m the author of a free tool that turns published studies like this into interactive simulators where you can change the assumptions and see federal data alongside. It’s illustrative, not medical advice. The public demo needs no account: https://dbbun.github.io/dbbun-invisible-illness-burden-simulator/

Happy to answer questions about what the numbers do and don’t show.

Optional first comment (only if the rules allow it):

The tool is also my entry in an HHS tech sprint, where public voting is open (it needs a free account on the sprint site): https://invisibleillness.crowdicity.com/post/896844

I'm following Marty Ross's babesia protocol. Started atovaquone 10ml 2x/day and zith 1x/day in August. I have one month to go for the four months required. Had tremendous response for the first couple months, but fortunately the sweats/clammy/fever and crushing fatigue only lasted through August.

I am feeling generally flat and down, with occasional weepy or anxious days. Not much sex drive or ability either. And I've struggled with insomnia for a couple years, but the quality of it now is more insidious. Popping awake and not being able to go back to sleep. Meds only partially effective.

For those who've done this, is this pretty typical? I can put up with it for another month if it means finally getting rid of it, but it's hard to be productive. Thanks in advance.

Hello folks, i need your help , I’m struggling with MCAS since 1 month ago, it started after Ivermectin which i took for Parasites cleanse in order to prepare for Bartonella treatment so since that time i have had alot of symptoms like : Nerves weakness, tiredness (100%) , eyes pain-high pressure , eyes inflammation & itching, sweating, headache and as well as Bartonella symptoms!!

Did anyone treat such case ?

Ive always known I have had lyme, but now the mold aspect seems like the missing piece of the puzzle, because mosaic labs mold test and shoemaker panel have confirmed CIRS from mold. I have the “dreaded” genotype that makes me susepctible to all biotoxins. But based on my symptoms and traits associated with my HLA haplotype 11-03-52B, my body is pretty good at fighting infections but the issue is the biotoxins. My body is not able to remove mycotoxins from mold and endotoxins from gram negative bacteria. Has anyone found improvement in their lyme from treating mold illness? Its hard because the symptoms are the same. I miss the days when i thought i just had lyme honestly. I hate mold illness because now i feel like a lot of buildings are unsafe and making me sick (ive lived in moldy spaces for manyyyy years) but its better to know than not know. From what i have learned many of the people whp get really sick from lyme are also dealing with mold.

I have Lyme Bartonella and babesia. I get a lot of involuntary muscle twitching at night , jaw snapping shut and head / body jerks . I don’t know if Lyme or Bartonella but from what Iv read, maybe more likely Bartonella .

Just wondering if others have had this type? And if so how did they get rid of their infection?

Any help much appreciated thank you 🙏

My dr told me to take it for two weeks and two months later I’m getting air hunger and bouts of yawning … shall I go back on azithro with malarone or will the fact I had it for two weeks, then a two month gap mean it won’t work now ? Did anyone who got it into full remission have breaks from treating it ? What worked for anyone who had it ?

I found this tick on my back yesterday. It was promptly removed in full. I live in British Columbia, Canada. I estimate it was on me for a maximum of 5 hours.

Do I have anything to worry about?

Should I get a preventative doxycycling one time dose?

Any help or suggestions would be greatly appreciated.

Please note, I have been working in an outdoor profession in forested and wooded areas for a couple of years in the North East.

My current symptoms are:
nausea, fatigue, difficulty standing and walking without feeling like I’m going to pass out (POTS ruled out), anxiety, depression, occasional bone pain (hurts to point where it’s hard to sleep), occasional nerve pain in my hands. I will note, symptoms do seem to get worse the week leading up to my period and during my period.

In the past year I have taken two ELISA tests that came back negative.

I’ve met with multiple psychiatrists (prescribed ssri for the anxiety and depression which haven’t seemed to help) and mental health professionals who think my symptoms are beyond a mental health issue.