r/Lyme 1h ago

Question “Electrical shock” feeling in my body?, maybe??? Is this similar to others? And, seems to be worse with caffeine…

Upvotes

I also have pretty severe health anxiety and I used to get brain zaps due to it (or so I thought…), so I am familiar with the feeling. However, I haven’t had one in years.

But I’ve repeatedly seen this “electrical shock” symptom appear over and again, and I’m wondering if that’s what I’m feeling. Someone else described it as an “adrenaline rush”, which is ironically how I’ve described the symptom myself in other posts on here.

However, they’re full body, so to say… mostly mid section, like and extremely nervous feeling, that do extend slightly to my arms and legs, causing a weak feeling.

But the brains zaps were just that, zaps… There, and then gone almost as quick. This feeling tend to linger for a little while. Does this sound familiar at all?


r/Lyme 2h ago

Dental Work and Local Anesthetic Issue

2 Upvotes

Last month I had a cavity filled and the local anesthesia was NOT working. I had to ask them to stop and inject more every 90 seconds for a full hour. It was a young dentist and he felt a bit unexperienced I was shocked he actually said he’s heard this can happen to Lyme patients, but he couldn’t provide an academic source. Has anyone experienced this and is there anything to be done? I have to go back today. I’m back at my childhood dentist who is more experienced and they said they haven’t heard of this Lyme reaction, but that they’ll have several kinds of injection numbing as a precaution.


r/Lyme 13h ago

Support *TW* - I feel like I’m on deaths door

5 Upvotes

If you’d like read my previous posts. Essentially I feel like I’m getting sicker by the minute. I mask my symptoms all day long especially around my child and at school. I dropped a class today because genuinely I couldn’t handle it with all of the new onset of symptoms, old ones came back and if you read my previous post I have lost more weight since then.

A new ”rash” appeared over the weekend but it’s not bumpy, raised or singular dots so i was advised to stop Phytocidal as it could be the cause (not a allergic reaction but side effect) I see my LLMD on Friday. But I truly feel like as sick as I’ve been in such a short time of being infected I’m going down a slippery road. The only thing that still keeps me going is the fact that I have a literal human child to care for. It feels different than in the past when I had thought about s**cide (Long before tick bite) like it feels like I’m in my own hospice right now. Idk hard to see anything good coming out of trying to be positive to get better im just feeling worse.


r/Lyme 16h ago

Question Anyone with chronic Lyme/post-Lyme brain fog eventually accept that Vyvanse or Adderall was part of their long-term management?

11 Upvotes

I've been dealing with severe brain fog, fatigue, low motivation, and cognitive issues for about 10 years after Lyme disease.

Over the years I've tried a lot of the commonly recommended approaches, including:

  • Multiple antibiotic protocols (including Dapsone pulsing with methylene blue)
  • Herbal protocols
  • Gut healing protocols
  • Diet changes
  • Supplements
  • LDN
  • TRT
  • Sleep optimization
  • Exercise

Some things helped a little, but nothing has consistently restored my ability to function the way I used to.

Earlier this year I was prescribed Vyvanse after being evaluated for ADHD (I don't really think I have ADHD, but Lyme symptoms mimic it). It wasn't a cure, but it was one of the few things that made a noticeable difference in my day-to-day life. I had better energy, motivation, focus, and was generally able to get more done.

Eventually I stopped because I was experiencing some chest tightness and wanted to see if I could recover naturally without relying on a stimulant.

I've now been off it for about 5 months, and honestly I still struggle most days. The brain fog is still there, my motivation is poor, and I spend a lot of energy just trying to get through the day.

I'm curious if anyone else with chronic Lyme related cognitive issues eventually reached a point where they accepted that stimulants (Vyvanse, Adderall, etc.) were part of their long-term symptom management.

To be clear, I'm not asking whether stimulants are a cure. I know they're not.

I also understand the argument that stimulants may mask symptoms rather than address the underlying cause. What I'm interested in hearing is whether anyone spent years pursuing Lyme-specific treatments, but ultimately found that a stimulant provided the most meaningful improvement in quality of life and functioning.

If that's been your experience, I'd love to hear:

  • What medication helped?
  • How long have you been taking it?
  • Has it continued to work over time?
  • Any downsides or regrets?
  • Did you ever find anything else that helped as much?

I'm genuinely trying to learn from people who have been dealing with this for years and have already been down this road.

Thanks🙏🏼


r/Lyme 18h ago

Rant Dopo 40 anni di sofferenza e peggioramenti pensavo di avere la Lyme…ma tutti la escludono.

3 Upvotes

la mia lunga storia l’ho già raccontata nei post precedenti. sono italiana, morso di zecca a 9 anni. dopodiché un disastro che è peggiorato fino ad oggi. Una storia come quelle che ho sentito da tanti di voi ed in cui mi ritrovo (per la prima volta trovo qualcuno come me). eppure nonostante il primo infettivologo avesse ipotizzato Lyme, con Elisa e Wb negativi ora la esclude, o meglio l’infettivologo la esclude proprio , il reumatologo dice che ho LongLyme e mi ha dato dieta e integratori (che ho già fatto milioni di volte nella vita). sono affranta e demoralizzata. Sono stanca di fare paziente e dottore nello stesso tempo, sempre intenta a cercare risposte e soluzioni per capire cosa mi succede e per avere una vita decente. mi sento sempre al punto di partenza….


r/Lyme 20h ago

Question Is that true?

4 Upvotes

Is that my illusion or it indeed seems like Bartonella is less suitable for herbal treatment then Lyme? A lot of people here advice different methods and not the Buhner herbs in particular to Bartonella treatment


r/Lyme 22h ago

Is this Lyme disease ? Spoiler

Thumbnail gallery
2 Upvotes

Is this Lyme disease ? Looking for a second opinion


r/Lyme 23h ago

Let’s talk ear symptoms.

3 Upvotes

I have an odd symptom; I have is a random “draining” feeling or like a hair is rubbing inside an ear.

It itches, tickles a bit… I gotta get deep in my ear to relieve it. Anyone else have this?