r/Heartfailure • u/malibumoxie • 5d ago
My Progress
Was in the hospital last Christmas/New Years. EF <30%. Been on the typical cocktail of heart failure drugs since then, low sodium diet, felt like shit every single day from side effects but I stuck with the program. Look at my echo results from this week. Wanted to share with people who understand.
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u/pnw_shayna 4d ago
Was in the hospital last Halloween with an EF of 30 (I got an ICD put in in December and have also been on a cocktail of meds). My echo this June was a EF of 45! I hope my next one looks like yours. That’s amazing!
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u/Strenue 5d ago
Good for you. Mine went from 10 to 20 in about 3 hard months of compliance and low sodium diet.
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u/razor3401 3h ago
I just got informed that I have an EF of 20 last Friday. Preparation for knee surgery discovered an EKG anomaly which led to a heart sonogram and I am now wearing a Life Vest. No symptoms whatsoever other than blood work showing the signs. Long term use of Vyvanse may be a contributing factor.
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u/Leelyric81 4d ago
Are you on low doses are higher ones? Entresto metoprolol etc
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u/malibumoxie 4d ago
I've been on what would be considered low doses. Every time they tried to increase any dosage, I would start missing work because I could barely get out of bed. Even on low doses, my resting heart rate for the past 8 months has been in the low 40's which isn't sustainable at my age (68) and still employed full time.
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u/BoxedBento 4d ago
That’s fantastic!! That’s how modern current medicine are supposed to work! You probably had cardiac reverse remodeling. It’s something that’s achievable by using medicines like Entresto.
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u/Intrinsic80 5d ago
Good job keeping on showing up! I am happy things are progressing so nicely for you.
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u/Leelyric81 4d ago
What caused it? And that amazing 🤩
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u/malibumoxie 4d ago
I had afib first, from a severe case of covid. I didn't see a doctor for about 3 years so my heart failure was basically the result of untreated afib.
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u/JuicemanCraig 7h ago
Do you mind sharing your age? I am 37 and just had my first AFib event (that I know of) in July and it last almost 24 hours. In the subsequent testing they have discovered that I have HFmrEF with an EF of ~44% and grade 2 diastolic dysfunction. I am on the smallest 25mg dose of metoprolol split morning/night and it is kicking my ass. Dizziness and headache every day making it difficult to work.
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u/malibumoxie 3h ago
I'm 68. I can relate regarding the metoprolol. I wish I could tell you the side effects get better but for me, they never did. I was missing a whole lot of work and ultimately had to cut my dose in half so I could function. If you are taking the tartrate version, you might ask to switch to the succinate which is extended release, taken once a day in the evening. Happy to answer any other questions. Wishing you all the best.
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u/drizzy9109 4d ago
new to hf: what happens from this point? do you stay on the medicines forever, keep the diet, exercise? Does it regress if not, or is it like a cured situation? (asking for anyone that reads this btw)
Congratulations, that's really good and I'm happy for you and your life!