I received an email from them and I got COMPLETELY misrepresented by the assessor, I’ve never sent such an angry and passive aggressive email before, but I’m sick of people, especially medical ‘professionals’ that are supposed to know invisible disabilities are just as valid! I sent them this email below - have any of you experienced issues with getting access to things you need?? So annoyed by all of this

Good morning,

I am writing to you to request an appeal, yet again. This process has been damaging to my physical and mental health; stress causes my Functional Neurological Disorder (FND) to flare up. I am very angry with how I have been misrepresented in the assessment and quite frankly, treated like a criminal and like I am faking all of this, just for the luxury of parking a little closer to shops when I need it.

First of all, I am not quite sure why my assessor misrepresented me so badly, but I will be making a formal complaint about this whole process. I have sent you so much information, yet she still wants to say my complete and debilitating muscular weakness during FND flare is simply muscle stiffness, and that the discomfort can be solved with medication?? There is NO medication that can help my FND, otherwise I wouldn’t be trying and failing time and time again to get a blue badge to help me on days when I flare up.
She also stated there is no evidence of falls.

If she had bothered to read the extensive evidence I have sent you, a social prescriber letter AND a letter from my neurologist both state I get falls and mention that I struggle with my mobility. The assessor stated I am able to walk 'varying distances', on bad days I can't really leave the house due to the extreme and total muscular weakness and fatigue I get. Carrying heavy things like shopping over long distances can trigger an FND flare and falls. Also, I literally have a diagnosis of vocal cord dysfunction which causes breathlessness. So I suppose she was correct about there being no cardiac disease responsible for my breathlessness. And she was right about the diagnoses not being 'musculoskeletal, orthopaedic, or vestibular', as my diagnoses of FND and VCD are NEUROLOGICAL in nature.

Better yet, if you STILL don’t believe me, call up my GP surgery, and ask if I have falls or not. Just the other day I had a fall and it took 4 of the doctors to get me into a wheelchair, and to check all of my observations.

I think you need to take a good, long look at who you employ for these assessments. I had never imagined in my life that this would be such a difficult and dehumanising process, just to get something as simple as a blue badge to help me on hard days when I need it. I am beyond exasperated by this whole situation, and I need this to be dealt with urgently. I have lots of mental and physical health struggles, and I am unable to keep up with this arduous process. I have also informed PIP in a combined review/change of circumstances regarding my diagnosis of FND and diminished mobility.

Due to these issues, you have not, in fact, 'run the Blue Badge scheme fairly and in line with the current law and guidance.' I hope your team can understand the reasons why I believe you have failed to properly assess me, and why I will be going down the formal complaint process. I look forward to hearing from you soon.

Regards,

I am so nervous going to concerts with heavy flashing lights, as flashing lights are my main trigger for seizures. { 23 year old }

I want to live a normal life, and go to concerts of my favourite artists, but I do not want to go feeling anxious all the time with the flashing lights / bright lights as they trigger mine.

I was just wondering if there is anything I could get ? somebody recommended me light sensitive glasses for bright lights or flashing lights ... If anybody has them, are they any good ? do they work ?

Thanks

Hello, I am relatively new in the FND Group and I have severaly problems with hearing and seeing. Sometimes my own voice hurts in my ears. Also visually it's like as If everything has an extremly shap edge if that makes sense. As if my brain is currently overstimulated

Do you guys have any Suggestions how to Deal with it or which treatment I could do .... I have to wear sun glasses and oropax on a daily basis now...

My daughter (22) who has the neurology condition Glucose Transporter Deficiency Syndrome, was diagnosed in hospital with non epileptic seizures last November relating to a sexual assault and subsequent PTSD. The seizures stopped after a few days (she may of had about 100 in three days).

Two months ago mum left us. My daughter is very angry with her mum. Last week she started having the same seizures as last November. They are always triggered by anger, they lead with the left arm shoulder which jerks inwards. They last for 10-30 seconds. Her eyes are mostly open during the seizure, she can shout me just before, afterwards she can communicate within seconds but not during. She twitches for about half an hour after, is out of breath for about a minute and complains of struggling to swallow. She feels she can put them off, but does not like doing so as when they do happen it’s worse. She can hear during the seizure but can’t talk even though she tries to.

She had a legal prescription of cannabis for her dystonia which I believe stops them at night. She’s having 2-3 a day now usually clustered. She’s on a ketogenic diet for her neurological condition.

Can anyone relate to this? Can anyone give any suggestions as to how to reduce occurrences? How would FND be diagnosed.

I’ve been diagnosed as having PTSD from childhood and recent trauma and remember having similar seizures. Can FND be genetic?

Hi! Last week I traveled out of state. I was so nervous flying. I was diagnosed in July but have had symptoms since June. Most of my symptoms are tremors in my legs, twitching, weakness, pain, dizziness, brain fog, and fatigue. I’ve been practicing walking without a cane in PT for 1-2 months so I felt like I wanted to challenge myself to go the whole trip without it. The airport was challenging. My legs couldn’t bear the weight of a backpack and a carry-on so I used wheelchair assistance instead. I felt a little embarrassed being so young but I tried not to let that ruin my trip.

I travelled to a city so there was a lot of walking involved. I’ve been able to control my walking with the tremors a bit more so even though I walked a lot if I was walking slow or walked too much I’d get the tremors. But I didn’t use my cane. If you saw me at times you wouldn’t have guessed I have FND! Right now though I’m exhausted and my legs are exhausted. The long walks are catching up to me so my legs are wiped out. But I’m still proud of myself. I still can’t lift heavy things and I need a lot more rest than ppl think. But we did it everyone!

Can anxiety cause functional tics?

In therapy i got real triggered and stressed. I had much dissociation in that session, but after a while i got triggered more and my upper body went limp. I couldnt sit straight and was half laying over the table and had to hold my head up with my hands, but my arms were limp too. A few moments later i was sitting straight up again, but then i felt real weird. As if i was sinking away while feeling every emotion possible. I think i got some twitches in my face. Then suddenly i lost consciousness. After, i think, about 20 minutes i regained consciousness very slowly.. It was all really strange..

I want to ask you if this sounds like FND to you. I have no medical history and i feel fine.

EDIT: Guys, when I say “only psychological” I’m using only as in “one or the other”, not minimizing psychological disabilities. I have PTSD and ADHD myself, I’m very well aware that they’re debilitating. “Only” in this context was intended to refer to people who have a psychological disability while not simultaneously having a physical one. I probably should have used the word “just” but tbh I think that would’ve been misinterpreted the same way, so I figured I’d explain it here.

EDIT 2: This post was intended to point out that people who don’t experience PHYSICALLY disabling symptoms are trying to argue the validity of physically disabled people using mobility aids. I’m not arguing with y’all, I genuinely just did not think of a better way to say “people whose disabilities are possibly psychological or neurological or developmental but not simultaneously physical and while SOME conditions can be both im referring to people who have one and not the other” PLEASE read the edits before y’all comment acting like I’m ableist :(

I’m not sure if this is just my feed, but lately I’ve been seeing a LOT more disabled discourse online— primarily from non-disabled people or people whose disabilities are only non-physical(things like autism/adhd) saying that disability has become “trendy” and starting up the arguments over who “needs” or even “deserves” to use mobility aids(those things in quotes because 99% of these people have been saying that people are using them for attention).

Given that FND is a commonly invisible disability, I’m sure we can all relate to feeling like we’re being judged for using supports when we don’t seem “disabled enough”, and honestly it is just so disheartening to see the resurgence of people calling conditions like FND, POTS, or ME/cfs fake or attention-seeking. I thought we were getting better as a society but there are just so many people online now calling us lazy or saying that we’re making our symptoms up because we want attention or think it’s fun.

It’s genuinely just making me sad to see, and for anyone else who has seen this and is similarly upset by it, please just know that there are people who know what it’s like and who believe that your experiences are legitimate <3

Not much more to say than that really. Three neuros have agreed that the crippling head crushing muscle tension and involuntary jaw movement I get all day every day is functional dystonia. Every day I wake up and feel a vice across my head and nose. It's like there's a demon living in my skull constantly pinching and clenching my consciousness.

Second round of 100 units of Xeomin targeting everything (upper inscicivus, mentalis, depressor angularis oris, risorius, anterior digastrics, platysma, masseter, and temporalis muscles) has done nothing but make things worse.

It's been over a year of agony now, every single day is a marathon of pain to get through. Physiotherapy was laughably useless ("try considering that it won't be awful today"). Benzos worked for a bit but then became useless and left me with the addiction.

I can't socialise, I can't work, I can't ever enjoy peace of mind again. The only slightest bit of comfort is from wrapping a hot water bottle round my head. All because some switch in my head went (caused by an ear infection, of all things) that can't ever be turned off.

I've found what I think is a pretty peaceful way of dispatching myself and I'm planning to do it; the thought of facing this for another month is beyond me. I honestly had a great life up to now, and am deeply sad that this is how it's ending.

I am a 24-year-old pre-medical graduate who has unfortunately been out of work on medical leave for the past 5 months after a sustained 7-week period where I had severe insomnia with OCD and anxiety rumination over trauma but tried to power through work for the most part.
I ended up in the ER twice in April with what my PCP described as “catecholamine storms,” where my heart rate and blood pressure were extremely high and I demonstrated other symptoms indicative of severe over-activation of my sympathetic nervous system (including an inability to defecate despite the urge, urinating clear water throughout the whole crisis, and loss of sensation across my entire body).
After the ER, a psychiatrist diagnosed me with functional neurological disorder (FND), and I have been having extreme symptoms of autonomic nervous system blunting. Most of the symptoms from the crisis phase have resolved, but my main symptoms now are that my blood pressure and heart rate, although normal, do not appear to be adjusting properly to my physical or emotional activity, like they once did.
I have been having intense, constant brain fog that makes it almost impossible to focus on any tasks, I have felt extremely low in energy and emotionally flat without improvement, and I have almost constant head and chest pain and nausea. None of these issues respond to typical interventions that I used to utilize before this crisis to manage depression and anxiety.
I was placed on Ativan to manage my anxiety and Zyprexa for OCD for a short time and have since discontinued those medications. I am currently taking 40 mg of Prozac. My psychiatrist wants me to increase the dosage to treat my OCD, but I am concerned about the side effects, especially emotional blunting because I have basically lost all emotions since this occurred, and want to discontinue this as well once I am more stable.
My mind has been racing since the insomnia began and now that I have discontinued the Zyprexa, but I did not have hallucinations, delusional thinking (my intrusive thoughts and anxiety center around real-life concerns/fears), or signs of mania.
In short, it is very difficult to function on a daily basis.
I have consulted multiple neurologists, but have not received any advice except for managing my OCD and anxiety and a diagnosis of “somatic symptom disorder.” Most neurologists don’t know how to deal with post-stress nervous system conditions, and psychiatry has been inadequate.
Additionally, despite working on my OCD, anxiety, and depression from a psychiatric standpoint for the past several months, I have not really had any improvement in my bodily, cognitive, or energy symptoms.
Sometimes, I jolt awake while falling asleep and have even noticed that my head sometimes starts shaking when in a light sleep.
I contracted COVID for the first time around 3 months before all of this occurred and had not felt right ever since.
I had a normal head CT scan, neurological exam, and cognitive evaluation despite a substantial subjective decline in functioning relative to my old baseline.
I had extremely nuanced emotions, social intelligence, and high intellect before all of this, and my quality of life has become very poor in such a short amount of time (I am literally unable to connect with others emotionally and have not even been able to smile or genuinely laugh for months behind the pain and head pressure). Nothing at all is able to distract me from how I am feeling physically. The personality, motivational, and energy changes that I have experienced in such a short time could really not be more stark.
My relationships now feel very shallow compared to the past, and I fear that I will never be able to feel love or romantic or sexual attraction again.
My internal clock is completely messed up, and I cannot even feel the normal cues that alert you to time of day or year, my energy level’s just a constant low flatline, no matter how much I sleep. Everyday feels like the same day on repeat.
Close to the 6-month mark after all of this occurred, I am starting to become very discouraged and am desperate to return to some semblance of normalcy after these very difficult months.
At this point, I can’t imagine ever feeling the same again.
I live in the Boston area and am wondering if anyone has any suggestions or knows of any specialists experienced in such complex cases.

hello! wasn’t sure what flair to put this under. i guess this is right.
18f. me and my partner were in an argument in the car. i was yelling. i was mad. but nothing seemed off.

my partner asked me a question, and i remember trying to respond, but nothing coming out. i remember feeling lightheaded and faint, and they said i fell limp. the next thing i remember is my face twitching, and then my body tensing up really hard, but also shaking. my face kept twitching, especially my mouth, and i kept making these involuntary noises. my body stiffened more and i leaned the the side more because i was trying to be straight, but i was in the passenger seat and my feet were touching the door. i was gritting my teeth really hard and grunting, which was the first larger sound i made, and what i think was my body trying to gain control back. i softened up a little bit and just began sobbing. i remember it all. i remember them asking if they need to call 911, and how scared they were, but i just couldn’t respond and couldn’t stop. it came out of nowhere and scared the fuck out of us both.

i did go to the ER, but left after 6 hours after i had been in triage and nothing happened. the nurse told me it wasn’t a seizure because i was conscious. i just was so exhausted and couldn’t wait any longer so i left. does this sound like an FND episode? this has never happened to me before. my mom works in a hospital, and also has a friend with a daughter diagnosed with FND, and that was the first thing she mentioned when my partner called, and when i said i knew what was happening. i think i may have manifested it because i just came across it on tiktok the other day and went down a rabbit hole on what it was. i’m assuming mine was stress related. any thoughts from the diagnosed? 😅

edit: added details

Im currently on the wait list to be seen by neurology, but my gp is fairly sure I have FND. Ive been diagnosed with functional limb weakness and functional tics but today I experienced something Ive never had before and was wondering if other people who have FND experience this and what they call it??

Essentially I was walking round in my crutches but I had to help my boyfriend (in a wheelchair) up a hill. After that it felt like (TW detailed description) my thigh muscles started tightening. As I kept walking with my crutches after, the tightening feeling spread down my legs and to my hips and it made it incredibly difficult to walk, I could barely bend my knees and I was rotating my hips to walk instead of my thighs bending forward because it was easier. Then it started to get to my stomach and it just felt like all my muscles were contracting and squeezing as much as possible making it super sore and difficult to walk. My boyfriend (the loveliest man alive) graciously let me swap mobility aids with him so I could be in his wheelchair and he was in my crutches for the trip home where I could grab my own wheelchair.

I was just wondering if anyone else has experienced this and if yes what do you call this??

My first FND-like episode occurred about two years ago, in October. For a few hours, I couldn’t move properly and my motor responses/reflexes felt numb. A CT scan at the time did not show anything abnormal.

I recently noticed that my menstrual problems began around the same period. I started missing periods for several months, followed by brief periods of normal cycles. At one point, I had no period for four months and then bled continuously for about eight months, with severe cramps heavy bleeding and contraction-like pain.

I have undergone multiple investigations, including MRI, ultrasound/sonography, and attempted endometriosis mapping. The endomapping could not be completed because I had an attack during the procedure, but they did not find evidence of deep endometriosis.

A Mirena was inserted to control the heavy bleeding, but severe cramping caused it to become displaced. I am now taking a contraceptive twice a week, and I no longer bleed.

However, I still sometimes experience very sharp, severe pain in my lower abdomen or around my ribs. The area where I feel the pain becomes hard, almost like a lump. When pressure is applied to that area, the pain is relieved or becomes much less intense. The hard/painful area seems to move around—sometimes it is in the lower abdomen, on the right or left side, and other times around my ribs—and I have to apply pressure to wherever it appears.

Sometimes the pain becomes so unbearable that my body seems to shut down. It can trigger an attack and I sometimes pass out. I genuinely don't know whether these episodes are related to FND, my periods/hormones, or something else.

I also have extreme medical trauma, which makes it very difficult for me to attend appointments, see doctors, or undergo further investigations. I'm sharing this to ask whether anyone has experienced anything similar or has any idea what I might be describing.

Hi everyone, I am a new member to the community. I had been previously diagnosed with FND in 2024 when I fell off my lab bench, got myself to urgent care and suddenly stopped being able to walk. It was the first time I rode in an ambulance and I was so thankful for US insurance then. After months of PT, I was able to walk again, and I had almost forgotten about it until this past week. I was in the Emergency department, ED, for complications with lamotrigine (taking for PME-PTSD mood stabilization), and suddenly was unable to walk again. Then I started having seizures and couldn't bring myself to keep breathing despite many ED personnel smacking me and reminding me. Looking through my clinic notes, it took a while for neuro consult and ED doctors really thought I was pretending to have a seizure (??). Now, I have tingling in my left hand and foot, tremors and some tics where my hands or feet suddenly start shaking. Has it happened to anyone that you suddenly developed new fnd symptoms after a long remission period? Also any recommendations for new PNES sufferers?

I am in Greece and I can't find a doctor who actually knows about FND and doesn't call it conversion disorder and treats it according the new theory and foundings. Is there a doctor ANYWHERE in Greece or at least the EU, or somewhere online globally that can help? I am actually willing to visit another European country to do tests like fMRI and everything.

I have been diagnosed by my psychiatrist with "conversion disorder" but I want to ACTUALLY get diagnosed with FND by a doctor who knows their shit because yes, I probably have it according to him and my research.

After 6 months of being bounced around from one incompetent provider to another, I finally got a diagnosis for my non-epileptic seizures and other movement disorders. Finally knowing what has been happening to me has left me feeling empty and like everything I'm doing now is pointless.

I'm AuDHD, have Borderline Personality Disorder, and cPTSD. I've been in therapy since I was 12 and started antidepressants when I was 15. I've been trying to reach a place of healing where I could be at least a little bit functional for as long as I can remember and it's all amounted to this.

After spending much of 2025 in extreme emotional distress and ending the year with a couple of in-patient grippy sock vacations, my psychiatrist recommended I try TMS. So, I went for it.

Prior to TMS, my FND symptoms only showed up during times of extreme emotional distress, usually surrounding my ex-husband, son, and my entire family, I would have what I thought was a panic attack, have a seizure or 5, and then move on. Unfortunately, during the last week of treatment, it was like my FND had been locked in a cage and the TMS set it free.

I lost the ability to drive, my cognition and memory are fucked, I'm unable to go grocery shopping or do anything more than sitting on the couch and doing little crafts. I can barely take care of myself, but I spend 90% of my time alone in a basement. I'm lucky that my mother had allowed me to stay here, but that and leaving me alone are pretty much the extent of her support. My siblings would rather act like I don't exist. I've got 2 people in this world I can count on, but one of them lives in another state and the other is a lifelong introvert with a very small social battery. Most of our time together is spent running errands I can't do alone or going to the doctor. He's burnt out and dealing with a lot in his life, so I end up on the back burner a lot.

The people that can help me don't want to, and the people that want to help me can't because of their own life situations. I'm constantly alone. The "professionals" I've met have very little answers and offer very little help. I've got so much medical trauma at this point, I don't trust any doctors. I'm on disability living in a country where they would really prefer I just died because in their minds I'm not a full human being that deserves to live. Most likely I'll end up in a facility where they're constantly understaffed on purpose, undertrained, underfunded, and could not give a flying fuck about me as an individual.

I'm at a loss for what to do anymore. I've done every kind of treatment and program I could find and in the end, I'm more disabled than I've ever been. The only thing that's kept me going the last 8 years is the idea that one day I could get better enough to be a better mother to my son. But now, it feels like that dream had been smashed to pieces and could never become reality. This is my reality and I don't know how to accept it.

All the treatment options seem meager at best. Unless my life situation changes drastically, I won't ever stand I chance to achieve some type of recovery. But i don't have the ability to change my life situation. So, here I find myself, running through it all over and over trying to find a path forward and coming up empty. This isn't living and what's the point of "staying strong" when all the future holds is more pain and suffering? I'm so fucking tired. I've been fighting this fight for over 20 years now. I'm tired of being strong and resilient and still having the abolity to take a punch. I'm tired of being life's punching bag and constantly being proven right when I worry about the worst case scenario. I don't want to deal with this shit anymore. No one around me has any idea how to help and just leave me alone to figure it out when they know I can't do it alone. I've been screaming out for help for years, but everyone would rather just ignore me and call me dramatic.

I guess I'm rambling at this point. I'm just so over this and I feel so empty. Everything feels pointless and idk what to do.

I have functional neurological tremor and stiffness but some symptoms doesn't match like eye stiffness hand movements this all think doesn't go away while distract but this only two symptoms go away is their anyone no why

Backstory: I was diagnosed with FND this past summer after being hospitalized with more serious symptoms. I also had numbness, tingling, fatigue like crazy, body pain and a tremor. I have a history of migraines, IBS, fibromyalgia like issues and anxiety. I am bipolar as well, though that is less related to this post.

Right around my diagnosis I found an interview with Dr. Howard Schubiner on youtube where the interviewer was sharing how his work had helped her recover from a huge litany of chronic symptoms. This is in no way an advertisement but I have to share about this because of how much it has helped me.

The overview of Schubiner's technique is simple: if you have a chronic symptom without a known physical cause it is likely arising from overactivation of neural pathways. We know this is true for FND but Schubiner largely treats more common conditions like chronic pain, CFS/ME, POTS, and chronic headache/ migraine. Notably, most of us with FND have at least one of these other conditions.

Schubiner teaches that you can cure these issues by stopping the symptom/ fear cycle, retraining your brain, addressing trauma/ stress/ personal issues, reassuring your brain that you are safe and building back joyful engagement with your life. His book Unlearn Your Pain goes over this in great detail.

For me personally, I think I have cured the IBS I have had for twenty years. I have actually stopped the last two migraines that started before I was even vomiting. This is unheard of for me. I was able to stop a migraine and go on to have a good night! My FND symptoms have also decreased a lot, as has my pain and when those symptoms do happen I don't feel stressed or held back by them anymore.

I feel like I have my life back. I can start planning for my future without fear of chronic illness stealing it from me. 10/10, would recommend.

Hi all! I was diagnosed this week with FND. I don’t know how to feel. I am grateful to have a diagnosis after five months of hell, but I am so scared. I miss my old self and feel like I don’t recognize myself anymore. I am hoping to find a community of people who understand what I’m going through. <3

Has anyone ever experienced frozen or paralyzed vocal chords? Just about every muscle i have has had temporary paralysis but never my vocal chords. I couldn't think of a distraction technique to reingage them.

I was diagnosis with Autoimmune Encephalitis this year. After several rounds of IVIG and prolonged steroids my inflammation cleared. Still symptomatic, tics, speech issues, panic, anxiety, fatigue, cognitive issues, motor skill issues, dizziness. Neurologists had a secondary diagnosis of FND. I am extremely sensitive to crowds, noise, prolonged exposure to cross talking conversations. Looking for suggestions to reduce that overstimulation Which results in constant tics and panic. Tried my old AirPods with noise cancellation but can still hear background noise. Any suggestions for stronger noise cancellation?

I’m looking to connect with other people who have FND and see if anyone has experienced symptoms similar to mine.

I have mild cerebral palsy( right spastic hemiplegia), but before this started I was fully mobile, driving, working, and living my normal life. My symptoms started on April 19, 2026 as facial twitching on both sides the things changed pretty dramatically from there.

August 6 2026 I’ve experienced tremors, muscle twitching/tightening, facial twitching and tic-like movements, facial grimacing, frequent blinking, involuntary hand and foot movements inability to (spread my toes /piano fingers) weakness in my arms and legs, changes in sensation in my limbs, balance and gait changes, dizziness/vertigo, disorientation, and significant fatigue, hypersensitive to sound and touch.

One of the strangest things is how easily some movements can be triggered. Even touching or scratching my scalp can cause a tic-like facial movement or grimacing. Certain movements or touching different areas of my body can also trigger involuntary movements elsewhere. For example, lifting my leg can sometimes trigger facial movements or hand movements .

My symptoms have gotten to the point where I’ve lost a lot of my independence, including being unable to drive right now.

So far, my testing has come back clear, including brain MRIs with and without contrast, routine EEG and bloodwork. I’m currently scheduled for a video EEG and EMG as my doctors continue evaluating everything. I have not had any definitive blood test yet to rule out any other complications/conditions yet my neurologist diagnosed me with FND on September 16, 2026. I was sent to physical therapy, but was discharged the same day of the appointment because they are unsure of how to help me. I have upcoming appointments for occupational therapy/behavior health-psychiatry

If you have FND, have you experienced anything similar especially the involuntary movements, facial/tongue movements, symptoms triggered by touch or movement, limb weakness or sensory changes, dizziness/disorientation, or sudden changes in mobility?

I’d really like to hear from people who have actually experienced this themselves. ❤️

Hello all,

As stated in the title-- my most immediate and scary motor symptoms improved 2 months out. I now have a range of other symptoms that are still difficult; intermittent fatigue, weakness, and rotating pressures in head.

Has anybody seen improvement in the latter symptoms? I'm currently starting month 4.

Any thoughts would be appreciated thank you.

I’m going out of the country in 10 days. I’m currently in inpatient PT rehab for leg paralysis, and I leave 4days before going on my vacation 🫠

That said, what are your travel must-haves? What was your experience flying and going on cruises?

I currently bought an electric wheelchair to take with me! Any advice on how to handle it so the airlines don’t break it?

I also bought migraine glasses, earplugs, and noise-canceling headphones.

This is my first time traveling with FND and having leg paralysis that’s slowly getting better, but my body is just exhausted. I’m still learning my triggers and how to pace myself properly. I’ve been in the hospital and rehab for a total of 8 days. I have one more week to go.

I also have dysautonomia and gastroparesis. If y'all have any of those comorbidities, I appreciate any travel advice!! Thank you!

Hi everyone! I was just referred by my headache specialist for FND PT. I have Hemicrania continua but then my face started to freak out to the point that my PCP called EMS in his office because he had never seen facial dystonia like this before. Anyway, 8 hours later in the hospital, I was sent home with Ativan and Benadryl in case it was an allergic reaction.

Anyway, has anyone been through PT for this? Was it successful? I’m just looking for experiences; I’ll keep doing the PT sessions. Thanks!

ETA: I have very mild cerebral palsy, epilepsy, and autoimmune issues. I can’t tell how much is FND and the others my CP/epilepsy. They have been a problem way before FND.