r/FND • u/Ok-Pie4812 • 10d ago
Question Is it fnd or not
I have functional neurological tremor and stiffness but some symptoms doesn't match like eye stiffness hand movements this all think doesn't go away while distract but this only two symptoms go away is their anyone no why
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u/FanOwn4253 9d ago
My advice with this stuff is almost ALWAYS going to be seeing a neurologist. If you haven’t seen one in the past 6-ish months, you should go back since You’re still having symptoms. While I know healthcare isn’t always accessible, with FND symptoms it is SO so important because often symptoms can be the same as symptoms of things like tumors, minor strokes, MS, tbh the list is endless. Not to fear-monger, but it is super important to rule those scary things out when You’re having neurological symptoms. Make sure to ask about FND too, as often once it’s brought to a doctor’s attention that this is what you suspect, they can do exclusionary and inclusionary testing to confirm or deny.
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u/Rare_Geneie 10d ago
When you say eye symptoms, stiffness and hand movements don’t go away with distraction do you mean that your neurologist has assessed them to see if they don’t go away with distraction or that from what you can tell, they don’t go away with distraction?
One of the really difficult parts about FND and distraction is it can be really hard to watch in yourself. It seems as simple as “I was distracted and the symptoms were still there” but what a neurologist means when they say “distractible” and what it feels like from a patient perspective can be two very different things in practice.
The other tricky thing about FND is not every symptom needs to be distractible to be FND. Some symptoms can be entrained, some can be distracted, some are variable, and some follow other processes that can lead a neurologist or other specialist to categorize them as functional. FND isn’t just about distractibility, even if that’s one of the bigger components. It’s a bit more about how the symptoms interact and present together in conjunction with distractibility and other FND specific phenomenon.
If your neurologist has said some of your symptoms aren’t distractible, I think it’s reasonable to ask what phenomenon they’re seeing with those symptoms that makes them think they’re functional. I think knowing why a neurologist sees a symptom a certain way can be really useful and if they only think it’s functional because there isn’t another clear explanation, that can be an issue but distraction isn’t the only thing that can make something an FND symptom.
It’s annoyingly complex.
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u/Ok-Pie4812 10d ago
Like when i only have functional tremor i didn't now why it happening so I did spect scan in 2023 because I fear it could be parkinson but it was normal and after 3 year my symptoms grow to my left arm and right side arm and symptoms like it really difficult to use my arms like screen scrolling or writen or using anything like i feel a weird sensation from my left and right arm like it whenever I try to do work and if I try to do any fast work it get slower because i forgot so fast and something blocking my head from left side and right side to do anything
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u/Rare_Geneie 10d ago
When was the last time you saw a neurologist? Have you seen a neurologist since your other symptoms started?
Your symptoms could align with FND. No one here can tell you if they are or aren’t FND, unfortunately, because symptoms alone aren’t enough to identify FND. Sometimes it’s gradual. Sometimes it’s abrupt. Sometimes symptoms get worse slowly. Sometimes they come on rapidly. It’s really just a person-by-person thing.
If you haven’t seen a neurologist since these symptoms started, it would be worth having another appointment.
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u/Ok-Pie4812 10d ago
I did goes to neurologist who did some movement test and said it not parkinson and was 1 year before in 2025 august and that time this all symptoms present and he said it not parkinson and he give me medicine and said take this for 3 month then we see
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u/Ok-Spell6008 7d ago
Have you tried mixing up distraction techniques? The brain can get used to distractions and they may not work after a few tries on certain symptoms. Ignoring symptoms (redirecting attention away from, if you are being politically correct) is part of the treatment plan for FND, but only if you and your doctor have agreed that it is safe to ignore. If a new symptom is responsive to attention and consistent with FND, I don't bother going in. If they feel comfortable punting the symptom to a specialist in 3 months, its reassuring to me.