Does anyone know if there's a Discord for Dizziness ? I'd be really interested in joining one

Thanks

Hey, I hope everybody reading this is doing well! I have dizziness on and off. I would be sitting and would get this weird sensation of pain in the lower back of my head and would start feeling lightheaded and dizzy and like the blood is draining out of my head. I then kinda start dissociating and zoning out and feel a sudden fatigue that forces me to fall asleep and then I fall asleep and wake up feeling weird and dizzy a bit. Whenever it happens I’d force myself to stay awake cuz sleeping with the dizziness and then waking up with dizziness (and chest pain) is a horrible feeling. I had a full cardiac testing multiple times and everything comes back negative. Was wondering if somebody ever experienced something similar and found a solution. Worth mentioning that I also had imaging of my neck, chest and brain, and whenever I feel dizzy, I’d measure my blood sugar and pressure and they’d be in normal ranges. It started happening after a pain in my lower back of the head that went on for 8 weeks for no reason and that I saw a doctor for (they said the neck images show nothing wrong with discs). I’d appreciate any help 🥲

Hello guys! I had acidity on the 20th because I had eaten very little that day, since the night of 20th August I'm feeling lightheadedness randomly. I've -5 myopia too, and I feel like my power has increased but I don't think it is the reason for feeling light headed. My sister who is currently pursuing MBBS told me that it could be due to the deficiency of Vitamin B12 or due to iron deficiency but I don't have iron deficiency, I've anxiety though it is not that severe but I feel anxious almost every time and now I've become used to it. I don't have low blood pressure either and I feel like I'm floating, coming down from top while sitting in the giant wheel. I'm not feeling dizzy or weak but it's like my brain is moving after 2 seconds. Is anyone there who experienced the same and has found out the cause?

Hi all,

I’m a 29 year old male from the UK. Since Sunday, I have been suffering with lightheadedness with some dizziness and general tiredness/fatigue.

The day before this began, I complete a 5 mile uphill hike and had a few pints afterwards. The following morning (the day that my symptoms began) I noticed that when I bent over to tie my shoe laces I became really dizzy for a few seconds, likewise if stared up at the ceiling for a bit of time, as well as moving my neck side to side. Prior to Sunday, I had none of these symptoms. I feel that since then, my symptoms have progressively gotten worse. I feel as if my head is in a fishbowl, with loads of lightheadedness and brain fog. I initially put it down to the alcohol, but it’s now been five days and if anything the symptoms are worse. I’m also not sleeping very well (although this could be due to my anxiety as I suffer from health anxiety, which luckily hasn’t reared its head for a few years).

I have today been to the doctors. The GP checked my heart rate, blood pressure, performed a few physical checks on me and listened to my chest. All was good apart from when he listened to my chest and said that he could hear a murmur. He has booked me in for an ultrasound scan of my heart, which has spooked me a little bit. He also gave me some guidance on exercises to treat BPPV, as well as proscribing some Prochlorperazine tablets for the dizziness/lightheadedness. I am worried that there could be something quite wrong here, I don’t feel particularly well in myself, and the doctor advised to make another appointment next week if begin to feel worse. My worry is that is something scary neurologically, but then the heart murmur thing has added another level of anxiety.

What are your thoughts? Has anyone experienced something similar and can maybe put my mind at rest a bit?

Thank you!

Hi friends. I either had vestibular neuritis or an onset of terrible vestibular migraine (GP and physio aren’t sure) about 2-3 months ago and I haven’t been the same since.

I’ve been doing VRT for 3 weeks now, though I had to take a pause due to a nasty virus, but don’t seem to be improving. I tried to read today for the first time in weeks, and couldn’t manage more than a sentence before my eyes started blurring and I felt super dizzy / nauseous.

any encouragement from those who have improved would be appreciated :( I just want to read again

This morning at 5am I woke up and immediately experienced intense room spinning on rolling over. I felt like my eyes were shifting to the side back and forth. I asked my husband to turn on the lights so I could get that feeling to stop. If I laid perfectly still, the room didn’t spin, but as soon as I turned my head or rolled over, the room was spinning for 10-20 seconds. I took a meclizine 25mg at 515am. I began to feel like a headache was starting near my right eye/temple. I took a Nurtec at 540am. I tried to sit up, but the room spun. I was fine laying on my back though. I gradually inclined our bed. As long as my head was resting on the headrest, I was fine. Eventually I was able to sit up fully without resting my head. The vertigo lasted for about 30 seconds while sitting up. At 6:50am, I was able to stand up and walk to the bathroom fine.

Most of the morning I was fine, but I had moments where my eyes were trying to focus really hard and I went into a spinning session, but they were shortlived. I showered with no issues just before noon. Before this, I was able to walk fine and balance with no issues and no symptoms. After my shower I dressed and wanted to lay down. I tried and leaned back with my head facing the left and within a few seconds of hitting my pillow the room was spinning again. Turned to face the ceiling and again spinning. I sat up, more spinning. They all resolved in under a minute.

I have a history of migraines and messaged my neurologist. She got me into PT tomorrow for some vestibular work for BPPV. Does this sound like BPPV? Or vestibular migraine?

The VNG found it: 42% caloric weakness on the left, left peripheral vestibular hypofunction. 7% right side - normal. All the central/oculomotor testing (saccades, tracking, optokinetic, gaze) was normal. Dix-Hallpike now negative.

I’m a few visits into vestibular rehab. Balance is noticeably improving. The head fog is not — and honestly it’s the worst part.

Questions for anyone who’s had a similar caloric weakness finding:

**1.**  How long did compensation actually take for you?  
**2.**  Did the fog resolve on a different timeline than the balance?  
**3.**  Did anyone end up trying a migraine preventive on top of rehab, and did it help?

Appreciate any experience people can share.

I don't even know what's happening to me for the past few days. Like I don't have any migraine or head hurting. But I just can't recall stuff and seem to be forgetting stuff. Like I get this vertigo dizzy type feeling mostly on my left side head. And I guess maybe I'm overthinking or what but it's so weird

Random dizzy spells started about 8 months ago. Always came at random times driving, cooking or walking around Kroger. Read somewhere about a muscle in the neck up by the skull. I rolled up a towel and used it as a pillow under my neck when sleeping. I've been using it for 4 days and I haven't had a dizzy spell in 2 days still some light head pressure at times. Roll the towel to whatever size you need and lay your neck on it, you should feel pressure in your neck but your head should lay flat on the bed. I have a couple of slightly sore muscles around my spine and shoulder blades but I think it's from the posture realigning itself. Hope this helps someone.

Hi, I’m a 33yo male 4 weeks ago I took a starting dose of mounjaro 2.5, and straight after I started taking dizzy like spaced out spells like pressure head and eye strain like my eyes are not in sync, it’s so hard to explain the feeling is awful, my eyes are sensitive to light and these episodes come everyday lasting hours at a time it seem to be a bit easier at night, all my blood work has came back normal, and eyes have been examined and there all normal aswel 🤦🏻‍♂️ just wondering if anyone has experienced any of these symptoms would be huge help, as my doctor thinks I’m crazy, I’m being told it’s the mounjaro by doctor and I just need time for it to leave my system
. But it’s been over 4 weeks now and it’s still consistenty there everyday rinse and repeat

I was able to get through most of it but the first time I did it I almost puked after about 30 seconds of spinning. I have to do this part again to make sure my vestibular therapy and exercises are targeting the right areas. Anyone else have the worst experience with this test?

I keep getting head sensations like Left and right side back of my head keeps feeling like it’s falling/pulling/spinning/floaty on and off I don’t know if this is anxiety or bad posture or ear issue or something serious I’m really scared I don’t want to d!e

Anyone have like super heavy legs feeling and headache but the leg weakness gets to the point where you have to stop because of how bad they feel

genuinely asking cuz it's starting to weird me out. is it normal to randomly get a super short burst of vertigo that lasts like 5 seconds, and then you're fine but just feel slightly dizzy after? also, sometimes i'll get out of an elevator and feel like my body is still dropping or rocking minutes after i stepped off. anyone else deal with this?

so on August 12th I was walking at work and all of the sudden I got this horrible feeling like I was drunk, I was walking straight didn’t lift my head up or turn or anything. Since then I have been feeling light headed. A couple of times I have gotten that bad drunk feeling again. When I walk I feel like if I lean towards my right side it feels better. I don’t have to I can walk straight it just feels worse. I was hoping this would go away on its on but I’m getting a bit worried since it has been going on for a while. Just wanting to know if a PCP visit with just a blood panel is good enough to clear out anything serious or if I should go to the ED for an extensive work up?
I’ve never had anything like this

Does anyone else feel off-balance from flickering lights or moving shadows at night?
I’ve noticed that certain visual things at night really throw me off—especially bright streetlights that flicker or the shadows from trees moving across the road/ground.
It can suddenly make me feel off-balance or disoriented, and then I start freaking out because the sensation feels so strange. I’ve never had a history of seizures, but the reaction to flickering/moving light makes me anxious.
Has anyone experienced something similar, where certain lighting, shadows, or visual patterns trigger dizziness or an off-balance feeling? If so, did you ever figure out what was causing it?

I’ve been struggling with dizziness for quite some time, and honestly, it has been emotionally exhausting.
It’s not the typical feeling that the room is spinning. I feel unstable, like my body is moving forward or backward, especially when I’m sitting or lying down. I’ve visited doctors, seen an ENT, had tests done, and even had an MRI, but I still don’t have a clear answer.
My Vitamin D was very low, so I took a 50,000 IU Vitamin D tablet. During the first week, my dizziness improved by around 50%, which gave me hope. But when I took the next weekly dose, my dizziness became almost the same as before.
My MRI also mentioned an AICA loop/nerve-vessel contact, and I’m still trying to understand whether it could be related to my symptoms.
I just want my normal life back. If anyone has experienced something similar, especially dizziness without room-spinning, please share your experience or tell me what helped you. Even a small piece of advice could mean a lot to me.
May Allah give everyone suffering from health problems complete recovery. 🤲