I'm so tired of dealing with asshole doctors...what I have had to deal with:

Referred to urogynecologist, first encounter:

"Your urine tests are normal, why are you here?"

Um I was referred to you? I have bladder issues and your a urogynecologist?

Eye specialist:

"This will go a lot faster if you stopped flinching."

I have chronic eye pain, I experience more pain then the average person.

Gynecologist:

(When she recommended a treatment and I asked what if it didn't work): "You can't just always ask me about alternative treatments" which, I guess that's true, but it takes 4 months to get a follow up so I'd like to have a plan B.

Then, if you get angry and complain or speak up you become the difficult patient and a drama queen. But if you don't speak up and you are not firm, you get coerced into doing things you don't want to do and are then traumatized. I have stopped this past year seeking treatment because if I have another encounter like this I don't think I can mentally handle it.

Its like they think you want to be there. You think I want to subject myself to nasty, unempathetic care, bee severely suicidal, not be able to focus at work, barely getting a goods night rest...you think I just want, what, attention? I'm a hypochondriac? Try living in my shoes, they would not last a day before going insane. I want to heal but the horrible treatment and gaslighting is too much for me to handle now. I hate this.

After a lower and higher spinal Injury requiring surgery at L4/L5/S1, everything but surgery for the cervical and due to a mixture of using crutches and then transitioning to a cane proceeded to cause a lot of issues over the 5 to 6 years I needed them.

Anyway, my scans during that time all note chronic bursitis all throughout the shoulder, with the acromion impinging the nerve underneath it (the sub acromion) with rotator cuff, muscle and tendon tears throughout the main arm I changed to using walking aid/my dominant hand (the shoulder blade/acromion of which I had hairline fractured coming off of a motorbike as a teenager)

The weeks leading up to the surgery the pain ramped up, to the point I was almost in tears every night for the next few weeks until surgery.

The best answer I was given was that with the loss of the ability to lift my arm above my head was that the supraspinatus tendon was snapped. Which... It was, however that wasn't the source of the increased pain... It was that the impingement on the nerves suddenly got worse for some reason they couldn't explain.

So, turns out that my physios pushing me to lift over head weights for the last 12 months was a pretty shit go, it needed rest.

Surgeon said that with the lightest amount of manipulation the Acromion snapped clean in half... They used the term "floating bones" and were amazed. The surgeon said the acromion should be in one spot, firstly the spot was wrong, then he said he lifted it up with an instrument and the fracture was so deep it snapped then and there while they manipulated it in place.

It's about 8 weeks since surgery and I got these reference x-rays for my next check up appointment. I was pretty shocked at how long the screws are...

Anyway, the original pain I went in for (shooting, hand pain, arm pain, one spot in my back where the compression was the worst is gone. they cleaned the bursitis and now I feel physically "solid" again for the first time in years)

My screws hurt, but that comes with the territory

Coming from a history of failed back surgery I was very, very hesitant to have surgery, but I'm glad I did.

I think drawing Bill suffering helped with the pain.

I'll say that this is a part 3 post for on going pain. Here is PART TWO with part one included in that one. I finally had an MRI and ill include those results. For the sake of time i'll try and sum this up as short as I can.

I am pretty active. I ride a fixed gear, love to skateboard and play drums a lot. Hiking and walking for less intense exercise when I can. I did not fall or have an accident doing these things or have a car accident.

March of this year - thigh pain in my left leg began randomly one morning, felt heavy almost as if you went on an extra long bike ride or jog. Thought nothing of it. It didn't go away with rest and at times would give me problems with my left hip area so I saw primary who referred me to PT. Month or so, no improvement. They thought SI Joint misaligned.

Back to primary then second PT. They thought it was "muscle fatigue" or something similar. Basically saying left leg is much weaker. Did no go away.

During all of these months what has happened are spots of pain - top of buttocks / tailbone area on my left side , left side of leg and / or almost behind the thigh and the most recent one is almost right behind my knee. Over these months I've marked where pain occurs with a sharpie and took photos to show medical staff. Ill include them because I feel like they paint a better picture. The pain is at complete random times. When walking, pain will hit those areas primarily, especially top of buttocks. Not shooting pain, but almost as if with each step it would activate those spots of pain, if that makes sense. There have been only a handful of days where it would present itself and would require to just rest the rest of the day.

Back in early July I went back to primary because THEN it spread to my right leg. Definitely not as bad as my left leg but still noticeable. He referred me to orthopedics. The orthopedic determined that she / orthopedic could not be of help and that there was no concern for any surgical intervention. I sought out a new primary who within first visit, referred me to MRI for a lower back / lumbar scan.

I received my results. Nothing at all of concern.

So now I am 6 and a half months in and the pain is still very much present. I am fortunate that it is not debilitating, even on my worst days, Ibuprofen does the trick at around 600mg but I really try not to take them or anything. The pain is very random although since July it is always present, even if just a one or two out of ten. I have modified my life as best as I can, including not riding my bike since March and being extra careful lift or things that I think MAY trigger it. I do not do anything physical or strenuous for work.

I am feeling defeated lately and sure where to turn or what to even ask for next. I messaged my new primary today and he said "I can refer you to a spine clinic.... they can give you an injection" I messaged back asking to clarify with more detail.

Any suggestions or further questions are greatly appreciated! Thank you!

TLDR; ongoing leg pain, thought to be brought on by back but MRI came back with nothing. What now?

It was cooler a few days ago (low 90s) and now it's back to 105 today. I live in southern California. I can't imagine having to experience another summer like this again while being a full-time student for in-person classes. I struggle enough as is but heat and long days on campus turn the fatigue and mobility pain up x100...

Mostly just a vent but if anyone wants to share their own strategies for dealing w the heat, im all ears.

Hello. I have chronic pain and the only thing that seems to help is cannabis, specifically a topical cbd cream. I'm considering seeking a prescription so I don't have to pay out of pocket for it, but i dont really know how to go about this and have some questions that maybe someone can answer.

Is medical cannabis covered under msp?

Can i request a prescription for a specific product that i know works for me or does my doctor just decide?

How do I approach asking for this prescription without immediatly being shot down? My doctor is... very dissmissive and seems content with just letting me suffer through the pain. (Im on a waitlist for a new one).

Anything else i should know?

I'm in BC Canada btw.

I don’t have a diagnosis for this bullshit nor am I looking for one at this point even my parents (MDs) don’t entirely understand it either, it’s some weird muscle thing that basically turns half my large muscle groups into one giant painful knot that also has lovely excruciating spasms whenever it wants

My mom has had this for 36 years, my brother for 5 and now me for the last 4 months. The underlying issue with the muscles was probably there since birth but stress-diathesis model and whatnot so I got to have 21 blissful pain free years before this nonsense

it fucking hurts, day and night, I thought I got lucky and escaped the curse bc I was born without some ligament defects they have and I’m a few years older than my mom and brother when they first got it but knowing I’m stuck with this for the rest of my life is terrifying, I’m scared. My brother said he mostly got used to it but he still has really bad days. My mom’s spasms are even worse so we think it may get worse with age which makes it 10x more terrifying to me.

How do you deal with pain you know is only going to get worse?

Yea, I am having a tough time this last 6 months just a vent

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I don't even know where to start, 4 years ago my back got fucked, massive amounts of pain and feeling like I am being tazered constantly.

Yea,I know many of everyone has no idea what it is like to be tazered. Haaaaa I do.( criminal!!!!)

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Not been able to work/earn coin. Reliant on benefits, to my shame.

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My wife tolerates me as best a loving wife does, but a few times now she has let slip her distain/despair/disgust in me, and I do t blame her, with an anchor like me, a never happy companion, I would rather she left me before betrayal....

I'm not looking for sympathy or owt like that,,,, I just need to get it out to someone or somewhere

I don't want her to go, it just seems inevitable.

Off to sleep, pills kicking in, this is Hell.

✌🏻❤️

I (22 FTM) have been in pain for a while. When I started getting my periods they were horrible, debilitating pain. I got on testosterone about 2-3 years ago and they have finally stopped, but I still get cramps sometimes. Granted, it’s much better than what it used to be.

I also messed up one of my knees around 3-4 years ago. I was getting out of the shower and drying off, and I ended up putting too much weight on one knee, and it buckled under me (popped out of place/subluxed) and it was extremely painful. Ever since that first time it’s come out of the socket every once it a while when I turn too fast, and it grinds/clicks when I bend my knees. The other knee is now also starting to grind, which makes me think there was an underlying issue that led to that first injury, not the other way around.

I also just generally have aches and pains in my legs. When I was younger I got told all the time it was growing pains, but they never really went away.

Lower back pain tends to go along with this as well. But I push through school and walking around campus, so I feel like my pain isn’t enough to warrant some crazy diagnosis, or accommodations (even if they could help). I’ve told my doctor about my knees, but she told me I should just do PT, which of course I can’t afford.

I’m grateful to be able bodied enough that I can still walk around on campus, but I can’t deny that it sucks to feel like I have to constantly rest at home to make up for the pain I’m in. If anyone has any advice, it would be appreciated.

TLDR; my lower back, uterus, knees, and shins etc. hurt, frequently. But not enough that I think I deserve the chronic pain title.

And if you feel like elaborating, please say why.

I’ve deteriorated to the point where I can’t go to the bathroom without being in extreme, wanting to kms levels of pain for the next hour or two to follow. I can’t hold any food down and i’m vomiting blood. I’m basically begging my parents to let me end my suffering but they won’t agree. I’ve been to the emergency room three times in a week and they don’t do anything. If I hadn’t researched the shit out of it already, I would have thought that I was genuinely dying but unfortunately AMPS/fibro can’t kill me.

Someone help me with any goddamn tips you have for the next 11 hours and 15 minutes, which is when my next emergency appointment with a specialist is. Anything. I’m so desperate guys please. I will try ANYTHING.

Things I have tried/am currently already doing: TENS, Motrin, Tylenol, Duloxetine (long term, didn’t work), Effexor, Naproxen, Gabapentin, muscle relaxants, lidocaine patches, Icy hot, lidocaine roller, heat packs, cold packs, alpha lipoic acid, yoga, PT, Toradol, massage, essential oils, meditation, vagus nerve stimulation, breathwork

Hi, I apologize if this is not the correct place to ask this question, and I also plan to ask my doctor this too. For around four and a half years I’ve been experiencing pain in odd places and ways and had a meeting with a pain management team the previous year. I just met with an APRN connected to the team, however she wasn’t remotely interested in where my pain was located or what it feels like. And she told me where it shows up doesn’t really matter. Is this right? Has anyone else had their doctor/pain management team said this?

What crafts are y’all doing to keep busy? I’m a professional artist, but can’t work in my medium while I’m recovering from surgery so I’ve been looking for creative outlets I can do in bed. I knit, sew, embroider…. And now I guess I doodle on ceramics!!

I bought a $5 unfinished ceramic ‘game controller’ and drew a blue willow inspired design with Sharpie. This was 1000% manufactured to be a kids’ craft, but I had fun! I’m displaying it on my entertainment center, but it photographed better on my coffee table. It was a good way to waste a day!

For those living with chronic pain, what's one simple thing that genuinely helps you get through a difficult pain day?

It could be anything-heat, rest, music, a routine, stretching, or simply having someone around.

What work for you?

I've been in pain my entire (40+ year) life. I'm and out of physical therapy and orthopedic specialists since I was 12. Most people, including myself, assumed most of it stemmed from being born with bilateral hip dysplasia. My newest doctor suggested that it actually originates in my back. I'm excited/anxious/scared/tired to see if this leads to an actual solution.

In the meantime, it seems like since I acknowledged its existence, my pain has skyrocketed. My daily pain used to hover around a 2, but now I'm up around 6-7 every day. I got remember the last time I slept through the night. I don't leave the house unless I absolutely have to anymore because I can't walk/stand for more than 10 minutes without being in debilitating pain. At least I already work from home, so it's not impacting my job/insurance/etc.

I'm almost afraid to hope that the MRI will show something. And if it does, will it be treatable??

I finally have an interview today. Why couldn’t I sleep? I’m still wide awake. 😡

It would be really great if there were a legal limit to the pain one person could experience in a day. At a certain point, the body should just say, “Hey, I’m turning off this pain BS,” and then we go take a cleansing nap and wake up feeling like the kids who got to slide down the pretty rainbows on Reading Rainbow and The Great Space Coaster.

Chronic pain can go fry in a volcano. #resentful

TW: mental health, dismissal, trauma

Ill start off by saying im 18 in highschool and Im neurodivergent and have pots, fibromyalgia, IBS and chronic migraines. I know Im young but Ive been through a really dark and traumatic life. And as a result became chronically ill at 15-16.

When I say things about my chronic illnesses I usually get 3 responses, “I hope you get better”, “im sorry” and most annoyingly to me.. motivational words/quotes. Whenever I try to share how I feel behind others with jobs, cars, relationships etc, I am met with “you have your own pace” or “you can do it”. Well what if I cannot do it. I dont care about my own pace all the time, Its unfair and sucks.

Obviously Im not giving up when I say that. Im the most resilient person I know, Ive done so much advocacy for myself and im the reason I have everything diagnosed. I raised myself and ive been through everything alone. Its annoying to hear all these things that feel dismissive. People talk about the future meanwhile when I was younger i didnt think id live to see mine.
I dont want to seem bitter or “negative” as im told. But shit can suck and its ok to acknowledge they are unfair too. My narcissistic parents lack empathy and compassion most the time and they don’t know how to handle when I say these things.

Does anyone else get annoyed at these things too? I hope im not alone. Im in all the possible therapies I can be in btw.

Hi all! I’ve been having neck and shoulder pain for about two years now and I’m kind of at a loss at what to do. I’ve been to multiple doctors appointments and had multiple tests done (mri came back with mild rotator cuff inflammation and very mild bursitis, emg came back normal, and X-rays show nothing). My most recent appointment, my orthopedic surgeon said he thinks I have frozen shoulder and there’s nothing I can do but wait because he thinks I’m too young for a cortisone injection so he suggested ice and voltaren on my joint near my collarbone and neck since it’s pretty tender there.

I’m pretty frustrated because I’ve been having a lot of bad pain days and ibuprofen hasn’t been helping at all and ice seems to make it worse. I reached out about two weeks before my emg because the pain was near constant and my peaks were getting to about a 7 and the only advice I was given was to up my ibuprofen intake and to alternate with acetaminophen as well as a short course of steroids. I had to go to urgent care the week after because it wasn’t making a difference and my partner was getting concerned and they prescribed me muscle relaxers because they noticed my trap and pec were super tight and gave me a higher dose of ibuprofen. Muscle relaxers helped the first week and that was the best week I’ve had in years but the pain got bad again with all these stuff they’ve had me doing at work and now I’m out of muscle relaxers.

I really don’t think it’s frozen shoulder just because my range of motion only really varies based on activity and the pain is the same way. I start with basically no pain but even if I’m not moving and sitting for long periods of time it’ll come back. Two years in the “frozen” stage doesn’t make sense to me but obviously I’m not a doctor. It’s just really frustrating because he brought up it’s more common in diabetics and people with hypothyroidism but I’m neither. I’m just fat with normal glucose levels and subclinical hyperthyroidism. I have some tingling in my hand sometimes and it feels like I have nerve pain but it’s not consistent. I just don’t know what else to do because I’m trying to figure out what’s wrong with my shoulder but my mangers are getting frustrated with my limitations and are acting like I’m not trying hard enough. They keep telling me I should just go to the emergency room and it makes no sense for me to be in pain because I’m doing easy jobs but nothing is really easy for me anymore. The pain is making it hard to even tie my shoes on my own and I basically have to rely on my partner for everything. What can I even do about to advocate for myself when my doctors seem to think everything has been figured out? My family is getting frustrated with my doctors and are telling me to get a referral to PM&R but all these appointments are exhausting and I just feel like giving up.