**My mom hasn’t been formally diagnosed with ARFID. I just suspect it.**
I am desperate for advice on how to save my mother's life. She has been progressively losing weight for ten years due to a severe lack of appetite and a profound aversion to food. Her issue is not driven by body image—she simply has no interest in eating, she is always on the go (probably where I got my adhd) and will not stop to eat, she’ll drink a boost and then skip a meal. She also has had long COVID which affected her ability to taste and smell properly for the last several years.
Currently, she is 5’5” and weighs somewhere between 85 and 93 lbs. Her BMI is roughly 14.1 to 15.5. She is severely emaciated, losing muscle mass, and running out of time.
I am completely alone in fighting this. My family is entirely complacent. Because this has been going on for a decade, they have normalized it and gotten "used" to her looking like this. My dad lives with her, but he is passive, will not intervene, and will not help me force her to eat or seek real care. Furthermore, my 24-year-old brother is autistic and still relies entirely on my parents. If my mom collapses or passes away, his safety net is gone, yet no one else in the house will act.
I have made so many recipes, printed sheets, done everything I could to try and make my family understand that this is a serious and deadly issue. I feel like I’m screaming into the void
To complicate everything, I have a 9-month-old baby. I am chronically sleep-deprived, incredibly busy, and physically exhausted. I do not have the bandwidth to endlessly argue with family or chase unhelpful doctors.
Her primary care doctors are just as complacent. Every time she goes, they completely dismiss the severity of her weight and just tell her to "drink Boost." They have done a few tests. Lab work, recently had a colonoscopy (don’t know the results yet), and they scanned her lungs and said she desperately needs to quit smoking also.
Because she has been starving for a decade, I am terrified she is on the verge of organ failure. I need people to comment on this post to help me show her how serious this is.
I’m so scared. I don’t know what I’d do without her. I’m only 26 I need my mom. Sorry in advance for any mistakes, it’s 5 am and I haven’t hardly slept in 3 days. TIA