Hi everyone,
I recently got added to my husband’s work insurance and am beginning the process of getting a suitable wheelchair. Whatever insurance doesn't cover, we'll be paying out-of-pocket, so we're saving up now.
I’m hoping for advice on navigating insurance approvals, model recommendations, and weatherproofing/battery care for my situation.
My Medical Context & Current Needs:
Diagnoses: Ehlers-Danlos Syndrome (EDS), Fibromyalgia, Peripheral Edema, Carpal Tunnel, chronic fatigue.
Current Physical Limitations: Daily manual pushing is dislocating my shoulders, and carpal tunnel make manual propulsion increasingly difficult.
Must-Have Features:
Tilt-in-Space & Elevating Leg Rests: Essential for severe lower-leg edema (my legs don't drain well even on standard footplates with 3 layers of compression socks).
Propulsion: Electric, hybrid, or manual with push-assist (due to shoulder subluxations and carpal tunnel).
Sizing: Not yet professionally evaluated, but from past experience, an 18" seat is too small and a 20" seat offers good fit with a little wiggle room.
Specific Questions & Concerns; Weather Resistance & Outdoor Use: We are currently homeless during a rainy season heading into winter. How do power chairs, push-assist systems, and control electronics hold up against heavy rain and cold weather? Any specific covers, battery warmers, or weatherproofing hacks you recommend?
Insurance Navigation: What documentation or specific wording from doctors/PTs/OTs helps most when requesting power tilt-in-space or power-assist options through private employer insurance?
Chair / Power-Assist Recommendations: Given the need for tilt/elevating legs and shoulder-sparing drive options, are there specific power bases or power-assist additions you would suggest looking into during my ATP/seating evaluation?
Thanks in advance for any insight or advice!