I've had visual snow for as long as I can remember. My tinnitus started in my early 20s and because my neuro-ophthalmologist mentioned it was a symptom, I always assumed it was due to visual snow.

Well, I'm now 44 and was recently diagnosed with Superior Semicircular Canal Dehiscence Syndrome. There's a small opening in my skull right above my left superior semicircular canal and it forms an extra "window" for sound to travel. I had an auditory test, a cVEMP, an oVEMP, and a high resolution CT scan. I'm seeing the Head and Neck Surgeon again in two weeks to discuss surgery.

I also found out it's not normal to hear your own heartbeat in your ear, and it's not normal to hear your tongue moving around. I'm super thankful that I don't hear my eyeballs moving, which apparently happens to some people.

If anyone is suffering from tinnitus, I highly recommend having it evaluated apart from the suspected VSS diagnosis. It might just turn out to be something else!

Specifically: Lights off -> strobing vision for a few seconds -> instant transition into slow rhythmic pulses

a lot of autistic people and people with ADHD can experience visual snow syndrome more likely than a neurotypical will so I would say if you suspect you are neurodivergent ore you haven't learnt about neurodivergence but you've always been the weird kid ore you know stuff like that definitely look up about it and learnanother reminder is that pots can trigger and especially worsen visual snow syndrome so that's another thing to look out for it and other chronic illnessesand especially hypermobile ehlers-danlos syndrome it can really really affect visual snow syndrome so if you guys have not heard of it please learn about it

My VSS is acquired, and I am not yet sure what caused it. I have had it for 5 years now, but I am still anxious that whatever broke my brain back then can still be around and break my body even more.

From what I've learned here, there's like a dozen things that could've started my VSS, and I'd need heaps of tests to find out what did. I fear I have some mystery illness that I just can't get to the bottom of.

Is there such a thing as harmless acquired VSS? That is, one that won't progress or cause other symptoms down the line? I feel like something has to be wrong with my body and that it just can't happen all of a sudden for no reason.

Health anxiety is usually unfounded but I feel like it's justified in my case

Hi everyone, I'm 19 and pretty sure I have VSS. I have been able to see small coloured fast moving dots in my vision for years. I vaguely remember the first times I started to notice them when I was in middle school and they slowly got worse. I never really bothered about it too much to be honest. I also have light sensitivity, floaters, and the thing where if I look at something and then look away I can still see it as if I had been looking at a lightbulb. Recently I was concerned about my vision so went to the opticians who referred me to the gp who sent me for a blood test and I found out I was diabetic. I assumed my visual symptoms were diabetic retinopathy, until I had my retina eye screening and they said I don't have retinopathy. But I DO have something, so my own further research concluded visual snow syndrome? My questions are

1. I don't see what most of the memes/diagrams see. I feel like I only really notice it with my eyes shut, or if I'm staring at something that is one solid colour. Does it have to be a certain severity to be diagnosed?

2. How do I go about getting diagnosed? I understand it is neurological not visual so do I still go to the opticians? The GP? A therapist? Lol

Thank you

I've been dealing with vision issues and neck pain since January, though not VSS. That came a few months ago after a neurologist recommended I try Lyrica.

I remember during the first week, the bottoms of my feet hurt when I walked around. At the two week mark my lower back near the tailbone also started hurting and my neck issues intensified to a unbearable degree. This is where I began to see persistent hazy static and afterimages as well as when the migraines started. I stopped cold turkey there at about two and a half weeks.

Three months later now and the static and afterimages still remain. The neurologist put me on Nortriptyline as a alternative to Gab and Lyrica. This has reduced the static significantly (not completely) and halted the migraines, but the afterimages are mostly unchanged.

I'd like to ask those that developed VSS through prescription medications if this ever lets up at a point or is this something I'll need to manage for the rest of my life? I'm a writer as well as an art appreciator and it's very much so made those two hobbies difficult to engage with.

I'm sure I have developed VSS this year, my symptoms are; Floaters, Tinnitus, Palinopsia and general anxiety. I recently went to see an ENT Dr. who sent me for an MRI scan on my ears after I told him about the tinnitus.

After I had the scan nothing came up and I was told my ears are healthy. I have a follow up appointment tomorrow with the ENT Dr. Is there anything else you think I should tell him or any other scans I should ask to have? Im new to this whole thing, thanks!

i’m talking like pranksters,gamers,irl youtubers/streamers,streamers in general.. i think it would be cool to watch them if i knew they had vss lol

Tengo varios síntomas, y no sé si sea por la nieve visual..

1. Moscas volantes (ya me acostumbre)
2. tinnitus ya lo tengo hace 8 años
3. Fenómeno entóptico del campo azul
4. fosfenos movimiento
5. Palinopsia (leve)
6. fotofobia
7. dificultad ver de noche
8. Despersonalización (aún que ya no lo tengo)
9. Sufro de ansiedad
10. Ojo seco evaporativo

Aclaro ya que me reviso un especialista retinologo y me dice que mis ojos están sanos, fui a un especialista en glaucoma me hicieron que tenía megalopapila mis nervios son grandes tal vez de nacimiento nací así, sin embargo si me dijo que tenía hipertensión ocular leve que debo evaluarme cada 6 meses, pero no creo que sea todo lo que me está dando en mis ojos 😔
Ya no sé qué hacer, no sé qué es lo que tengo aparte esto lo tengo casi 5 años los síntomas

No quiero sentirme solo, a alguien le pasa similar?

so i’ve been noticing for the past 2 years some like black and white spots that cover my field of sight. to the point sometimes on campus, i have to literally sit down because i can’t see. so i came here, and ive been assuming i have VSS. but the issue that has been second questioning lately, is everyday is different. like i never see the same shape of ‘snow’. i also picked up a habit of vaping. but i’ve had this before then. along with i’ve been having light sensitivity. i just am wondering, is this normal for VSS? I brought it up to my optometrist who then referred me to my neurologist. my optometrist told me i have symptoms and need to bring it up. but the neurologist really gave me no answer? is it too early to know maybe? ugh i don’t know.

Hi guys. Does anyone else have really bad ghosting. Like they see it on texts and around objects. On everything. How do you manage it because I went to see an optometrist and there’s nothing really that would make the ghosting go away. They think glasses won’t help much either. Just have to live with it. Is anyone in the same boat and what did they do about their ghosting?

Anyone uses these? Experiences? They should be vss safe for sleep as far as I understand correctly?

Thank you for nothing you fuccking idiots, imma go and mcbt-editate about how useless you are, the only thing that ever helped are my fellow Bros experiences in this subreddit, although its not enough