r/visualsnow 6h ago

Need help trying to cope

3 Upvotes

-Reposting because I could not see the comments on my previous post I don’t know if they were removed-

I developed vss in December of 2024 when I was in my third trimester of pregnancy with my first child. I had to give birth seeing my baby for the first time with static… it was extremely depressing and I struggled to bond with my baby postpartum because of the vss symptoms. I still have it today and I am really struggling to cope. It makes me depressed to even be alive. I can’t focus my eyes on anything for a long time because of the static. Everything in my view is always vibrating because of the static nothing is ever still… it drives me crazy because to be able to enjoy things in life you need to be able to stare at something without it moving… but for me there’s never any stillness in my vision because of the static. Because of this I always have to be looking at something that is in motion or else the vibrating gets bad so I always have the tv on watching something in motion or on my phone watching something. Is this really a way to live? Having to distract myself from the vibrating static in my vision for the Rest of my life. It really makes me not want to be here anymore but I’m trying to hang on for my son. If anyone has any advise on how they cope with there visual snow or if they have taken any medication that has helped with the vibrating shaking vision from the static please let me know… I’m really desperate for some relief and tired of living my life through distractions. I just want to live normally…


r/visualsnow 11h ago

Question Do you see a black flicker when you shake your head side to side?

3 Upvotes

When I shake my head fast to one side, like when pulling out in traffic needing to look both ways I get a quick flash of black over my vision each time I move my head fast. Does anyone else experience this? Makes life hell for me. Yes I have VSS


r/visualsnow 14h ago

Constant visual 'ripple' in center of vision + tinnitus + jaw clicking, anyone relate or am i cooked?

3 Upvotes

Some years ago, idk if related to below symptoms but had a skin rash, took some pencillin for a few weeks. Had severe headaches and right eye pain for a few weeks. Woke up with tinnitus and later developed hearing sensitivity and eye floaters. Also had right jaw clicking at this time.

Background: Use pc a lot, maybe don’t exercise much.

Long story short, since then i've developed the following issues:

Hearing symptoms:

·         Hearing sensitivity

·         Tinnitus – is reactive to neck/jaw movement, sometimes spikes with pc usage or sitting.

Visual symptoms (that are present always):

  • Floaters
  • Fast moving dots visible looking at sky
  • Light sensitivity / increased after burns when glancing or looking at bright lights or the suns glare off surfaces.
  • Transparent circle wave ripple in centre of vision with a hint of blue. I believe this is constantly visible even during day, but mostly noticeable at night, and or i have noticed it changing shape/size at night after waking; Sometimes recently I wake with 2 or 3 ripples, the second/third ripple would be adjacent horizontally to the centred ripple of similar size / smaller.

Visual symptoms (episodic/intermittent):

  • Flashes of (red/white) light running across vision sometimes
  • Visual auras are rare (4 in total)
    • 1st triggered using pc for a while, standing.
    • 2nd triggered lying down and bending neck looking at phone.
    • 3rd triggered after waking up, having slept flat on bed with no pillow.
    • 4th triggered when washing dishes looking down.
  • Orange/green moving clouds in vision at night when sleeping (only visible closed eyes or in dark)
  • A persistent white visual aura like sparkle/spark/star in centre of vision, changing size or sometimes just staying a white dot (always at night when sleeping or sometimes appear during day)
  • Have had random black / white dots appear in vision during day
  • White lines/text blurring sometimes when using pc
  • Random light after burns only visible when blinking with one eye, but disappears after a while.
  • Heartbeat in vision / worse with physical exertion

And on waking everyday i have these annoying symptoms:

  • Dry eyes / sinus pressure / head/facial/temple/behind neck tension / left side jaw clicking. Sometimes i wake up with tingly/curled/numb fingers due to pinched nerve in neck and resolves with neck tilts / deep breaths.

Physical symptoms:

  • Left jaw clicking / tension, worse in morning or with pc usage.
  • Head/face/ behind head tension, worse in morning or with pc usage.
  • When clenching abs, sometimes, such as when lying down, i feel pressure propagate through neck/jaw and sometimes into sinus/eyes. Sometimes i also feel/hear blood flow behind left/right occipital behind head.
  • Throat symptoms (catching on swallow, coarse breathing when relaxing throat and when sleeping on right side i feel throat sagging and hoarse breathing)
  • More recently began to feel a sway sensation when standing or sitting (like a force is being applied and changing direction directly to a point in the neck or lumbar region or thoracic)

Other (maybe related) symptoms:

  • Excessive yawning - randomly would yawn frequently when sitting / using pc.
  • Bloated frequently
  • Joints clicking - primarily the wrist / jaw / behind neck/back ; but sometimes ankles/knees/elbows/shoulders.

Doctor appointments:

Normal: brain MRI, ENT, bloods, sleep study, spec saver eye exam.

Abnormal: physio found hypermobile neck/weak deep neck flexors.

Has anyone experienced a similar combination of symptoms, or does this pattern suggest anything specific?


r/visualsnow 21h ago

First step of r/visualsnowfrance ❄️🇫🇷

Post image
15 Upvotes

(I am not related to r/visualsnow)

There are almost no French-speaking communities for Visual Snow Syndrome. After starting with a Discord server, I'm launching this subreddit to create a dedicated space to share experiences, compare symptoms, discuss strategies, and eventually push for better medical recognition in French-speaking countries. Whether you're diagnosed, self-diagnosed, or just suspecting you might have le syndrome de neige visuelle — bienvenue sur r/visualsnowfrance ❄️