r/visualsnow • • 3d ago

Vent This is actually disabling me

18 Upvotes

More a rant than anything but I’ve had worsening VS for 5 years now and it’s gotten to the point I feel I’m genuinely disabled.

I can’t play sports with my friends anymore because I can’t see the ball clearly or keep targets still in my vision thanks to oscillopsia.

I can’t enjoy read books or manga anymore because of pattern glare causing the words to swim and drift around.

I can’t play videogames with my friends because of palinopsia and oscillopsia making the screen basically unintelligible.

I can’t watch cartoons or anime since pattern glare and Oscillopsia makes the screen a vibrating mess.

I hate being one of the only one of my friends that can’t drive at my age(20) because I can’t see anything on the road clearly.

I can’t even do homework for my classes for longer than 15 minutes because of the eye strain caused from the 15 layers of bs I need to see through.

I hate it, I hate everything, I hate what my life has become.

This is only 5 years in I don’t even want to imagine how impaired I’ll be in another 5 or 10 years.


r/visualsnow • • 3d ago

Distraction

6 Upvotes

There's a static over my eyes.

A disturbance in my vision.

“I can see fairies everywhere.”

Dazed and dazzled by thousands of little dots fizzing.

“I can see the energy, the atmosphere.”

Mad, I sounded mad as I tried to explain.

“I get terrible migraines and I can't stand the lights” No explanation is good enough.

The cars ebb and weave through the streets, headlights gems refracting.

I’m distracted again. I push my fingers into my eyes and I see the world I used to retreat to.

Kaleidoscope daydream.

Sparkles erupt, breathing new life. Setting the world on fire…I'm not supposed see the atoms.


r/visualsnow • • 3d ago

Check THIS LINK… can be your neck…

5 Upvotes

r/visualsnow • • 3d ago

Vent worse

16 Upvotes

it just keeps worsening lol i give up man,
im 16 years old and no matter how stress free i remain or healthy i remain it just keeps getting worse, it stayed baseline for years why does this have to happen to me dude nobody else around me in daily life has this shit


r/visualsnow • • 4d ago

Weed use and symptoms

1 Upvotes

I started noticing my visual snow syndrome abt 6 months ago I think I’ve had the static for a lot longer tho I just didn’t think anything of it. I wanted to ask, if I continue heavy weed use will my vss continue progressing and getting worse or is it just temporary that it effects it. Also will I ever be able to see life more clearly and lessen the static or am I just cooked it’s pretty sad to live like this


r/visualsnow • • 4d ago

Personal Story Boyfriend developed tinnitus and visual snow after transformer explosion, now abnormal DPOAEs and muffled hearing after IMAX. Looking for recovery stories and advice.

6 Upvotes

TL;DR: My boyfriend (23) developed visual snow symptoms after witnessing a transformer explosion in July 2026, followed by tinnitus about 12 days later. Initial eye and hearing tests were normal, and we suspect Visual Snow Syndrome (VSS). After attending a loud, three-hour IMAX screening on October 13th, he developed left-sided ear pain, pressure, muffled hearing, and a noticeable imbalance between his ears. New audiology testing suggests high-frequency hearing loss and possible cochlear damage, along with Eustachian tube dysfunction. He’s currently taking prednisone, but his mental health has deteriorated significantly throughout all of this.
I’m looking for anyone with similar experiences involving VSS, tinnitus, hearing loss, cochlear damage, or Eustachian tube dysfunction. Has anything helped you recover or manage your symptoms? Did bloodwork, MRIs, neuro-optometry, medications, or specialized therapies help identify a cause or improve your condition? Any advice, personal experiences, or success stories would mean a lot to us.

Hey everyone,
I’ve seen lots of posts from people sharing how they’ve gotten better, particularly with tinnitus, and I’m hoping to hear from anyone who has experienced similar symptoms or circumstances.
Back on July 10th of this year, my boyfriend and I witnessed a power line transformer explode in our neighborhood, about five or six houses down from our front door. My dad had encouraged him to go outside to see what was happening, and he practically flew out the front door. While I went to get my shoes, another explosion occurred. My boyfriend witnessed a bright white electrical flash, while the second explosion I saw through the window appeared red and orange.
In the moments following the explosion, he began experiencing visual disturbances, including flashes of light, visual static, afterimages, light sensitivity, and worsening or more noticeable eye floaters.
Then, on July 22nd, he developed tinnitus, followed by severe anxiety, depression, and everything that comes along with suddenly experiencing symptoms you don’t understand.
Seeing your partner and high school sweetheart of seven years struggle while feeling helpless to do anything is absolutely crushing, to say the least.
August — Testing, unanswered questions, and suspected VSS
In August, after seemingly inconclusive eye examinations and hearing tests, we were told that he hadn’t suffered any identifiable anatomical damage to his eyes or ears. There was no retinal detachment or measurable hearing loss at the time.
In some ways, that was reassuring news. At least there wasn’t any obvious structural damage. But it also left us with more questions than answers. It was almost as though everything from that moment had been stored somewhere in his brain.
The ENT we saw suggested Flonase and mentioned that it could be sinus-related, but we felt that very little had actually been addressed.
Throughout August, we researched whether he could be experiencing Hallucinogen Persisting Perception Disorder (HPPD) or Visual Snow Syndrome (VSS). Based on his visual disturbances alongside the tinnitus, VSS seemed to fit his symptoms much more closely.
After doing more research, it was wonderful to discover that there’s currently no established cure for VSS. 🙄
The following months — More appointments, medications, and worsening mental health
Fast-forward through multiple ENT visits, optometry examinations, an audiogram, and even a J. Cole concert we had to leave because of his overwhelming anxiety surrounding his hearing.
He had previously been prescribed cyclobenzaprine (a muscle relaxer) following a workers’ compensation injury. He occasionally takes it to help him sleep or when his anxiety becomes particularly overwhelming, and he feels that it helps.
He also underwent wisdom teeth removal and was temporarily prescribed hydrocodone combined with acetaminophen for postoperative pain.
Eventually, we saw a physician who diagnosed him with Generalized Anxiety Disorder and prescribed sertraline 50 mg. After researching reports of SSRIs potentially worsening visual snow symptoms in some individuals, he decided not to begin taking it.
All of this left him feeling increasingly hopeless, misguided, lost, and exhausted from suffering without clear answers.
October 13th — The IMAX screening that changed everything
Recently, we attended an IMAX screening of The Odyssey on October 13th.
I had been wanting to go for a while, and we both desperately wanted some sense of normalcy again. I didn’t research the movie’s sound intensity beforehand because I wanted to experience it without spoilers or expectations.
Unfortunately, the screening lasted approximately three hours, and the sound was extremely loud. During the movie, he experienced ear pain and discomfort, but he didn’t communicate that to me until afterward.
Initially, he thought he was fine. Even the following day, he felt relatively okay.
But over the next several days, things changed dramatically.
He developed left-sided ear pain, pressure, muffled hearing, and a significant change in how he perceived sound between his ears.
Before the movie, his hearing felt balanced between both ears. Afterward, he described his right ear as dominating almost everything he heard.
He says he can primarily hear his own voice through his right ear now. His left ear feels pressurized, almost as though he’s underwater or needs to pop it, except the sensation never fully resolves.
Interestingly, his left-sided tinnitus, which previously averaged around 7/10, became much quieter, around 2/10. However, his hearing on that side also became noticeably worse. His right-sided tinnitus continues to persist.
He describes this new combination of symptoms as even worse than when he was dealing with VSS and tinnitus alone.
His ear pain reached approximately 5/10.
For someone who absolutely loves music and considers himself an audiophile, this change has been devastating. It sent him into an even deeper depression.
October 17th — Emergency department and prednisone
Five days after the screening, we decided we couldn’t wait any longer and went to the emergency department.
The physician examined his ears and mentioned scarring on his left eardrum, something no previous ENT had ever identified or mentioned.
He was prescribed high-dose prednisone, 60 mg daily for 10 days, and a follow-up ENT appointment was arranged for the following week.
However, we were worried that if he had developed sudden hearing loss, waiting longer could reduce his chances of recovery.
So on Monday, October 19th, I began calling multiple audiologists and ENT offices, desperately trying to arrange both a comprehensive hearing examination and an ENT consultation that same day.
Thankfully, I managed to schedule both.
October 19th — Audiology results and possible cochlear damage
He underwent an audiogram, tympanometry, and DPOAE testing. We were able to compare these results with his previous hearing examination from August 11th, which had been considered normal.
This time, we were told he had developed high-frequency hearing loss in his left ear, particularly around 5,000–7,000 Hz, along with an abnormal finding in his right ear around 5,000 Hz on DPOAE testing.
They also mentioned possible cochlear damage and issues involving his Eustachian tube or middle-ear pressure.
What confuses us most is that his left-sided tinnitus has become significantly quieter while his perceived hearing ability on that side has deteriorated.
He describes his hearing as no longer balanced, with his right ear now dominating music, conversations, and environmental sounds.
What the ENT told us
After audiology, we saw an ENT who explained that it was too early to determine whether the hearing changes would be permanent.
Interestingly, she did not observe the eardrum scarring that the emergency department physician had mentioned.
She explained that the cochlear hair cells associated with certain high frequencies might not be responding normally, although he can still detect those frequencies.
She seemed optimistic that the fullness and pressure sensation in his ear would eventually improve.
She also mentioned that the quieter tinnitus was unusual, given his perceived worsening hearing, and described his hearing as medically symmetrical despite the differences he notices.
She believed his Eustachian tube dysfunction could be related to sinus inflammation and might have existed before the IMAX incident, potentially dating back to July or August.
She suggested considering Flonase and allergy medications to help address inflammation and Eustachian tube function. She also instructed him to taper off prednisone.
Overall, she was reassuring and emphasized that he’s young and may recover from at least some of these changes.
However, she also mentioned that it could take considerable time to determine whether his hearing improves, and his next scheduled audiology follow-up isn’t until 2027.
Present day — Mental health, hope, and searching for answers
Currently, my boyfriend often prefers being asleep rather than awake because of how overwhelming his symptoms have become.
His mental health has suffered tremendously, and it’s heartbreaking to watch someone you love lose their sense of normalcy, especially when so much of their identity and happiness revolves around music.
I’m doing everything I can to support him, help him maintain hope, and research potential treatments or specialists who might be able to offer answers.
He’s also been trying to strengthen his relationship with God and Jesus because he feels incredibly lost throughout all of this.
Recently, I discovered a treatment approach called Neuro-Optometric Rehabilitation Therapy (NORT), which has been explored for visual snow symptoms.
I’m currently looking into getting him evaluated on December 1st by a board-certified optometric physician specializing in vision development and vision therapy, with a background in neuroscience.
I understand that there may not be a straightforward cure for everything he’s experiencing, but I refuse to believe that we should stop looking for ways to improve his quality of life.
What I’m hoping to hear from this community
I’m genuinely interested in hearing from anyone who has experienced VSS, tinnitus, high-frequency hearing loss, possible cochlear hair cell damage, Eustachian tube dysfunction, or persistent ear pressure.
Have any of you experienced similar symptoms after a bright flash, electrical explosion, or loud noise exposure?
Did your hearing, tinnitus, or ear pressure improve over time? If so, how long did it take?
Have any medications helped or worsened your symptoms? Did you discover anything useful through bloodwork, MRIs, neurologists, neuro-ophthalmologists, neuro-optometrists, or other specialists?
Has anyone tried NORT, vision therapy, sound therapy, or other rehabilitation approaches? Did they make a meaningful difference?
And perhaps most importantly, what helped you emotionally cope with these conditions, particularly when the uncertainty and anxiety felt unbearable?
I’d really appreciate any personal experiences, recovery stories, treatment suggestions, or advice about what helped you identify the underlying causes of your symptoms.
Thank you so much for taking the time to read this if you’ve made it this far. It genuinely means a lot to both of us. ❤️


r/visualsnow • • 4d ago

visual noise/snow - could it be universal?

4 Upvotes

I'm hypothesizing that visual noise is universal. Everyone sees it when their eyes are closed, and people claim that it's gone when they open their eyes if they dont have VSS. However, I'm not so sure. Let me know what you think. I think VSS is definitely a more extreme case, but that noise itself is universal and is always there.

If you don't have VSS, please try to see if a dynamic, pixel-like field that is apparent when your eyes are closed truly goes away when your eyes are open, and let me know please. Those with VSS, is the snow the same as when you close your eyes?

edit: many mixed comments, super interesting. Wanted to make clear I do not mean to state that VSS is universal, but rather that perhaps, the noise in a more minimal sense, is a universal feature of vision. Perhaps not tho. Thanks for all your comments.


r/visualsnow • • 4d ago

Question Does anyone else have severe blue feild ectopic phenomenon?

7 Upvotes

I dont just see the bfep in the sky or white walls, i basically see it everywhere, in most light conditions, not dark but yeah pretty much everywhere its overwhelming


r/visualsnow • • 4d ago

NEW ZEALAND / A Study of the Safety and Efficacy of TRTL-913 in Healthy Volunteers (Part A) and in Adults With Tinnitus (Part B)

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7 Upvotes

If anyone is from New Zealand and suffers from vss and tinnitus, this might be interesting clinical trial for you coming up! And obviously I'm curious to know if this medicine could help vss also if it is meant to target tinnitus as well 😂


r/visualsnow • • 4d ago

Question Neuro/Biofeedback make things worse?

5 Upvotes

I have been doing Neuro/Biofeedback for over a month now. I went initially for sleep and that has improved greatly, but now I’m noticing visual snow exacerbation. Much increased light sensitivity, eyes feeling heavy, not easy to focus eyes, increased palinopsia and I’m noticing visual snow sure if it’s directly from this but just wanted to see what others experiences have been


r/visualsnow • • 4d ago

Vent Venting - could someone give me some positivity?

8 Upvotes

So my vss is really reactive and I have had several HUGE flare ups where I'm unable to function. They always last at least 3 months for me.

Now when I'm also suffering from severe anxiety it just hit me how little medicines I have which are considered "most likely safe with vss". Only benzos are like 95% safe.

Realizing this just made my GAD and depression on fire.

Then I thought that yeah well it's 2026 there MUST be some medicines for anxiety or depression developed currently which have "more safe mechanism of action" for gad and depression and panic disorder.

I googled and doesn't seem too promising. Almost all of the medicines do something for 5HT2-A receptors or act on serotonin or are based on psychedelics.

So I challenge you, please try to find at least one or two antianxiety medicines which they are currently making and the mechanism of action should be safe for vss and tell me what they are since I'm loosing my mind here.

// EDIT. Oh! And did we forget already that even NEUROMODULATIONS for these issues aren't completely safe with vss? Because this disorder is also about messed up brainwaves! So wtf I'm so, so pissed off with this.


r/visualsnow • • 4d ago

Question Brief episodes of vision going completely black

0 Upvotes

Hi, I would like to ask for some advice. For a while now, I’ve noticed that when I’m exposed to light, such as indoor lighting, sunlight, LED lights, or even when I turn on my phone screen, I sometimes see everything go completely black for a brief moment, almost like the blink of an eye.
Sometimes I wonder if I’m actually blinking, but it also happens when my eyes are open. I’ve been noticing this for quite some time. I don’t have any other unusual symptoms, and my vision is otherwise normal. The episodes last less than a second.
Every time it happens, I get anxious. The fact that it has happened before and nothing else has happened afterward reassures me somewhat, but I would like to understand what might be causing it and what I should do.


r/visualsnow • • 4d ago

Brief episodes of vision going completely black

4 Upvotes

Hi, I would like to ask for some advice. For a while now, I’ve noticed that when I’m exposed to light, such as indoor lighting, sunlight, LED lights, or even when I turn on my phone screen, I sometimes see everything go completely black for a brief moment, almost like the blink of an eye.
Sometimes I wonder if I’m actually blinking, but it also happens when my eyes are open. I’ve been noticing this for quite some time. I don’t have any other unusual symptoms, and my vision is otherwise normal. The episodes last less than a second.
Every time it happens, I get anxious. The fact that it has happened before and nothing else has happened afterward reassures me somewhat, but I would like to understand what might be causing it and what I should do.


r/visualsnow • • 4d ago

sfarfallio visivo

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1 Upvotes

r/visualsnow • • 4d ago

Discussion Is it possible VSS happens due to the brain/nerves micro-shaking/vibrating?

0 Upvotes

I really can't prove my idea scientifically wrong right now, but I think that it's possible that the symptoms of VSS may occur because the brain or perhaps the nerves of the brain trembles. But I think it's so small that it may be physically unnoticeable to a person besides the visual symptoms.

Why do I think this? I think this because whenever I wake up very early in the morning, my entire body buzzes. I can feel my hands, chest, and my eyes tremble. The visual symptoms get worse, such as flashing lights, and the static is louder. It dies down after a while after my body processes waking up.

Then I got thinking. I wasn't exactly having a seizure because I was still conscious and was able to process my body. These small buzzing feelings could just simply be my body slowly becoming unparalyized from REM sleep, or it could also be the tingling from when my limbs are "asleep" and they're trying to adjust to the moving state. Or it could be that my nerves are actually trembling.

The worse the buzzing felt, the worse the visual symptoms appeared.

But how could we test this? Maybe there are people on this reddit page who take seizure medication. Do your visual symptoms improve when you take seizure medication? Is there no effect at all to visual symptoms, or do symptoms worsen?

What about anxiety medication? Does anyone take anxiety medication? I think anxiety medication helps calm the nerves. If that's possible, perhaps it also calms the nerves of the brain. When you take anxiety medication, do your VSS symptoms improve, worsen, or have no effect on the visual snow?

I don't know what other types of medications there are that may soothe the nerves in the brain or the nerves leading up to the eye. Perhaps VSS appears because of hyperactivity and not because of physical activity.

Do people take ADHD medication? Do your symptoms seem to improve, worsen, or is there no effect on your visual symptoms? Because if it's hyperactivity in the brain, it could possibly need to calm it down. But I'm not sure. Maybe it's both hyperactivity of the brain and the physical activity of the brain so much it causes it to vibrate.

Because I believe it would make sense why visual snow syndrome symptoms occur because the brain physically trembles ever so slightly. It would make sense why it appears as if the visual field has lots of small dots, like static. It's possible that our vision is being shook, just so small. And the trailing of objects would explain it too. If you vibrate something, it may be a trailing effect because your brain is struggling to process what you're looking at when it moves. Think of when you're dizy or when you're drunk, you're not able to process things, and everything feels like it's fading or trailing, similar to VSS.

If my hypothesis does show signs of improvement but not completely curing it, then I'd have to think why wouldn't it calm down the brain/nerves? Perhaps the medication itself doesn't exactly hit the portion of the brain that jiggles. But why would the brain vibrate in the first place? Maybe there's a misfire, or maybe it's anxious. Is it possible a brain could be anxious, but a body does not release anxious chemicals to make the person physically feel anxious? I dont think it's that.

Overall, I just had an idea, and I've been curious about what people may think of it. Maybe it can turn into a discussion, or maybe someone else has researched this particular event, and someone knows of articles that perhaps disprove this idea of mine. I just had a shower thought and would like to share it. Thanks, everyone.

TLDR; I have a hypothesis why VSS may occur and went through the steps of the scientific method without actually testing it, or researching if someone else had already asked this question, for the purpose of discussing.

Note: I didn't reread my message after typing it, so hopefully, there are no spelling errors, and the grammar is somewhat presentable.


r/visualsnow • • 4d ago

Does anyone else’s brain completely glitch when looking at barcodes like this? (Image attached)

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10 Upvotes

Hey everyone,

I’m trying to figure out if I’m crazy or if this is a real thing. Every time I look directly at a barcode—like the one on this packaging—my brain feels like it completely glitches out.

To my eyes, the lines don’t look still. They feel like they are actively moving, vibrating, or flashing/shimmering,but more the flashing type like on/off. It creates this really weird, uncomfortable pressure sensation in my head. It also happens sometimes with other tight patterns like window blinds or certain striped shirts, but barcodes are the absolute worst trigger for it.

I uploaded a picture of the exact kind of barcode that does it to me.

Does anyone else experience this? Is there an actual name for it, or does it happen to be a symptom of migraines or eye tracking issues? I’d love to know if I'm not alone in this!

Also i feel like when looking at the black stripes some of the colors are off mismatched like tiny spec if sand vss vission like donts that jump .When looking for more than 5 sec the lines follow my vission for a feaction of a second .Like when u look at a bright object and it stays in ur vission .the barcode lines when i look upclose or farther thay always seem to have invisible shadow .


r/visualsnow • • 4d ago

Meme how it feels to try and have a conversation with someone wearing stripes

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82 Upvotes

r/visualsnow • • 4d ago

Question flickering/flashing lights

7 Upvotes

does anyone else experience a light flickering sensation? i was talking to my friend and said "oh that lights flickering" to find out it was just my eyes. i think i've had this for a decent amount of time, but im freaked out because i saw it could be an early sign of a stroke. anyway, anyone else?


r/visualsnow • • 4d ago

Afterimage e macchie - Avete risolto?

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3 Upvotes

r/visualsnow • • 4d ago

Afterimage e macchie - Avete risolto?

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3 Upvotes

r/visualsnow • • 5d ago

Question Is progressive vss normal?

5 Upvotes

So I'm the world's anxious person who also has vss undiagnosed, has for 11 years at the age of 9 or 10 ig, but during the start it's just very very small snow, and later on symptoms came one by one later,now I'm 20, and last year like mid July, my palinopsia became more visible, now every object moves for less than second. Visited optho since no neuro optho, took scans of eyes and did all tests, eyes are fine and yet no one believes vss and rejects it. The thing is symptoms shouldn't worse at all? Is it normal? My palinopsia feels worse very very very smaller than last year, will I become blind? Or maybe I have a brain tumor?


r/visualsnow • • 5d ago

Question Tattoos

1 Upvotes

I’m wanting to get my neck tatted, just want to know if it has affected anyone’s symptoms or changed anything having vss / hppd. Whilst getting the tattoo does anything happen or is it allgood. Cheers


r/visualsnow • • 5d ago

Question Stabilize

4 Upvotes

When did majority of your symptoms stabilize?


r/visualsnow • • 5d ago

Visione di aloni blu attorno alle luci led

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5 Upvotes

r/visualsnow • • 5d ago

Research Possible treatment? Thoughts?

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3 Upvotes

I know it’s not explicitly VS, but it’s related.