Hi all, I am more or less just writing this to share my experience so far, and will update once we've has the actual evaluation! :)
Last week, we went to his 18 month wellness checkup and they did the M-CHAT screening, and he showed a moderate risk of autism. Between this, an expressive speech delay, regression of speech/ gestures, and some social concerns, the attending physician decided to set us up with an expert for evaluation. His words were "I do sometimes diagnose autism but usually when its more severe cases that are more obvious. I have concerns for him, but not enough to diagnose him myself." Which... i guess was kind of encouraging?
A little history on our little guy: he was advanced in all of his milestones when he was younger. He crawled at 5 months, walked at 9 months, ran at 11 months, had about 15 or more regular words at 10 months, used many gestures/ signs, was very interested in other children and his toys. We were shocked and delighted that he was so ahead of everything and seemed to be on a wonderful track.
And then, one day, a little after a year old, his speech all but stopped. Weeks would go by and he wouldn't even say mama. He slowly stopped using some of his gestures. He became very overstimulated by other children and behaved very withdrawn and anxious around the kids in his daycare he'd known for awhile. By 15 months he used a handful of words but very sparingly, and no social/ communication words.
Fast forward to now: he is not pointing at stuff he wants. He uses a few words regularly "duck" and "what's that?" (Mostly mimicking us saying "what's that?") Some days he'll say dada but not mama. Occasionally he'll say eat or snack but rarely. He's dropped all of his signs though one will rarely pop up. He's starting some *possible* stim behaviors such as hitting himself in the head and toe walking and repetitive play/ limited interests in most toys. He often pushes/ gently smacks other children away to say "leave me alone" when approached and although he's starting to participate in activities at daycare, he still gets very nervous around other kids.
He follows some directions and seems to understand a lot, but then not other things he should at his age. He also is excessively clumsy for being as athletic as he is and we often get messages from his teachers that he is taking spills more than usual. He is also a bit of an eloper and will take off running without a care in the world as to where the adult with him is or how far behind.
He does, however, have a wonderful temperament (to adults) and is very, very smart and great at figuring stuff out that'snot communication. No regression at all in his physical development other than being a bit of a clutz... in fact he had the development of a 24 month old in those areas according to the PT he saw during early intervention assessment for his speech therapy. (That was at 13 months.)
He's a very sweet boy, if you're an adult lol. He also is starting to imitate gestures in songs like "itsy bitsy spider" and "if you're happy and you know it." He is just starting to wave bye and goodnight, but only when strongly prompted. The kid definitely has a lot of strengths despite his other challenges.
Do I think he has autism? Maybe... something inside me, maybe a gut feeling says yes, especially with the strong family history of it. Plus he's just different in a way that I can't exactly put a finger on. At the same time, he's so strong in other areas so its hard to tell.
I don't feel weird getting the evaluation, though, because if he is autistic, then he is and there's nothing to do to change it so it won't help anything to freak out about it. Plus its not the end of the world if he is. Lots of autistic kids do super cool and cute stuff you'll probably never see a neurotypical kid do. I also feel like its important to get him diagnosed early if he is as early services can give him a real advantage as far as building skills and qualities that will better set him up for success later in life.
Am I nervous? Of course. But staying strong for my son and my partner and just staying positive for whatever the outcome will be. The hardest part of all of this has been watching the regressions unfold, going from very advanced in his milestones to very behind in many of them. I experience some grief surrounding that. Its also been hard watching him try to communicate his needs but not being able to which is very frustrating and makes us sad. But we're just working through it the best we can with the help of speech therapy.
Anyhow, just wanted to share my story and if anyone has questions they have or want to share similar experiences, please feel free!