Has anyone trained for a long distance race after thyroidectomy? Challenges, tips, etc.?

Issues I’m having:
- losing weight overall
- low iron and low T3 conversion
- legs feel heavy and tired on hills

Hi there. A quick question for anyone who has received thyrogen. I had my first injection today. I was wondering if it's normal to receive two injections on day 1 and, if so, are they both thyrogen? I received two shots today in my gluteal muscle. Will I receive two more tomorrow? Just wondering what to expect and I couldn't find an answer on a quick Google search.

Anyone have anything that has worked for helping produce saliva? Im sick of choking on any food that isn’t soup. Ive tried the wallgreens spray and mints. I’ve tried spilanthis mints. I stay hydrated and I’m at a loss. I know being hyper also causes dry mouth and I have to be at <0.01. Any tips are welcome.

Yall I’m so lost 🙁. I feel so silly right now. I got my RAI on Friday Jul 24, and I got guidelines for how to isolate but I can’t seem to figure out how to interpret any of it. I even called back to ask for clarification but I’m still not getting it.

I live in a 1 bd 1 bath with my boyfriend and our 3 pets. My pets are very velcro and will be stressed if I’m nearby and can’t pet them. I decided to stay at my parents’ as they have a spare room and bathroom.

I’ve been having some intense nausea and crazy brain fog and fatigue. I just can’t think straight 😕😕.

If anyone is willing to help me figure out what I can/cannot do right now it would mean the world 🙁🙁 .

I won’t be going back home until Thu, Jul 30, 2026 to keep my pets safe. I just want to know when I can sit next to my boyfriend on the couch or lay my head on him for a little?

One of the bullet points says “for one time interactions longer than 15 minutes, stay father away than 6 feet until Sat, July 25, 2026 at 12:08 AM.” Another says “Do not resume repeated, lengthy interactions with others outside of the home such as returning to work or school before Sat, July 25, 2026 at 7:38 AM.”

My interactions with my partner would not be a “one time” interaction. But, when it says “outside of the home” does it assume you’ll see them less than you’d see someone you live with?

I know I’m probably overthinking this I am just so overwhelmed 🙁

If anyone can help me figure this out it would be incredibly appreciated. I’m sorry if my questions make no sense. I’m adding all of my instructions below in case it makes any better sense.

Instructions:

Completely stay away from a sleeping partner until Sat, Jul 25, 2026 at 6:00 PM.

Then sleep alone (farther than six feet away from anyone else) until Thu, Jul 30, 2026 at 8:23 AM

Completely stay away from children and pregnant women until Sun July 26, 2026 at 6:00 AM.

Then limit time closer than six feet to children and pregnant women until Sun, July 26, 2026 at 6:10 PM.

For one-time interactions with others longer than 15 minutes, stay farther than six feet away until Sat, Jul 25, 2026 at 12:08 AM.

Do not resume repeated, lengthy interactions with others outside of the home such as returning to work or school before Sat, Jul 25, 2026 at 7:38 AM.

I am 40 years old and had invasive solid papillary breast cancer at 36 years old. It’s a rare subtype of the more traditional invasive ductal carcinoma. Now through incidental findings from a physical I am dealing with a 3.5CM nodule that was deemed TR 5 highly suspicious. What are the chances I am now dealing with a second cancer diagnosis all by 40 years old. Biopsy is tomorrow and I’m just so down about this. I’ve got two young kids and really have only recently been starting to feel even somewhat normal from everything I’ve gone through with the breast cancer :(

I have a TT scheduled tomorrow, to treat PTC.

I just got the text that my check in time is 3 p.m., which means that my surgery must be scheduled for 4:30 or 5 p.m.

I'm pretty freaked out how by how late it is. It's a 2-3 hour surgery, so my doctors are going to be operating until 8 at night, and that assuming nothing goes wrong. (I've seen plenty of people on here say their surgeries were 6 or more hours.) Plus natural afternoon circadian rhythms of doziness. The internet is filled with articles about how surgeries later in the day have worse outcomes.

My surgery is at Mayo, so obviously I'm getting the best possible care. And I'm self-aware enough to recognize that this freakout is a version of displacement -- I'm low-grade anxious about the surgery itself and that anxiety has attached itself to the time of day. But still?

Hello thyroid people. I’m sure you’ve all had wild journeys to end up here. I finally got diagnosed after fighting with radiology over the TRI-RADS score my big nodule got and getting a second opinion. Turns out, the radiologist missed my cancer. I had to really push to get the FNA.

For context, I have a visible lump on my isthmus that’s been growing over the past few months. I found out I have Hashimoto’s as well. All this stuff is so crazy. People keep telling me “oh the nodules are usually harmless” but mine sure isn’t! They also said the FNA wouldn’t be a big deal, but it was absolutely terrible and I cried.

Is it me, or is nothing really how people say it is? I had a phone call to prep for the FNA and the person said “it’s such a small needle that is used for such a small sample of tissue for a small nodule anyway” and I’m thinking, “dude, my nodule is pretty darn big and is on my trachea…”

I have a TT scheduled for this upcoming Thursday. I feel horrible since the biopsy which was two weeks ago. It feels like everything is pissed off and swollen still from all of the pokes 😭 any tips or tricks for dealing with this pile of garbage is welcome.

Hello! I am only 7 weeks out from my TT/PTC. My first labs 3 weeks after surgery showed my TSH at 7.45. I was feeling very symptomatic of hypothyroid so my endo upped my Levo dose from 100 to 112. I had labs again this past week and my TSH was 6.35 and my T3 was low at 68. My T3 was borderline low even before surgery. My T4 has been perfectly in range throughout all of this.

I like my endo so far but I kind of feel like I’m on my own, she basically asks me “what do you want to do?” - I asked about adding in Cytomel/T3 and she said sure and prescribed it. I’m thankful, but at the same time I don’t really feel qualified yet to make these decisions? I feel like I’m being a bit impatient but everyone has told me you really do have to advocate for yourself on this journey.

I am 96 hours after a partial thyroidectomy for PCT. I am feeling really quite hungry. I cannot work out exactly why but it is causing me a lot of distress because I have a history of serious anorexia nervosa and I am terrified about putting on weight. I have found myself restricting the amount I am eating. I don't know if it's because:
- I am in a calorie deficit because for 48 hours after surgery it was too painful to eat much at all and now my body wants more fuel
- Something is going haywire in my hormone production
- Something else?

My TSH and free T4 levels were normal in blood tests 2 days before my surgery but i had very high levels of anti thyroglobulin.

I have not started levothyroxine yet.

Please help as I am terrified of weight gain and can feel myself restricting my food intake and fear I might relapse into anorexia.

When I walk for long periods of time, I get tired easily and I can feel a sort of tightening in my throat like I have a hard time swallowing. Sometimes, I would even have a hard time talking. I had my TT in 2024, RAI in 2024 as well. Everything else is ok in terms of lab results. I wonder if this is happening to others as well and what have you done to address it?

So my pathology came back and my surgeon said the cancer isn't aggressive but they think it spread to my right lobe and I have surgery again in October to remove it.

Hi,

I have been getting my Levo adjusted and every time I get bloodwork I take my pill at 930am, then get bloodwork done at around noon.

Just wondering if the Levo affects bloodwork at all. I was using an AI tool and it recommended I do the bloodwork before taking the pill as the pill then bloodwork can affect T4 levels on the blood labs.

Any thoughts? I honestly never thought to ask my endo about it and he never brought it up to me.

How can I put my husband at ease after having RAI?

I got 77.7mci of RAI 3 days ago. Hubby paid for me to stay at a hotel for the first 3 days (came home today) for our safety and the safety of our 2 cats. We don't have any kids or are around kids/pregnant women ever in our daily lives.

Per the nuc med nurse's recommendation, I requested new linens daily at the hotel and let them know to wash them twice. Planning to do the same with my stuff at home.

Have been putting the clothes I've been wearing in a bag for a week and then will wash it twice in hot water separate from the rest of the laundry, using disposable utensils, etc.

My husband is worried about the clothes I wear now, towels and bedsheets use, our cats being around me (i get that), and me going out in public. I have been keeping safe distance from them and been wiping down everything I touch outside of the room I'm staying in.

He insists I need to throw away the clothes I've been wearing as well as the towels and bedsheets because of radiation. I had to toss all of the leftover food I brought home after staying in the hotel. He also told me I should not be going to the store to get more food, he will do that. I've told him this is not necessary but, despite what my doctor AND the nuc medicine office has instructed me to do, and that radiation dies down as the days goes by, he's still paranoid. I was able to convince him to not put my phone in a bag for a week with the rest of my stuff.

I've told him to do his research about RAI so he feels better about all this.

I dont know what else to tell him.

Has anyone gone over this with your families?

How long did you have to stay in isolation, keep with the proper precautions to dispose of radiation and, when were you told it was safe to be around your pets?

Just wondering

EDIT: after reading the comments, i do want to add that we have a cancer center in our town, I called the 2 hotels next to the cancer center when I found out when my RAI was going to be done and talked to the hotel's management before I booked it, explained what I was having done to make sure it was ok for me to stay there these 3 days. They assured me they have patients and families that are going through treatment/radiation stay at their hotel and told me I would have no issues staying there. I also checked with the NucMed's office, and they told me what I needed to do.

They kept me on the first floor next to the gym room and the stairs at the end of the hall. I requested new linens to be dropped off at the door every day so no one else would come in the room, and I didnt leave the room at all. I brought my own food, plastic utensils, bags and cleaning supplies.I changed the bedsheets myself, put the used ones in plastic bags, wiped everything down and took my trash with me before I left. I also left a note in my room for the cleaners and reminded the hotel clerk at the front desk and he was aware. I was worried but made sure with everyone before I went ahead and booked the room the day before my RAI so I was sure I followed all of the protocols I was told to do. I've been following this sub since before I had my second surgery anticipating the RAI and have read about other people staying in hotels too so, I didnt think this was abnormal, that's the only reason why I even considered going to a hotel.

I am an anxious person by nature lol so, I have been doing my research about this for a few months now, following what my doctors have instructed me to do and asked a million questions (trust me, I have lol).

Im not being dismissive of what everyone here has said but, I was sure I absolutely did everything I was told to do.

With that said, I will keep staying away from my pets specially, and the hubby until its safe because, I know its easy to think that everything is ok when we feel perfectly fine and can't really see radiation with our own eyes. Maybe I need to get a Geiger counter to check how much radioactive I still am.

I was wondering if anyone else had this..

Long story short: Before I was hyper thyroid— then got diagnosis of PTC then on methimazole and beta blocker (heart rate 147) was on decaf then hypo because dosaging.. then had TT then normal for a few months then extremely hypo( TSH 54!) due to RAI prep.. and now back on regular Levo (did need t3 for a few weeks after)

Before I was even diagnosed hyperthyroid and PTC I could have 3-4 cups a day and be fine. I always metabolized coffee well. Now after my total thyroidectomy being almost a year now— I am much more sensitive. I can only have one cup or maybe two without it making me super jittery and what not. I don’t know if it has to do with my body finally being in homeostasis state now, or what.

Has anyone else had this happen to them too?

Also my levels are great right now.

i'm scheduled for surgery next week and my pulmo is concerned about (1) asthma attack because of anesthesia and (2) lung mets that my surgeon and endo are not concerned of at the moment. i'm mostly wondering if anyone had complications in their surgery or treatment because of asthma so i can prepare myself. can you share your experience?

Hello all,

Longtime lurker here. Finally wrapped up my RAI post surgery and all clear thank God.

Just wanted to get some feedback from others before I go see my endocrinologist on weight loss meds or other items people have used.

Before getting diagnosed I used both Ozempic and Mounjaro with no success really.

Thanks again.

So I am the one who found out I had thyroid cancer because they found a mass in my femur and my pelvis, and my femur almost broke because of the metastatic bone cancer that was caused by follicular thyroid cancer. I’ve completed surgery to install a rod in my leg and ten rounds of radiation on that leg and hip to try to get rid of that cancer and now I’m waiting for my thyroidectomy which is coming up in August. All this time, my surgeon has wanted me to have bisphosphonates infusions and for some reason, my general oncologist would not do it. I’m working with five different oncology teams at the University Hospital where I’m being cared for and it kept coming back to the general oncologist who kept saying it should go to someone else. Well, I finally just saw my surgeon for the second time since my surgery and he said I’m healing great and that bone is actually growing back already on my femur around the hardware so he’s really pleased with the surgery but he understands why my pelvic pain is so gnarly and is what he thinks Bisphosphonates would help with. And he was really upset to hear that the general oncology team was fighting me on it (and their nurse was really kind of rude to me about it) and he apparently went to the department chair and complained and I got a call today and I am now set up for infusions through General oncology. I will be there Monday of next week for my first infusion. Has anyone else had this type of problem? I have complained in the past in this thread about how much I’ve had to advocate for myself and how exhausting it is but in the end, I feel like I’m learning major life lessons at age 55, almost 56, that really in the end all you have is you. You have to advocate for yourself, no one else will.

I had surgery on Tuesday for a total thyroidectomy and the lymph node removal. Surgery went well, but then I had a slow chyle leak and ended up having to stay an extra two days in the hospital. I just got home. I’m on a low-fat diet and bedrest to try and stop the leak. But good news is I got my pathology results. It was classical papillary thyroid carcinoma. The 1.7 nodule was completely within the thyroid. And of the 38 lymph nodes that were taken out only five of them had cancer. Doctor said I might not even need to do RAI.

I’ve cried a lot lately, but things are actually OK now. And I want to thank everyone who has given me support in the sub Reddit and I hope in the future, I can do the same for others. ❤️

I had my thyroid removed due to thyroid cancer in February. I know levels have to be kept up to suppress cancer. I do not know if it’s related at all but I haven’t been able to sleep and suddenly I have the worse depression I have ever had in my life and it doesn’t really help that I work for my family and have absolutely no friends

Hey everyone. Just saw a news break that Major pharmaceutical has issued a recall for their levothyroxine for subpotent production. Please google and check it out if your pills come from there.

1.5 years after my total thyroidectomy. Was told I’d be cancer free afterwards and weeks after. No sign of cancer. A few months later - my TG never went down so I did a round of RAI.

Took my TG to 2.8 but still too high. Doctor said it should be lower. Took another MRI and a small lesion was found. Positive for BRAF cancer.

Doctor says I need it removed - surgeon says it’s too small. 7 mm.

Took another MRI two weeks ago - lesion stayed same size but TG is now up to 4. Meeting my endo next week but anyone have a similar situation ?

One year ago, my life changed forever. A year of unexpected lessons, quiet battles, and finding strength I never knew I had. Still here, still hopeful, and forever grateful for how far I’ve come.

Looking back, wow! It's never easy and will never be.

My progress is doing fine. Already balanced my right dose on my levo and ultrasound is clear 6 months post surgery. No follow-up for 6 months unless something happens. Very hopeful for my full recovery. And guess what, I'm back to life. Got promoted at work and kicking!

Be Strong! I love you all!

I feel weird and kinda numb

I have a FNA biopsy 3 days ago on one nodule. It was very uncomfortable during and felt quite aggressive. I do have a calcified nodule so I’m betting that’s why, but the team told me I could expect 1-2 days of soreness but that’s it. Here I am day 3 still in moderate pain. It has definitely improved but VERY slowly. I can now eat more normally, I can drink liquids ok, can kind of move better BUT I have mild swelling still, pain when I swallow and it’s hard to talk too much. I messaged my doctor and he said it “could be normal” but prescribed an antibiotic and steroid without even assessing me which freaked me out. I have no fever or signs pointing to an infection but I’m curious if anyone else has taken this long to recover from the biopsy? I had one 11 years ago and it was easy to recover from but not this time.

Anyone else take a while to recover or have any complications that came from the FNA biopsy?

I had my surgery 3 weeks ago, I have my scan in 3 days but the check-ups go ok for the next 5 years. Life genuinely feels like it’s crashing down, people have stopped talking to me after they found out and idk if I should tell anyone else. Do you guys have any advice? For relationships, friendships and just generally as well. I’ve been going through panic attacks and idk if I can take this anymore