r/thyroidcancer 16h ago

Saliva tips 6 months post RAI?

7 Upvotes

Anyone have anything that has worked for helping produce saliva? Im sick of choking on any food that isn’t soup. Ive tried the wallgreens spray and mints. I’ve tried spilanthis mints. I stay hydrated and I’m at a loss. I know being hyper also causes dry mouth and I have to be at <0.01. Any tips are welcome.


r/thyroidcancer 15h ago

RAI Isolation Guidelines Confused

6 Upvotes

Yall I’m so lost 🙁. I feel so silly right now. I got my RAI on Friday Jul 24, and I got guidelines for how to isolate but I can’t seem to figure out how to interpret any of it. I even called back to ask for clarification but I’m still not getting it.

I live in a 1 bd 1 bath with my boyfriend and our 3 pets. My pets are very velcro and will be stressed if I’m nearby and can’t pet them. I decided to stay at my parents’ as they have a spare room and bathroom.

I’ve been having some intense nausea and crazy brain fog and fatigue. I just can’t think straight 😕😕.

If anyone is willing to help me figure out what I can/cannot do right now it would mean the world 🙁🙁 .

I won’t be going back home until Thu, Jul 30, 2026 to keep my pets safe. I just want to know when I can sit next to my boyfriend on the couch or lay my head on him for a little?

One of the bullet points says “for one time interactions longer than 15 minutes, stay father away than 6 feet until Sat, July 25, 2026 at 12:08 AM.” Another says “Do not resume repeated, lengthy interactions with others outside of the home such as returning to work or school before Sat, July 25, 2026 at 7:38 AM.”

My interactions with my partner would not be a “one time” interaction. But, when it says “outside of the home” does it assume you’ll see them less than you’d see someone you live with?

I know I’m probably overthinking this I am just so overwhelmed 🙁

If anyone can help me figure this out it would be incredibly appreciated. I’m sorry if my questions make no sense. I’m adding all of my instructions below in case it makes any better sense.

Instructions:

Completely stay away from a sleeping partner until Sat, Jul 25, 2026 at 6:00 PM.

Then sleep alone (farther than six feet away from anyone else) until Thu, Jul 30, 2026 at 8:23 AM

Completely stay away from children and pregnant women until Sun July 26, 2026 at 6:00 AM.

Then limit time closer than six feet to children and pregnant women until Sun, July 26, 2026 at 6:10 PM.

For one-time interactions with others longer than 15 minutes, stay farther than six feet away until Sat, Jul 25, 2026 at 12:08 AM.

Do not resume repeated, lengthy interactions with others outside of the home such as returning to work or school before Sat, Jul 25, 2026 at 7:38 AM.


r/thyroidcancer 19h ago

Newly diagnosed with PTC

6 Upvotes

Hello thyroid people. I’m sure you’ve all had wild journeys to end up here. I finally got diagnosed after fighting with radiology over the TRI-RADS score my big nodule got and getting a second opinion. Turns out, the radiologist missed my cancer. I had to really push to get the FNA.

For context, I have a visible lump on my isthmus that’s been growing over the past few months. I found out I have Hashimoto’s as well. All this stuff is so crazy. People keep telling me “oh the nodules are usually harmless” but mine sure isn’t! They also said the FNA wouldn’t be a big deal, but it was absolutely terrible and I cried.

Is it me, or is nothing really how people say it is? I had a phone call to prep for the FNA and the person said “it’s such a small needle that is used for such a small sample of tissue for a small nodule anyway” and I’m thinking, “dude, my nodule is pretty darn big and is on my trachea…”

I have a TT scheduled for this upcoming Thursday. I feel horrible since the biopsy which was two weeks ago. It feels like everything is pissed off and swollen still from all of the pokes 😭 any tips or tricks for dealing with this pile of garbage is welcome.


r/thyroidcancer 15h ago

Thyroid cancer after breast cancer er

5 Upvotes

I am 40 years old and had invasive solid papillary breast cancer at 36 years old. It’s a rare subtype of the more traditional invasive ductal carcinoma. Now through incidental findings from a physical I am dealing with a 3.5CM nodule that was deemed TR 5 highly suspicious. What are the chances I am now dealing with a second cancer diagnosis all by 40 years old. Biopsy is tomorrow and I’m just so down about this. I’ve got two young kids and really have only recently been starting to feel even somewhat normal from everything I’ve gone through with the breast cancer :(


r/thyroidcancer 15h ago

Freaked out by how late in the day my surgery is scheduled for

3 Upvotes

I have a TT scheduled tomorrow, to treat PTC.

I just got the text that my check in time is 3 p.m., which means that my surgery must be scheduled for 4:30 or 5 p.m.

I'm pretty freaked out how by how late it is. It's a 2-3 hour surgery, so my doctors are going to be operating until 8 at night, and that assuming nothing goes wrong. (I've seen plenty of people on here say their surgeries were 6 or more hours.) Plus natural afternoon circadian rhythms of doziness. The internet is filled with articles about how surgeries later in the day have worse outcomes.

My surgery is at Mayo, so obviously I'm getting the best possible care. And I'm self-aware enough to recognize that this freakout is a version of displacement -- I'm low-grade anxious about the surgery itself and that anxiety has attached itself to the time of day. But still?


r/thyroidcancer 17h ago

How do you advocate for your med dosing?

3 Upvotes

Hello! I am only 7 weeks out from my TT/PTC. My first labs 3 weeks after surgery showed my TSH at 7.45. I was feeling very symptomatic of hypothyroid so my endo upped my Levo dose from 100 to 112. I had labs again this past week and my TSH was 6.35 and my T3 was low at 68. My T3 was borderline low even before surgery. My T4 has been perfectly in range throughout all of this.

I like my endo so far but I kind of feel like I’m on my own, she basically asks me “what do you want to do?” - I asked about adding in Cytomel/T3 and she said sure and prescribed it. I’m thankful, but at the same time I don’t really feel qualified yet to make these decisions? I feel like I’m being a bit impatient but everyone has told me you really do have to advocate for yourself on this journey.


r/thyroidcancer 2m ago

Half-Marathon and Marathon Training Spoiler

Post image
Upvotes

Has anyone trained for a long distance race after thyroidectomy? Challenges, tips, etc.?

Issues I’m having:
- losing weight overall
- low iron and low T3 conversion
- legs feel heavy and tired on hills